Long Covid Podcast - podcast cover

Long Covid Podcast

Jackie Baxterwww.longcovidpodcast.com

The Podcast by and for Long Covid sufferers.

Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.

Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"



The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. 

~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. 

The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting. 

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Episodes

150 - From Self-Blame to Self-Discovery

Could recognizing stress, perfectionism, and a relentless work ethic have unknowingly contributed to my journey with Long Covid? This episode, inspired by a listener's question, takes you through my personal exploration of self-blame and recovery, emphasizing the importance of acknowledging lifestyle factors that play into our health. We'll uncover the value of therapy in recognizing these patterns and how Maya Angelou's wisdom guided me: "Do the best you can until you know better. Then, when yo...

Oct 16, 202416 minSeason 1Ep. 150

149 - Resilience and Recovery: Dr. Eleanor Stein on Navigating Chronic Illness and Long Covid

Dr. Eleanor Stein's journey is one of resilience and transformation and her story is both personal and powerful. Dr. Stein shares how her experiences have shaped her approach to patient care and education. Her insights into societal myths around illness & recovery offer a refreshing perspective, especially for those navigating the complexities of living with long-term health challenges. We shine a light on the essence of self-management & body awareness. Dr. Stein articulates the importa...

Oct 09, 20241 hr 1 minSeason 1Ep. 149

148 - Dan Neuffer - Balance, Resilience & how we can prioritise recovery

Episode 148 of the Long Covid Podcast is the second in this two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into What does recovery mean? What the illness is trying to tell us Balance in life The 60-80% sticking point Appreciating small improvement & building confidence...

Oct 02, 202446 minSeason 1Ep. 148

147 - Dan Neuffer - How can we build & ensure resilience in our recoveries?

Episode 147 of the Long Covid Podcast is the first of a two-part series with Dan Neuffer. Dan is a coach working with people with Long Covid & ME/CFS. He is also an author of "CFS Unravelled" and has developed the "ANS Rewire" Program which has been mentioned by some others on the podcast previously. In this episode we dive into How is recovery possible when there is no "cure"? Understanding & education and it's role in treating underlying dysfunction rather than symptoms. Understanding ...

Sep 26, 202449 minSeason 1Ep. 147

146 - Dr Becca Kennedy - Chronic Pain & Fatigue Doctor

In episode 146 I speak to the fabulous Dr. Becca Kennedy, a family medicine physician, who discusses her approach to treating chronic pain and fatigue using evidence-based neuroscience. She emphasizes the mind-body connection, explaining that many medically unexplained symptoms are due to brain signaling rather than structural damage. Kennedy highlights that 30-50% of primary care visits involve medically unexplained symptoms, including chronic pain, migraines, and irritable bowel syndrome. She ...

Sep 11, 202452 minSeason 1Ep. 146

145 - Jenny Adams - Recovery from ME/CFS

Episode 145 of the Long Covid Podcast is a chat with Jenny Adams who is here to share her recovery story! We chat through her illness, the things that helped her and the lessons she has learned. We also discuss the work Jenny is doing now, and the links to work with her are below. Free workshop sign up: https://jenny-adams-f409.mykajabi.com/moreenergy Heal Good Monthly Membership sign up (this will be live when doors open 12-19th Sept) : https://jenny-adams-f409.mykajabi.com/heal-good-sales-page...

Sep 04, 202450 minSeason 1Ep. 145

144 - Dr Sarah's Long Covid Recovery

Episode 144 of the Long Covid Podcast is a chat with Dr Sarah about her recovery from Long Covid. Sarah tells of her experiences with Covid and her route to Long Covid, as well as some of the things she found that helped. Sarah takes us through her "6 pillars of wellness" that she developed to help her recover - these 6 areas which she thinks are important to address in some way. As with all recovery stories, this is one person's experience and not medical advice. Sarah's written resource & ...

Aug 28, 202453 minSeason 1Ep. 144

143 - David Joffe - Overcoming Sleep Challenges in Long Covid Patients

Unlock the secrets to better sleep and enhanced well-being in our latest episode featuring David Joffe, a leading expert in respiratory and sleep medicine. You'll gain valuable insights into the intricate roles of slow-wave and REM sleep, crucial for both physical restoration and cognitive functions like memory consolidation. David shares his extensive knowledge on how sleep deprivation and stress can wreak havoc on your immune system and metabolic health, drawing direct links to the challenges ...

