The Parkinson's Experience podcast - podcast cover

The Parkinson's Experience podcast

The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the few podcasts available on this topic, don’t skip this one from the viewpoint of a patient. Thank you to my sponsor – Boston Scientific, the maker of Vercise Genus, a Deep Brain Stimulation or DBS system. To learn more about Parkinson's treatment options, please visit DBSandMe.com
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Episodes

025 Answers in Your Genes

In this episode we discuss the genetic connection to Parkinson’s. It doesn’t matter if you know you have a genetic mutual, if you know you don’t have one or you don’t know and don’t want to know, you will learn a lot about how the research into the genetic mutations linked to PD is leading to science better understanding of the origins of the disease and eventually a cure. We talk to a leading researcher at NYU about the connection. Also, we hear from a family who has a deep connection to the LR...

Jan 21, 202137 minSeason 2Ep. 2

024 PwPs Best Friend

Did you know that a dog can be trained to help People with Parkinson’s? It’s true and amazing to learn about. When trained to service PD patients, the dogs can help with freezing, mobility, exercise, get help, fetch medications, push a wheelchair, protect and provide comfort. Most of all they help restore dignity, confidence and independence. Stay tuned to learn more about these special animals. Warning: this is a tear jerker.

Jan 07, 202134 minSeason 2Ep. 1

023 Long Term Care - To Buy or Not to Buy

We have been tackling the decisions that people need to make for their healthcare insurance choices in our first series of episodes on a topic. Next up, long term care insurance options. There are 3 broad choices people can make. Which one depends on your situation. This is another very important, yet confusing life choice. Learn all about this important option in this episode.

Dec 21, 202033 minSeason 1Ep. 23

022 Making Sense of Medicare Choices

Continuing our series on healthcare insurance options. Next up, Medicare. There are more choices than when your parents became eligible. In this episode, we learn from an expert on what option is the best one for your situation and when and if you can change your choice when your circumstances change. No matter what age you are, this is an important topic to understand. It can be very confusing. We break it down and make sense of the confusion.

Dec 14, 202044 minSeason 1Ep. 22

021 Saving Money on Medications

This is the second episode in our series on healthcare choices and picking the best options for you. Next up – online pharmacies. Where do you get your medications? The ones you need to treat an ongoing condition. Most people use the corner pharmacy. It’s convenient. Have you wondered about switching to an online pharmacy? One that can source drugs from Canada and other countries with lower costs for their medications? Thousands of people use them and save a lot of money. Is it safe? How does it...

Dec 07, 202029 minSeason 1Ep. 21

020 Healthcare Insurance Explained - Part 1 The Individual Marketplace

Healthcare in the US and, more specifically, healthcare insurance is a very difficult, confusing and frustrating industry to navigate and understand. It can also be expensive. Yet, it is so important to our wellbeing. How do you make the best choices of you and your family? Even if this doesn’t affect you so much now, it will. Therefore, the Parkinson’s Experience will be producing its first series of episodes on one topic – understanding your healthcare insurance options. I guarantee you will l...

Nov 30, 202027 minSeason 1Ep. 20

019 Fundraising Fun

Fundraising for PD research can be fun. This episode is a recap of the 3rd annual Box4Bucks fundraiser for MJFF. It includes interviews from the many stakeholders in the event. Listen as representatives from MJFF, sponsors and participants describe what this year's pivot to virtual meant to them and how much fun it can be to do good.

Nov 29, 202032 minSeason 1Ep. 19

018 Fatigue is Real - Can DBS Help?

Fatigue, daytime tiredness, sleepless nights are experiences by a lot of people. It has a significant impact on their quality of life. For PWP, there is a 78% they will experience fatigue. Today we will learn more about this non motor symptom from a Mayo Clinic neurosurgeon researching fatigue in PD and if DBS can help.

Nov 13, 202027 minSeason 1Ep. 18

017 Dance the Shakes Away

Today’s topic takes us to the intersection of dancing and Parkinson’s disease. Dancing isn’t just another exercise recommended for PWP. Dancing combines the intense workout of an aerobic exercise class with other classes focused on strength, flexibility and balance. Plus, it is set to music and fun. The dancer needs to connect the mind with the body in order to perform the dance moves. Yet, PD dancing classes are for everyone and for all mobility levels. So, channel your inner Fred Astaire and k...

Nov 02, 202029 minSeason 1Ep. 17

016 You Are What You Eat

A healthy diet packed with nutrition isn’t just good for Parkinson’s patients. It’s good for everyone. However, there are a few changes you can make to your diet that can help with symptoms as well as your overall health outcomes. While there is no one-size-fits-all diet plan for PD, there are some guidelines we can follow to live our best life and enjoy some good meals. Today, our guests will review general food categories, discuss organic foods versus non-organic and what incremental changes w...

Oct 22, 202038 minSeason 1Ep. 16
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