Episode 60 of the Long Covid Podcast is a chat with Reema Ahmad who has Long Covid following a 2020 infection but has had a difficult route to diagnosis. We chat through a lot of her experiences and what she has learned from them, things that have helped her and lessons learned. This is a really frank and honest discussion and will hopefully make a lot of people feel validated and heard. Reema's book - Un-Parenting Message the podcast! - questions will be answered on my youtube channel :) For mo...
Nov 10, 2022•44 min•Season 1Ep. 60
Episode 59 of the Long Covid Podcast is a chat with the fabulous Vikki Jones, personal trainer, dietitian, wellness coach and former international athlete. Vikki is suffering with Long Covid and has developed a passion for breathing and helping others going through the "longhaul experience" We chat through all sorts of things from her own experiences, the collective trauma we all suffer as well as some practical advice for things we can do NOW to improve our breathing. Patrick McKeown - The Brea...
Nov 02, 2022•59 min•Season 1Ep. 59
Episode 58 of the Long Covid Podcast is a chat with Fiona Jones, Co-lead of the LISTEN trial which is funded by the NIHR and is currently recruiting in parts of England & Wales. We chat about the 2 parts of the trial, how it's been set up and the benefit of their patient involvement both for the researchers & the the patients themselves. Home (listentrial.co.uk) What do people with long Covid think of LISTEN? (listentrial.co.uk) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...
Oct 26, 2022•46 min•Season 1Ep. 58
Episode 57 of the Long Covid Podcast is a chat with Dr Sanjay Gupta, a doctor who has been specialising in the treatment of PoTS since before Long Covid. We chat about the influx of PoTS patients since Covid began, how he got into treating these patients as well as what his treatment recommendations would be (some of which can be done from home ourselves). Youtube channel PoTS Specialist website (lots of resources & some discount codes) Dr Sanjay Gupta website York Cardiology website ~~~~~~~...
Oct 19, 2022•50 min•Season 1Ep. 57
Episode 56 of the Long Covid Podcast is a chat with Johanna Rayl who has recovered from Long Covid. We chat through her initial illness, how this progressed and then how she recovered. We also chat through some things she learned along the way and useful tips with the benefit of hindsight. (Transcript now available - sorry for the delay) CFS Unravelled ANS rewire Curable app Johanna's 8 pieces of advice article Podcast on fear ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Th...
Oct 12, 2022•52 min•Season 1Ep. 56
Episode 55 of the Long Covid Podcast is a chat with Dr Jacob Teitelbaum, Chronic Fatigue Specialist and author of "From Fatigued to Fantastic". We chat about post-viral illness and many of the things that can be done to help people to recover. There's lots of inspiring & useful information here (transcript now live - sorry for the slight delay) Cures A-Z app on Google Play or Apple www.Vitality101.com (finding information) recoveryfactors.com www.EndFatigue.com (finding supplements) Email Dr...
Oct 05, 2022•46 min•Season 1Ep. 55
Episode 54 of the Long Covid Podcast is a chat with Elizabeth Dreicer, CEO of Consuli. We chat a load about what Consuli does, and the study into Long Covid & immunology with La Jolla Institute of Immunology. It's a fascinating discussion so really interesting to everyone! Consuli.net Consuli Long Covid Study Information La Jolla Institute for Immunology ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Long Covid Podcast is self-produced & self funded. If you enjoy ...
Sep 28, 2022•32 min•Season 1Ep. 54
Episode 53 of the Long Covid Podcast is a chat with Dr Deepak Ravindran, a pain specialist and lead of the Long Covid Service in Berkshire. We chat about what causes pain in Long Covid (& the crossovers with other conditions) as well as some strategies of how to help. Deepak also gives some insight from his work with the Long Covid Clinic which is really fascinating and will he helpful to everyone. The Pain-Free Mindset book Apologies for the occasional lack in quality - the internet connect...
Sep 21, 2022•52 min•Season 1Ep. 53
Episode 52 of the Long Covid Podcast is a chat with Dr Margaret Koziel, Chief Medical Officer of Axcella Therapeutics. Earlier this year I spoke to Margaret (& Bill, CEO) about AXA1125, a drug they are developing to help people with Long Covid. When we spoke before, they were just heading into Clinical Trials for AXA1125, and Margaret is here to tell us about the exciting results from that trial, and also the next steps. Axcella Website Results of Clinical Trial clinicaltrials.gov ~~~~~~~~~~...
