The Dysautonomia Project is a Florida-based non-profit best known for their wonderful book on Dysautonomia for both patients and providers. But they also have other great resources including their DysCourse program for patients and caregivers, education courses for healthcare practitioners, list of recommended practitioners by geographic region, and more. Professor June Bryant, DNP, APRN, CPNP-PC and Educational Director Cheryl Faber explain their history, mission, upcoming events and how to get...
Dec 22, 2024•44 min•Season 3Ep. 237
Angela was healthy, busy, active and loved hiking and traveling before the cascade of syndromes arrived: POTS, MCAS, hEDS, MALS, May Thurner Syndrome, Nutcracker Syndromes, ME/CFS. Angela discusses how she worked to find the right experts, get answers, how her surgery for MALS went, which symptoms it did and didn't help, and which treatments she is considering now. She also discusses how she copes and stays so productive while juggling these conditions. You can follow Angela at... Instagram: @po...
Dec 17, 2024•46 min•Season 3Ep. 236
Joseph Anew is now the picture of health and fitness, but as a young man he was severely injured and received a dior diagnosis. When conventional treatments failed, he moved to a tropical beach to live out his few remaining days. What happened next has been the basis for his great fitness and career helping others to overcome health challenges, feel their best, and perform beyond expectations. Joseph describes the pillars of his approach, and Dr. Dempsey discusses her personal experience with hi...
Dec 09, 2024•1 hr 5 min•Season 3Ep. 235
Hyperbaric oxygen therapy (HBOT) can affect energy, healing, the central nervous system, immune system, GI and cognitive function and more. Dr. Scott Sherr is a Board-Certified Internal Medicine Physician and the director of Integrative Hyperbaric Medicine and Heath Optimization at Hyperbaric Medical Solutions and co-founder of OneBaseHealth , a company that makes home HBOT devices. In this episode he explains how HBOT works, mechanisms of action, risks and benefits, and how HBOT can fit into a ...
Dec 02, 2024•43 min•Season 3Ep. 234
Can a blue dye that was the first drug ever approved by the FDA help POTS energy and brain fog? Dr. Scott Sherr is a Board-Certified Internal Medicine Physician, expert in health optimization, and COO of Troscriptions. In this episode he explains Methylene Blue; what it is, how it affects the body, risks, benefits, and why he thinks it is helping POTS patients. Here is Dr. Scott's company, Troscriptions , which makes Methylene Blue and other innovative products. Here is Dr. Scott's telehealth pr...
Nov 23, 2024•47 min•Season 3Ep. 234
Dr. Steve Smith's most updated research suggests that stenting or embolizing dysfunctional pelvic veins may improve a wide array of POTS symptoms and related syndromes in patients with pelvic venous disorders/congestion. Dr. Smith is now retired and publishing research, but in his long career as an interventional radiologist he noticed that many of his Pelvic Congestion Syndrome patients had POTS and related syndromes...which often got much better after treating the bad veins. Could poor blood f...
Nov 16, 2024•1 hr 9 min•Season 3Ep. 232
Engineer and tech founder Daniel Lee created the Lumia to be a personal wearable device that fits in the ear and measures blood flow to the head, along with several other measurements and a phone app. This allows POTS patients, researchers and others to track how their activities, foods, medications, and other environmental factors are affecting blood flow to the head and symptoms of POTS. He explains how it all works and also shares interesting findings revealed by the Lumia in their research p...
Nov 10, 2024•36 min•Season 3Ep. 231
Christie Cox is a best-selling author and patient advocate working to help others have an easier journey than she has had. Her latest article explains why POTS is often mistaken for anxiety, why this can lead to harm, and practical tips for how patients and healthcare practitioners can distinguish anxiety from POTS. Christie's book, Holding It All Together When You're Hypermobile, can be found here . Her free living library, app and newsletter can be found here . If you liked this episode, we ho...
