In this episode, the Living with Parkinson’s Meetup panelists discuss: The fact that Parkinson’s does progress, and treatments and techniques begin to lose their efficacy The need to slow down and do less due to Parkinson’s symptoms The importance and art of pivoting, a necessary skill when you have a progressive disease The urge to talk less and begin to isolate when symptoms worsen The importance of not comparing yourself to those around you, as difficult as it is Learning self-care and more! ...
Jan 10, 2023•36 min•Season 4Ep. 2
In this episode, Heather Kennedy, a person with Parkinson’s who has been living with the diagnosis for 12 years discusses: Three articles she’s recently written called “Gifted” , “ Poison for Breakfast” , and “ Sweating it Out” Her journey with Deep Brain Stimulation (DBS) The difficulty of unpredictable ON and OFF times in Parkinson’s and how those times impact relationships How her views have changed since the initial days of her diagnosis The difficulty of discerning between symptoms that are...
Jan 03, 2023•46 min•Season 4Ep. 1
In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss: The research connecting loneliness and quality of life Common reasons you might become lonely How to find meaning and community The feeling of wanting to “give up” with Parkinson’s Ways to get involved How to get connected in rural communities What to do when you try to connect and it doesn’t work The importa...
Oct 11, 2022•1 hr•Season 4Ep. 42
In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss: What is an OFF time? Distinguishing OFF times from other “feelings” The impact of stress on OFF times How to adapt your home for OFF times Optimizing your medications Non-motor symptoms associated with OFF times Rescue meds/rescue thera...
Oct 04, 2022•43 min•Season 4Ep. 41
In this episode, Dr. Jay Alberts discusses: The connection between cognition and freezing of gait What you can do to improve your cognitive and physical skills Music’s impact on walking and freezing of gait Deep brain stimulation The importance of managing postural instability and freezing of gait Assistive devices LSVT Big programming Dizziness and postural instability Festination of gait Laser canes & the importance of physical therapy Suggestions for a hunched back Strength training Retra...
Sep 27, 2022•58 min•Season 4Ep. 40
In this episode, Living with Parkinson’s Meetup (formerly the YOPD Council) panelists discuss: Common hurtful phrases they hear from people without Parkinson’s including, “I know how you feel” and “everybody’s got something” The importance of “listening for the love” The fact that many hurtful comments come from the people we love and can often stem from misunderstanding How to use hurtful comments as a teaching moment Communicating to others that Parkinson’s doesn’t always have to be the topic ...
Sep 20, 2022•57 min•Season 4Ep. 39
In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses: The neurological cause of motor symptoms Slowness of gut The subtypes of Parkinson’s Toe curling dystonia How to best prepare for your neurologist/movement disorder specialist visit The link between the severity of motor symptoms and non-motor symptoms The progression of motor symptoms Exercise to improve motor symptoms Supplements & Nutrition How to decrease fatigue How to treat double vision and visual-spatial is...
Sep 13, 2022•44 min•Season 4Ep. 38
In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares: Why he chose to write the book Winter Stars about his journey as a caregiver rather than his own Parkinson’s diagnosis The roller coaster ride of navigating the emotional states that come along with caregiving The irrelevance of the truth and being right when dealing with caregiving Caregiving for a person with dementia What’s at the heart of being a caregiver The value of caregivers in our so...
Sep 06, 2022•1 hr 2 min•Season 4Ep. 37
In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss: Maintaining identity amidst caregiving The power of gratitude Communication with your person with Parkinson’s Being the care partner for a parent with Parkinson's Involving others in the care partner experience Not feeling selfish about setting boundaries Caring for someone with dementia Getting paperwork in order The balance between overstepping and understepp...
Aug 30, 2022•52 min•Season 4Ep. 36
In this episode, panelists Soania Mathur, Wayne Gilbert, Robynn Moraites, and Sarah Zenner discuss: The fact that there’s no such thing as getting “away” from Parkinson’s Finding the balance between focusing on your Parkinson’s to live well but not letting it define you Parkinson’s as a “simmering pot” Being intentional about how you choose to speak about your Parkinson’s Emotionally accepting your diagnosis The importance of creating relationships with other people with Parkinson’s The impact o...
