Long Covid Podcast - podcast cover

Long Covid Podcast

Jackie Baxterwww.longcovidpodcast.com

The Podcast by and for Long Covid sufferers.

Long Covid is estimated to affect at least 1 in 5 people infected with Covid-19. Many of these people were fit & healthy, many were successfully managing other conditions. Some people recover within a few months, but there are many who have been suffering for much much longer.

Although there is currently no "cure" for Long Covid, and the millions of people still ill have been searching for answers for a long time, in this podcast I hope to explore the many things that can be done to help, through a mix of medical experts, researchers, personal experience & recovery stories. Bringing together the practical & the hopeful - "what CAN we do?"



The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. 

~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. 

The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting. 

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Episodes

90 - Dr James Jackson - Brain Fog, Cognitive Impairment & Brain Injury

Episode 90 of the Long Covid Podcast is a chat with Dr. James Jackson, who is a psychologist specializing in neuro psychology and rehabilitation, and an internationally renowned expert on the effects of illness, including long COVID, on cognitive and mental health functioning. This was a wonderful discussion with so much help as well as hope! Purchase "Clearing the Fog - a practical guide to surviving and thriving with Long Covid" www.jamescjackson.com Brain HQ Message the podcast! - questions w...

Jun 28, 202355 minSeason 1Ep. 90

89 - Gina Short - Long Covid Recovery

Episode 89 of the Long Covid Podcast is a chat with Gina Short about her recovery from Long Covid. We chat through the things that helped as well as what she has learned from her experience. Suzy Bolt Rest Repair program The Fern Programme Stasis Breathing Books mentioned: The Way Out , Cured , Breaking Free Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (m...

Jun 21, 202354 minSeason 1Ep. 89

88 - Dr Tania Dempsey - Chronic Disease Expert

Episode 88 of the Long Covid Podcast is a chat with Dr Tania Dempsey, expert in chronic disease and a master of finding the root cause of "mystery illnesses" We talk about her experiences both before Covid, and since with Long Covid patients. www.drtaniadempsey.com https://aimcenterpm.com/ https://aimcenterpm.com/six-surprising-places-bacteria-are-growing-in-your-home/ Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing cours...

Jun 14, 202356 minSeason 1Ep. 88

87 - Dr Mark Harper - Cold Water & Long Covid

Episode 87 of the Long Covid Podcast is a chat with Dr Mark Harper, consultant anesthetist, researcher and cold water enthusiast! We chat about cold water and all it's amazing benefits on both mind & body, as well as how you can do it safely. Chill (swims around the UK) Mark Harper website Mental Health Swims Buy Mark's book "Chill" https://blackwells.co.uk/bookshop/product/Chill-by-Mark-Harper/9781797213767 ; https://www.waterstones.com/book/chill/mark-harper/9781797213767 Message the podca...

Jun 07, 202350 minSeason 1Ep. 87

86 - Harry Leeming - Visible Health

Episode 86 of the Long Covid Podcast is a chat with Harry Leeming, CEO & co-founder of Visible Health. We chat through the reasons behind Visible as well as more practically what it does & how it can benefit you! **We are aware of the latest research by PLRC, just released, on Long Covid & Menstruation which hadn't yet been published at the date of recording - so the statement that there is no data on this isn't quite true, although I'd argue that it's still under-studied.** Visible ...

May 31, 202339 minSeason 1Ep. 86

85 - Fiona Agombar - Yoga Therapy in Recovery from Long Covid

Episode 85 of the Long Covid Podcast is a chat with the fabulous Fiona Agombar, a yoga therapist, author and rest activist who specializes in teaching live online yoga for all fatigue conditions, including MECFS, exhaustion, burnout from stress, and of course, now long COVID. Restful Yoga for Fatigue with Fiona - an uplifting community page for those interested in yoga. Fiona's website - more about her classes and books and her story. Yoga Therapy for Stress, Burnout and Chronic Fatigue Syndrome...

May 24, 202349 minSeason 1Ep. 85

84 - Caroline Pover - Spotlight on Vaccine Injuries

Episode 84 of the Long Covid Podcast is a chat with Caroline Pover and puts a bit of a spotlight on the issue of vaccine injuries. Although we don't know the full story, the vax injured seem to be close cousins of Long Covid and an issue all too often swept under the carpet. Caroline tells her story and shares a few things that have helped her. Caroline Pover website UKCV Family website "Get well fast now" protocol "Safe & Effective" film Caroline speaking at the "Better Way" conference "My ...

