Once you have a chronic illness, every single day you face multiple things that remind you that you are not a “normal” or “healthy” person. Sometimes it’s the medication you have to take. It could be the supplements you have found help your body function. It might be how much planning you have to do just to get through your day, or the things you don’t even try to do because you know what it will cost you. Join the Email List: https://teamvasculitis.com/team-vasculitis-email Join the Chronic Ill...
May 31, 2022•9 min•Season 1Ep. 136
You might be missing what is actually going on with your body because you’re so used to it that you may be experiencing sensations that you aren’t registering or conversely, you might be thinking you are experiencing sensations that you actually are NOT feeling. This episode breaks down how you can prevent this issue! Join the Community: http://www.instagram.com/teamvasculitis Check out the website + join the email list: http://teamvasculitis.com...
May 24, 2022•12 min•Season 1Ep. 135
Meet August! This amazing human spends so much of his time spreading not only awareness for the Trans, Asian, and Disabled communities but joy and light too. He has Behcet's Disease and as a Vasculitis warrior he supports others through their process. Connect with August: https://www.instagram.com/withlove_august/ https://www.tiktok.com/@withloveaugust Connect with Team Vasculitis: https://www.instagram.com/teamvasculitis/ https://www.tiktok.com/@teamvasculitis http://teamvasculitis.com...
May 19, 2022•55 min•Season 1Ep. 134
Today we dig into the struggles that all chronically ill people have to face with their mental health. With or without a diagnosis, you face a life change that many around you won't ever understand. You can't meet cultural standards of productivity. You can't show up as a loved one the way you used to. You may not even be able to do any of the things that you used to, and so you face an identity crisis on top of everything else. Join the Community at: http://www.instagram.com/TeamVasculitis Sign...
May 17, 2022•10 min•Season 1Ep. 133
When you're struggling to find balance, we often look to all of the different ways you can help your body heal. The messages of how exercise can help are prevalent... for healthy people. The question is, how safe and healthy is exercise for someone with Vasculitis? Listen to get all the must have information! Join others who get it: http://www.instagram.com/teamvasculitis Get all the information and join the newsletter: http://teamvasculitis.com...
May 10, 2022•10 min•Season 1Ep. 132
Take note of your after visit summaries and your office visit notes. I go into great detail in this episode about my own case because I want to illustrate on how many levels doctors can get your information wrong. I know how difficult it can be when you have serious issues going on to also keep up with these kinds of things. For all the details listen to today’s episode streaming anywhere you listen to podcasts. Link is in bio! If reading is more comfortable for you, check out the blog on teamva...
May 03, 2022•19 min•Season 1Ep. 131
Doctors appointments are overwhelming. You have so many questions, and only one small chance to get them answered. If you prepare ahead of time, you an set up a system that makes sure you your doctor is ready with answers for you, and you are ready to hear them. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com Patreon: http://www.patreon.com/teamvasculitis...
Apr 26, 2022•8 min•Season 1Ep. 130
The challenge we have to overcome is that we have spent our entire lives, especially if you live in the United States, being told to do more, be more, aspire to more. Then… you get sick, and you can barely do anything. Depending on where you are in your journey, you may not be able to do much of anything and that’s where our new education on the dark side of hustle culture starts. Connect at: http://www.instagram.com/teamvasculitis Sign up for the Email List at: http://teamvasculitis.com Check o...
Apr 19, 2022•14 min•Season 1Ep. 129
WE AS A COMMUNITY should have a voice so the things we need are researched and that’s where groups like the Vasculitis Foundation could increase how they support us exponentially by INCLUDING us. Your thoughts. Your journey. We, as a community, need to know your truth. No matter how THEY see it. From onset due to vaccination. To sexism and ableism from our medical staff. To medical gaslighting and on and on. I have stories, and many of you have shared stories with me, that your medical staff hav...
Apr 12, 2022•17 min•Season 1Ep. 128
Meet Melinda!!! Her story is similar to mine - she went through trials as a mom with chronic illness and was raising kids with disabilities. Then she realized there was no support for her - for us. So, she decided to change that by creating it herself!!! I love what she's doing! Her mission and her message are SO important. Follow Melinda at: https://www.instagram.com/heymomme http://www.heymomme.com Follow Team Vasculitis at: https://www.instagram.com/teamvasculitis Support Team Vasculitis and ...
