Overwhelm, sadness, guilt, stress, and exhaustion are common experiences for parents raising neurodivergent children, and this is especially true when that child is navigating the complex landscape of also living with a serious or chronic illness. Unpredictability, financial strain, impact on the siblings, uncertainty about a child’s prognosis can all present significant challenges and lead to parental burnout.
But according to my guest, Dr. Maureen Peteren, it’s possible for parents of chronically ill children to regain control of their lives and thrive at fulfillment. And she would know, as she has a distinct birds-eye view both as a general pediatrician and allergist/immunologist, she has spent her career caring for patients with a variety of acute and chronic health problems and first-hand experience of being a parent of a child with long-term health issues.
I asked Maureen, who is also the author of the book Reclaiming Life: A Guide For Parents of Chronically Ill Children, to talk with us about the ways in which managing chronic illness in children requires parents to navigate overwhelming emotions and advocate for their child's health, even when that advocacy can feel uncomfortable; how maintaining perspective and turning challenges into gifts can help parents cope with the emotional toll of parenting a child with a chronic illness, and the importance of open communication with children and involving siblings in the care process in order to foster understanding and support within the family.
Whether your child has asthma, severe allergies, diabetes, or some other chronic health condition, Maureen’s guidance and coaching will give you practical strategies and reframes for finding more peace in your day-to-day lives.
About Maureen Michele Petersen
Maureen Michele Petersen, MD is an award-winning physician, life coach, author, and mom. As a general pediatrician and allergist/immunologist, she has spent her career caring for patients with a variety of acute and chronic health problems. She is an accomplished life coach who helps parents of chronically ill children regain control of their lives and thrive at fulfillment. Maureen is the mother of three amazing children and has first-hand experience with being a parent of a child with long-term health issues.
Things you'll learn from this episode
How to navigate overwhelming emotions that come up due to the unpredictability and uncertainty that accompanies chronic illness in kids
Strategies for maintaining perspective and turning challenges into gifts
How to create a culture of open communication with other children / siblings in the care process in order to foster understanding and support within the family
How to effectively advocate with healthcare providers by staying curious and engaged and being aware of emotions
Resources mentioned for Finding Peace in Parenting a Child with Chronic Illness
Dr. Maureen Michele’s website
Maureen on Instagram
Maureen on Facebook
Reclaiming Life: A Guide For Parents of Chronically Ill Children by Maureen Michele, MD
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TPP 358: Dr. Maureen Peterson on Finding Peace in Parenting a Child with Chronic Illness | TILT Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children podcast - Listen or read transcript on Metacast
