Long Covid Podcast - podcast cover

Long Covid Podcast

Jackie Baxterwww.longcovidpodcast.com

The Podcast by and for Long Covid sufferers.

Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.

Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"



The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. 

~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. 

The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting. 

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Episodes

120 - Dr Mark Faghy - Research update & first Long Covid anti-viral trial in UK!

Episode 120 of the Long Covid Podcast welcomes the wonderful Dr Mark Faghy back to the podcast for a long awaited catch-up on all the research he's been involved in at Derby Uni, but also info on the first anti-viral Long Covid clinical trial - in the UK, if not the world! https://www.derby.ac.uk/research/showcase/long-covid-research/ Episode #103 with Amy Proal on Viral Persistence Episode #36 with Mark when we first spoke, back in early 2022. Message the podcast! - questions will be answered o...

Feb 21, 202456 minSeason 1Ep. 120

119 - Daniel Gomez & Ewa Beldzik - MRI imaging study

Episode 119 of the Long Covid Podcast is a fascinating discussion with Ewa Beldzik and Daniel Gomez about the Long Covid study they are doing involving MRI and mapping the brain during tasks. We dive a load into the study and it's absolutely amazing! A link to enroll in the study And their email for any questions: MGHLCOVID@MGB.ORG Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out L...

Feb 14, 202449 minSeason 1Ep. 119

118 - Dr Sarah Myhill shares her experience of treating ME/CFS & Long Covid

Episode 118 of the Long Covid Podcast is a chat with Dr Sarah Myhill about her experiences of working with people with ME/CFS and now Long Covid. We chat through her treatment protocol and some ideas to help that are practical & cheap - an important factor! Dr Myhill's website Books: - chronic fatigue book - paleoketogenic diet - ecological medicene - Underactive thyroid book Dr Rachel Brown MetPsy Message the podcast! - questions will be answered on my youtube channel :) For more informatio...

Feb 07, 202451 minSeason 1Ep. 118

117 - Leela O'Brien - Navigating Long Covid & finding meaning in life

Episode 117 of the Long Covid Podcast is a chat with the wonderful Leela O'Brien about her experiences with Long Covid and what she has learned about herself in the process. A big takeaway from this is the "what can we do" and that we don't need to wait to be healed before trying to find ways to enjoy life, even if they are not what we wanted or expected. Personal website & info about her coaching business: https://www.leelaobrien.com Leela's wellness & outdoor adventure blog: https://ww...

Jan 31, 202448 minSeason 1Ep. 117

116 - Dr Claire Taylor - GP & expert advisor in Long Covid

Episode 116 of the Long Covid Podcast is a chat with the fabulous Dr Claire Taylor. We take a dive into her previous experience which led her to Long Covid, and also to some of the common trends & useful strategies she is seeing with her patients. Claire Taylor Twitter Claire Taylor Website Claire Taylor Instagram Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreath...

Jan 24, 202452 minSeason 1Ep. 116

115 - Lauren Stiles - a deep dive into Dysautonomia Research

Episode 115 of the Long Covid Podcast welcomes back CEO of Dysautonomia International Lauren Stiles to chat about research into Dysautonomia, and how this is relevant to Long Covid. This is a fascinating discussion, which dives back into research pre-Covid that is (or should be) informing research happening now. We also take a look at trials and studies happening now - and why they are important. Dysautonomia International Website: http://www.DysautonomiaInternational.org Dysautonomia Internatio...

Jan 10, 202451 minSeason 1Ep. 115

114 - Sarah's story of Long Covid Recovery

Episode 114 of the Long Covid Podcast is a chat with Sarah about her recovery from Long Covid. Sarah is a yoga teacher who is now teaching yoga classes to help people with Long Covid, as well as running her own podcast focused on recovery stories. We chat through Sarah's experiences, what helped her to recover and what life looks like now. http://www.LearnitLive.com/longhaulyogi - regular Yoga for Long Covid Zoom classes online Longhaulyogi.subkit.com - Yoga for Long Covid OnDemand content Insta...