May 17, 202345 minSeason 1Ep. 84

83 - Ryan Prior - Journalist, Producer, Author & Advocate

Episode 83 of the Long Covid Podcast is a chat with Ryan Prior, journalist, producer, author & advocate. Ryan chats about his experiences with ME and how he saw the wave of Long Covid coming long before many of us did. We chat about his thoughts on many aspects of Long Covid & chronic illness in general, as well as his new book - The Long Haul. Buy "The Long Haul" Ryan's website Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Cov...

May 10, 202346 minSeason 1Ep. 83

82 - Dr Jay T Wiles - Heart Rate Variability in Long Covid Recovery

Episode 82 of the Long Covid Podcast is a chat with the fabulous Dr Jay T Wiles, who is a Clinical health physiologist specialising in sports performance and holistic & integrative health. He is also board certified in biofeedback and heart rate variability biofeedback which is what we're going to be covering in this episode. We chat about what HRV actually is - and then how to apply it to daily lives, especially in the context of Long Covid & chronic illness. I learned so much from spea...

May 03, 202353 minSeason 1Ep. 82

81 - Dr Liza DiLeo Thomas - Patient Experience Professional & Long Hauler

Episode 81 of the Long Covid Podcast is a chat with Dr Liza DiLeo Thomas who is a Patient Experience Professional and also has Long Covid. Liza has also worked as an emergency medicine physician in New Orleans. We chat about how she has learned more about her role through experiencing an "invisible disability" such as Long Covid; seeing things through the eyes of a patient as well as a medical professional, as well as what empathy really means. Message the podcast! - questions will be answered o...

Apr 26, 202345 minSeason 1Ep. 81

80 - Dr Anjali Agarwal - Physio Specialising in EDS & Long Covid

Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist. We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things can fit together - as well as what we can do to help. Anjali's website Knee pain Long Covid Physio Board Dr Anjali Healthy Tales Podcast episod...

Apr 19, 202347 minSeason 1Ep. 80

79 - Michael Towers - Chronic Fatigue Superhero

Episode 79 of the Long Covid Podcast is a chat with Michael Towers, creator of Chronic Fatigue Superhero - a series of comics depicting life with a chronic illness. We discuss the character as well as the immense amount of work that goes into making a book when you have a chronic illness. Follow Michael on Instagram Buy the book Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out Long...

Apr 12, 202338 minSeason 1Ep. 79

78 - Dr Lucy Gahan - Long Covid, Psychology, Loss & Activism

Episode 78 of the Long Covid Podcast is a chat with Dr Lucy Gahan, Long-hauler, Clinical Psychologist and a published author! We discuss what she has learned from her experiences and how this led her to write her book "Breaking Free from Long Covid - reclaiming life and the things that matter" - I think the title speaks for itself! Lucy's book "Breaking Free from Long Covid" Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing...

Apr 05, 202348 minSeason 1Ep. 78

77 - Suzy Bolt - Fears around Reinfection

Episode 77 of the Long Covid Podcast is a chat with the wonderful Suzy Bolt about the fears around reinfection, or indeed infection of any kind. This is something that is a huge concern for me, and I know for many others. Suzy gives loads of really good advice - and her own experiences - around this, so I hope you're able to take as much away from it as I did. Links: 360MindBodySoul The Fern Programme YouTube Channel Workshop on reinfection Message the podcast! - questions will be answered on my...

Mar 29, 202354 minSeason 1Ep. 77

76 - Dr Robert Groysman - Stellate Ganglion Block

Episode 76 of the Long Covid Podcast is a chat with Dr Robert Groysman about the work he has been doing treating Long Covid with the Stellate Ganglion Block. We discuss what the block is and how it can be really successful in helping people. Facebook Treatment Group YouTube Channel Dr Groysman's website Dr Groysman in NewsMax Dr Groysman in a Houston Magazine Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & w...

Mar 22, 202356 minSeason 1Ep. 76

75 - My 3 Year Reflections - Are we nearly there yet?!