Aug 14, 202455 minSeason 1Ep. 143

142 - Jackie's thoughts of the day!

In episode 142 of the Long Covid Podcast, Jackie takes to the mic to explore her thoughts on Some Things, including almost 3 years since she started the podcast, why boundaries and self-care are so important and more. My youtube channel and the "Ask Jaxter" playlist Long Covid Breathing - see what I have created with Vikki and how you can join our courses and work with us My Insight Timer - relax with me Message the podcast! - questions will be answered on my youtube channel :) Support the show ...

Aug 08, 202412 minSeason 1Ep. 142

141 - Todd Davenport - a deep dive into Post-Exertional Malaise (PEM)

Episode 141 of the Long Covid Podcast is a chat with the fabulous Todd Davenport - physio & exercise scientist specialing in Long Covid, MECFS & Post-exertional Malaise. We take a dive into PEM, some of the science behind it and some things that can help avoid & mitigate it. Some useful links: Bateman Horne crash care plan Workwell Foundation Links: "I Have ME/CFS or Long Covid What Do I Do Now?" PEM Timecourse Fact Sheet How Do I Obtain Disability Benefits (most useful for US listen...

Aug 01, 202451 minSeason 1Ep. 141

140 - Jess Dove London - Turnto - the app that aims to revolutionise healthcare

Episode 140 of the Long Covid Podcast is a chat with Jess Dove London, CEO of the startup "Turnto". Jess tells the story behind Turnto and how it's now helping people with ME/CFS & Long Covid. We talk about the app, it's main features and how it can help. Have you enjoyed the app? Let us know! https://turnto.ai/download Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovid...

Jul 24, 202438 minSeason 1Ep. 140

139 - Patrick Ussher & Peter Deen - Excessive Thirst in ME/CFS & Long Covid

Episode 139 of the Long Covid Podcast is a chat with Patrick Ussher and Peter Deen about excessive thirst in ME/CFS & Long Covid. We talk about what this is - and how it can be a very serious issue, as well as what brought Patrick & Peter together for the research they are now doing. The Survey mentioned is not quite ready yet - it will be added and publicised when it goes live - also follow www.longcovid.org Peter: website https://www.streasure4health.com https://www.linkedin.com/in/pet...

Jul 18, 202448 minSeason 1Ep. 139

138 - Jules Rogers - Long Covid Recovery

Episode 138 of the Long Covid Podcast is a chat with Jules Rogers, who shares how she recovered from Long Covid. We chat through the things that helped - some of which made a little difference, some a lot. As with all recovery stories - this is one person's experience. We wouldn't recommend trying to replicate it, as no two people are the same. But taking ideas & certainly inspiration is absolutely a good idea! Jules website: julesrogerslifecoach.com Social handles jules_rogerslifecoach on I...

Jul 10, 202447 minSeason 1Ep. 138

137 - Lorrie Rivers - What is EFT Tapping and how can it help me?

Episode 137 of the Long Covid Podcast welcomes back Lorrie Rivers to chat about EFT tapping, a technique that she's personally had good results with and now uses with her clients. EFT stands for Emotional Freedom Technique and can be a great way of gently helping us out emotionally, which can be difficult with health challenges such as Long Covid. But as Lorrie shares, it actually can do more than that too. We dive into some of the science behind it, as well as using me as a guinea pig for an ex...

Jul 03, 202451 minSeason 1Ep. 137

136 - Dr Meg Anderson - Movement in Long Covid - Part 2 - "how to"

Episode 136 of the Long Covid Podcast is a continuation of my chat with the fabulous Dr Meg Anderson about movement in Long Covid. In this episode, we talk more about what that movement might actually look like and how to tailor that. The previous episode, where we talk about "getting ready" for movement is definitely worth a listen HERE Links: Meg website: www.risingtidesrecovery.com Application for group program Energy Expansion Project: https://mailchi.mp/2362788d68fa/energy-expansion-project...

