Dr. Neil Nathan is the leading expert on mold and mycotoxin illness, and in this episode he and Dr. Tania Dempsey discuss how mold can cause chronic illness and how to treat it. They also discuss Dr. Nathan's new book, The Sensitive Patient's Healing Guide, available here from Amazon . Dr. Nathan's other books and resources, plus information about working him, can be found at https://neilnathanmd.com/ . More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/ . If you...
May 28, 2024•58 min•Season 3Ep. 207
Brianne Dressen founded React19 to help people struggling with Long COVID and COVID vaccine injuries after being injured herself in a COVID19 vaccine trial, and learning the hard way that there was not a resource for adequate answers, treatment, financial or social support, or representation. Now she oversees 100 volunteers who have created a provider network, are funding and conducting research, are lobbying congress to address inadequacies of the compensation programs, are fighting court cases...
May 21, 2024•51 min•Season 2Ep. 206
Dr. Tania Dempsey shares her passion (and some tips) for bodybuilding, because she has been nominated to be on the cover of Muscle and Fitness Hers magazine! If she is voted to be on the cover, it will raise awareness of complex conditions like POTS/MCAS/hypermobility spectrum disorder, AND Dr. Dempsey would donate the $20,000 prize to the documentary in progress about the Triad. You can vote here (and see how strong she is) through Thursday, May 16th, 2024....
May 13, 2024•24 min
Dr. Julie Hubbard Maamari is a Perioperative Clinical Pharmacy Specialist who helps patients before, during and after surgery by making sure they get the best medications for their needs. She has helped many complex patients, including those with POTS, MCAS and other hypersensitive or allergic conditions, and she has authored peer-reviewed articles. Dr. Maamari discusses what patients and their doctors can do to prevent mast cell reactions and have the safest, most comfortable outcomes. The free...
May 07, 2024•35 min•Season 2Ep. 205
In this episode we check in on Maddie from episode 83, and hear how she is doing, including how she regained the ability to walk again! You can read the transcript for this episode here: https://tinyurl.com/potscast204 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at...
Apr 30, 2024•23 min•Season 2Ep. 204
Sometimes we have to laugh so we don't cry. In this episode, cartoonists and married couple Mike and Jill Brook describe what made them create DoodleThru.com, how it helped them cope, and remark at the endless supply of absurdities that are available to chronic illness humorists. You can see their cartoons at https://doodlethru.com/ . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our p...
Apr 23, 2024•31 min•Season 2Ep. 199
Dr. Theoharides is among the world's top mast cell researchers and speaks with Dr. Dempsey about his recent article reviewing how mast cells may drive dysautonomia and vice verse. They also cover a range of topics from mast cells' diversity to their role in autism, most effective mast cell stabilizers and much more. This episode is packed with advanced mast cell information. Dr. Theoharides has a website here and his supplements can be found here . You can learn more about Dr. Dempsey and her pr...
Apr 16, 2024•1 hr 2 min•Season 2Ep. 203
In this episode we meet Allie, a student at Purdue University who, since getting POTS, has started introducing herself to one new stranger per day. How cool is that?! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptopots.org! Find out more about Stan...
Apr 09, 2024•32 min•Season 2Ep. 201
Dr. Leticia Soares is a research biologist who, before COVID, focused on infectious disease in birds. Now she serves on the leadership team of the Patient-Led Research Collective, conducting and publishing research to help improve treatment for people with Long COVID. Dr. Soares recently published a review article about female reproductive health issues associated with long COVID, ME/CFS, POTS, hEDS , and in this episode she discusses the main findings, challenges, some tips for fellow patients,...
Apr 02, 2024•35 min•Season 2Ep. 200
Dr. Dempsey answers questions about MCAS and depression/anxiety/fatigue/brain fog; physical triggers; Kounis Syndrome; whether it's worth it to allow "small" flares in the name of pizza or other small joys; treatments such as stenting for venous compression; how long to try each antihistamine; and much more. More information about Dr. Tania Dempsey can be found at https://drtaniadempsey.com/ . If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you a...
