Ep 106 - My Struggles with the Vasculitis Foundation
Jan 04, 2022•15 min•Season 1Ep. 106
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Episode description
My mission is for no one to feel alone. To help support our community through community. I never want anyone to feel as lost and alone as I did when I was first diagnosed, and for a long time after.
I am sharing my experiences, both actively bad and completely ignored, with the Vasculitis Foundation because if I have experienced it and it made me feel more alone, you may have as well. Their outdated way of operating and interacting with their community creates more isolation than support and straight talk - that’s NOT acceptable.
Follow me at: http://www.instagram.com/fightlikeamama
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