Jun 26, 202453 minSeason 1Ep. 136

135 - Dr Meg Anderson - Movement in Long Covid Part 1 - Getting ready

Episode 135 of the Long Covid Podcast is a chat with the fabulous Dr Meg Anderson about movement in Long Covid. This is part one of our chat where we talk about getting ready for movement, how to know you might be ready and kind of setting the scene. Watch out for part 2 next week, where we talk more about what that movement might actually look like and how to tailor that. Meg website: www.risingtidesrecovery.com Application for group program Energy Expansion Project: https://mailchi.mp/2362788d...

Jun 19, 202454 minSeason 1Ep. 135

134 - Vicky van der Togt & Jeremy Rossman - Research-Aid Networks

Episode 134 of the Long Covid Podcast is a chat with Vicky van der Togh & Dr Jeremy Rossman from Research-Aid Networks. We discuss what the organisation does, what brought Vicky & Jeremy together as well as their recently published hypothesis paper. Research-Aid Networks www.researchaidnetworks.org Pandemic-Aid Networks www.researchaidnetworks.org/pandemic-aid-networks Long Covid hypothesis paper: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2023.1150105/full La...

Jun 12, 202457 minSeason 1Ep. 134

133 - A K Davidson - Long Covid Recovery

Episode 133 of the Long Covid Podcast is a chat with A K Davidson, author & poet, who has now recovered from Long Covid. We chat through her experience, how writing because so important as well as helping with recovery, although not always in the way she expected! As always - recovery stories are one person's experience! They can be useful for ideas, but more than anything, giving hope of recovery for anyone who is struggling. Purchase the book: From Waterstones.com From Amazon.co.uk E-book ...

Jun 05, 202451 minSeason 1Ep. 133

132 - Rosalba Courtney & Hadas Golan - Dysfunctional Breathing in Long Covid

Episode 132 of the Long Covid Podcast is a chat with the wonderful Hadas Golan & Rosalba Courtney. Hadas and Rosalba have been collaborating on working with people with Long Covid and have recently published a series of case studies detailing their successes. We take a deep dive into my favourite subject - breathing - discussing some of the underlying pathology and how this relates to using breathing as an intervention to help Long Covid, if done correctly. This is the link to the published ...

May 23, 202453 minSeason 1Ep. 132

131 - Dr Wes Ely - What is Immuno-modulation & how could it help with Long Covid?

Episode 131 of the Long Covid Podcast is a chat with the wonderful Dr Wes Ely, internist & pulmonologist, clinical triallist & also author & Long Covid advocate. We chat through some of his experiences with Long Covid patients as well as the clinical trial of baricitinib for Long Covid which is enrolling very soon. ICUdelirium.org Stat News - "Don't give longhaulers the silent treatment" RVLC - Reverse Long Covid trial on Clinicaltrials.gov RVLC Trial website Every Deep Drawn Breath ...

May 15, 202441 minSeason 1Ep. 131

130 - Dr Marco Leitzke - Using Nicotine Patches for Long Covid

Episode 130 of the Long Covid Podcast is a chat with Dr Marco Leitzke who has been exploring the use of Nicotine Patches to help with Long Covid. We discuss what Nicotine is, why it can help and how this could be something incredibly useful. Links to Dr Marco's work & social media etc: https://linktr.ee/marcoleitzke A blog written on "Health Rising" https://www.healthrising.org/blog/2023/12/07/nicotine-patch-long-covid-chronic-fatigue-fibromyalgia/ Message the podcast! - questions will be an...

May 09, 202439 minSeason 1Ep. 130

129 - Lily Spechler - The Long Covid Dietitian

Episode 129 of the Long Covid Podcast is a chat with Lily Spechler, a registered dietitian who is working with people with Long Covid following her own experience with it. We chat through some of the trends she is seeing and some pointers for people to follow. Lily's Instagram: https://www.instagram.com/longcoviddietitian/ The Energy Expansion Project: https://www.longcoviddietitian.com/ with some resources and a link to the application. Message the podcast! - questions will be answered on my yo...

May 01, 202456 minSeason 1Ep. 129

128 - Nigel McCracken & Sean Knight - Research into T-Cell Exhaustion

Episode 128 of the Long Covid Podcast is a chat with Nigel McCracken, COO of Virax Biolabs & Sean Knight, Clinical research fellow at the University of Manchester. Nigel and Sean are working together in collaboration on a study to dive deeper into T-Cell exhaustion in people with Long Covid. We take a deep dive into T-Cells, immunology and the quest for a biomarker! Virax Biolabs Long Covid research at Manchester Message the podcast! - questions will be answered on my youtube channel :) For ...

