Click here to subscribe for our podcast and video content on YouTube. In this episode, Roxann Diez-Gross, Ph.D., shares practical techniques for improving breathing and swallowing, vital functions that can be affected by Parkinson's disease. This talk was recorded during one of our online educational events. This content is made possible through the generous support of listeners like you. Click here to make a donation. For more information about the Davis Phinney Foundation visit: https://dpf.or...
Jul 10, 2024•20 min
Click here to subscribe for our podcast and video content on YouTube. In this episode of The Parkinson’s Podcast: Unfiltered, as Heather continues the process of moving across the country, she and co-host Kat chat about the curating personal relationships amidst the challenges of living the Parkinson’s. Heather and Kat discuss ways to navigate all types of relationships—from friendships and marriages to connections with strangers. At every step, they highlight the importance of staying connected...
Jul 03, 2024•29 min•Season 5Ep. 19
This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, Dr. Fleisher emphasizes the realness of pain in Parkinson's by explaining the causes of pain, how to talk to your doctor about your pain, and additional medical and non-medical management strategies. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 18 Rea...
Jun 26, 2024•32 min•Season 5Ep. 18
This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. As Heather plans to move to a new house, in this episode, Heather and Kat, talk about the importance and challenges of curating your physical space while living with Parkinson’s. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s....
Jun 19, 2024•31 min•Season 5Ep. 17
In this episode, Dr. Joanne Hamilton of Advanced Neurobehavioral Health, delves into the non-motor and cognitive symptoms of Parkinson's and provides practical strategies for symptom management. This content is made possible through the generous support of listeners like you. Click here to make a donation. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 16...
Jun 12, 2024•24 min•Season 5Ep. 16
This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. Do you "have" Parkinson’s or do you "live with" Parkinson’s? Do you "fight" your diagnosis? If so, can you do something “wrong” and “lose the battle”? In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss the significance of the words we use when talking about our lives. Click here to subscribe for our podcast and video content on YouTube. Click here to...
Jun 06, 2024•36 min
This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. Explore David Putterman's journey from professional drummer to person living with Parkinson's and back to the stage, revealing how reconnecting with music--supported by a music therapist--improved his quality of life and helped alleviate his Parkinson's symptoms. You can watch David Putterman's Mini-Documentary "Fighting Parkinson's With Drums" here: https://www.youtube.com/wat...
May 29, 2024•26 min•Season 5Ep. 14
This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode of the Parkinson’s Podcast Unfiltered, Heather and Kat discuss how they approach the sadness, loss, and grief while still finding joy and productive ways to live well today. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Foundation for Parkinson’s. Season 5 Episode 13 (Unfiltered Episode 3)...
May 22, 2024•26 min•Season 5Ep. 13
This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, join us for an inspiring conversation with Michelle David Lane and Susan Sapir-Fields, the founders of Louisiana Walks (LA Walks) for Parkinson’s. Discover the heartwarming story behind this annual fundraiser benefiting the Davis Phinney Foundation. To learn more about the Louisiana Walks fundraiser, please visit: https://parkinsonswalk.org Click here to subscribe for...
May 15, 2024•24 min•Season 5Ep. 12
The Parkinson's Podcast Unfiltered: Sex This content is made possible by the generous support of viewers and listeners like you. Click here to make a donation. In this episode of The Parkinson’s Podcast Unfiltered, Heather Kennedy and Kat Hill dive deep into the importance and challenges of sexual health for people with Parkinson’s. Strap in for the ride: as always, with Heather and Kat and The Parkinson’s Podcast Unfiltered, nothing is off the table. Click here to subscribe for our podcast and ...
May 08, 2024•37 min•Season 5Ep. 11
This content is made possible through the generous support of listeners like you. Click here to make a donation. Mobility Matters: NexStride and the Parkinson's Community In this episode, we chat with Sidney Collin, the inventor of NexStride: a device transforming mobility for people with Parkinson's. Join us as Sidney shares the journey from idea to creation, offering insights about her innovative solution and overarching mission to empower people with confidence and independence. To learn more...
May 01, 2024•24 min•Season 5Ep. 10
This content is made possible through the generous support of listeners like you. Click here to make a donation. In the debut episode of The Parkinson's Podcast: Unfiltered, hosts Heather Kennedy and Kat Hill explore the often overlooked stigma surrounding Parkinson's. Through personal stories and insights, they challenge misconceptions and explore how shifting narratives can empower minds and reshape perceptions. Tune in for a fresh perspective on living with Parkinson's. Click here to subscrib...
Apr 24, 2024•32 min•Season 5Ep. 9
This content is made possible through the generous support of listeners like you. Click here to make a donation. In this episode, panelists discuss ways that Parkinson’s has affected their abilities and how they navigate these changes. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truths and share their journeys with all of us. Click here to subscribe for our podcast and video content on YouTube. Click here to learn more about the Davis Phinney Founda...
Apr 17, 2024•57 min•Season 5Ep. 8
This content is made possible through generous donations made by our listeners . In this episode, Dr. Karunapuzha discusses advanced Parkinson’s with Davis Phinney Foundation Executive Director Polly Dawkins. Dr. Karunapuzha covers multiple interpretations of what “advanced Parkinson’s” means, what symptoms are associated with advanced Parkinson’s, and possible ways to manage those symptoms. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!...
Apr 03, 2024•57 min•Season 5Ep. 7
This content is made possible through generous donations made by our listeners . In this episode, discover the story behind Izzy Mokotoff and Alexis Chan's innovative pen for people living with Parkinson's: SteadyScrib. Learn about their journey and motivations--inspired by Izzy's grandfather--and the impending launch of SteadyScrib, set to publicly debut later this year. Want to learn more about SteadyScrib? Find out more about their mission on their website. Want to watch the video version of ...
