Open your mind and heart before you listen to this episode! Look, we all know this is a hot topic and can be EXTREMELY devisive. Giving Danielle a platform to speak about what is happening to her, her process, and the harm that comes from complete dismissal is the right thing to do. Her story is real. So as you listen, hear her. Don't put other viewpoints on her. She shares how she went from a happy, healthy human to someone who has been hospitalized multiple times, and has permanant damage to h...
Jan 19, 2023•54 min•Season 1Ep. 166
Think about what a difference it would make in your life if doctors actually believed you when you shared your symptoms. What if you didn’t have to wait until things got worse and you were in a critical place before they looked at your holistically for a diagnosis? I know people who have permanent hearing damage, kidney damage, lung damage, heart damage and more that was absolutely without any doubt due to a delay in diagnosis. What would the world be like for us, and what effort would be made t...
Jan 17, 2023•17 min•Season 1Ep. 165
Life is DIFFERENT when you have a chronic illness. Different. Not less. It takes time to see it and it takes time to build it… and it’s true. If you are feeling like life is LESS now... this one is for you my friend! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email...
Jan 10, 2023•13 min•Season 1Ep. 164
Grace is a cop out. There, I said it. So what do I suggest instead? ACCEPTANCE. Listen to this episode to bring yourself into your most aligned state on your journey of self love! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email
Jan 03, 2023•12 min•Season 1Ep. 163
When many people started messaging me with questions and asking for my thoughts on the 23 and Me Research Study on ANCA Vasculitis, I of course took a look. I read everything on their website and had questions. So I emailed them and asked those questions and promised to share them with you. I want to point out these are basics for ANY rare disease research study they will do and in the literature they provided they have worked on a handful of studies with the pharma company GSK that has develope...
Dec 27, 2022•14 min•Season 1Ep. 162
It is not considered a conventional path to healing, but research shows that functional medicine for chronic illness can help you get to the root cause of the problem. Functional medicine is a type of healthcare that focuses on the whole person and factors such as antecedents, mediators and triggers that have led you to where you are today, which is why it can help to create the conditions for your body to heal naturally. In today's episode I go over why you need a functional practioner on your ...
Dec 20, 2022•14 min•Season 1Ep. 161
I’ve been at this a while and have had the amazing privilege to talk to so many people who have been through their chronic illness journey longer, all of whom I have learned so much from. I have also had the honor to speak to dozens of newly diagnosed people. Which has given me a unique perspective and reminder of how far I have come. You might already know this, but there are some realities and truths we as a group come to. Today I am going to share with you my top seven things I have learned i...
Dec 16, 2022•12 min•Season 1Ep. 160
When someone asks you how things are, you think of the list of things you aren’t doing. You think of the list of things you have “failed” at. Then you end up feeling all kinds of things when people tell you how amazed they are by you. You wonder how they could think that, you know they’re just being nice because you aren’t being amazing… you are FAILING at EVERYTHING. Right? WRONG! Listen to today's episode for the boost you need! Connect with others: http://www.instagram.com/teamvasculitis Join...
Dec 07, 2022•9 min•Season 1Ep. 159
When I started it was just a feeling and an idea. I switched to posting chronic illness content in November and through November and December thought about what I wanted to build. I thought about Rare Diseases, but honestly it overwhelmed me even though I have a rare disease. Of course rare diseases are welcome here, they are chronic illnesses after all. Just something about it was too much. Then when I decided what it would kind of look like to get started, I fully launched everything in Februa...
Nov 29, 2022•10 min•Season 1Ep. 158
One of the messages we get from very well meaning people is that we can do anything. They want us to know that we can still live full lives. We can still have dreams and goals. Which is good, we do need the reminder. We also don’t want to be told that we can do anything. In a roundabout way it is saying that we aren’t doing enough. The message is to dream bigger, do more. The message we need the most often is actually what I can do right now is enough. Right now in this moment I am doing enough....
Nov 22, 2022•8 min•Season 1Ep. 157
I am sure you have had friends get the same flu, or the same cold and mostly they have the same symptoms. Right? People focus on how similar their experiences are. Mainstream wise, it makes sense. A certain set of symptoms is used to create a picture of what a disease is, how it is diagnosed, and then you get treatment based on that assessment. Sometimes the treatment varies depending on severity. When it comes to chronic illness, things aren’t that different. We have symptoms that when presenti...