Sep 14, 2022•34 min•Season 1Ep. 52
Episode 51 of the Long Covid Podcast is a chat with Darren Brown, Chair of Long Covid Physio. Darren talks about what disability means and can look like for different people. Measuring disability can be so difficult and he discusses some possible better ways of doing it. This is a fascinating short follow-up to episode 47 (which is absolutely worth a listen too) Links: 1) Website 2) About Long COVID Physio 3) Resources 4) Quick Access 5) Video Series 6) FisioCamera 7) Safe Long COVID Rehabilitat...
Sep 06, 2022•15 min•Season 1Ep. 51
Episode 50 of the Long Covid Podcast is a chat with Chrissi Kelly, founder of the UK charity AbScent, a charity which helps people with smell & taste loss or change. We chat about the charity, how it can help people as well as some helpful tips for those experiencing this symptom. Abscent website AbScent Network Youtube channel Huel (UK) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and...
Aug 31, 2022•44 min•Season 1Ep. 50
Episode 49 of the Long Covid Podcast is a chat with Dr Adrian Baker & Leanne about wild swimming. Adrian, a GP in Nairn in north-east Scotland, is an avid wild swimmer as well as having also had Long Covid and recovered from it. Leanne, also from Nairn, has had her life completely transformed by wild swimming and hearing her story is incredibly inspiring for anyone listening. We chat through both Adrian & Leanne's experiences as well as some really useful advice & information for any...
Aug 24, 2022•35 min•Season 1Ep. 49
Episode 48 of the Long Covid Podcast is a chat with Saskia Mulder, a nurse living with Long Covid. We chat through some of her experiences, some of the things that have helped her in her journey and about mental health (& the importance of seeking help). We also chat a load about her trip to South Africa to see "Doctor Jaco", a load about microclots & the treatment that followed. Saskia is completely honest about her experiences, so a really useful listen for anyone. Blog - "Living with ...
Aug 17, 2022•56 min•Season 1Ep. 48
Episode 47 of the Long Covid Podcast is a chat with the fabulous Darren Brown, Chair of Long Covid Physio. We talk about what Long Covid Physio is and how it came into being as well as some of the fabulous resources that are on their website. We also talk a load about the Long Covid Physio International Forum, which is a fantastic looking event coming up on 9-10th September this year. A link to register is below (as well as links to a whole load of other really brilliant stuff.) There will be a ...
Aug 10, 2022•42 min•Season 1Ep. 47
Episode 46 of the Long Covid Podcast is a chat with patient advocate, researcher & author Gez Medinger who many of you will know from his wonderful YouTube videos on Long Covid. We chat around his experiences of Long Covid, how this led him down a bit of a rabbit hole and the book which has come out of it! It was great fun chatting and hopefully we've come up with something useful for you to listen to. There is the potential for a follow-up, so do send in your questions! Gez YouTube channel ...
Aug 03, 2022•54 min•Season 1Ep. 46
Episode 45 of the Long Covid Podcast is a chat with endocrinology wizard Keith Littlewood about hormones, the thyroid & how this could all link in with the Long Covid puzzle. We chat through all things thyroid, why it can be so complicated and what to look out for (as well as what could be done to help). We also chat around loads of other stuff - it was super interesting for me, so I hope there's something in there for you too! Website - lots of really useful info Medical nemesis - Ivan Illi...
Jul 26, 2022•53 min•Season 1Ep. 45
Episode 44 of the Long Covid Podcast welcomes back Moira Newiss, Nutritional Therapist, to talk a bit more in depth about how we make our energy. If you haven't already, I highly recommend listening to episode 21 where Moira talks a lot about different foods. In this episode we dive a little deeper into some of the mechanisms as well as what we can do to support them and journey back towards health. Moira's Easy Healthy Meals Blog on Keto Moira's Website ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...
Jul 20, 2022•41 min•Season 1Ep. 44
Episode 43 of the Long Covid Podcast is a chat with Dr Mohammad Bashashati, Clinician Scientist & Internist and Senior GI Fellow at Texas Tech University Health Sciences Center in El Paso, Texas. We chat about GI issues in both acute and Long Covid, and the huge numbers of people who present with these issues, despite it being a topic that isn't talked about enough. We chat about DGBI (disorders of the gut brain interaction), what this means and what might help to treat and manage them. Publ...
Jul 13, 2022•45 min•Season 1Ep. 43
Episode 42 of the Long Covid Podcast is a chat with Dr Alison Twycross, founder of Long Covid Nurses & Midwives UK. We chat through her experiences with Covid & then Long Covid as well as her work in employment and specifically with nurses & midwives. There are a lot of employers who are treating their staff well, but sadly there seem to be more that aren't and we chat about some of the problems & possible solutions to helping people with Long Covid (& other chronic condition...
