An episode on POTS in adolescence is long overdue! Dr. Maxwell answers many common questions about POTS - why is exercise important? Why does blood pooling cause increased heart rate? Is the heart of a POTS patient smaller than others? What environmental triggers might make symptoms worse? All this and more in this episode of The POTScast. Mast cell criteria article mentioned in this podcast: Diagnosis of mast cell activation syndrome: a global “consensus-2” You can read the transcript for this ...
May 31, 2022•43 min•Season 3Ep. 64
Jim's wife Sandy became ill with POTS two years ago, and he describes how they have adapted their daily life in light of the unpredictability of her illness. This is a must listen for caregivers of POTS patients, as we work to care for our loved ones with love and grace. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs ...
May 28, 2022•40 min•Season 2Ep. 63
Patty is a respiratory therapist who first developed POTS symptoms in her 50s. Big changes ensued - new job, moving to an apartment, and resigning from the Natural Disaster Medical Assistance Team. Persistence has helped her regain significant quality of life. You can read the transcript for this episode here: https://tinyurl.com/5ykhfdbh Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked...
May 24, 2022•25 min•Season 2Ep. 62
For years, there has been speculation about how the HPV vaccine might lead to POTS in a small percentage of people. Dr. Dempsey describes a theory that connects mast cells, POTS, and the HPV vaccine in vulnerable individuals. Article discussed: Post-HPV-Vaccination Mast Cell Activation Syndrome: Possible Vaccine-Triggered Escalation of Undiagnosed Pre-Existing Mast Cell Disease? Her websites: https://www.drtaniadempsey.com/ https://aimcenterpm.com/ You can read the transcript for this episode he...
May 17, 2022•45 min•Season 3Ep. 61
Like many, Abbie has had POTS symptoms for a long time, but has only been diagnosed in the past 6 months. As a young person, she is learning to listen to her body as she tries to balance work, a social life, and POTS. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at https://www.stan...
May 14, 2022•31 min•Ep. 60
Have you ever thought about why SUTP was formed? Listen to this touching episode between our founder, Cathy Pederson, and her daughter Kate as they talk about life before and after Lily was diagnosed with POTS. A must listen for families struggling to balance the needs of all of their children! You can read the transcript for this episode here: https://tinyurl.com/3bjk2h79 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other...
May 10, 2022•30 min•Season 2Ep. 59
Have you ever wondering how leaky gut, autoimmunity, and the microbiome are related? If so, this is the episode for you as Jill discusses ways to vary your diet to improve gut health naturally and why that's important. You can read the transcript for this episode here: https://tinyurl.com/2pmnud7v Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to su...
May 03, 2022•37 min•Season 3Ep. 58
College students with POTS often have extra burdens - doctor's appointments and ER visits alone, reliance on friends and faculty for support or a ride. Alli describes her experience with POTS as a young person who is adjusting to her new reality. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing U...
Apr 30, 2022•36 min•Season 2Ep. 57
Amber, a freshman in college, describes her journey with POTS. She was lucky, and was diagnosed in 6 months. In her case, a lot of salt and building up the exercise slowly over time helped her to get back on her feet and off to college this year. We wish her the best in her aspirations to become a physician herself one day! You can read the transcript for this episode here: https://tinyurl.com/2p9bk4hk Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscri...
Apr 26, 2022•29 min•Season 2Ep. 56
In this POTS Basics episode, we cover some uncommon POTS comorbidities that can cause or exacerbate POTS symptoms. Join us for a tour of the brain and spinal cord in relation to the bony structures that surround them a way that we haven't done before on The POTScast! You can read the transcript for this episode here: https://tinyurl.com/24zk85f5 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If yo...
Apr 19, 2022•52 min•Season 1Ep. 55
Heidi was a professional dancer for more than a decade, but was secretly struggling with POTS symptoms. Doctors turned her away, but one homeopath in Asia was able to relieve her symptoms - there was hope! Listen to this fascinating episode with Heidi! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Stan...