Apr 07, 2022•31 min•Season 1Ep. 127
Do you find yourself getting anxious when you make plans? I do. I LOVE that I am even in a place to think about all of this. To put it on the calendar and HOPE that I will be able to do it. Then, right after that sense of excitement peaks - I feel that tense feeling in my chest and my heart starts to race and I start breathing shallow and I can’t help but go down the “what if” rabbit hole. If you do too. This one is for you! The BEST way to support Team Vasculitis is to join the Team Vasculitis ...
Apr 05, 2022•11 min•Season 1Ep. 126
Can we stop with the focus and mindset and all of the bull about “at least it’s not cancer.” Just stop. I get a ton of messages of people dealing with this toxic perspective. Things like “I know it could be worse, it could be cancer.” Or “I know others have it worse, dealing with things like cancer…” Today I break down the psychology and a few facts about why this is TOTALLY incorrect! Join us on Instagram: https://www.instagram.com/teamvasculitis Support us in the Patreon: https://www.pateron.c...
Mar 29, 2022•17 min•Season 1Ep. 125
What I want YOU to know is that it’s normal for our loved ones to struggle with this. I want you to know that you will be able to get through it. I want you to know that you can work on accepting that they are struggling too, but it doesn’t mean that they don’t love you. It doesn’t mean that they don’t see you. It can be easy to become so lost in our emotional crash that it is hard to find room to allow our loved ones to go through their grief process too. As hard as it can be, you need to let t...
Mar 22, 2022•15 min•Season 1Ep. 124
All health in the body are affected by the gut. Immunity, and therefore auto immunity, can greatly be pushed for the positive or the negative based on what is going on there. Today amazing functional dietician Jillian Smith shares insight as well as a few tips on how to help support your body and live a healthy and balanced life! Follow Jillian: https://www.instagram.com/jilliansmith.rd/ https://www.instagram.com/gut.personal/ https://www.instagram.com/the.gut.fix/ Join us at Team Vasculitis: ht...
Mar 17, 2022•44 min•Season 1Ep. 123
You didn't choose to have your illness. No one really knows why it happens. Science doesn't know, so don't let anyone tell you they know. What you CAN choose, is how to live with it. Today I talk about these choices and give you a little personal experience. Feel less alone and join us at: http://www.instagram.com/teamvasculitis
Mar 15, 2022•11 min•Season 1Ep. 122
WE ARE RESILIENT. WE ARE CAPABLE. WE ARE SMART. WE ARE VALUABLE. Our bodies functioning differently than others doesn’t change that. It doesn’t matter if you were born with a chronic condition or if you had onset at any point in your life. You are valuable and ANY contributions you make are valuable. Your life is valuable. We don’t always realize how we impact others. Follow me at: http://www.instagram.com/teamvasculitis
Mar 08, 2022•8 min•Season 1Ep. 121
Today I chat with one of my FAVORITE dieticians. Bridgette is not only a dietician, but is also a functional medicine practitioner. She talks about the difference between a nutritionist and a dietician as well as the importance of testing before taking supplements and her own amazing company Gut Personal. - Stay Tuned for Part Two Where I talk to Bridgitte's business partner Jillian about nutrition! - Links for where to find her! https://www.instagram.com/wellbybridgitte https://www.instagram.co...
Mar 03, 2022•31 min•Season 1Ep. 120
The American College of Rheumatology put together an official set of recommended guidelines for the care and treatments of a few forms of Vasculitis. Today I dig into the Relapse Therapy recommendations for Granulomatosis with Polyangiitis and Microscopic Polyangiitis. I give you it in a patient's point of view and less medical jargon. One patient to another. Instagram: http://www.instagram.com/teamvasculitis
Mar 01, 2022•18 min•Season 1Ep. 119
Today I introduce you to Cat! She shares her journey from challenges as a child, to finally receiving a diagnosis as an adult. After getting a handle on things, she went through major emotional trauma which sent the disease into overdrive. She has a partially paralyzed stomach, suffers from seizures which limit her freedom, and so much more… and yet, she still chooses to continue Rising from the Illness. Find Cat at: https://www.instagram.com/risingfromtheillness (Check out her podcast too!) Fol...
Feb 24, 2022•51 min•Season 1Ep. 118
The American College of Rheumatology, in conjunction with the Vasculitis Foundation and Dr. Sharon Chung from the University of California San Francisco Medical Center’s Vasculitis clinic - as well as other doctors worked to put together an official set of recommended guidelines for the care and treatments of a few forms of Vasculitis. Today I dig into the Remission Therapy recommendations for Granulomatosis with Polyangiitis and Microscopic Polyangiitis. I give you it in a patient's point of vi...