Jan 04, 202455 minSeason 1Ep. 114

113 - Long Covid Creativity 2023

Episode 113 of the Long Covid Podcast is an incredible showcase of creativity inspired by Long Covid. These wonderful talented people have shared so many different varieties of creativity and it was such a joy to witness. Links to all the participants are below - please do check them out - and all the visual elements - paintings, collages, crochet & nail art are on the website creativity page - check this out because it's amazing! Not only does it have this years' participants, but the previ...

Dec 20, 202351 minSeason 1Ep. 113

112 - 2023 Reflections

Episode 112 of the Long Covid Podcast is my 2023 reflections. A lot of look back on, be grateful for and certainly a lot that I've noticed - about myself and the world! Of course this isn't medical advice - just my own observations. Links mentioned: Episode 94 - my recovery story Last year's episode - 2022 Reflections More info about Breathing for Long Covid Our Jan courses (info & sign up) - or email longcovidbreathing@gmail.com Message the podcast! - questions will be answered on my youtub...

Dec 14, 202321 minSeason 1Ep. 112

111 - Sophie Reynolds - Recovery from ME/CFS

Episode 111 of the Long Covid Podcast is a chat with Sophie Reynolds who has recovered from ME/CFS and is now using her experiences to help people through Pilates, which was one of the things that helped her so much. We chat through her experiences as well as what helped, and what she has learned from the experience to take forward into her life now. Sophie's Instagram profile https://www.instagram.com/sophiereynoldspilates/ My free consultation form: https://docs.google.com/forms/d/e/1FAIpQLScb...

Dec 06, 202350 minSeason 1Ep. 111

110 - Lisa, Gina & Hannah from Patient-Led Research Collaborative

Episode 110 of the Long Covid Podcast is a chat with Lisa McCorkell, Gina Assaf & Hannah Davis, co-leads & co-founders of the Patient-Led Research Collaborative. We chat about how Long Covid & the Body Politic Slack community brought them all together, and how the organisation has progressed and flourished from there. Website: patientledresearch.com Nature Review: https://www.nature.com/articles/s41579-022-00846-2 - original body politic survey: https://patientresearchcovid19.com/res...

Nov 29, 202351 minSeason 1Ep. 110

109 - Julie Black - Long Covid recovery

Episode 109 of the Long Covid podcast is a chat with Julie Black about her recovery from Long Covid. We speak through her illness, what she found that helped as well as other observations she has. As with all recovery stories - this is just one person's experience. No two recovery stories are likely to be carbon copies of each other. **transcript now updated - if it's not showing for you, you may need to refresh or re-download** Rachel Witfields recovery blog and resources Recovery Norway recove...

Nov 16, 202359 minSeason 1Ep. 109

108 - Dr Vass & Dr Vicky - Cardiologists & Long Covid Researchers

Episode 108 of the Long Covid Podcast is a chat with Cardiologists and researchers, Vassilios Vassilou & Vicky Tsampasian. We discuss cardiac-related things they have seen in Long Covid patients as well as their research into risk factors of Long Covid and why this is important. https://journals.plos.org/globalpublichealth/article?id=10.1371/journal.pgph.0001188 https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2777978 https://link.springer.com/article/10.1007/s11883-020-00880-6 T...

Nov 09, 202354 minSeason 1Ep. 108

107 - Raelan Agle - the Importance of Sharing Recovery Stories

Episode 107 of the Long Covid Podcast is a chat with the fabulous Raelan Agle who has recovered from Chronic Fatigue Syndrome and is passionate about sharing both her own recovery story and those of others. We chat through her own recovery and some of the themes and highlights of people she has spoken to on her channel. This is so full of hope and excitement and was a genuine joy to record. Raelan's YouTube Raelan's Instagram Raelan's book - Finding Freedom: Escaping From the Prison of Chronic F...

Nov 01, 202347 minSeason 1Ep. 107

106 - Dr Taylor Krick - the Autoimmune Doc

Episode 106 of the Long Covid Podcast is a chat with Dr Taylor Krick from the Washington Wellness Centre and also the host of the "Autoimmune Doc Podcast" We chat through his experiences with patients with autoimmunity both before Covid and since Long Covid came along, as well as some of the patterns he is seeing. www.autoimmunedocpodcast.com @autoimmunedoc on instagram, I think Facebook is the same Message the podcast! - questions will be answered on my youtube channel :) For more information a...

