Dr. Settle is a psychiatrist who believes that mast cell activation is responsible for some symptoms of anxiety, depression, bipolar disorder type II and others. She treats MCAS as a way to stabilize both mast cells and their emotional state. You can read the transcript for this episode here: https://tinyurl.com/potscast178 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production c...
Dec 05, 2023•45 min•Season 3Ep. 178
Perceived burdensomeness, feeling like a burden to friends and family, is common in POTS patients. This feeling can be a predictor of suicidal thinking, particularly in men. We can change feelings of burdensomeness - find out how in this episode! You can read the transcript for this episode here: https://tinyurl.com/potscast177 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our producti...
Nov 28, 2023•44 min•Season 3Ep. 177
Happiest holidays from everyone at Standing Up to POTS!
Nov 26, 2023•5 min
Hanna had a 15-year journey to her POTS diagnosis after fainting episodes that started in her teens. An avid athlete, she has completed a triathlon and climbed mountains in her less symptomatic days. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at info@standinguptop...
Nov 25, 2023•34 min•Season 3Ep. 176
Dr. Lewan, a POTS patient with a CSF leak, helps many patients learn how to listen to their bodies and slowly progress in their physical therapy exercises. An understanding practitioner can make all the difference in assisting POTSies to live their best lives! You can read the transcript for this episode here: https://tinyurl.com/potscast175 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to suppor...
Nov 21, 2023•51 min•Season 3Ep. 175
Resilience is a nuanced topic. How do you build it? Is it always a compliment if someone says you are resilient? How can we better support our chronic illness community? Dr. Gorman-Ezell discusses it all! You can read the transcript for this episode here: https://tinyurl.com/potscast174 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/...
Nov 14, 2023•32 min•Season 3Ep. 174
Kaylee is an ER nurse in Phoenix and shares her own story along with tips on how to get the most out of an ER visit, like telling the triage nurse everything gets you proper care faster. She has POTS, EDS, and MCAS and is delightful! If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send ...
Nov 11, 2023•51 min•Season 3Ep. 173
MCAS expert Dr. Bluestein is an anesthesiologist and pain specialist focusing on hypermobility and its associated pain syndromes. Having EDS and her own pain, she discusses the use of opioids, ketamine, pain programs in this population, and much more! You can read the transcript for this episode here: https://tinyurl.com/potscast172 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our pro...
Nov 07, 2023•50 min•Season 3Ep. 172
Attorney Drew Downing is prosecuting a case against Merck on behalf of people who were vaccine-injured by the HPV vaccine Gardasil. He is knowledgeable about POTS and the legal system, providing insights that might help some POTS patients to gain compensation for their injuries. For more information, visit: https://www.wisnerbaum.com/prescription-drugs/gardasil-lawsuit/ is the law firm mentioned in LA. Drew's firm is: https://www.nationalvaccineinjurylawyer.com/ You can read the transcript for t...
Oct 31, 2023•51 min•Season 3Ep. 171
What do POTS, ecstasy, dehydration and thirst have in common? This is a fascinating episode with Dr. Harriett Carroll, who developed POTS after the COVID vaccine. She now uses scientific expertise to help others through chronic invisible illness. Her website: http://www.lc-sc.co.uk/ Twitter: @angryhacademic You can read the transcript for this episode here: https://tinyurl.com/potscast170 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so...
Oct 24, 2023•1 hr•Season 3Ep. 170
What a fabulous episode of the POTScast taped before our in-person 5K/2K. POTS patients and their loved ones spoke from their hearts to give an authentic glimpse of the ups and downs of living with a chronic illness like POTS. We are proud to serve this community, and touched by their stories. You can read the transcript for this episode here: https://tinyurl.com/potscast169 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donati...
Oct 22, 2023•45 min•Season 3Ep. 169
Dr. Karissa Arca works at the intersection of autonomic and headache disorders at Mayo Clinic Arizona. She is a wealth of information and also an advocate for patients. Join us to learn more about headache management for POTS patients. You can read the transcript for this episode here: https://tinyurl.com/potscast168 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs ht...
Oct 17, 2023•33 min•Season 3Ep. 168
In this episode, we cover POTS demographics, where sodium goes in the body, off-label medications, why meds stop working, and much more. Thanks to all who submitted questions! The papers discussed in this episode for medications and dosages: Fedorowski paper 2018: https://onlinelibrary.wiley.com/doi/full/10.1111/joim.12852 Raj paper 2022: https://www.cmaj.ca/content/194/10/E378 You can read the transcript for this episode here: https://tinyurl.com/potscast167 If you liked this episode, we hope y...
Oct 10, 2023•44 min•Season 3Ep. 167
Lauren was a college tennis player and was always on the run when she developed COVID, Long COVID and POTS. At 23, her life is different now, and she continues to search for her new normal. You can read the transcript for this episode here: https://tinyurl.com/potscast166 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us ...
Oct 07, 2023•30 min•Season 3Ep. 166
Dr. Weinstock and Dr. Dempsey are spearheading the creation of a documentary about MCAS, POTS, and EDS. Still in the planning stages, this documentary intends to educate medical professionals and the general public. We hope that it will help raise awareness! Link to the LDN Research Trust: https://ldnresearchtrust.org/mast-cell-activation-syndrome-documentary You can read the transcript for this episode here: https://tinyurl.com/potscast165 If you liked this episode, we hope you will click subsc...
Oct 03, 2023•19 min•Season 3Ep. 165
Vaccine injury can occur after COVID injections, likely triggered by the COVID spike protein. Many people develop POTS or have worsening symptoms. Unfortunately, this can transform a healthy individual into a significant chronic illness that may impact mental health. Websites discussed in this episode: https://www.awarenessforpotsies.org and https://www.hrsa.gov/cicp You can read the transcript for this episode here: https://tinyurl.com/potscast164 If you liked this episode, we hope you will cli...