Apr 16, 2022•40 min•Season 2Ep. 54
Samantha talks about her experience with POTS and the impact of functional neurology on her quality of life. The imbalances between the left and right side of her body were problematic, and the right exercises made a huge difference! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by donating to Standing Up to POTS at ...
Apr 12, 2022•40 min•Season 2Ep. 53
Dr. Lovich was recommended for The POTScast by one of our listeners after he helped her decrease her symptom load dramatically. A chiropractic functional neurologist, he uses various techniques to re-train the brainstem and other brain areas to improve overall function and decrease POTS symptoms. It is a fascinating episode about eye movement, vestibular inputs, balance, and the brain! You can read the transcript for this episode here: https://tinyurl.com/2p8jh7mk Please click the "subscribe" bu...
Apr 05, 2022•55 min•Season 3Ep. 52
Kristen is still struggling with POTS and trying to reclaim her life. Despite her brain fog and other symptoms, she works and has written a book. You will hear some of her symptoms in the episode (with her permission), that we hope will make others feel less alone. Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our production costs by don...
Apr 02, 2022•40 min•Season 2Ep. 51
Kelsey is a mother of two small boys and a physical therapist who shares her recent experience with the October slide. Balancing symptoms, work, and family, she continues to look for appropriate treatment. You can read the transcript for this episode here: https://tinyurl.com/3s3ndbnw Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our pro...
Mar 29, 2022•32 min•Season 2Ep. 50
Want to support a good cause? Show up in person or join us virtually for the POTS in Pants 5K. All proceeds will be donated to the Standing Up to POTS Research Fund. Check it out: https://managingmovement.com/pots-5k
Mar 23, 2022•4 min
Join us for a little free therapy related to dealing with the grief and loss associated with chronic illnesses like POTS. Techniques are explained to help deal with sudden temporary upsurges of grief that can benefit many. This is a must listen episode! You can read the transcript for this episode here: https://tinyurl.com/yckmvh42 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this e...
Mar 22, 2022•43 min•Season 3Ep. 49
Jeannie can't remember a time when she didn't have symptoms. While she was diagnosed with hypermobile Ehlers-Danlos Syndrome years ago, her POTS diagnosis is more recent. Working to improve her own quality of life, she created a modified Pilates regime specifically for people in our illness community. Check out Jeannie's website at: https://jeanniedibon.com/ Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just li...
Mar 19, 2022•38 min•Season 2Ep. 48
John paints an incredibly open and honest picture of how developing POTS as a teen impacted his life and relationship with his family. Growing up with a strong and invincible idea of masculinity, John was forced to re-evaluate what it was to be a man as he struggled with chronic invisible illness. This is a don't miss episode of The POTScast! You can read the transcript for this episode here: https://tinyurl.com/upu694sa Please click the "subscribe" button so that you don't miss an episode of Th...
Mar 15, 2022•43 min•Season 2Ep. 47
Dr. Kevin Lasko approaches POTS and associated syndromes a little differently from most healthcare practitioners. His approach is to determine what part of the central nervous system has been affected and attempt to slowly retrain it to process properly through a variety of eye, balance, and other exercises. Check out this episode for a non-traditional approach to POTS treatment! You can read the transcript for this episode here: https://tinyurl.com/4xd2pvjv Please click the "subscribe" button s...
Mar 08, 2022•46 min•Season 3Ep. 46
Meet Russell, a rockclimber from Washington who developed POTS as a teen and continues to battle his way back. His main symptoms are dizziness and brain fog, but these are debilitating. Find out how he has worked his way back to climbing, despite his ongoing limitations. And, a little update about a treatment that has really improved his symptoms! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If ...
