Team Vasculitis: Thriving through Life with Chronic Illness - podcast cover

Team Vasculitis: Thriving through Life with Chronic Illness

Felicia Distadteamvasculitis.libsyn.com
Life with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
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Episodes

Ep 106 - My Struggles with the Vasculitis Foundation

My mission is for no one to feel alone. To help support our community through community. I never want anyone to feel as lost and alone as I did when I was first diagnosed, and for a long time after. I am sharing my experiences, both actively bad and completely ignored, with the Vasculitis Foundation because if I have experienced it and it made me feel more alone, you may have as well. Their outdated way of operating and interacting with their community creates more isolation than support and str...

Jan 04, 202215 minSeason 1Ep. 106

Ep 105 - The Importance of Community when You're Chronically Ill

We’re all supporting one another and we’re all thriving more because of it. We are stronger in our community. We are happier and healthier both physically and mentally. We share tips and tricks and new information. We have solutions that - straight up - DOCTORS DO NOT HAVE. What they focus on is keeping you alive. Many times, the ways we make that happen is outside of the medication you take, and really the medical community just misses that part. All of this is why having a community is VITAL w...

Dec 28, 202114 minSeason 1Ep. 105

Ep 104- From this Vasculitis Warrior to You... Have Hope!

From medical breakthroughs, to new medications being developed and approved, to nutritional understanding and so much more, we have so many reasons to have hope! Hope. Have hope. Have hope of continued improvement in care. Have hope for advancement in medication options. Have hope new treatments and procedures. Just… Please, have hope and keep fighting. You are not alone. We’re in this together. Follow me on Instagram here: http:///www.instagram.com/fightlikeamama Vasculitis Patient Powered Rese...

Dec 21, 202113 minSeason 1Ep. 104

Ep 103 - The Ways You're Told You're Doing Something Wrong as Someone with Chronic Illness

There is a black and white perspective that many of us feel every day. It makes walking through the world and interacting with people who aren’t in our alternate reality really scary, we never know when they’re going to make it that much more difficult for us to get through that moment, that day, our lives. It’s lonely all the time to watch others out living their lives while we want to be with them but can’t. It’s hard to hear about the adventures loved ones are having without you. It’s heartbr...

Dec 14, 202114 minSeason 1Ep. 103

Ep 102 - Wegener's Vasculitis Series with Gerry Ugalde

Meet the amazing warrior that is Gerry Ugalde! With a 5 month old at home she ended up in the hospital to only be told she has this strange rare disease - PLUS another huge surprise. Since then she has endured treatments, surgeries, career changes and so much more. It was truly an honor to sit down and talk to her and I know her story will impact you, as it has me. If you’re interested in an even deeper dive into Gerry's story - check out the book she wrote! Dancing with Disease is available on ...

Dec 09, 202151 minSeason 1Ep. 102

Ep 101 - With Chronic Illness, It's Not Vanity. It's Body Dysmorphia.

Because our illnesses are invisible, they are often overlooked by those around us, and we’re used to that. What we sometimes forget is that the illness being invisible gives US PERSONALLY some much needed mental and emotional separation from the pain we’re going through. They are tiny moments, but they really help us survive. So when something happens that makes the invisible illness VISIBLE suddenly, that’s a whole new challenge to deal with. Not only is it a loss of peace, it is a new trauma t...

Dec 07, 20219 minSeason 1Ep. 102

Ep 100 - Becoming Stronger With Help

It's been NINE YEARS since I was diagnosed. In that time I have relied on my friends, family, doctors, and even strangers at times. I couldn't have functioned without them. I would not be where I am today, or who I am today, without them. Today my Mom, Husband, Sister, and life long friend answer two questions: 1. What do you tell someone when they ask about my health? 2. How would you say this has changed me for the better? Follow me on Instagram at: http://www.instagram.com/fightlikeamama...

Nov 30, 202130 minSeason 1Ep. 100

Ep 99 - Messy and Mindful Moment: Consistency Wins Every Time

PSA: You don't have to punish yourself for that extra slice of pie or skipping a workout. If you're consistent in your goals, these things won't stop you. Find the Video Here: http://www.instagram.com/marketlikeamama

Nov 29, 20216 minSeason 1Ep. 99

Ep 98 - Thankful, Grateful, Blessed... Finding the Positive in Chronic Illness

Today I want you to hear my heart when I say, there are very beautiful things that can come out of this difficult journey. No one would ask to be set on the path of chronic illness, but once you're there - when you're ready - there is beauty to be found. We see things differently because our lives our different, and we bring joy, acceptance, grace, support and kindness to the world around us in ways we could never had before. Follow me on Instagram: http://www.instagram.com/fightlikeamama...