Nov 04, 2024•40 min•Season 3Ep. 230
Another great episode where Dr. Dempsey explains how hormones can affect mast cells and vice verse, especially when it comes to puberty, menarche, pregnancy, and menopause. More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/ . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell...
Oct 27, 2024•34 min•Season 3Ep. 229
Several POTS patients who traveled to Springfield, Ohio for the 11th Annual SUTP 5K/2K spoke with Jill live as they waited for the event to begin. These quick interviews are inspiring, and we hope that some of their tips and tricks will help our listeners! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think o...
Oct 19, 2024•54 min•Season 3Ep. 228
Dr. Cathy Pederson shares numerous practical tips for making travel easier for people with POTS, many of which she has tested in her own family's extensive world travels with severe POTS and related conditions. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@st...
Oct 15, 2024•53 min•Season 2Ep. 227
Molly's life has changed dramatically since two of her three children developed POTS - at different times, from different triggers and with different symptoms and severity. Hear her story, insights and advice in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your ...
Oct 08, 2024•43 min•Season 3Ep. 226
Michael Rubino is an air quality expert, environmental wellness advocate and President of Change the Air Foundation . He is widely known as the trusted source for mold remediation expertise. In this episode Dr. Dempsey and Michael discuss how to avoid mold in your environment, even if you don't have the means to move out of a moldy home. Here is the mold spore video discussed in this episode. Michael's non-profit ChangeTheAirFoundation.org , has extensive resources for those dealing with mold in...
Oct 01, 2024•56 min•Season 3Ep. 225
Dr. Dempsey explains the facts on mold as a trigger for mast cells, including symptoms, preferred tests, treatments, resources for remediation and expectations for recovery. This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of mold that can be problematic. Dr. Dempsey is a mold expert and serves on the Medical Board of non-profit ChangeTheAirFoundation.org , which has extensive resources for those dealing with mold in ...
Sep 24, 2024•45 min•Season 3Ep. 224
Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more. Here he discusses dietary approaches and four dietary supplements that can help heal the brain and keep it functioning ...
Sep 17, 2024•48 min•Season 3Ep. 223
Jess was a busy, active student and essential worker as a medical case worker during COVID, and then her bout with COVID resulted in... hell. Among many other symptoms, one point she could barely even talk. But with tons of perseverance she eventually found a good doctor and some relief with IVIg. Hear her story and advice to others. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our pr...
Sep 10, 2024•41 min•Season 3Ep. 222
In this 3rd Q&A session with the amazing Dr. Dempsey she goes deep on infections as a trigger for MCAS: How they're transmitted, symptoms, testing, treatment, and expectations for recovery. This is a not-to-be-missed episode since -- as we learn in this episode -- nearly everyone has likely had exposure to the types of infection that can be at play. More information about Dr. Tania Dempsey and her practice can be found at https://drtaniadempsey.com/ . If you liked this episode, we hope you w...
Sep 03, 2024•47 min•Season 2Ep. 221
S. got POTS while becoming an occupational therapist and struggled through her graduate program, but now she reports having no more limitations than her friends and has founded the non-profit support organization that she wishes had been there for her. It has helped over 600 girls internationally who live with chronic illness. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our productio...
Aug 27, 2024•43 min•Season 3Ep. 220
Dr. Katinka is a chiropractor in Arkansas dedicated to the treatment of neurological pain, a particularly stubborn type of chronic pain often seen in POTS, EDS, fibromyalgia, and CRPS. Dr. K leaves no stone unturned to try to help these patients and in this episode she discusses her approach to treating these tough pain conditions. Dr. K's website is here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to...
Aug 20, 2024•34 min•Season 3Ep. 219
This is a not-to-be-missed episode between two incredible physicians: Dr. Jill is a highly sought-after leader in functional medicine and a survivor of cancer/crohne's/MCAS. She and Dr. Dempsey compare approaches to treating MCAS, discuss Dr. Jill's new book and film, and describe some lesser-known treatment strategies like methylene blue with red light therapy. Connect with Dr. Jill at the links below. Instagram: / drjillcarnahan Facebook: / flatironfunctionalmedicine New Book: Readunexpected.c...
