Living with Long covid - podcast cover

Living with Long covid

This podcast aims to raise awareness of long covid, provide a platform of support, education and the lived experience.My name is Julie, I am a registered nurse in the UK. I became unwell with Covid in May 2020 while working on the front line, during the first wave of the pandemic. Subsequently I live with long covid and POTS ( postural orthostatic tachycardia syndrome). I would like to share my journey and lived experience, the symptoms and how each impacts daily life. I aim to not only consider the physical issues but also the impact this has had mentally and emotionally. It is reported over 2 million people in the UK and an estimated 65 million worldwide, live with long covid. This is huge, and affects every area of a persons life, their family, friendships and work life. Join me and some great guests and let’s Learn, advocate and continue this journey together. 

Last refreshed:
Follow this podcast in the Metacast mobile app to refresh it and see new episodes.
Download Metacast podcast app
Podcasts are better in Metacast mobile app
Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more

Episodes

What made Twitter angry? "its all in your head" take 2

Send us a text On this episode I am going to tell you about how a Tweet I put out, highlighted how much misconception there still is about Long Covid. I had spoken to a doctor and felt very upset when a knee jerk reaction led to the Tweet. The platform went crazy and truthfully I felt very supported, at the same time upset to learn that I was far from alone in this experience. The positive is, it has only made me more determined to advocate for Long Covid, support others and raise awareness of t...

May 27, 202214 minSeason 1Ep. 17

Does Anti-inflammatory make a difference

Send us a text In this episode I talk about anti-inflammatory foods and drinks how these may support the inflammatory response from Long Covid. I discuss food types, simple meals and how/why I have implemented these into my diet. Does it make a difference? Have a listen to the podcast to find out. I also talk about some simple recipes for smoothies and meals that you can find on my instagram insights. On the next podcast I am going to talk about a recent Tweet I posted, and why it made Twitter a...

May 27, 202214 minSeason 1Ep. 16

Can I still do my job?

Send us a text In todays episode I discuss a current hot topic; Long Covid and returning to work. I explain how I returned to work, the challenges, my journey with crashes and relapses, which led to the worst relapse I have had to date. I offer 7 points that I intend to use to support with my return to work following the relapse, which you may find useful. On the next episode I will discuss anti inflammatory food, if food types can reduced the inflammatory response, and help with Long Covid symp...

May 17, 202232 minSeason 1Ep. 15

Reducing Sugar...but I love cake

Send us a text In this episode I talk about a change I made to my diet and why, I am sure you have guessed by the title, this was reducing sugar. I discuss the symptoms I have which relate to that of diabetes however I am not a diabetic. I explain what I did and how this impacted symptoms. I also explore the link to not being able to drink alcohol. Many of you may relate to my symptoms and findings, I would state if you are thinking off making any changes to your diet please speak with your heal...

May 12, 202225 minSeason 1Ep. 14

"Its all in your head"

Send us a text In this episode of the podcast I wanted to talk about mental health/illness and Long Covid. Unfortunately many of us have heard the term "its all in your head", in regard to long covid. I wanted to address how physical and mental health/illness go hand in hand therefore both require acknowledging and effectively treating to support holistic health and wellbeing. I discuss my concern that people feel unable to acknowledge any mental health decline for fear their Long Covid symptoms...

May 05, 202214 minSeason 1Ep. 13

The 4th P and Me

Send us a text In this episode I am talking a little more about the 3Ps Plan, Prioritise and Pace, and how implementing them into daily life can prevent crashes. I discuss the 4th P how this came about and why this is an important additional P as we continue on this uncertain journey. I explain how I put the 4Ps into my life and while I am certainly not perfect I am learning. I have found using the 4Ps gives me a physical and mental awareness, using this can help prevent crashes from pushing too...

Apr 30, 202213 minSeason 1Ep. 12

To exercise or not, that is the question?

Send us a text In today's episode I talk about exercise, how the current guidance for exercise and Long Covid can cause conflicting advice. Exercise has been a huge part of my life for a long time, so this element of my life has been hugely impacted by Long Covid. I have always loved the way exercise make's you feel strong and obviously the mental and physical health benefits are immense. I wanted to explore this a little and share my personal up's and downs with exercise since Long Covid entere...

Apr 20, 202222 minSeason 1Ep. 11

Unable to protect my family

Send us a text In today's podcast, which is episode 10, I can't quite believe the podcast is going into double figures already. I am talking about a very personal angle of the Long Covid journey, the emotional impact contracting covid and subsequently Long Covid has had on my children and husband. I have always felt a sense of guilt that I can not protect them from not only covid19 itself but also the life changing impact Long Covid had and continues to have on my family. I asked my husband and ...