Feb 22, 2022•14 min•Season 1Ep. 117
Today I introduce you to Mandy! She was diagnosed at age 18 and found herself navigating onset of this disease and treatment during her freshman year of college. Now happily married, disease managed - as much as it can be, Mandy shares her sinus involvement and how even "managed" it's still a struggle. Follow Mandy here: http://www.instagram.com/amandalura_ Follow Me at: http://www.instagram.com/TeamVasculitis...
Feb 17, 2022•30 min•Season 1Ep. 116
The American College of Rheumatology, in conjunction with the Vasculitis Foundation and Dr. Sharon Chung from the University of California San Francisco Medical Center’s Vasculitis clinic - as well as other doctors worked to put together an official set of recommended guidelines for the care and treatments of a few forms of Vasculitis. Today I dig into the Induction Therapy recommendations for Granulomatosis with Polyangiitis and Microscopic Polyangiitis. I give you it in a patient's point of vi...
Feb 15, 2022•19 min•Season 1Ep. 115
Meet Ellie! Diagnosed with GPA at 17 after many misdiagnoses she was put on high levels of cytoxan as she navigated high school and college, only to need major surgery and face a 10+ year battle before achieving remission. Today she shares that journey. The medications, the stress, the testing, and where she is today. You can follow Ellie at: http:///www.instagram.com/ellietalk You can follow me at: http://www.instagram.com/TeamVasculitis...
Feb 10, 2022•52 min•Season 1Ep. 114
Every times you wait on tests or walk into a doctor's appointment the results of those things can be life altering. Do you need to add a medication? Will something else be wrong? medication? There are so many uncertainties and it is incredibly anxiety inducing. It's not in your head and you're not alone. Instagram: http://www.instagram.com/TeamVasculitis Facebook Community: http://www.facebook.com/groups/teamvasculitis/...
Feb 08, 2022•9 min•Season 1Ep. 113
Meet Bri, a GPA warrior, mom, and all around amazing human. Today Bri shares her journey from the moment she knew something was really wrong, to diagnosis, and her journey since then. She opens up and shares her concerns and anxiety that so many Moms with chronic illness have. Follow Bri at: http://www.instagram.com/b_doyle Follow me at: http://www.instagram.com/TeamVasculitis...
Feb 03, 2022•39 min•Season 1Ep. 112
I felt so alone when I was diagnosed, and for a long time after. No one understood. The people in my life who love me did their best, but I needed someone who was walking through the fire. I needed someone who understood. I needed someone I didn’t have to answer so many of the basic questions for. I have found that… and I have found so many who still have been alone. Here, I want to offer a place where if you search a hashtag for any form of Vasculitis, and a few basic chronic illness ones, you ...
Feb 01, 2022•9 min•Season 1Ep. 111
I started this podcast thinking I’ll let other Moms know that they aren’t alone and share some stories of fellow Wegener’s warriors, because rare diseases make it difficult to find people to connect with. It took a few months, but I quickly found out that being a Mom life podcaster and sharing about my kids wasn’t a good fit for me. I don’t know where this will lead… and if you were here for the mom life stuff, and this whole Vasculitis, Rare Diseases, Chronic Illness life isn’t your thing. I ge...
Jan 25, 2022•9 min•Season 1Ep. 110
Today is a really hard day. The last few months have been really hard. Tomorrow is going to be really hard too. Right now all I can see are hard days ahead because I am not improving and if I go on prednisone my undiagnosed thing will become almost impossible to diagnose, so I have to do my best without it for now. Maybe I’ll get to test out that new FDA approved medication for my rare disease. Who knows… What I do know is that you are not alone and me knowing that I have you helps me get throug...
Jan 18, 2022•11 min•Season 1Ep. 109
Today I introduce you to Alexis. Healthy foodie and health coach who has a vision to give every family the tools to get their kids excited about healthy foods! Offering allergy friendly recipes and kid activities to get them excited to try new foods and eat more of their fruits and veggies, her e-kit will transform your child's relationship with food. Follow Alexis at: http://www.instagram.com/my.little.seedlings Follow me at: http://www.instagram.com/fightlikeamama...
Jan 13, 2022•21 min•Season 1Ep. 108
I have something I want you to know… You aren’t going to want to believe it. Something in your head and maybe even your heart will reject this. You will disregard it. You will dismiss it. You will say, maybe YOU are those things, but not me. Maybe YOU can claim that, but not me. Maybe it’s true for you… but me, I’m just getting through my day and I do it badly. Tune in to hear this important message! Follow me at: http://www.instagram.com/fightlikeamama
Jan 11, 2022•11 min•Season 1Ep. 107