Sep 26, 2023•50 min•Season 3Ep. 164
Several in her family have had mysterious symptoms for years, but Courtney was the first to be diagnosed with POTS. She uses Chat GPT to help her write letters to practitioners and organize her medical records. You can read the transcript for this episode here: https://tinyurl.com/potscast163 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopot...
Sep 23, 2023•34 min•Season 3Ep. 163
In some cases, chronically ill people are mislabeled as having an eating disorder when gastroparesis or MCAS is causing their symptoms. In other cases, eating disorders can develop secondary to dietary restrictions to avoid flares, including restrictive diets. This is an interesting interview that discusses both scenarios and how to know when you might need help. Krista's website: www.healingrootswellnesscenter.com You can read the transcript for this episode here: https://tinyurl.com/potscast16...
Sep 19, 2023•38 min•Season 3Ep. 162
Heart rate variability can be a good indicator of general health. A higher heart rate variability is preferable and shows a parasympathetic state. Learn how to control heart rate variability using biofeedback to perhaps decrease symptoms. Their website: https://getlief.com You can read the transcript for this episode here: https://tinyurl.com/potscast161 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to h...
Sep 12, 2023•29 min•Season 3Ep. 161
Jolie was quickly diagnosed after a fainting episode, largely due to the fact that her mom is a physician. While her life has changed, she looks for joy in the small things - walking her dog, making ramen, and doing isometric exercise. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donate Tell us what you think of The POTScast or sen...
Sep 09, 2023•27 min•Season 3Ep. 160
Treating MCAS, POTS, and Long COVID can be difficult, and physicians must attack from various angles to get patients feeling better. Dr. Maxwell walks us through his thinking and how MCAS is linked to POTS and Long COVID. This episode is a must-listen for patients and practitioners alike. You can read the transcript for this episode here: http://tinyurl.com/potscast159 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations ar...
Sep 05, 2023•52 min•Season 3Ep. 159
Mikayla was quite the athlete before POTS, and still enjoys running when she can. She was diagnosed with POTS within a month of symptom onset, and is grateful for good healthcare during this journey. You can read the transcript for this episode here: https://tinyurl.com/potscast158 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https://www.standinguptopots.org/donat...
Aug 29, 2023•30 min•Season 2Ep. 158
Jessica suffered from a brain tumor at birth which caused seizures. It took several years to find a surgeon to remove the tumor. In her teen years, she slowly started to develop POTS symptoms. Despite her physical struggles, she loves to skateboard and hang out with friends. You can read the transcript for this episode here: https://tinyurl.com/potscast157 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to...
Aug 22, 2023•23 min•Season 2Ep. 157
Katie was diagnosed with POTS last year after being diagnosed with EDS in 2014. She tries to stay cheerful, even when not feeling well, to be a good example for her children. She loves painting and cutting hair in her small Wyoming town. You can read the transcript for this episode here: https://tinyurl.com/potscast156 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs ...
Aug 15, 2023•27 min•Season 2Ep. 156
Alison's daughter was in college and a competitive horse jumper when she developed POTS. It was manageable at first, but worsened substantially after the COVID vaccine. After a variety of medications and other traditional approaches, functional medicine really helped her daughter take back her life. **Note: After release of this episode, Dr. Lovich contacted us to say that the interviewed guest had made a misstatement about his approach and he does not ask patients to go off their medications be...
Aug 08, 2023•43 min•Season 2Ep. 155
Thomas loves jiu jitsu, skateboarding, and surfing. He developed POTS in college, and really struggled with stamina. Slowly, he has worked both physically and mentally to get himself back in the game. Find out how in this episode! You can read the transcript for this episode here: https://tinyurl.com/potscast154 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs https:/...
Aug 01, 2023•38 min•Season 2Ep. 154
Michael developed Long COVID at the beginning of the pandemic in 2020. He is fortunate to be back to 75% capacity, but recognizes the changes in his lifestyle and broader life as a result of his chronic illness. Listen to his journey through Long COVID physically, mentally, and emotionally in this episode. You can read the transcript for this episode here: https://tinyurl.com/potscast153 If you liked this episode, we hope you will help to support our production costs by donating to Standing Up t...
Jul 25, 2023•41 min•Season 2Ep. 153
Autumnizhurr has been disabled since college, due to POTS and Wolff Parkinson White Syndrome. She has had several heart ablations to minimize her symptoms, although they caused other problems. She is a content creator, and loves gaming because in that world she is not different from others. You can read the transcript for this episode here: https://tinyurl.com/potscast152 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other ...
Jul 18, 2023•38 min•Season 2Ep. 152
Rebecca was living the dream when POTS hit - just out of college, living in a flat with friends, working as a nurse in the hospital - and forced her to move back home. Slowly, she improved after being properly diagnosed, and now has returned to nursing in a outpatient setting that requires less stamina than the hospital floor. You can read the transcript for this episode here: https://tinyurl.com/potscast151 Please click the "subscribe" button so that you don't miss an episode of The POTScast. S...
Jul 11, 2023•20 min•Season 2Ep. 151
This episode features a mother and daughter describing how POTS has impacted their daily life. Lyla has had medical issues for most of her life, but a bug bite seemed to really have exacerbated her symptoms. Lyla and her family work to push through the pain to live their best lives. You can read the transcript for this episode here: https://tinyurl.com/potscast150 If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are acc...
Jul 04, 2023•31 min•Season 2Ep. 150