Oct 18, 202350 minSeason 1Ep. 106

105 - Dr Calum Carson - Inclusive Remote & Hybrid Working Study

Episode 105 of the Long Covid Podcast is a chat with Dr Calum Carson, Senior Research Associate at Lancaster University about the Inclusive Remote and Hybrid Working Study which he is involved in. Participate in the study Project website Previous study The changing workplace: Enabling disability-inclusive hybrid working - Lancaster University Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please ...

Oct 11, 202345 minSeason 1Ep. 105

104 - Alison Larkman - "I would be here if I could"

Episode 104 of the Long Covid Podcast is a chat with artist, Alison Larkman, about her project "I would be here if I could" which is currently in progress. We chat about the inspiration behind the project, and Alison's experiences with ME which really resonate throughout the project. More information, or participate! www.IWouldbeHereIfICould.com Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, plea...

Oct 04, 202338 minSeason 1Ep. 104

103 - Dr Amy Proal - Viral Persistence in Long Covid

Episode 103 of the Long Covid Podcast is a chat with the fabulous Dr Amy Proal, a microbiologist researching viral persistence in Long Covid. We chat through what brought her to this research as well as taking a bit of a deep dive into the topic. Review Paper: https://www.nature.com/articles/s41590-023-01601-2#MOESM1 PolyBio Research Foundation recent paper on SARS-CoV-2 reservoir in LongCovid/PASC Message the podcast! - questions will be answered on my youtube channel :) For more information ab...

Sep 27, 202359 minSeason 1Ep. 103

102 - Dan Neuffer - how can ANS Rewire help in Long Covid Recovery?

Episode 102 of the Long Covid Podcast is a chat with Dan Neuffer about his experiences with ME/CFS and how that led him to create the ANS Rewire program. We discuss Dan's hypothesis for post viral fatigue syndrome, and how this relates to Long Covid recovery. Get Dan's free e-book Request the free intro lessons for ANS Rewire CFS Unravelled - YouTube CFS Unravelled Instagram Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing...

Sep 20, 20231 hr 2 minSeason 1Ep. 102

101 - Dr Sally Riggs - Long Covid & the Nervous System

Episode 101 of the Long Covid Podcast welcomes back Dr Sally Riggs for a chat about Polyvagal theory and how this relates to Long Covid. We talk through some Polyvagal strategies that can be tried as well as Sally's personal experience. Episode #23 - Sally's previous episode More info on doing SSP with Sally Unyte ILS SSP practitioners "how to find an SSP practitioner" Youtube Sally's Website Sally's Facebook group Sally's E-course Sally's YouTube Message the podcast! - questions will be answere...

Sep 14, 202348 minSeason 1Ep. 101

100 - Michelle Irving - Emotional Empowerment in chronic illness

Episode 100 (yes - 100!!) of the Long Covid Podcast is a chat with the fabulous Michelle Irving, a coach working with people with chronic illness to help them to feel empowered. We talk about her own experiences with chronic conditions and how she is using them to help guide others. This is a wonderful, inspiring discussion, always focusing on what we can do, rather than what we can't. Emotional empowerment map Sarah Marie Ramey (the Lady's Mysterious Illness) Michelle's website Career & Chr...

Sep 06, 202355 minSeason 1Ep. 100

99 - Viola Sampson - Long Covid & the Microbiome

Episode 99 of the Long Covid Podcast is a chat with the fabulous Viola Sampson, microbiome analyst and certified health coach. Viola has recovered from ME after a long illness and is passionate about helping people with fatigue conditions through her knowledge of the microbiome. This is a fantastic dive into what the microbiome is, and how we might be able to improve our own. Instagram @violasampson_microbiome Podcast with more detail on microbiome changes can be found at: https://www.biomesight...

