What does polio have to do with myalgic encephalomyetlitis (ME) and POTS? You'll have to listen to this episode with Dr. Hyde, a top ME expert who has treated ME patients since the 1980s. He also discusses SPECT scans and how they can help to get disability payments for some patients. Nightingale Foundation: https://nightingale.ca/ Book Downloads: https://nightingalepress.ca/collections/all You can read the transcript for this episode here: https://tinyurl.com/potscast93 Please click the "subscr...
Oct 18, 2022•53 min•Season 3Ep. 93
Jenna is married and trying to live her best life despite POTS. Symptoms began early, but didn't stop her from playing college volleyball. Napping in odd places is common as she battles severe fatigue. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.standinguptopots.org...
Oct 15, 2022•33 min•Ep. 92
Dr. Beltran explains physiological dosing of vitamin D, leaky gut syndrome as it relates to gluten, and much more in this episode of The POTScast. A real leader in high dose vitamin D therapy, Dr. Beltran explains the many and varied functions of this hormone. Dr. Beltran's book can be found here . You can read the transcript for this episode here: https://tinyurl.com/potscast91 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach...
Oct 11, 2022•49 min•Season 3Ep. 91
Many people with POTS also have small fiber neuropathy - the small nerves in their legs are decreased in number and activity. Dr. Saperstein talks about that in the context of COVID and answers several listener questions about migraine headaches, tinnitus, brain fog and more. Join us for this informative chat! You can read the transcript for this episode here: https://tinyurl.com/potscast90 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also he...
Oct 04, 2022•42 min•Season 3Ep. 90
Anna grew up dancing and wanted to be a pro. After a bout with mono, her legs started giving out randomly. She was diagnosed with POTS and needed to find a new dream: photography. Anna is both inspirational and insightful as she talks about how POTS has impacted her life. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs...
Oct 01, 2022•30 min•Season 2Ep. 89
Many like to think about POTS as having three subtypes - hyperadrenergic, neuropathic, and hypovolemic. We discuss these subtypes, their causes, associated symptoms, and treatments that might help. What subtype of POTS do you think you have? You can read the transcript for this episode here: https://tinyurl.com/potscast88 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we...
Sep 27, 2022•52 min•Season 1Ep. 88
Dr. Reddy is a COVID long-hauler herself. She developed POTS, and symptoms worsened each time she caught COVID. She struggled for a diagnosis, and now is a champion in the clinic and in advocacy for people who develop POTS after COVID infection or vaccine injury. She walks through the theory of how this occurs and a range of treatment options that might help with equal parts compassion and conviction. Dr. Reddy's article discussed in this episode: https://www.cureus.com/articles/56242 You can re...
Sep 20, 2022•48 min•Season 3Ep. 87
It took Jamie 12 years to be diagnosed with POTS after the onset of symptoms. She had "remissions" from symptoms in the early years that allowed her to become a firefighter and EMT, positions she can no longer manage. She is starting a new medication, and we hope that it helps her to feel better! You can read the transcript for this episode here: https://tinyurl.com/potscast86 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach o...
Sep 13, 2022•27 min•Season 2Ep. 86
Many people in the POTS community have experienced medical trauma as a patient, caregiver, or sibling. Gaslighting, invasive procedures, and the chronicity of the illness can all contribute. How can you protect yourself from this trauma or deal with it if trauma occurs? Join Dr. Gorman-Ezell in this episode to find out! You can read the transcript for this episode here: https://tinyurl.com/potscast85 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribi...
Sep 06, 2022•41 min•Season 3Ep. 85
Stephanie was a competitive volleyball player in high school when several concussions sidelined her. Over time, POTS symptoms began to appear and the battle to get diagnosed began. It took several years to find a cardiologist who believed her, but she is back on track to live her dreams. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our ...
Sep 03, 2022•36 min•Season 2Ep. 84
Maddie faints a lot as part of her POTS, which she developed around age 16. She describes getting and training her therapy dog and the deep pressure that helps when she blacks out. Maddie has a great attitude about living with her chronic illness. You can read the transcript for this episode here: https://tinyurl.com/potscast83 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episo...
Aug 30, 2022•32 min•Season 2Ep. 83
Dr. Laila Schenkel is a molecular geneticist who specializes in choline transporters. Comparing this transporter in the skin of one POTS patient with controls, she found that these transporters are fewer and less functional in this POTS patient. Basic science at its best! You can read the transcript for this episode here: https://tinyurl.com/potscast82 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you...
Aug 23, 2022•36 min•Season 4Ep. 82
We invite you to register for the in-person or virtual version of the 9th Annual Standing Up to POTS 5K/2K. 100% of the proceeds will fund POTS research seeking to improve the quality of life for people living with POTS now. Largely because of this event, we have already awarded more than $318,000 to top POTS researchers in five countries. Please join us in funding this important research!...
Aug 21, 2022•2 min
Katherine developed POTS secondary to Lyme disease after a tick bite, causing her to complete her senior year of high school online. When at her sickest, she re-connected with the man she would marry. Find out how by listening to this wonderful episode! Learn more about health coaches at https://www.standinguptopots.org/healthcoach Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this e...
Aug 20, 2022•35 min•Season 2Ep. 81
Mary Katherine has developed POTS twice - first as a teen and again after COVID. Her PICC line to get intravenous fluids made lifting heavy objects impossible, especially for a cattle breeder who loves to show cows. Join us for this unique episode! You can read the transcript for this episode here: https://tinyurl.com/potscast80 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this epis...