Aug 23, 2022•41 min•Season 4Ep. 35
In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, discusses: The differences in urinary dysfunction between different neurologic diseases An explanation of urinary dysfunction Urinary dysfunction as a potential precursor to Parkinson's Urinary dysfunction's impact on quality of life When you should seek treatment When urinary dysfunction occurs Non-pharmacological and surgical treatments DBS and urinary dysfunction Carbidopa/levodopa’s effect on urinary dys...
Aug 16, 2022•38 min•Season 4Ep. 34
In this episode, Living with Parkinson's panelists discuss: Packing lists Airport tips, tricks, and suggestions The importance of taking your time Considering if travel is still right for you Traveling in different ways Traveling with kids Considerations, tips, and tricks for the airport and airplane Bladder control when traveling Constipation when traveling Medications while traveling Planning for the worst-case scenario Considerations when traveling to other countries The importance of continu...
Aug 09, 2022•58 min•Season 4Ep. 33
In this episode, Allan Cole, a professor and published author in social work and counseling, and a person living with young onset Parkinson's discusses: The importance in sharing your story We is stronger than I The beginning of Allan’s Story The choice of when to disclose your diagnosis Distinguishing between illness and disease The importance of focusing on the present moment Remembering that you do have agency Misperceptions about Parkinson’s The importance of consultations with the experts L...
Aug 02, 2022•39 min•Season 4Ep. 32
In this episode, social worker Jessica Shurer, discusses: What self-care for care partners actually means The complexities of mental health for Parkinson's care partners including anticipatory grief and high levels of unpredictability The shift in identity when becoming a care partner The influence of negative self talk Understanding the signs of depression, anxiety, and caregiver burden The importance of self awareness to understand when you're experiencing mental health difficulties and what y...
Jul 26, 2022•44 min•Season 4Ep. 31
In this episode, Dr. Gregory Pontone discusses: What mental health, wellness, and well-being really mean Understanding the definition of mental illness and not over-pathologizing The circular effect of caring for your mind and body The most common mental health issues related to Parkinson's: depression and anxiety Identifying symptoms of depression and/or anxiety in yourself or a loved one Why people with Parkinson's experience depression The importance of utilizing multiple pharmacological and ...
Jul 19, 2022•59 min•Season 4Ep. 30
In this episode, David Leventhal, a program director and founding teacher of Dance for PD, a dance program for people with Parkinson's, talks to us about how the elements of dance translate to living well with Parkinson's. Contact us anytime at blog@dpf.org Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-think-like-a-dancer Are you loving the Parkinson's Podcast? You can ...
Jul 12, 2022•22 min•Season 4Ep. 29
In this episode, Dr. Jori Fleisher discusses a very prevalent but rarely talked about symptom of Parkinson's, pain. Dr. Fleisher discusses how pain is detected in the body, the types of pain experienced by the body, and how you can manage pain in Parkinson's. Contact us anytime at blog@dpf.org Find all the links, resources, and additional materials mentioned during today's episode on our Parkinson's Podcast Blog: http://davisphinneyfoundation.org/podcast-recording-pain-in-parkinsons Are you lovi...
Jul 05, 2022•45 min•Season 4Ep. 28
In this episode, Dr. Lucy Norcliffe-Kaufmann, an expert in autonomic dysfunction in Parkinson's speaks to the numerous aspects of Parkinson's symptoms of the autonomic system, including an inability to sweat, dry eyes, constipation, sexual dysfunction, issues in blood pressure, drooling, and more. She explains why these symptoms occur and what you can do to manage them to live better with Parkinson's. Contact us anytime at blog@dpf.org Find all the links, resources, and additional materials ment...
Jun 28, 2022•43 min•Season 4Ep. 27
In this episode, we talk to Dr. Benzi Kluger about many of the myths you may have read regarding Parkinson’s, the proliferation of medical bullsh*t (BS) that’s growing by the minute, and important clues to look out for when it’s time to evaluate the merits of a Parkinson’s article, product, treatment, or cure. For related resources for this episode visit: http://davisphinneyfoundation/podcast-recording-myths-and-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes o...
Jun 21, 2022•59 min•Season 4Ep. 26
In this episode, Allan Cole, Danny Bega, Michael S. Fitts, Arun Mather, and Kent Toland discuss: Common concerns and challenges “Plumbing” issues Erectile dysfunction Medication strategies ON times vs. OFF times Reconciling self-image Professional transitions, accommodations, and career modifications and more! We hope you enjoy! For related resources visit: http://davisphinneyfoundation.org/podcast-recording-men-and-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episod...