Nov 15, 2022•9 min•Season 1Ep. 156
A recent article came out about how the spoonie movement is toxic and we make one another worse, not better. How social media sucks us in and turns our support of one another into obsession that hurts us. So let me start with what a bunch of crap. Total and complete crap. Absolute bull shit. It also very clearly illustrated the ableism of the world around us. So many people just… believe it. Which is INSANE to me. Even before I was personally sick, I could see how there are things we go through ...
Oct 25, 2022•11 min•Season 1Ep. 155
From the perspective of the rest of the world we don’t do enough. We “should” be able to function more or we should be able to get better. BuzzFeed writes articles about how we are choosing this and our amazing community is actually encouraging us to stay sick.... I find this unacceptable. Find out what I plan on doing about it! Listen NOW! Join Our Community: http://www.instagram.com/teamvasculitis Check Out Our Webpage + Join Our Email List: http://teamvasculitis.com...
Oct 11, 2022•13 min•Season 1Ep. 154
So much has been going on for my family and I. We have had some major life changes and it has been a PROCESS. In this episode I share with you what's been happening and a few things I did to manage it without pushing myself too far. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com
Sep 06, 2022•13 min•Season 1Ep. 153
Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Kara! She helps you master manifestation to attract more: Health, Wealth and Love. In this conversation Kara shares about her personal journey with anxiety and how understanding her body gave her the tools to get where she could take on her life and build it with joy and intentionality! Connect with Kara: httpshttps://www.instagram.com/iamkarakauffman Raise Your Vibe Guide: https://karakauffm...
Aug 27, 2022•33 min•Season 1Ep. 152
Even if you’re doing the best you can. Even if you’re doing all the things to the best of your ability, if your disease is one of the ones that can flare… then at some point it probably will. It’s this cloud following you around ready to shut out the sunshine, and take away the joy. Join us on Instagram: http://www.instagram.com/teamvasculitis PLEASE CONSIDER LEAVING A REVIEW!
Aug 23, 2022•8 min•Season 1Ep. 151
Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Brooklyn! She helps you release stress and live with ease through yoga, meditation + breathwork. Our conversation filled me up and delievered so much information I had never heard. You are not going to want to miss this. Connect with Brooklyn: https://www.instagram.com/brooklynb.yoga/ Clarity Call Link: https://calendly.com/brooklynb_yoga/free-clarity-call?month=2022-08 Get a FREE meditation!...
Aug 20, 2022•33 min•Season 1Ep. 150
When the clip came out where Ashton said he had vasculitis, it sent the community talking. One of the things is excitement that he is advocating, but is he? Another thing was frusteration that he used the past tense of "had." I talk about all of this as well as share some basic vasculitis info in this episode. Ashton's Charity Thorn: https://www.thorn.org/ Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis Vasculitis Community: https://www.facebook.com/groups/883389712331347...
Aug 16, 2022•14 min•Season 1Ep. 149
Welcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Sarah Hines! She helps you feel better about yourself, prioritize yourself, learn to set boundaries, enjoy life more, and know your worth is not determined by your size! She is my go to when I need a smile as I am scrolling social media and I know you will love her message as much as I do! Connect with Sarah: https://www.instagram.com/thesarahhines/ Self Love Bingo - A Game to encourage you t...
Aug 13, 2022•44 min•Season 1Ep. 148
Something all chroncially ill people struggle with is figuring out if their symptoms are their disease, or if they are something else. In this episode I break down how to figure it out, and why it's very important to learn and understand your body! Join the community: Instagram: https://www.instagram.com/teamvasculitis/ Facebook: https://www.facebook.com/groups/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email...
Aug 09, 2022•11 min•Season 1Ep. 147
Our lives change so dramatically when we become chronically ill. We just don’t have the capacity we used to. Where you might have always been everyone’s go to “yes” person happy to jump in and help or save the day for anyone and everyone you knew, now you have to become someone else and if you are dealing with guilt about it, this episode is for you! Join us at Team Vasculitis on Instagram http://www.instagram.com/teamvasculitis Join the Facebook Community https://www.facebook.com/groups/teamvas...