Mar 20, 2024•23 min•Season 5Ep. 6
This content is made possible through donations made by our listeners. In this episode, Mark Stacy, MD, and Peter Schmidt, PhD, discuss participation in clinical trials for Parkinson’s. Dr. Stacy is currently a Professor of Neurology at the Medical University of South Carolina, and has been involved in Parkinson’s care and research for over 30 years. Dr. Schmidt, a Davis Phinney Foundation board member, is the Chief Scientific Officer for Rho: a company that supports clinical trial strategy, des...
Mar 06, 2024•40 min•Season 5Ep. 5
This content is made possible by the generous support of viewers and listeners like you. This is a special edition of the Parkinson’s Podcast, presented by the No Barriers Podcast. Join us for a candid conversation with Davis Phinney , co-founder of the Davis Phinney Foundation, and Kevin Kwok , a Foundation board member, as they share their compelling journeys with Parkinson’s. To learn more about the No Barriers Podcast, please visit: https://nobarriersusa.org/podcast/ Are you loving the Parki...
Feb 21, 2024•42 min•Season 5Ep. 4
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, music therapist Hadley Rentz from Music Worx, Inc., explains the benefits of music therapy for people living with Parkinson’s. To learn more about Music Worx, Inc. and their AudAbility virtual music therapy class for people living with Parkinson's, visit MusicWorx.com. You can subscribe to learn more about Music Worx, Inc. here....
Feb 07, 2024•26 min•Season 5Ep. 3
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. In this episode, Dr. Yasar Torres-Yaghi answers questions about OFF time in Parkinson's, including symptoms, medications, deep brain stimulation, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! Want to read the article associated with this podcast? Check it out on our website! Want to watch the v...
Jan 24, 2024•55 min•Season 5Ep. 2
This content is made possible by the generous support of viewers and listeners like you. If you would like to make a donation, please visit our website. Wayne Gilbert--a retired teacher and professor of English and educational psychology--was diagnosed with Parkinson's in 2005. Since his diagnosis, he has taken refuge in poetry, having written hundreds of "Parkie" poems, which he refers to as "metaphor medicine." In this episode, Wayne explains the importance of using metaphors in poetry to navi...
Jan 10, 2024•23 min•Season 5Ep. 1
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this interview, Dr. Apurva Zawar, PT, DPT, discusses one of the most common non-motor symptoms of Parkinson’s, pain, the different types of pain, and where you can find tools and resources to manage it. Want to watch the video version of this podcast? You can watch it on our YouTube! Are you loving the Parkinson's Podcast? You can lis...
Dec 27, 2023•26 min•Season 4Ep. 51
This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation In this session from the Victory Summit Virtual Event: Sleep and Parkinson's, Dr. Aleksander Videnovic explains sleep attacks, RBD (REM Sleep Disorder), Restless Legs Syndrome (RLS), Insomnia, Daytime Sleepiness, Drowsiness, Fatigue, as well as how to manage these, the importance of understanding and attending to your circadian biology a...
Dec 20, 2023•1 hr 1 min•Season 4Ep. 50
Deep Brain Stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson’s; however, it’s also frequently misunderstood by people who have been recently diagnosed. The success stories about how people are sometimes living symptom and medication-free as a result of getting DBS understandably lead many who’ve been newly diagnosed to want to get the treatment as soon as possible. In an earlier webinar, we invited an esteemed panel of experts to talk about Deep Brain Stimulatio...
Dec 13, 2023•1 hr 22 min•Season 4Ep. 39
In this episode, Dr. Bastiaan Bloem talks with Davis Phinney Foundation Executive Director, Polly Dawkins, about a recent article he co-authored, " The Elephant in the Room: Critical Reflections on Mortality Rates Among Individuals with Parkinson’s Disease ." In the article, Dr. Bloem et al. write, "Although the survival of people with Parkinson's has improved over time, people with Parkinson's still live fewer years than their age- and sex-matched population comparators, albeit at older ages th...
Dec 08, 2023•18 min•Season 4Ep. 38
A previous version of this podcast had sound issues. We apologize and hope you enjoy! During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. They talked about the difference between shame, guilt, and embarrassment, and they shared the various ways shame shows up for them. Again, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In this episode, t...
Dec 06, 2023•1 hr•Season 4Ep. 34
During this episode of The Parkinson's Podcast, panelists from our Living with Parkinson's meetup discussed fear and Parkinson’s. We addressed kids, relationships, progression, falling, loss of identity, cognition, and more. In this episode, topics discussed include: How to address fear and shame in yourself and with others How to handle the fear of being marginalized What is the biggest fear you have of the unknown? Dealing with the fear and grief of missing out Handling the fear of being alone...
Nov 22, 2023•1 hr•Season 4Ep. 33
On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can’t see in Parkinson’s. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's. Topics discussed include: What are the statistics on how many people are currently dealing with depression? Wellness vs. Wellbeing What is mental illness? What is the impact of mental illness on Parkinson's? What are th...
Nov 15, 2023•58 min•Season 4Ep. 32
Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson’s. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the...
Nov 09, 2023•56 min•Season 4Ep. 31
During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more. Topics discussed include: What does "cultural context" mean? Holistic health in cultural context The importance of community in a cultural context How to help address the divide between clinical care and cultural context as a care partner/care giver Acceptance of Parki...
Nov 01, 2023•57 min•Season 4Ep. 30
In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more. **Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson’s medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and ...
Oct 25, 2023•34 min•Season 4Ep. 29
