During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney , Michael Fahning , Gerrie Blavat, and Brian Reedy , who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson’s. Topics discussed include: Why are you living alone with Parkinson's? How does a service dog help in living alone with Parkinson's? What is the hardest part of living alone with Parkinson's? Find...
Oct 18, 2023•1 hr 1 min•Season 4Ep. 29
During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson’s. Topics discussed include: Why is it important to work with experts in Parkinson’s? What is a biomarker? Why does it take so long to develop a drug for Parkinson’s? What are the challenges with diagnosing Parkinson’s? What are the potential impacts of surgery on Parkinson’s symptoms? How do you make sure all medical providers have critical information? What is brain f...
Oct 11, 2023•56 min•Season 4Ep. 29
In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's. Topics we discuss include: What are the differences between urinary dysfunction in different neurological diseases? What is urinary dysfunction? Urinary dysfunction can be a precursor to a Parkinson's diagnosis How does urinary dysfunction affect a person with Parkinson's quality of life? When should you seek tre...
Oct 04, 2023•35 min•Season 4Ep. 29
In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed. Topics we discuss include: What do you wish you had known when you were first diagnosed with Parkinson’s? Being kind, listening to elders, and seeking help Take things seriously, but not too seriously Don't ignore your symptoms Medications The moment when you are first diagnosed Having a movement disorder specialist Support ...
Sep 27, 2023•1 hr 1 min•Season 4Ep. 28
In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them. In this episode, we talk about: How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on What clinicians can do to make your symptoms better How Dr. Subramanian combines Eastern and Western medicine The impact of demoralization on people with Parkinson's The importance of normalizing diagnosing depression The di...
Sep 20, 2023•55 min•Season 4Ep. 27
During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson’s. They offered their thoughts about how to adapt to changes that arise as Parkinson’s progresses. As always, this panel doesn’t hold back, and we’re so fortunate to have them tell the hard truth and share their journeys with all of us. In today's episode, we talk about: Start of discussion on vulnerability Vulnerability vs. danger Social vulnerability Adapting t...
Sep 12, 2023•59 min•Season 4Ep. 26
In this episode, Dr. Soania Mathur interviews Dr. Michael Okun to discuss the latest therapies for Parkinson’s, including RT-QUIC (Parkinson’s biomarker), subcutaneous dopamine pumps, vibrating gloves, rescue medications, DBS, and more. Dr. Mathur and Dr. Okun discuss: New discoveries in diagnosing Parkinson’s What do certain biological markers mean for diagnosis? What’s new on the horizon for Parkinson’s treatments? The subcutaneous delivery of dopamine replacement Transdermal treatment Microbi...
Sep 06, 2023•59 min•Season 4Ep. 25
In this episode, the Living with Parkinson's Meetup panelists discuss LOVE, relationships, and care partners, whether they be spouses, kids, friends, neighbors, etc. As always, our panelists speak with honesty and emotion, making everyone affected by Parkinson's feel less alone. In this episode, we discuss: Care Partners Who Think Your Parkinson’s is Going to Get Better Care Partners Who Don’t Understand Your Symptoms Pushing Your Care Partners Away The Difficulty of Communication Finding a Part...
Aug 29, 2023•58 min•Season 4Ep. 24
In this episode, the Living with Parkinson's Meetup panelists discuss how their relationships have changed, grown, and faded since being diagnosed with Parkinson's. As always, our panelists speak with honesty and emotion and make everyone affected by Parkinson's feel less alone. In this episode, we discuss: Relationships and Parkinson’s How relationships can strengthen after a Parkinson's diagnosis How to find people that are going through a similar experience Feeling like a burden and wanting t...
Aug 22, 2023•58 min•Season 4Ep. 23
In this episode, occupational therapist Carol Chiang discusses the importance of adding an occupational therapist (OT) to your Parkinson’s care team, common home adaptations that can be made to help you live well with Parkinson’s, and more. What is Occupational Therapy? Why Can People with Parkinson’s Benefit from OT? Carol’s Business, “Evolving Homes” - How Does it Work? Practical Tips for Lighting The Importance of Contrast in Your House Common Bathroom Setup Problems Suggested Technology to H...