Aug 16, 2022•30 min•Season 2Ep. 80
Hannah has Lyme and POTS, and after working for others for a few years founded her own company - Chronically Capable. Featured by the Wall Street Journal and Forbes magazine, her company matches chronically ill people with potential employers with the need for accommodations front and center. Join us for this wonderful interview! Her website is wearecapable.org. You can read the transcript for this episode here: https://tinyurl.com/potscast79 Please click the "subscribe" button so that you don't...
Aug 09, 2022•34 min•Season 4Ep. 79
Claire developed POTS after a back injury. Work as a paramedic was triggering, and she found that she had to dig herself out of a dark hole. Volunteering for The POTS Foundation in Australia was part of growing into her new reality. Any Aussies out there looking to connect? Check out www.potsfoundation.org.au Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you wil...
Aug 06, 2022•38 min•Season 2Ep. 78
Abby is a college sophomore with a love of music and crocheting. Like many, she put the pieces together to find her diagnosis. Abby is resilient despite the obstacles - finding friends who are supportive and taking care of herself. This is an inspiration episode of the POTS diaries! You can read the transcript for this episode here: https://tinyurl.com/potscast77 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people ju...
Aug 02, 2022•30 min•Season 2Ep. 77
Dr. Boris is one of the top pediatric POTS docs in the world, and we were fortunate to have him share his thoughts on getting these highly achieving kids back to living their life. He covers a lot of ground - misdiagnosis of POTS as anxiety/depression, impact of POTS on development, mitochondrial disorders and so much more. Want to learn more about Dr. Boris? Check him out at https://www.jeffreyborismd.com/ You can read the transcript for this episode here: https://tinyurl.com/potscast76 Please ...
Jul 26, 2022•46 min•Season 3Ep. 76
Madison was a competitive rock climber before she developed Lyme disease and POTS. She couldn't walk for 7 months, but has climbed her way back to working part time in a school and practicing meditation and yoga. Join us for this deep and personal conversation! You can read the transcript for this epiosde here: https://tinyurl.com/potscast75 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you li...
Jul 19, 2022•39 min•Season 2Ep. 75
Jolene was married and enjoying an adventurous life in Florida when POTS struck. Like many, she was misdiagnosed and returned home to MN to decrease her need to fly. Now a meditation and mindfulness teacher, she has found a new adventure. You can read the transcript for this episode here: https://tinyurl.com/potscast74 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we ho...
Jul 16, 2022•39 min•Season 2Ep. 74
Many chronically ill students require assistance to level to playing field at school. 504 plans and Individualized Education Plans are state mandated and can do just that. What's the best option for your situation? Listen to this episode with Dr. Pederson and Dr. Brannan to find out! School and College Accommodations: https://www.standinguptopots.org/livingwithpots/school Letters for School Personnel: https://www.standinguptopots.org/advocacy/awareness You can read the transcript for this episod...
Jul 12, 2022•50 min•Season 4Ep. 73
Rita was an actress/dancer when POTS crept in and changed her life. She could no longer continue the physicality, and channeled her creative energy into writing. She credits the CHOP exercise protocol with improving her quality of life. You can find the CHOP exercise protocol at the bottom of this page, and her articles on POTS . You can read the transcript for this episode here: https://tinyurl.com/2fx6nx9v Please click the "subscribe" button so that you don't miss an episode of The POTScast. S...
Jul 05, 2022•28 min•Season 2Ep. 72
Diane is a retired dietician who shares her journey with POTS as well as her knowledge of the MTHFR gene mutations and nutritional changes to support that. She move to eastern Washington to decrease her symptoms, and advocates self care. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS...
Jul 02, 2022•47 min•Season 2Ep. 71
Dr. Jill Schofield is a leader in the treatment and research of POTS, mast cell activation syndrome, and antiphospholipid syndome. Join us to learn more about these, IVIG, and lifestyle changes that improve quality of life! You can read the transcript for this episode here: https://tinyurl.com/5n82f3pf Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help ...
Jun 28, 2022•47 min•Season 3Ep. 70
Join Rhonda for an exploration of healthcare from both sides - as a physician assistant and POTS patient. Her medical background and connections helped her to navigate the system, but the effects of POTS are equally devastating. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https...
Jun 25, 2022•45 min•Season 2Ep. 69
Becky developed POTS a few years ago after the birth of her son. Following several surgeries for endometriosis, her symptom load increased and she was diagnosed with POTS. Follow her journey through work, family, and POTS in this episode! You can read the transcript for this episode here: https://tinyurl.com/2p9awbfz Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope...
Jun 21, 2022•37 min•Season 2Ep. 68
Join Jill and Cathy for a wonderful discussion of autoimmunity and how a misdirected immune system can wreak so much havoc! There is a growing body of literature suggesting that POTS might be autoimmune in some people, so this is an important topic for our community! You can read the transcript for this episode here: https://tinyurl.com/3c899axj Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If yo...
Jun 14, 2022•51 min•Season 1Ep. 67
Trina had a good thing going when POTS symptoms struck her suddenly one day. It took a year for her to get diagnosed and necessitated a job change and moving back home for a while. Luckily, she is doing better now and works as a freelance writer who focuses on issues like POTS! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production...
Jun 11, 2022•26 min•Season 2Ep. 66
Elli was a high school senior being recruited for college volleyball when she developed POTS after COVID. Her first year of college has been difficult, but a supportive family and friend group have made it bearable. Elli has a great attitude as she describes her first year living with POTS. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support o...
Jun 07, 2022•30 min•Season 2Ep. 65
