The POTScast - podcast cover

The POTScast

Standing Up to POTS, Inc.•the-potscast.castos.com
Health & Fitness
Medicine
Education
Self-Improvement
Business
Non-Profit
Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS patients are eventually diagnosed with MCAS, the first Tuesday of every month we feature a new series called Mast Cell Matters, in which top MCAS practitioners share their experiences in better treating patients. You can learn more by listening to our groundbreaking POTScast anywhere, anytime. Visit our website at www.standinguptopots.org and follow our social media accounts @standinguptopots.
Last refreshed: ⓘ
Follow this podcast in the Metacast mobile app to refresh it and see new episodes.
Follow on
Apple Podcasts
Spotify
RSS
YouTube
Overcast
Pocket Casts
Episodes.fm
Download Metacast podcast app
Podcasts are better in Metacast mobile app
Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more

Episodes

E35: POTS Diary with Mike from Arizona - from bedbound to the basketball court

Mike is a data analytics specialist, dad, and POTS patient. His symptoms were varied and devastating, but he has methodically studied his own body's reaction to various stressors and found his way back to normal function. This is an inspirational episode highlighting the helpfulness of observation and self-discipline. We hope you will listen! You can read the transcript for this episode here: https://tinyurl.com/3dncyzju Please click the "subscribe" button so that you don't miss an episode of Th...

Jan 18, 2022•46 min•Season 2Ep. 35

E34: New Theory about POTS with Dr. Svetlana Blitshteyn

Dr. Svetlana Blitshteyn, one of the top POTS physicians and researchers in the world, presents her recently published theory that POTS affects the central nervous system as well as the peripheral (autonomic) nervous system. A neurologist, she has studied the literature and observed trends in POTS patients in her own practice at the Dysautonomia Clinic to develop this theory. We hope that you will check out her paper discussed in this episode: https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC793...

Jan 11, 2022•42 min•Season 3Ep. 34

E33: POTS Diary with Cartoonist Rachel from Wisconsin

Rachel is a 22 year old college student who had a 7 year journey to diagnosis. A talented artist, she drew a comic about her experience with POTS diagnosis and treatment. You can find her comic here: https://www.standinguptopots.org/POTScomic You can read the transcript for this episode here: https://tinyurl.com/yw2rhcej Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other people just like you! If you love The POTScast and w...

Jan 08, 2022•25 min•Season 2Ep. 33

E32: POTS Diary with Sarah from Minnesota

Sarah is a POTS patient and mother of three who has struggled to balance her physical struggles with the lifestyle of raising children. Not wanting others to feel alone as she did early in her journey, Sarah started a blog and social media campaign called Survive Your Struggle . She shares her struggles - being wheelchair bound for a time, and her journey back to a more balanced life in this episode of The POTScast! You can read the transcript for this episode here: https://tinyurl.com/mv7amjvx ...

Jan 04, 2022•36 min•Season 2Ep. 32

E31: How POTS Affects Men: Mental Health Findings with Dr. Brooke Wagner and Dr. Cathy Pederson

POTS is often thought of as a "female" disorder, which has negative implications for men who are diagnosed with POTS and other chronic invisible illnesses. Because of Western notions of masculinity, admitting weakness (even due to illness) is particularly difficult for many men and requires a different approach in treatment and support. Trigger warning: We do discuss suicidal behavior in this episode. You can find the article we are discussing at https://jomh.org/articles/10.31083/jomh.2021.135 ...

Dec 28, 2021•39 min•Season 1Ep. 31

E30: POTS Diary with Jackie from Arizona

Meet Jackie as she tells the story of the day that she knew that something was wrong. As a Division I basketball player, Jackie used her competitive mentality to fight her way back from being bedridden to hiking long distances. How did she do it? Listen to find out more about her amazing story! You can read the trancript for this episode here: https://tinyurl.com/mw7c74rt Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other ...

Dec 21, 2021•34 min•Season 2Ep. 30

E29: Is Myalgic Encephalomyelitis or Chronic Fatigue Syndrome Part of your Picture?

Colleen Steckel went on a camping trip years ago, and started to feel ill. She was pregnant at the time, and thought that was the cause. Or maybe she has the flu. Decades later, she still suffers... Colleen is an activist in the myalgic encephalomyelitis (ME) community, and was later also diagnosed with POTS. She is a member of the Board of Directors for ME-International.org, and brings hope as she describes both diagnosis and treatment options for people with ME. The resources described in this...

Dec 14, 2021•57 min•Season 1Ep. 29

E28: POTS Diary with Henry from the United Kingdom

Meet Henry from the UK, who suffers from POTS, EDS, and vestibular migraines. These disorders have greatly impacted his quality of life, especially in the 30 years prior to receiving a proper diagnosis. He is upbeat as he describes his experience with chronic illness, particularly as a male. You can read the transcript for this episode here: https://tinyurl.com/2p95ty97 Please click the "subscribe" button so that you don't miss an episode of The POTScast. Subscribing also helps us reach other pe...

Dec 07, 2021•50 min•Season 2Ep. 28

End of Year Giving

We invite you to Stand Up to POTS with us this holiday season. All gifts are greatly appreciated as we fund advocacy projects like The POTScast as well as our Research Fund. To date, we have funded more than a quarter million dollars in original POTS research! Here's how you can donate: Our website: https://www.standinguptopots.org/donate Facebook: https://www.facebook.com/fund/standinguptopots/...

Nov 30, 2021•2 min
← Prev
For the best experience, listen in Metacast app for iOS or Android