Episode 75 of the Long Covid Podcast is Jackie's reflections on 3 years of Long Covid, and why there is cause for positivity. Despite the many mistakes, this is reflections on a search for answers and "hacking" your way through to see improvement. This is not medical advice! Message the podcast! - questions will be answered on my youtube channel :) Support the show ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Long Covid Podcast is self-produced & self funded. If ...

Mar 17, 202316 minSeason 1Ep. 75

74 - Dr Walter Koroshetz - Director of NINDS on Long Covid Research at the NIH

Episode 74 of the Long Covid Podcast is a chat with Dr Walter Koroshetz, Director of the National Institute of Neurological Disorders & Stroke, part of the National Institute of Health in the US. We chat through the RECOVER Initiative which is a huge study looking into all aspects of Long Covid, and also talk a little about ME/CFS research done by Dr Avindra Nath. Links: https://www.ninds.nih.gov/about-ninds/who-we-are/directors-corner Transcript available under the "transcript" tab HERE - M...

Mar 08, 202339 minSeason 1Ep. 74

73 - Dr William Li - Physician, Scientist & Long Covid Researcher

In episode 73 of the Long Covid Podcast I chat with the fabulous Dr William Li, who is a Physician, Scientist, president and medical director of the Angiogenesis Foundation, and bestselling author of “Eat to Beat Your Diet: Burn Fat, Heal Your Metabolism, and Live Longer”. Dr. Li is leading research into COVID-19 and Long Covid which is what brings him to the Long Covid Podcast! We chat through some of his findings and theories, as well as what can be done to help. I learned so much from this so...

Mar 01, 202351 minSeason 1Ep. 73

72 - Prof Amitava Banerjee - STIMULATE-ICP Study

Episode 72 of the Long Covid Podcast is a chat with Professor Amitava Banerjee about the STIMULATE-ICP study which he is co-lead of. We chat a load about the different "arms" of the study itself, how it has been developed and the role of patient involvement. We also chat about how you might be able to get involved in different parts of the study. Link to website: https://stimulate-icp.org/ Message the podcast! - questions will be answered on my youtube channel :) For more information about Long ...

Feb 22, 202336 minSeason 1Ep. 72

71 - Nic Wray on Tinnitus - what is it, and what can I do?

Episode 71 of the Long Covid Podcast is a chat with Nic Wray from Tinnitus UK (formerly the British Tinnitus Association) about all things Tinnitus. We chat about possible triggers, the ups and downs, what can be done about it and research that is ongoing into the condition. This episode ties in with Tinnitus Week which is this week - February 6-10 2023. More information in the episode, or the links below. Tinnitus UK Your Covid Recovery tinnitus information Message the podcast! - questions will...

Feb 08, 202342 minSeason 1Ep. 71

70 - Lorrie Rivers - Reclaiming life from chronic illness & helping others do the same

Episode 70 of the Long Covid Podcast is a chat with the fabulous Lorrie Rivers. Lorrie has herself recovered from Me/CFS as well as Long Covid & Fibromyalgia and is helping others to do the same. Lorrie has been helping people manage their illnesses for years and has seen a lot of success stories, but feels she has made a break-through recently which she is really excited to share. Useful links below: What’s the Root Cause of My Illness? Lorrie Rivers - Living from Inspiration Join Facebook ...

Feb 02, 202359 minSeason 1Ep. 70

69 - Fiona Lowenstein - Journalist, Writer, Body Politic Founder & Long Covid Advocate

Episode 69 of the Long Covid Podcast is a chat with Fiona Lowenstein, Journalist, writer, Long Covid Advocate and now author/editor of "The Long Covid Survival Guide". We chat through Fiona's early experiences of Covid & Long Covid which led them to create the Body Politic support group which is such a lifeline to so many. We also discuss the book and the idea behind it, as well as so much more. Purchase "The Long Covid Survival Guide" Long COVID Survival Guide book exchange The book's page ...

Jan 25, 202358 minSeason 1Ep. 69

68 - Dr David Saperstein - links in Long Covid, MCAS, Dysautonomia, EDS & more

Episode 68 of the Long Covid Podcast is a chat with Dr David Saperstein from the Center of Complex Neurology, EDS & PoTS based in Phoenix, Arizona. Dr Saperstein has been working with complex conditions for over 20 years and is now also helping those with Long Covid and post-vaccine symptoms. This is a fascinating discussion about approaches to diagnoses & treatment, how certain conditions can affect one another as well as what can be done. I hope you enjoy as much as I did. Center for C...