Aug 02, 2022•14 min•Season 1Ep. 146
So what exactly does depression do to you? Well, it can affect how you feel, think, and handle daily activities, such as working, sleeping, and handling self-care… I know you’re making the same correlation that I am - wow, that sounds just like my chronic illness! Depression is one of the leading reasons chronically ill patients don't get the care they need. Listen to this episode to find out more! http://www.instagram.com/teamvasculitis http://teamvasculitis.com My 4 step Fullproof way to NEVER...
Jul 26, 2022•14 min•Season 1Ep. 145
How often do you stop yourself from accepting or even going after things you want because of what "might" happen? How often do you let yourself believe that you deserve less because of your illness? I get it, I do it too... and yet, you don't actually deserve less. So let's talk about it! Instagram: http://www.instagram.com/teamvasculitis Join the Team Vasculitis Email List: https://teamvasculitis.com/team-vasculitis-email Never Forget a Question at Your Doctor's Appointment Again: https://bit.l...
Jul 19, 2022•18 min•Season 1Ep. 144
I really want to acknowledge that when you’re young and you deal with these diseases it is devastating in a way that, although we can come together in understanding with most who have chronic illnesses, is different for people who have lived a full life cannot understand. Instagram: http://www.instagram.com/teamvasculitis Hack Your Health: https://bit.ly/3c3lz1l
Jul 12, 2022•14 min•Season 1Ep. 143
Here’s a hard truth you need to be warned about and no one really does. You aren’t going to be able to fully process what “chronic illness” means when you get your diagnosis. You just aren't. Your brain can’t process forever. The forever you face is different than anything else you have faced in your life. Most of the things in your life you either actively choose to stay in the forever, or you can walk away. Listen to this to find out what no one else is telling you! Join our Community: https:/...
Jul 05, 2022•13 min•Season 1Ep. 142
Meet Hannah! IgA Vasculitis Warrior. IgA Vasculitis was formerly known as Henoch-Schönlein purpura. Like so many of us she had to fight for people to believe that something was wrong with her. She was young, health conscious, and fit - so how could she be sick, right? She shares her symptoms, journey, and more. Follow Hannah: Tiktok: www.tiktok.com/@hannahthaiss Instagram: www.Instagram.com/Januarymornings Clothing brand: whocaresworld.com Instagram for Who Cares: www.Instagram.com/whocares.worl...
Jun 30, 2022•40 min•Season 1Ep. 141
I so badly wanted it to go like this: Get a diagnosis, get the treatment, heal, get in remission, continue on with my life. I think many of us get into that mindset because we don’t know any better. But we need to know the truth. So here it is... Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis
Jun 28, 2022•13 min•Season 1Ep. 140
Animals may be the best way for us to get support mentally and emotionally. There are studies out there that show evidence that having a pet can help reduce your blood pressure and loneliness. Join the Waitlist: https://bit.ly/3sViLcp Sign up for the email list: https://teamvasculitis.com/team-vasculitis-email Connect with the community: http://www.instagram.com/teamvasculitis...
Jun 21, 2022•9 min•Season 1Ep. 139
It has been a long decade since I was diagnosed. It’s been a struggle to make it through all of the things. It’s been heartbreaking and soul shattering, filled with several identity crises. It’s also been joyful and peaceful. It’s given me a perspective that allows me to find more fulfillment than I ever did before. I no longer waste much energy wondering or worrying what most people think of me. Not that I use that to just blast through life, but I use it to allow myself to focus on who and wha...
Jun 14, 2022•10 min•Season 1Ep. 138
I have spent so much time over the past year thinking about you. Trying to figure out what it is that I can do to provide more support and more value to you. So, what can I do to help you? I kept coming back to that question. How can I do more to help you? What can I create to improve your life? Join the community: Http://www.instagram.com/teamvasculitis Join the Chronic Illness Survival Kit Waitlist: https://bit.ly/3xoVL8f...
Jun 07, 2022•9 min•Season 1Ep. 137