Aug 15, 2023•50 min•Season 4Ep. 22
In this week's episode of the Parkinson's Podcast, panelists from our Living with Parkinson's Meetup share how they find hope and inspiration despite the everyday and ever-changing challenges of Parkinson’s disease. In this episode, panelists share: Quotes on Hope and Optimism from the Parkinson’s Community How They Practice Being Hopeful, Optimistic, and Grateful How Sree Pushes Through Feelings of Defeat The Importance of Connecting with People How to Find Silver Linings Face Freezing and the ...
Aug 08, 2023•56 min•Season 4Ep. 21
In this episode, Dr. Annelien Oosterbaan talks about the impact of Young Onset Parkinson’s Disease (YOPD) on women, how women have been left out of the research for so long that their care is impacted, menstrual cycles, pregnancy, breastfeeding, medication, menopause, and much more. She also talks about what it’s like to be a gynecologist, a mother of 4, and have YOPD. Dr. Oosterbaan answers questions like: What happened when you were first diagnosed? What was it like with your family when you w...
Aug 01, 2023•32 min•Season 4Ep. 20
In this episode, Dr. Rodolfo Savica discusses the biological and social differences of YOPD (young onset Parkinson’s), treatments for YOPD, the challenges of diagnosing YOPD, and more. Topics discussed include: “Early” Versus “Young” Onset Parkinson’s Typical Age for Young/Early Onset Parkinson’s Treatment Differences for YOPD Diagnosing Young/Early Onset Parkinson’s Young Onset Parkinson’s and DBS (Deep Brain Stimulation) Difference in Progression Between Early Onset and Late Onset Parkinson’s ...
Jul 25, 2023•59 min•Season 4Ep. 19
In this episode, Dr. Benzi Kluger, movement disorder specialist, and Kelly Weinschreider, a person living with Parkinson’s, discuss the value of palliative care (aka supportive care or whole person care) from the very beginning of a Parkinson’s journey. We discuss what palliative care is and isn’t, the palliative care approach, how to advocate for care, where to look for care, and more. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made p...
Jul 18, 2023•54 min•Season 4Ep. 18
The practices of mindfulness, meditation, and relaxation, beneficial to everyone, can be particularly beneficial for people living with Parkinson’s. In this conversation with Dr. Sarah Mulukutla and Dr. Evelyn Ooi, we talk about the value of learning these psychological, emotional, and spiritual tools to manage the challenges that come with living with Parkinson’s. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generou...
Jul 11, 2023•28 min•Season 4Ep. 17
In this episode, Greg Ritscher discusses: How he transferred the skills that made him successful in his career to live well with Parkinson’s His experience retiring and moving The process of writing a book Preparing for DBS The various ways Greg’s found to give back and spread Parkinson’s education and resources to those in the panhandle of Florida and more! We hope you enjoy it! For the mentioned links, resources, video recording, and more visit: http://davisphinneyfoundation.org/podcast-work-g...
Apr 25, 2023•55 min•Season 4Ep. 17
In this episode, Karen Frank, a person living with Parkinson’s talks about: How using cannabis to ease her anxiety took her down an unexpected path How she got out of an unhealthy situation Her experiences with depression and rehab Her relationships, community, and living with Parkinson’s and more! We hope you enjoy it! For related links and resources, the video recording, and more visit: http://davisphinneyfoundation.org/podcast-addiction-cannabis-anxiety-medications-and-living-well-with-parkin...
Apr 18, 2023•48 min•Season 4Ep. 16
In this episode, Dr. Roseanne Dobkin discusses: Depression and anxiety in people with Parkinson’s How to connect with a mental health professional The current landscape of telehealth for mental health What a first session with a mental health professional might look like The definition of cognitive behavioral therapy and when it might be a fit Managing anxiety specifically about Parkinson’s progression Parkinson’s symptoms that can be helped with CBT How to find a professional who is trained in ...
Apr 11, 2023•55 min•Season 4Ep. 15
In this episode, Kat Hill and Nancy Peate talk about: How they met at precisely the right place and time Their lives with and without Parkinson's Their path through co-authorship of “On Being Well with Chronic Illness: A Guide to Resilience and Joy with Your Diagnosis.” What they do to live well with Parkinson’s And more! We hope you enjoy it! For the mentioned links, resources, the video recording, and more, visit: http://davisphinneyfoundation.org/podcast-on-being-well-with-chronic-illness-wit...
Apr 04, 2023•59 min•Season 4Ep. 14
In this episode, registered dietician and nutritionist Jess Schroeder discusses: Weight loss and weight gain Constipation Increased sugar cravings Gastric emptying The “right” diet for Parkinson’s Troubles with chewing and swallowing Timing of food intake Types of food for exercise Food and its relationship to sleep Eating well in assisted living and/or skilled nursing facilities Creating an eating schedule and routine and more! We hope you enjoy it! For mentioned links, related resources, the v...