Aug 30, 202348 minSeason 1Ep. 99

98 - Charlotte Hammond - Long Covid Recovery

Episode 98 of the Long Covid Podcast is a chat with Charlotte Hammond who is sharing her recovery story! We chat through her initial illness, symptoms, what she found that helped as well as more useful stuff for those still suffering. Charity providing counselling (UK) Dr Sinclair Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, ...

Aug 23, 202342 minSeason 1Ep. 98

97 - Harlan Krumholz - Listen Study & Paxlovid Trial

Episode 97 of the Long Covid Podcast is a chat with Dr Harlan Krumholz, Cardiologist, leading research scientist at Yale and also the co-lead of the Paxlovid Trial. We chat around the research into Long Covid at Yale - the Listen Study as well as the Paxlovid Trial which are collaborations with Akiko Iwasaki, as well as the way that these studies are being run - in a decentralised way. More info & sign up for the Listen Study More info & how to sign up for the Paxlovid Trial Message the ...

Aug 16, 202343 minSeason 1Ep. 97

96 - Dr Masha Makeeva - Hyperbaric Oxygen & other recovery strategies

Episode 96 of the Long Covid Podcast is a chat with Dr Masha Makeeva, Canadian Board-Certified Naturopathic Doctor, educator, and motivational speaker, but also has experience of Long Covid and other chronic conditions. We chat through her own experiences and how her knowledge as a doctor (as well as previous illness) has helped her to move towards recovery. Youtube channel Instagram @dr_masha_makeeva website - www.drmasha.com The Plant Paradox MS HBOT link (for UK) Neural Therapy Network (HBOT ...

Aug 09, 202350 minSeason 1Ep. 96

95 - Dr Élaina Gauthier-Mamaril - "Long Covid, Zombies & Crip Prophecies"

Episode 95 of the Long Covid Podcast is a chat with the fabulous Élaina Gauthier-Mamaril, Interdisciplinary Research Fellow at the Centre for Biomedicine, Self and Society at the University of Edingurgh. She has experience of disability through ME/CFS and is also presenting part of her research at the Edinburgh Fringe this summer as a show - "Long Covid, Zombies & Crip Prophecies" This is such an interesting discussion about disability in general as well as Élaina's research and how it is im...

Aug 02, 202339 minSeason 1Ep. 95

94 - Jackie's Long Covid Recovery Story

Episode 94 of the Long Covid Podcast is a bit special - here I am handing over my hosting duties to my partner, Malky, so he can interview me about my recovery. Yes - my recovery - from Long Covid. Although it's impossible to cover everything (I've already thought of loads of things I wanted to say but forgot), hopefully we got most of the important stuff. As always - if you have questions - please do get in touch, as there's always the possibility of a follow-up (with any guest). And if I get e...

Jul 26, 202350 minSeason 1Ep. 94

93 - Dr Viki Male - Research into Long Covid & Menstruation

Episode 93 of the Long Covid Podcast is a chat with Dr Viki Male who is doing research into Long Covid and menstruation, in collaboration with the app Visible, as well as the Wilco study. We chat about the 2 different studies she is involved in, and how they will hopefully bring together a load of data to give some answers. This study is a really cool example of a collaboration between people with Long Covid and researchers, so it really demonstrates that people's voices are being heard. If you'...

Jul 19, 202345 minSeason 1Ep. 93

92 - Q&A with Dr Groysman Part 2

Epsiode 92 of the Long Covid Podcast is the second half of my question & answer session with Dr Groysman - the link to the first half is below, if you've not already heard it. If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch. Dr Groysman episode on Stellate Ganglion Block Part 1 of this interview Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please ch...

Jul 12, 202337 minSeason 1Ep. 92

91 - Q&A with Dr Groysman Part 1

Epsiode 91 of the Long Covid Podcast is a question & answer session with Dr Groysman, who you will have heard in previous episode talking about the Stellate Ganglion Block. This is part 1 of this session as it ran quite long - the link to the second half is below (or wherever you get your podcasts!) If you have more questions for Dr Groysman - or indeed any of my guests - do get in touch. Dr Groysman episode on Stellate Ganglion Block Part 2 of this interview Message the podcast! - questions...

Jul 06, 202348 minSeason 1Ep. 91
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