Apr 12, 202218 minSeason 1Ep. 10

What would you like to drink?

Send us a text In this episode I discuss alcohol, how this has effected me since having Long Covid. I talk about the physical impact alcohol has had and also the challenges and changes to social events, how this can effect lifestyle and change social dynamic. I hope you find this podcast interesting and helpful, if you would like to get in touch please DM julietaylor9545 on instagram. On the next podcast; I have discussed with my son's and husband how they have felt during the last two years, fr...

Apr 05, 202217 minSeason 1Ep. 9

How do you Pace?

Send us a text In this episode I am going to talk about the 3 Ps and how I intend to implement pacing into my life. I discuss how powering through is my general approach to life however I have learnt on many occasions, this is not possible with Long Covid. A recent event only highlighted again how important it is to understand your limits. I also talk about the importance of prioritising the things I enjoy in life rather than just tasks. I hope you enjoy the podcast, I hope to reach and support ...

Mar 15, 202219 min

Combatting Constipation

Send us a text In today's podcast I will discuss constipation, I have heard many people with Long Covid talk about how they are now experiencing constipation, myself included. Although my podcasts are lived experience of my own personal journey, I felt this is an important subject, as many people find constipation hard to talk about, therefore don't always seek help. I have experience as a bladder and bowel nurse practitioner, and although the podcast remains non medical, I felt able to share so...

Mar 15, 202218 minSeason 1Ep. 7

How do you say goodbye?

Send us a text In this episode I will talk about one of my darkest moments when I contracted covid. I discuss the impact this has psychologically and emotionally. I also talk about the positive angle of the darkest days and how I am trying to live by mantra “face the fear and do it anyway”. I will share my experience and how I recently faced one of my own personal fears… and did it anyway. I hope you will have a listen and share with anyone this may support or interest. I have also added the lin...

Mar 08, 202221 minSeason 1Ep. 6

When anxiety joins in!

Send us a text In today's podcast I am going to discuss the impact of anxiety, it is not unheard of for long covid to be put down to anxiety, due to current lack of medical research and scientific understanding. Many people may have experienced anxiety prior to having long covid, I know I certainly had, I discuss how this can exacerbate and offer some self care tips for anxiety management , which I use myself. I hope this podcast encourages anyone with anxiety to reach out for support and create...

Mar 03, 202216 minSeason 1Ep. 5

You don't look ill

Send us a text In today's episode I am going to talk about the invisible elements of long covid, and how a comment/observation about my podcast picture, made me reflect on the symptoms of long covid you don't see. How such symptoms make living with long covid challenging, I hope to create a topic for conversation, which can lead to discussions outside of the podcast, raising awareness and greater understanding to employers, friends, family and long haulers themselves on the invisible symptoms. O...

Feb 27, 202214 min

The impact of brain fog

Send us a text In this episode I will talk about brain fog and how this impacts on life. The fear it evokes as well as trying to see the funny side. I recorded this on a difficult day living with long covid and have chosen not to edit, so you guys can get a feel for the reality of my journey. I hope this is helpful and as always please get in touch with any questions, comments or topics you may want me to discuss on future podcasts. The next episode will explore long covid and the invisible symp...

Feb 20, 202216 minSeason 1Ep. 3

Long Covid Relapse

Send us a text In this episode I discuss having a long covid relapse, what this is and how I feel during a relapse. The physical and emotional impact and how I try to manage symptoms. The irony of this episode is I was going to finish by explaining the next episode is around brain fog, but I forgot! Thanks for joining me! If you would like to get in touch contact me on instagram Julietaylor9545 My Links: Long Covid clinic -Dr Binita Kane & Julie Taylor; Email: info@thelongcovidclinic.co.uk f...

Feb 17, 202222 minSeason 1Ep. 2

Let's talk voice issues

Send us a text This is the first episode of living with long covid and in today's episode I will talk about voice distortion as a symptom associated with long covid. The professional help that can support improvement of audibility of the voice. What we can do to try and improve our voice quality. I will discuss my personal experience of voice distortion and you will hear my voice quality as it was during recording. I hope by sharing experiences anyone living with long covid or supporting someone...

Feb 13, 202211 minSeason 1Ep. 1
Hosted on Buzzsprout
For the best experience, listen in Metacast app for iOS or Android