Nov 25, 202117 minSeason 1Ep. 98

Ep 97 - What I Wish I Knew About Nutrition When I Was First Diagnosed

If you're new to this whole Chronic thing, there is something you need the low down on: nutrition. Now, I am absolutely certain that everyone and their second cousin has told you - Oh, my so and so had something like that and they did (fill in the blank) and got better! Those fill in the blank things are usually gluten free, dairy free, sugar free… maybe an essential oil combination, or of course yoga! I am not telling you at all that these things can’t help. Of course they can. They help pretty...

Nov 23, 202111 minSeason 1Ep. 97

EP 96 - Messy and Mindful Moment: Judgement Free Zone

I want you to try and remember two things: 1. You don't know where people are at mentally and emotionally. Accept them for where they are now. 2. It's not about you. However they respond or don't respond. Love them where they're at. You can watch the video at: http://www.instagram.com/marketlikeamama

Nov 22, 20215 minSeason 1Ep. 96

Ep 95 - Struggling with Gratitude because of Chronic Illness

It’s everywhere, right? People posting a daily gratitude, commercials about giving thanks and being blessed… heck that trend has even taken to clothing now a days and every store we walk into has graphic tees telling us to be thankful, grateful and blessed. Life is hard for everyone. Even those without chronic illness making everything feel like a fuzzy, out of focus, and over exposed video from the 80s. You’ll get through this. If you don’t have someone to message to help you get through it, we...

Nov 16, 202110 minSeason 1Ep. 95

Ep 93 - Wegener's Vasculitis Series with Dena Williams

Meet Dena Williams! This amazing woman has been through it all. 3 different treatment plans, hospital stays, more than 20 doctors and health professionals... and of course all the blood, sweat, and tears. Today she shares her journey, and get's really open and raw. You can follow Dena at: https://www.instagram.com/denawilliamsss/ **WARNING** I drop an f bomb and call someone a c bomb at the end. I give warning before I say it. It was necessary. You'll understand....

Nov 11, 20211 hr 13 minSeason 1Ep. 93

Ep 92 - You Aren't Sick Because You're Overweight!

The problem is society in general believes this. That I am overweight so I must eat really unhealthy food. That when I come asking for help I must be pill seeking. That if I just got my lard ass off the couch, or took the stairs, I wouldn’t need medical help. The truth is we don’t know what causes onset of these diseases and I am proof that it isn’t about lifestyle. Link to Reel Mentioned: https://www.instagram.com/reel/CU5yI57BVfC/

Nov 09, 202115 minSeason 1Ep. 93

Ep 91 - Messy and Mindful Moment: Find Passion

In our busy lives it is so easy to lose track of things that light us up and bring us joy. Today I talk about something my good friend Jeni the host of Positively Jeni - Coming Dec 1st - said about finding passion. It doesn't have to be an every day thing. What is has to be is FOR YOU. Even if it's word vomiting to a friend about it. As you talk, you feel that passion - right? We NEED a few minutes of that in our lives. All of us. Especially moms who are giving so much of themselves to begin wit...

Nov 08, 20218 minSeason 1Ep. 91

EP 90 - Struggles the Chronic Community Faces when Travelling

Oh my friend, what a world we travel through. Where once you are outside of the bell curve you have to fight so much harder. It is what it is, and in some ways will always be, but know this - you are NOT alone. There is NO shame in any assistance you need. Needing accommodations does not diminish you or your worth in ANY way… and there are resources to help you. Search for them. Ask others with similar journeys what they have done or used that has helped them.

Nov 02, 202113 minSeason 1Ep. 90

Ep 88 - Romantic Love and Chronic Illness

It felt so cruel, I finally met my person and now I was seriously considering breaking up with him. How could I ask him to stay and not be able to have a partner who builds things with him, who travels with him, who can raise children with him? If he stayed with me, I would take away everything he dreamed of. If he found someone else, he could have that… and if I loved him, shouldn’t I give him the ability to fly? You aren't alone - tune in and hear something that will help your mindset SO MUCH!...