Mar 26, 2024•51 min•Season 2Ep. 199
Arianna was an athlete until POTS and has now developed a large following as a social media influencer. She's sharing her POTS journey with her audience, too! You can follow her here on TikTok or follow her here on Instagram. You can read the transcript for this episode here: https://tinyurl.com/potscast198 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www....
Mar 19, 2024•42 min•Season 2Ep. 198
Dr. David Kaufman is renowned for working with the most complex patients and for his podcast on Patreon, Unraveled: Understanding Medical Complexity . He and Dr. Dempsey discuss the role of MCAS in ME/CFS and other complex disorders and how he starts unraveling these complex clusters of conditions. You can learn more about Dr. Kaufman and his practice here . You can learn more about Dr. Dempsey and her practice here. You can read the transcript for this episode here: https://tinyurl.com/potscast...
Mar 12, 2024•55 min•Season 2Ep. 197
Jolie was first featured in episode 160, and she's back to talk about how she's doing, how she successfully manages her POTS, and some big news: She was chosen to be Miss Chattanooga, TN! In this role she is helping raise awareness of POTS and in the next few days (March, 2024) she'll be competing in the Miss Tennesee Pageant. Thanks to Jolie for using her platform and growing notoriety to help our community! You can find Jolie on TikTok or Instagram at @JolieMayes. You can read the transcript o...
Mar 05, 2024•22 min•Season 2Ep. 196
Meet Kelley from Maryland, a driven student who loves to read, plays the guitar and has plans to pursue neuroscience so she can study the intersection between the brain, one's mindset and POTS. You can read the transcript for this episode here: http://tinyurl.com/potscast195 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell ...
Feb 27, 2024•37 min•Season 2Ep. 195
POTScast listeners took a survey on podcasts and social support. Here are the results - podcasts can help individuals feel less socially isolated and provide them with informational and emotional support. Parasocial relationships between podcast listeners and hosts are also important. You can read the transcript for this episode here: http://tinyurl.com/potscast194 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are ac...
Feb 20, 2024•25 min•Season 3Ep. 194
Learn about the psychological experiences of POTS patients in this episode with Dr. Alissa Sheldon. Understand how to trust your symptoms and navigate through life despite challenges. You can read the transcript for this episode here: http://tinyurl.com/potscast193 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what yo...
Feb 13, 2024•41 min•Season 3Ep. 193
Erin is working on her Master's degree in English, and loves to write. She's written stories about her journey with both lupus and POTS, which started in her late teens and early 20s, but her first love is fiction. You can find her stories at https://vocal.media/fiction/waiting-room-lv3wu40jdv and https://www.artwifemag.com/short-stories/chinchilly If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to...
Feb 10, 2024•39 min•Season 3Ep. 192
Dr. Dempsey interviews pediatric cardiologist Dr. Jeffrey Boris about the Triad (MCAS, POTS and hypermobility syndromes) in his pediatric population. As an avid researcher and data analyst, Dr. Boris is always a wealth of knowledge on latest findings and yet-unpublished trends and hypotheses. The doctors also exchange interesting observations about MCAS and cholesterol, PCOS, and much more. You can learn more about Dr. Boris and his practice here . You can learn more about Dr. Dempsey and her pr...
Feb 06, 2024•57 min•Season 2Ep. 191
Attention POTS patients and those who care about them: Ever wondered what exactly is happening in your body when you experience common POTS symptoms like fainting, nausea, dizziness or brain fog? Tune in to this episode with Dr. Cathy Pederson to unpack the potential causes of these symptoms. You can read the transcript for this episode here: http://tinyurl.com/potscast190 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donation...
Jan 30, 2024•44 min•Season 3Ep. 190
This is a conversation between Jill Brook and Megan Barnett discussing the relationship between nutrition, gut health, and complex health conditions like POTS and mast cell disorders. They delve into topics like food sensitivities, the importance of micronutrients, and the role of functional medicine in managing these conditions. Megan's website is: https://bioloungepdx.com You can read the transcript for this episode here: http://tinyurl.com/potscast189 If you liked this episode, we hope you wi...