Jan 18, 202356 minSeason 1Ep. 68

67 - DecodeME - a chat with Prof Chris Ponting & Andy Devereux-Cooke

Episode 67 of the Long Covid Podcast is a chat with two wonderful people from the Decode ME genetics study – Professor Chris Ponting who is the lead on the study, and Andy Devereux-Cooke, co-founder of the Science for ME forum and also an investigator (PPI) on the DecodeME Management Group. We discuss the study itself as well as some of the background behind it. If you are interested in signing up (or would just like some more information about the study) please go to DecodeME.org.uk Science for...

Jan 12, 202348 minSeason 1Ep. 67

66 - Lauren Stiles - President & co-founder of Dysautonomia International

Episode 66 of the Long Covid Podcast is a chat with the fabulous Lauren Stiles, President & co-founder of Dysautonomia Internation. Lauren describes herself as a "very high functioning sick person" and has so much amazing knowledge to impart about all forms of Dysautonomia itself, as well as the diagnostic journeys that many of us find ourselves on. This was a hugely enjoyable conversation - I hope you enjoy it as much as I did! Dysautonomia International Website Dysautonomiainternational.or...

Jan 04, 202343 minSeason 1Ep. 66

65 - Long Covid Creativity 2022

Episode 65 of the Long Covid Podcast is a wonderful collection of creativity inspired by Long Covid, from children to adults and all across the world. It's an inspiring listen as these talented people tell their own stories and perform their own work. If you're inspired - please get in touch - I always love to hear from you and do join the FB group - link below. Long Covid Choir - "When we sing together" by Vicky Jacobs (Sound engineer Nick Westoby) Julia's plants & artwork - see the Long Co...

Dec 20, 202235 minSeason 1Ep. 65

64 - 2022 Reflections

Episode 64 of the Long Covid Podcast is some personal reflections on the last 6 months and this year. Things I've learned, and what has helped me. Of course, I am not a medical professional, and this is not advice. I'm not recovered yet, but have seen some improvement. Always very happy to hear from you - what's helped you and how are you doing? My Vedicinals blog Food Intolerance test Episode 40 - Dr Boon Lim Episode 49 - Adrian & Leanne (wild swimming) Safe & Sound Protocol (SSP) Messa...

Dec 14, 202224 minSeason 1Ep. 64

63 - Dr Michael Bagnell - Long Covid & the brain

Episode 63 of the Long Covid Podcast is a chat with Dr Michael Bagnell, Functional Neurologist & Chiropractic Physician based in Miami, Florida. We talk about all things Long Covid and the brain - what's causing things to go wrong and how to fix them! Useful links below. www.bagnellbraincenter.com https://www.bagnellbraincenter.com/online-forms.html "Persistent Brainstem Dysfunction in Long Covid - a Hypothesis" Message the podcast! - questions will be answered on my youtube channel :) For m...

Nov 30, 202250 minSeason 1Ep. 63

62 - Nisreen Alwan - Professor of Public Health, Researcher & Long-hauler

Episode 62 of the Long Covid Podcast is a chat with the wonderful Professor Nisreen Alwan. We chat about her experiences with Long Covid as a first-waver, her ability to work and what made this possible. We also talk about social media, her experience of researching Long Covid as well as some thoughts about changes that should happen going forward. TED talk Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & wor...

Nov 23, 202245 minSeason 1Ep. 62

61 - Rosie & Colin Pidgeon - Long Covid in young people & Rosie's artwork

Episode 61 of the Long Covid Podcast is a chat with Rosie & Colin Pidgeon. Rosie has had Long Covid for a little over a year after catching it at school. Rosie talks through her symptoms & what has helped; and Colin, her wonderfully supportive Dad, describes how he's adjusted his & his family's life to help support Rosie. Rosie is also a really talented artist, and is curating an exhibition at the start of December, in aid of Long Covid Kids. Links below (& these will get updated...

Nov 16, 202228 minSeason 1Ep. 61
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