Lupus is a disease which will impact your quality of life. Sometimes the impact is not for the better. Does this mean you should give up trying to live a full life? In today’s episode, Gwen shares some of the things which impact your quality of life while living with lupus and how to handle them. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. Get your lupus mugs! https://www.thegwenalexander.com/the-online-store How to connect with...
May 22, 2023•18 min•Ep. 75
In last weeks episode, Gwen shared her experience with having surgery. In today’s episode, she shares her recovery journey and the weekly goals she set to help her. Were there any lupus flares? Were there any complications? Take a listen to find out. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com YouTube: https://www.youtube.com/@thelupuslivingpodcast Website: t hegwenalexa...
May 08, 2023•22 min•Ep. 74
Lupus and having surgery. In today’s episode, Gwen shares what has happened in the past seven months of her life. She talks about the unexpected surgery she had and what led to this. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com YouTube: https://www.youtube.com/@thelupuslivingpodcast Website: t hegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcas...
Apr 24, 2023•25 min•Ep. 73
Is there such a thing s living a normal life? In today’s episode, Gwen shares more “lupus normal” life activities that people living with lupus deal with. The lupus journey contunes. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com YouTube: https://bit.ly/LupusLivingPodcastYouTubeChannel Website: t hegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodca...
Aug 01, 2022•12 min•Ep. 72
Saying no and setting boundaries can be hard. When you have lupus, this is a skill we learn to manage our symptoms. In today’s episode, Gwen shares two books that have helped her deal with being a codependent person. These books set the foundation to be able to say no when needed and set boundaries in relationships to help her stay as mentally and physically healthy as possible. Books mentioned in the podcast: Codependent No More-How to Stop Controlling Others and Start Caring for Yourself (Melo...
Jun 27, 2022•14 min•Ep. 71
Living with a chronic illness is hard; its even harder trying to describe what it's like to live with it. In this episode of the Lupus Living Podcast, Gwen shares what listeners wish you knew about living with this disease. Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com YouTube: https://bit.ly/LupusLivingPodcastYouTubeChannel Website: t hegwenalexander.com/lupus-life-podcas...
Jun 20, 2022•14 min•Ep. 70
Romantic relationships can be complicated. Throw in a chronic illness and it gets more complicated. In this episode of the podcast, we talk about topics of being single and dating with lupus. Also, how lupus affects long term romantic relationships.
May 16, 2022•16 min•Ep. 69
People living with lupus have the power to be invisible. Lupus is known as an invisible disease because many of the symptoms can not be seen on the outside. Many of us living with lupus are also good at hiding our symptoms. In today’s episode, you’ll find out what we can learn from the X-Men characters how to live with an invisible “superpower.” Get the book “Living Life with Lupus”: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@th...
Apr 11, 2022•10 min•Ep. 68
Trigger Warning: Today’s episode I cover discuss death and estate planning, domestic violence and issues pertaining to end-of-life decisions. If any of these topics are difficult for you to listen to, I recommend skipping this episode or listen at a time you feel you are ready to deal with these topics. In today’s episode, the subject of estate planning will be covered. Gwen will share what she has learned by being an executor of an estate and from working in the financial industry for over 20 y...
Mar 28, 2022•19 min•Ep. 67
Are you an active patient or passive patient when it comes to your doctor visits? Being a passive patient isn’t a negative but it could hamper your doctor in working with you to make decisions about your lupus care. In today’s episode, Gwen shares the importance of taking an active role in your healthcare. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t ...
Mar 14, 2022•14 min•Ep. 66
Lupus and comfortable are not two words that are usually used together. In today’s episode, Gwen shares how having her blood drawn helped her realize she’s in a comfortable place with lupus. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcast Instagram: instagram.com/thegwen1685...
Feb 28, 2022•9 min•Ep. 65
It is possible to accomplish your goals and live a life with lupus. It may take some work, but it can be done. In today’s episode, Gwen shares an article by Meghan Beaudry on how to accomplish your goals despite having lupus. Article by Andrea Beaudry: https://lupus.net/living/accomplish-goals Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexand...
Feb 14, 2022•13 min•Ep. 64
What comes to mind when you hear someone had shingles? Two words to describe shingles is lots of itching and pain. In today’s episode, Gwen shares how she mistook the symptoms of shingles for a lupus flare. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcast Instagram: instagram...
Feb 01, 2022•13 min•Ep. 63
Today’s episode is a bonus episode. It’s about a type of exercise called Low Intensity Steady State or LISS for short. Gwen shares the episode from The Losing Weight to Gain Control Podcast. The information provided gives another option for those living with lupus to try and stay active. Visit the Lupus Living Merchandise Online Store: https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Ha...
Jan 26, 2022•12 min•Ep. 62
One aspect of lupus is dealing with pain. That could be joint pain, muscle aches or headaches. In today’s episode, Gwen shares how she deals with pain and also when it’s time to talk to your doctor about it. Visit the Lupus Living Merchandise Online Store: https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t...
Jan 17, 2022•14 min•Ep. 61
When a train gets off track it is not a good thing. This is same with our lives; when we get off track it may feel like it’s never going to get better again. In today’s episode, Gwen shares how her life got off track and the help she is receiving to get back on track. Listen for some encouragement to help your life get on track. Purchase a Lupus Living shirt, mask and other merchandise. https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on Amazon: Living Li...