Mar 05, 2022•40 min•Season 2Ep. 45
Daniella is a University student who spent several of her teen years battling symptoms and chasing a diagnosis. Suffering from POTS and chronic fatigue syndrome, she has a great philosophy on pacing herself using a red, yellow, and green light system for activities. We hope that you enjoy this inspirational episode of The POTScast! You can read the transcript for this episode here: https://tinyurl.com/2p9yf23r Please click the "subscribe" button so that you don't miss an episode of The POTScast....
Mar 01, 2022•31 min•Season 2Ep. 44
Several small studies indicate that there may be a link between POTS and glucose intolerance. Listen to this episode with Jill Brook to find out the possible connection. Knowledge is power! Does the size and number of meals matter? Amount or kind of carbohydrates that you consume? All this and more on this episode of The POTScast. you can read the transcript for this episode here: https://tinyurl.com/2p8mxjm3 Please click the "subscribe" button so that you don't miss an episode of The POTScast. ...
Feb 22, 2022•40 min•Season 1Ep. 43
Linda's daughter has perhaps had POTS all of her life, but the impact of the illness became more apparent in her teen years. Linda describes the impact of POTS from a parent's perspective, and articulates what many POTS parents are often thinking. Hunting for a practitioner who can help. Emergency department visits during flares. Supporting a child with POTS daily. We are so glad that she shared her journey with us here! Please click the "subscribe" button so that you don't miss an episode of Th...
Feb 19, 2022•37 min•Season 2Ep. 42
Garrett was a high school athlete when COVID-19 turned his life upside down. By day 4 of his illness, he knew that things were not going to be the same. He has seen numerous doctors in the past year trying to reclaim the life of a carefree teen, but instead suffers daily with POTS symptoms. Thankfully, he has a wonderful support system to help him deal with this new reality. You can read the transcript for this episode here: https://tinyurl.com/yhjxmwha Please click the "subscribe" button so tha...
Feb 15, 2022•22 min•Season 2Ep. 41
Dr. Afrin, a world renowned mast cell researcher and clinician, shares his insights on how misbehaving mast cells could account for a variety of POTS symptoms including the famous POTS flares. We hope you will join us! His book is Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity You can read the transcript for this episode here: https://tinyurl.com/pmdj6z79 Please click the "subscribe" button so that you don't miss an episod...
Feb 08, 2022•53 min•Season 3Ep. 40
Ashley developed POTS when she was 13, and was lucky enough to be properly diagnosed in 2-3 months thanks to her tenacious mother. Surviving the Florida heat, Ashley talks about how she has lived her life after diagnosis. College, study abroad in France, and earning a Master's degree are just part of her story! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you w...
Feb 05, 2022•27 min•Season 2Ep. 39
Sandy is a physical therapist assistant, wife, and mother who developed POTS after a mono infection when she was 40. Despite the love and support of her family, she continues to struggle with managing her symptoms and is actively seeking treatment at Johns Hopkins. We hope that you will enjoy her story! You can read the transcript for this episode here: https://tinyurl.com/4vxj4pmd Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us re...
Feb 01, 2022•32 min•Season 2Ep. 38
In this episode, Jill and Dr. Cathy Pederson discuss the ins and outs of Ehlers-Danlos Syndrome (EDS), Type III (hypermobile) and its relevance for many POTS patients. Many POTS patients also have EDS, a genetic mutation of one or more genes that code for the protein collagen. How can that defect cause so much havoc? To follow along with the diagnosis criteria, please check out this page: https://www.standinguptopots.org/resources/pots-causes You can read the transcript for this episode here: ht...
Jan 25, 2022•46 min•Season 1Ep. 37
This week, we flip the script! By now, we are used to Jill interviewing POTS experts and POTSies alike, but in this episode, she and her husband Mike share their POTS journey with us. It's a must listen as they describe 17 years to diagnosis and life coping with a myriad of syndromes! Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you liked this episode, we hope you will help to support our pro...
Jan 22, 2022•40 min•Season 2Ep. 36