Jan 23, 2024•50 min•Season 3Ep. 189
Erica really can't remember life without POTS symptoms and anxiety was blamed for many years. She currently attends school and lives bicoastally as she pursues a career as an actress and dancer. Her diagnosis brought relief, and learning how to control her symptoms have helped her follow her dreams. You can read the transcript for this episode here: http://tinyurl.com/potscast188 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, d...
Jan 20, 2024•27 min•Season 3Ep. 188
Dr. Anjali Agarwal - consulting physiotherapist trained in UK, located in India, and consulting via telemed around the world - is a wealth of information on POTS and related conditions, describing how "everything is connected", which also presents many treatment opportunities. She shares numerous lifestyle strategies to manage POTS/dysautonomia, MCAS, hypermobility and related conditions, and she also shares her international perspective. You can follow Dr. Anjali on Twitter , Instagram , or Fac...
Jan 16, 2024•42 min•Season 2Ep. 187
We have the entire medical/production team of 5 physician/researchers to give us an update and behind-the-scenes look at the documentary they are making about the trifecta of dysautonomia/POTS, MCAS and hypermobility spectrum disorders. We hear from doctors Tania Dempsey, Larry Afrin, Linda Bluestein, Lawrence Kinsella and Leonard Weinstock, along with patient Jill Brook, to hear how filming is going so far and how we can all help support the film. This is a crossover episode with Bendy Bodies w...
Jan 11, 2024•53 min•Season 2Ep. 186
Despite Leah being largely bedbound, Tim and Leah's relationship is as strong as ever. How do they balance illness, household chores, and raising their children? Find out in this heartwarming episode. You can read the transcript for this episode here: http://tinyurl.com/potscast185 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donat...
Jan 06, 2024•50 min•Season 3Ep. 185
Dr. Tania Dempsey interviews Dr. Eva Nagy, a breast surgeon experienced in all sorts of breast surgeries, who has developed special interest and skill in treating breast implant illness (BII), which she believes can be related to mast cell activation syndrome (MCAS). Dr. Nagy describes BII, how she removes problem implants, and the effects this can have on a wide range of symptoms. You can learn more about Dr. Nagy and her practice here . You can read the transcript for this episode here: http:/...
Jan 02, 2024•1 hr 15 min•Season 2Ep. 184
In this episode, Nutritionist Jill Brook reviews the research findings on nutrient deficiencies in POTS, shares some tips, and directs listeners to a great resource for finding which lab tests are recommended by our Medical Advisory Board to determine whether nutrient imbalances may be a factor for you. With Jill’s husband as this week’s interviewer, we also learn about some nutrient experiments and misadventures in her own POTS journey. You can read the transcript for this episode here: http://...
Dec 26, 2023•27 min•Season 3Ep. 183
Quinton loves to work out and research Long COVID. About two weeks after recovering from a mild COVID infection, he developed POTS and found himself nearly bedridden. He has slowly worked his way back toward being functional, although he still has significant limitations. You can read the transcript for this episode here: http://tinyurl.com/potscast182 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to hel...
Dec 23, 2023•36 min•Season 3Ep. 182
Dr. Alexis Cutchins wrote a comprehensive review of POTS, including less-known treatments like oral contraceptives, gluten-free diets, and diosmin. Join her in thinking about promoting good blood flow that might decrease other POTS symptoms. Dr. Cutchin's review paper on POTS: https://www.uscjournal.com/articles/narrative-review-postural-orthostatic-tachycardia-syndrome-associated-conditions-and You can read the transcript for this episode here: https://tinyurl.com/potscast181 If you liked this ...
Dec 19, 2023•41 min•Season 3Ep. 181
Emily was working as a medical assistant when she developed POTS. While she was aware of POTS, receiving a proper diagnosis still took 7 or 8 months. Many practitioners were dismissive of her symptoms, leading to a delay in treatment. You can read the transcript for this episode here: https://tinyurl.com/potscast180 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs htt...
Dec 12, 2023•23 min•Season 3Ep. 180
Leah's life changed after her family got sick in December 2019. They rebounded in a couple of weeks, but she did not. She was diagnosed with POTS quickly, but remains largely bedbound and has had to shift her perspective to use her energy wisely for her family. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you th...
Dec 09, 2023•31 min•Season 3Ep. 179