Jan 03, 2022•15 min•Ep. 60
Have you had to say no to someone because of a lupus flare? Have you said no to going to an even because you were afraid of a lupus flare? We should never feel guilty for saying no to something we don’t want to do. Saying no when you have lupus, brings a type of guilt because it feels like we are always saying no. How do you handle lupus guilt? Gwen shares three things she does to stop the guilt. Get The Lupus Living Podcast Merchandise: https://the-lupus-living-store.creator-spring.com/ How to ...
Aug 30, 2021•13 min•Ep. 59
May was lupus awareness month. Gwen encouraged those living with lupus to share their story and spread the word of how it affects their life. In today’s episode, Gwen shares two opportunities she was given to share how lupus changed her life. Purchase a Lupus Living shirt, mask and other merchandise. https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen...
Jun 21, 2021•12 min•Ep. 58
Today’s episode is a continuation of applying for disability benefits when you have lupus. The topics covered are what is SSDI and SSI; how to set up your account with the Social Security Administration and when is it time to hire a lawyer. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. The Lupus Living Store: http://bit.ly/lupuslivingstore How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexan...
May 31, 2021•13 min•Ep. 57
There may come a point after your lupus diagnoses you may not be able to work. What do you do for money if you are in this situation? In today’s episode, Gwen shares how the process of applying for disability works and what you need to know to get approved. This part one of a two part series. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. The Lupus Living Store: http://bit.ly/lupuslivingstore How to connect with Gwen: Ema...
May 17, 2021•12 min•Ep. 56
May is Lupus Awareness Month. May 10, 2021 is World Lupus Day. This year let’s share our stories of how we live with lupus. If you are a friend or family member of a Lupus Warrior, share how you support them. Let’s take away the mystery of lupus. Lupus Foundation of America: Lupus.org Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lu...
May 05, 2021•5 min•Ep. 55
Lupus burnout is real. There comes a point living with a chronic illness takes everything out of you. How do you work through the burnout and get back to living again? In today’s episode, Gwen shares how she slows down to work through the burnout. Purchase a Lupus Living shirt, mask and other merchandise. https://teespring.com/stores/the-lupus-living-store Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with...
May 03, 2021•16 min•Ep. 54
Today’s featured guest on The Lupus Living Podcast is Cassandra Hill. Cassandra is a Holistic Wellness Coach, Life Coach, Author and Speaker. After overcoming Systemic Lupus with a regimen she developed, she created Holistic Living Consulting. Her mission is to empower women by renewing their mind, body and soul utilizing an all-natural approach. How to Connect with Cassandra: Website: www.cassandrarhill.com Facebook: https://www.facebook.com/livehealthyforlife Instagram: https://www.instagram.c...
Apr 02, 2021•48 min•Ep. 53
Purchase a Lupus Living shirt, mask and other merchandise. https://teespring.com/stores/the-lupus-living-store Where did my hair go! That’s what Gwen asked herself in 2017 when she realized she had a bald spot. Hair thinning and loss could be a result of lupus. In today’s episode, Gwen shares how lupus and other auto immune conditions may be affecting your hair and how to deal with it. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Hav...
Feb 15, 2021•13 min
Purchase a Lupus Living shirt, mask and other merchandise. https://teespring.com/stores/the-lupus-living-store At some point, most people living with lupus will be or have been prescribed steroids. This medication is usually given to help with inflammation and other symptoms that come from lupus. In today’s episode, Gwen shares side effects of steroids and how your doctor may use this drug to help you. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lupu...
Feb 08, 2021•11 min•Ep. 51
It is easy to see how living with lupus can make life difficult. The real test is finding the positive in living with lupus. In today’s episode, Gwen shares five positive things living with lupus has taught her. Listen to learn how to see something positive in living with this auto-immune disease. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenale...
Feb 01, 2021•13 min•Ep. 50
An anniversary is a time to celebrate an event that has brought joy to your life. Have you ever thought of celebrating your lupus anniversary or is it a day you wish never happened? In today’s episode, Gwen shares how celebrating your lupus anniversary can be a good thing. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lupus-life-pod...
Dec 07, 2020•10 min•Ep. 49
What gifts are the for people living with lupus? In today’s episode, Gwen shares what the lupus warrior in your life might like to receive this holiday season. Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: t hegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcast Instagram: instagram.com/thegwen1685 Disclaimer: The information in...
Nov 30, 2020•16 min•Ep. 48
Everyone has probably felt insomnia at some point in their life. When you have lupus, this can create more issues with living with it. In today’s episode, Gwen shares her sleep struggles and what she does to go to sleep and stay asleep. Resources Sited in Episode: “Sleep With Me” Podcast Nomadic Ambience YouTube Channel Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.c...
Nov 16, 2020•15 min•Ep. 47
Celebrating holidays while living with lupus can be challenging. It’s a time for family to come together and celebrate but if you are having a flare, you may not feel like celebrating. In today’s episode, Gwen shares tips of how to celebrate the holidays without over doing it. “Holidays are about experiences and people and turning into what you feel like doing at that moment. Enjoy not having to look at a watch. -Evelyn Glennie, percussionist Get the book “Living Life with Lupus” on Amazon: Livi...
Nov 09, 2020•14 min•Ep. 46