Apr 24, 202451 minSeason 1Ep. 128

127 - Rachael's Long Covid Recovery Story

Episode 127 of the Long Covid Podcast is a chat with Rachael Heath-Porsz about her recovery from Long Covid! We chat through her experience - the things that helped, the things that didn't and what life looks like now. We also chat a bit about what Rachael is doing now - helping people with Long Covid to return to movement in a safe & supported way. Rachael's Instagram: https://www.instagram.com/rebound.athletic/ Rachael's website: www.rebound-athletic.com Message the podcast! - questions wi...

Apr 17, 202447 minSeason 1Ep. 127

126 - Joshua Roman talks about Long Covid, Music, Vulnerability & Connection

Episode 126 of the Long Covid Podcast is a chat with Joshua Roman - Cellist, Composer & Curator, as well as Longhauler. We chat through some of the things that he experienced, learned and some of the incredibly inspiring work he is now doing to help others with Long Covid as well as heal himself. Links: Joshua Roman Website "Immunity" Project Your Brain on Art by Susan Magsamen & Ivy Ross NBS News Segment featuring Joshua - A blood test for long Covid is possible, a study suggests TEDx -...

Apr 03, 202446 minSeason 1Ep. 126

125 - Peter Burt - Man Stuck on Desert Island!

Episode 125 of the Long Covid Podcast is a chat with Peter Burt. Peter has found himself "washed up on a desert island" after floating around in the sea of Long Covid for a couple of years. We talk through a lot of fascinasting stuff, the idea of "not feeling like a man" and how difficult but extremely important it is to ask for help - and then receive it! This is such an honest conversation - thankyou Peter for being brave and getting in touch, and we hope that this will resonate with others wh...

Mar 28, 202456 minSeason 1Ep. 125

124 - Dr Elizabeth So - East Asian Medicine & Acupuncture

Episode 124 of the Long Covid Podcast is a chat with Dr Elizabeth So about East Asian Medicine. We take a deep dive into what EAM is and some of the background to it, as well as how it can help with conditions such as Long Covid - and why! This was such a fascinating discussion - we could have carried on for hours - and one of the biggest takeaways for me was the need to work together. That, and I've basically committed myself to trying Acupuncture now... Elizabeth's website: www.awakenacupunctu...

Mar 20, 202458 minSeason 1Ep. 124

123 - Jackie's Reflections on 4 years since "The Beginning" & Long Covid Awareness Day

Episode 123 of the Long Covid Podcast falls on Long Covid Awareness Day, and also 4 years since I first became unwell. This is my reflections on the last 4 years - Long Covid & beyond. I also did a video for youtube which might be of interest here Episode 94 - my recovery story Message the podcast! - questions will be answered on my youtube channel :) Support the show ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Long Covid Podcast is self-produced & self fund...

Mar 15, 202418 minSeason 1Ep. 123

122 - Professor Louise Cummings - Research into Cognitive & Linguistic Difficulties in Long Covid

Episode 122 of the Long Covid Podcast welcomes back the wonderful Professor Louise Cummings to talk about her follow-up study into the cognitive & linguistic difficulties in adults with Long Covid and also looking at employment outcomes for those people. This is a hugely enlightening discussion, covering a lot of information - I hope you enjoy it as much as I did. My previous episode with Louise: Episode 18 with more details about Louise's original study Testimonials: Samantha Berry, 52 year...

Mar 07, 202453 minSeason 1Ep. 122

121 - Pamela Rose - Difficult Conversations in Chronic Illness

Episode 121 of the Long Covid Podcast is a chat with Fatigue Coach Pamela Rose about those difficult conversations that can come up time and time again. We chat through some of her experiences and how they have led her to be able to work with & help people. And we also dive into those difficult conversations - which ones tend to come up most often, and how can we best handle them? Follow Pamela on Facebook & Instagram Website: https://www.pamelarose.co.uk Courses and webinars: https://pa...

Feb 28, 202454 minSeason 1Ep. 121
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