Aug 13, 2024•43 min•Season 3Ep. 218
Antonia's fast-paced life as a video/TV producer got a shock starting 10 days after her first COVID shot, but don't miss this episode to hear how she is still producing, finding silver linings, and having some hopeful experiences with steroids. See Antonia's latest show here: https://www.aetv.com/shows/find-my-country-house If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production c...
Aug 06, 2024•38 min•Season 3Ep. 217
Dr. Erik Reis is a Doctor of Chiropractic Medicine, Board-Certified Chiropractic Neurologist, Certified Brain Injury Specialist, past brain injury patient himself, and founder of The Neural Connection in Minneapolis, a clinic that focuses on treating complex neurological and orthopedic disorders that range from traumatic brain injuries, dysautonomia/POTS, concussions, and more. Here he discusses how concussions can cause dysautonomia and what can be done to help heal the brain. He's a wealth of ...
Jul 30, 2024•49 min•Season 3Ep. 216
What are intensive hospital-based treatment programs and how do POTS patients rate their effectiveness? Dr. Cathy Pederson reports on her recent publication, showing these programs are not for everyone. Dr. Pederson's article can be found here . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTSc...
Jul 23, 2024•1 hr 1 min•Season 3Ep. 215
Kait lives on a farm in Michigan and has embraced exercise as a way of life for herself and for her clients. As a personal trainer and coach, Kait has enjoyed helping many people find wellness, including POTS patients who didn't think they could exercise. Kait's website -- KO Wellness -- which includes a program for POTS patients, can be found here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help t...
Jul 16, 2024•32 min•Season 3Ep. 214
Dr. Dempsey interviews breast surgeon Dr. Eva Nagy about her important new findings just published about evidence of mast cell activation in Breast Implant Illness. Dr. Nagy is the world's leading surgeon for explant surgery and previously covered Breast Implant illness in episode 184. Dr. Nagy's website is here and her new publication is here. Dr. Dempseys website can be found here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so move...
Jul 09, 2024•1 hr 6 min•Season 3Ep. 213
Laura has been described as a 'gregarious chameleon' and a force to be reckoned with. This mother of 2 estimates she's about 80% improved since her worst days, but she's had to work for it. Hear her story in this episode. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea...
Jul 02, 2024•30 min•Season 3Ep. 212
Nobody answers your MCAS questions as rapid-fire as Dr. Dempsey! She's back to answer listener questions, addressing the topics of anaphylaxis, Epi-Pens, difficult blood draws, itching, what to do when otherwise healthy or important activities cause flares, and so much more. More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/ . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepte...
Jun 25, 2024•47 min•Season 3Ep. 211
Lexi is a busy mother of 3, a pediatric nurse, and started feeling POTSy while standing in lines at military school. Now she's a wealth of information and tips for dealing with medical situations. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots...
Jun 18, 2024•36 min•Season 2Ep. 210
Dr. Kelly McCann is a leading educator on MCAS and related complex disease, with her online seminars and an approach that combines functional, integrative and environmental medicine. Drs Dempsey and McCann have a far-reaching conversation about MCAS strategies and factors ranging from mindset to muscle testing to genetic predisposition for breaking down fibrinogen blood clots. More information about Dr. McCann's practice can be found at https://thespringcenter.com/ More information about Dr. Tan...
Jun 11, 2024•57 min•Season 3Ep. 208
Laura and Sharon became great friends while they supported one another through dysautonomia and related conditions. Between Laura's writing experience, Sharon's nursing career, and their joint ability to find the humor in every situation, they decided to help others by writing The Dysautonomia Diary: Essays and Tips for Enjoying Life Despite Chronic Illness . Their book has a foreword by Dr. Blair Grubb and is available here on Amazon . If you liked this episode, we hope you will click subscribe...
Jun 04, 2024•41 min•Season 2Ep. 208