Mar 28, 2023•53 min•Season 4Ep. 13
In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson’s Pamela Quinn talks about: Her story of diagnosis How she followed her own gut in her management of the diagnosis Her balance of using medications and lifestyle choices to manage her Parkinson’s Her organization, PD Movement lab, and its class/course offerings The importance of taking charge of your diagnosis and more! We hope you enjoy it! For mentioned links, resources, the video recording, and more vi...
Mar 21, 2023•41 min•Season 4Ep. 12
In this episode, Dr. Salima Brillman discusses: The what and why of nOH (neurogenic orthostatic hypotension) Treatments for nOH In the moment tricks for managing nOH episodes How to talk to your doctor about your symptoms The effect of food and lifestyle choices on nOH and more! We hope you enjoy it Click here for the accompanying blog post to this episode, where you will find any mentioned links and resources, the video recording, and more. Are you loving the Parkinson's Podcast? You can listen...
Mar 14, 2023•59 min•Season 4Ep. 11
In this episode, Dr. Aaron Haug discusses: How Parkinson’s is diagnosed The non-motor symptoms of Parkinson’s What’s happening in the brain to cause Parkinson’s symptoms Common initial treatment options The team approach to treating Parkinson’s Lifestyle changes to manage Parkinson’s Which online resources to trust Why consider participating in research The most important advice for someone newly diagnosed And more! We hope you enjoy it! Click here for the accompanying blog post, where you can f...
Mar 07, 2023•45 min•Season 4Ep. 10
Episode Description: In this episode, panelists from our monthly Living with Parkinson’s Meetup discuss: The what and why of falling and freezing of gait in Parkinson’s The panelists’ experience with falling Strategies to prevent falling How music can be used to prevent falls Living alone and falling An overview of balance issues and what to do about them and more! We hope you enjoy it! Click here for the accompanying blog post for this episode to find the transcript, mentioned links, video reco...
Feb 28, 2023•57 min•Season 4Ep. 9
In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about: Letting go of the feeling of “mutuality” Learning to embrace reality Why Parkinson’s is a couple’s disease How to adapt when the plan you had for your life changes The difference between self-care and after care Handling anger and more! We hope you enjoy it! For mentioned links, additional resources, and the video recording visit: http://davisphinneyfoundation.org/podcast-terri-pease...
Feb 21, 2023•50 min•Season 4Ep. 8
In this episode, Dr. Joanne Hamilton discusses: The difference between a bad mood and a clinical mood disorder Not pathologizing normal emotions Depression versus a typical grieving period after receiving a diagnosis Depression versus anxiety and the symptoms of each Suicidal ideation and signs to look for that indicate seriousness Who to seek treatment from and where Exercise and socialization as the number one treatment The what and why of anxiety in Parkinson’s Treatment options for depressio...
Feb 14, 2023•51 min•Season 4Ep. 7
In this episode, Jan and her husband, Bill Grimes, share: How their life has changed since Jan got diagnosed with Parkinson’s How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire How Jan sees Parkinson’s as a blessing Her newly defined hobbies and passions, including sewing and poetry How Jan and Bill work together as a partnership to navigate Parkinson’s and more! We hope you enjoy it! Visit the blog post for th...
Feb 07, 2023•44 min•Season 4Ep. 6
In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses: The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder The connection between sleep and psychosis Talking to your neurologist about psychotic symptoms Pharmacological and non-pharmacological treatments The relationsh...
Jan 31, 2023•27 min•Season 4Ep. 5
In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses: The definition of Parkinson’s disease psychosis and what causes it The difference between complex, simple, insightful, and non-insightful hallucinations Common types of delusions and hallucinations in Parkinson’s Risk factors for Parkinson’s disease psychosis The relationship between medicat...
Jan 24, 2023•30 min•Season 4Ep. 4
In this episode, the Living with Parkinson’s Meetup panelists discuss: The importance of self-compassion Asking for help Symptoms worsening during menstruation Finding things that reinvigorate you Suicidal ideation Negative self-talk, mindfulness, and breathing and more! We hope you enjoy! Visit the blog post for this episode here to find related resources, the video recording, and more....
Jan 17, 2023•23 min•Season 4Ep. 3