Oct 26, 202112 minSeason 1Ep. 88

Ep 87 - Messy and Mindful Moment: Being Brave Enough to Be Authentically You

In a world of carefully curated content it is even MORE important and MORE powerful to show up as you. In the big and little wins and in the big and little failures. To show up with messy hair and no make up. To show up dressed your best and living it up. Yes, you'll lose some people if you do this. More importantly though, the right people will find you. Watch the live video in my hot mess-ness today: http://www.instagram.com/marketlikeamama

Oct 25, 20219 minSeason 1Ep. 87

Ep 86 - Wegener's Vasculitis Series with Holly

Meet the awesome Holly! Diagnosed with Wegener's at 14 after a nearly 3 year battle she has faced kidney failure, continues to have sinus complications, and has navigated her way through the medical system and natural health to figure out what works best for her - all before turning 25! You can find Holly at: http://www.instagram.com/healthyhealthyholly

Oct 21, 202158 minSeason 1Ep. 86

Ep 85 - Having a Chronic Illness Doesn't Affect Your Worth

Where do we stand in a very capable world? Where around us everyone is doing more with their time than you are. We have the same amount of hours in the day, but it can be really difficult to remember that we don’t have the same amount of ability. That can come from lack of energy, strength or some form of physical disability. We aren’t on the same level of playfield as everyone else. You are worthy! Tune in to hear more! Follow me on Instagram: http://www.instagram.com/fightlikeamama...

Oct 19, 202112 minSeason 1Ep. 85

Ep 84 - Messy and Mindful Moment: Dealing with Overwhelm IN THE MOMENT

We all have so much going on in our heads and in our lives. The people around us don't have any way of knowing what is going to be our tipping point. They don't know you're three year old won't stop yelling at everyone. They don't know you have a difficult relationship with a family member. One client has no idea what is going on with another client. Today I talk about a quick way to deal with stress in the moment. You can watch the video at: http://www.instagram.com/marketlikeamama...

Oct 18, 20219 minSeason 1Ep. 84

Ep 83 - Surviving Threenagers!!!!

We all know how incredibly draining and stressful dealing with three year old behavior can be when you’re not sure how to handle it. Among the parent grapevine I am sure that you have heard that this so-called “bad behavior” starts with the Terrible Twos and often gets worse before it gets better. Hence, the threenager stage was born. Today I give support and a couple of tips on navigating this really tough season of parenting!

Oct 12, 202113 minSeason 1Ep. 83

Ep 82 - Messy and Mindful Moment: It's Okay to Sit in the Suck

Have you ever been going through a tough day only for someone to say - what can you learn from this or ask you to "flip the script?" Where you're at is OKAY. It's not only okay - it's normal, healthy and NECESSARY to go through the tough stuff. Rushing past it or ignoring it only hurts you and those around you. Listen to today's episode to hear more. You can watch today's episode at: http://www.instagram.com/marketlikeamama

Oct 11, 20217 minSeason 1Ep. 82

Ep 81 - Chronically Low Ferritin, but NOT Anemic? ME TOO!

Having extremely low ferritin, when you are not clinically anemic, is a specific type of anemia called Hypoferritinemia without Anemia or HWA. There is no kidney involvement and there are no other clinical issues like typical iron deficiency causing anemia. It typically goes undiagnosed, and can cause permanent damage! Links to resources mentioned: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5986027/ https://www.bmj.com/content/326/7399/1124...

Oct 05, 202123 minSeason 1Ep. 81

Ep 80 - Messy and Mindful Moment: Clear is Kind

Have you ever given someone information or instructions and then they did something completely different than you expected? Have you ever followed the instructions EXACTLY only to have someone upset with you for not listening? Today I talk about this communication problem and give a couple of tips on how to fix it! You can watch the video at: http://www.instagram.com/marketlikeamama

Oct 04, 20217 minSeason 1Ep. 80

Ep 79 - Parents with Chronic Conditions You AREN'T Failing

Being a parent is TOUGH. Having a chronic illness is TOUGH. Combine the two... and man. It's so easy to feel like you're failing EVERYWHERE. Tune in to this episode for some love... I get it. I see you. I've been there too.

Sep 28, 20219 min

Ep 78 - Messy and Mindful Moment: Staying Motivated When You Lose Motivation

It's easy to be motivated when you start. You're excited. Then life goes on and it gets more and more difficult to prioritize. Right? In today's episode I talk about my trick to give my brain those serotonin bursts and feel more motivated every week! You can watch the video of this episode at: http://www.instagram.com/marketlikeamama Look under the IGTV tab, and choose the Messy and Mindful Moment series!

Sep 27, 20217 min

Ep 77 - Here's to All the Ladies Getting Through the Chaos

Do you ever look at your "to do" list and wonder how you'll get it all done? Do you ever get anxiety or feel depressed because you see yourself never getting it all done? Do you ever look at the people around you and find yourself comparing to how they seem to do it all, but you never can? No matter what phase of life you're in. Single. Dating/Married. Married + Kids. Single + kids... I am here for you and so is this episode!

Sep 21, 202114 minSeason 1Ep. 77
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