Jun 14, 2022•57 min•Season 4Ep. 25
In this episode, Kat Hill, Karen Jaffe, Soania Mathur, and Nabila Dahodwala discuss: Hormonal life stages and Parkinson’s (including premenstrual, pregnancy, and pre-or post-menopausal) Hormone therapies (particularly estrogen and progesterone) and Parkinson’s Motor and non-motor symptoms in women with Parkinson’s Psychosocial and mental health issues in women with Parkinson’s Relationships and social roles for women with Parkinson’s Care team considerations and communication For related resourc...
Jun 07, 2022•55 min•Season 4Ep. 24
In this episode, we sat down with Mike Studer to talk about neuroplasticity, exercise, sleep, and how important they are to living well with Parkinson’s. Find related resources here: http://davisphinneyfoundation.org/podcast-recording-neuroplasticity-exercise-and-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://...
May 31, 2022•51 min•Season 4Ep. 23
In the following episode, Kat Hill and Kevin Kwok discuss how the symptoms of Parkinson's can be embarrassing, especially the ones that others can't see, and how they have handled feelings of shame or embarrassment surrounding these symptoms. For related resources mentioned in this episode and for more information on living well, visit: http://davisphinneyfoundation/podcast-recording-the-embarrassing-side-of-parkinsons Are you loving the Parkinson's Podcast? You can listen to more episodes on ou...
May 24, 2022•22 min•Season 4Ep. 22
In the following interview, we have a conversation with Dr. Bloem about the book, Ending Parkinson's, about living well with Parkinson’s today, about the hopes for Parkinson’s in the future and much more. For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-ending-parkinsons-living-well-today Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's. Are you loving the Parkinson's...
May 17, 2022•36 min•Season 4Ep. 21
In this episode, Dr. Michael Okun shares the latest in 2022 for new and emerging therapies for Parkinson’s. For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-new-treatments-and-therapies-parkinson's Visit www.dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's. Are you loving the Parkinson's Podcast? You can listen to more episodes on our website! This content is made possible by t...
May 10, 2022•58 min•Season 4Ep. 20
In this episode, panelists Pete Huley, Christa Ingle, Pat Donahoo, and Cidney Donahoo talk about how important effective communication has been in their journey with Parkinson's and the wisdom they've learned. For more information and related resources go to: http://davisphinneyfoundation.org/podcast-recording-building-stronger-relationships-through-communication Visit dpf.org to discover more of what the Davis Phinney Foundation is doing today to help you LIVE WELL with Parkinson's. Are you lov...
May 03, 2022•30 min•Season 4Ep. 19
Listen to chapter 16, “Living Well Today,” and the Appendix, "Detecting Medical Bullshit" of the newest edition of our Every Victory Counts® manual. Living well with Parkinson’s is a choice and a constant effort, but as many people in our community would say, the effort is worth the result. And an important part of living well with Parkinson's is being able to decipher fact from fiction in the Parkinson's world. While there are many emerging therapies and treatments for Parkinson’s, there are al...
Apr 26, 2022•31 min•Season 4Ep. 18
Listen to chapter 15, “Long-Term Care and Financial Planning,” of the newest edition of our Every Victory Counts® manual. This chapter will break down the what, how, and when of long-term care and financial planning and provide you with resources so you feel confident planning for the future. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-fifteen-every-victory-counts-manual for related resources and to order your Every Victory Counts manual today. Email blog@dpf.org for any q...
Apr 19, 2022•41 min•Season 4Ep. 17
Listen to chapter 14, “General Health and Wellness,” of the newest edition of our Every Victory Counts® manual. In this chapter you will learn general health and wellness information to remember as you navigate your Parkinson’s, such as the importance of regular dental, vision, and skin screenings. It also explains how Parkinson’s may impact your vision, oral health, and skin, and how to ensure you stay on top of your preventative care routines. Go to https://davisphinneyfoundation.org/podcast-r...
Apr 12, 2022•35 min•Season 4Ep. 16
Listen to chapter 13, “Social Connections, Relationships, and Community,” of the newest edition of our Every Victory Counts® manual. In this chapter you will discover how social connections, relationships, and community can be just as important as the medications you take, as well as how to nurture those relationships while managing the complexities of Parkinson’s. Go to https://davisphinneyfoundation.org/podcast-recording-chapter-thirteen-every-victory-counts-manual for related resources and to...
Apr 05, 2022•49 min•Season 4Ep. 15