Jul 06, 2022•50 min•Season 1Ep. 42
Episode 41 of the Long Covid Podcast is a chat with Joachim Gerlach about Vedicinals-9 - a nutraceutical developed to help Covid and Long Covid. We chat about how this differs to pharmaceuticals and a bit about how it was developed. We also chat a little about the Long Covid Foundation (link below) and what it is hoping to achieve. Vedicinals Website (can be ordered from here - also lots of info about Vedicinals & link to clinical trial) Long Covid Foundation 3rd Long Covid Coalition Confere...
Jun 30, 2022•43 min•Season 1Ep. 41
Episode 40 of the Long Covid Podcast is a chat with the wonderful Dr Boon Lim. We talk about the heart and how it's connected to the rest of the body, what can go wrong when something like Long Covid affects the body and how we can help ourselves and get better (what more could we want?!) I have already listened to this episode several times myself and actually felt instantly slightly better after hearing it! It's quite a long listen but it's really worth getting to the end, even if you need to ...
Jun 22, 2022•1 hr 14 min•Season 1Ep. 40
Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point. We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways. If you'd like to know more, you can get involved with Tracy at Glasgow uni or the UK research involvement groups via the links belo...
Jun 15, 2022•57 min•Season 1Ep. 39
Episode 38 of the Long Covid Podcast is a chat with Dr Tina Peers who is a leading expert in MCAS - Mast Cell Activation Syndrome, a little known condition which seems to be intertwined with Long Covid. As people with Long Covid struggle to learn about the condition, Dr Peers shares her knowledge about MCAS, some treatment/management options and some of the experiences she has had with it. We also talk about a few other things she has found that can help with MCAS and Long Covid. It's a fascinat...
Jun 08, 2022•52 min•Season 1Ep. 38
Episode 37 of the Long Covid Podcast is a chat with Dr Asad Khan who has become well-known among the Long Covid communities. Asad caught Covid whilst working as a respiratory doctor on Covid wards, and has since developed Long Covid. We chat through this experiences as well as what he has done in terms of treatments & managing symptoms. There is loads of really useful stuff in here - it was a pleasure chatting and I hope some of it is useful to you too. Links: Microbiome testing Vagus nerve ...
Jun 01, 2022•56 min•Season 1Ep. 37
Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby. The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are looking to do things right - and I'm looking forward to seeing how things go forward. ~~~~~~~~~~~~~~~~~~~...
May 25, 2022•44 min•Season 1Ep. 36
Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics. Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and brain fog symptoms. Links: Axcella Therapeutics Announces Initiation of AXA1125 Long COVID Phase 2a Cl...
May 18, 2022•37 min•Season 1Ep. 35
Episode 34 of the Long Covid Podcast is a chat with Sam Munslow about her experiences with Covid and then Long Covid, and how that led to her new book "We Will Covive" and her becoming The Covid Coach. Sam's book is written with diary entries followed by reflections and it was fascinating reading it because I saw so many parallels from my own experiences, and had had similar reflections myself! We also talk about how our thoughts can be harmful and how "mental self-harming" adds even more nastin...
May 11, 2022•39 min•Season 1Ep. 34
Episode 33 of the Long Covid Podcast is a chat with Professors Resia Pretorius & Douglas Kell about their discovery of microclots & hyperactive platelets in the blood of people with Long Covid, what this means and more about their research into this. We cover a whole load of amazing stuff from causes to possible treatments - I hope you enjoy listening as much as I enjoyed speaking to them! Links: Doug's Clots website: http://dbkgroup.org/longcovid/ Resia's article in the Guardian HERE Th...
May 04, 2022•47 min•Season 1Ep. 33
Episode 32 of the Long Covid Podcast is a chat with Esther about her Long Covid journey and eventual recovery. I think it's important to hear that people have recovered as it gives those of us who are still suffering a bit of hope. We talk about what helped her (and what didn't!) and although everyone's journey will be different, hopefully some of what we talk about will be helpful to you. Of course, neither myself or Esther are medical experts so make sure you listen to your body & consult ...
Apr 27, 2022•41 min•Season 1Ep. 32
Episode 31 of the Long Covid Podcast is a chat with Zoe Challenor - Zoe is a musician and singer who caught Covid early in the pandemic and went on to develop Long Covid. She has used her experiences of both Long Covid and singing to set up the Long Covid Choir - an online choir bringing together Long Covid sufferers from around the globe. We chat a bit about Zoe's experiences with Covid & Long Covid - I'm sure many of you will be able to relate - as well as how she set up the choir and what...
Apr 20, 2022•38 min•Season 1Ep. 31
