Team Vasculitis: Thriving through Life with Chronic Illness - podcast cover

Team Vasculitis: Thriving through Life with Chronic Illness

Felicia Distadteamvasculitis.libsyn.com
Life with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
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Episodes

Ep 46 - The Power of Women Working Together

As women, we are uniquely qualified to collaborate and change the world together. In today's episode I share with you a few ways that the world is truly a better place when women stand together and help one another shine.

May 11, 202116 minSeason 1Ep. 46

Ep 45 - Can Women "Have it All"?

Today's society is full of pressure. Pressure to do or be or even want what other's tell us. Many times these pressures even contradict one another. No matter how hard we push, it so often feels like we're failing and somehow we need to be able to do just preform better. I found a message a couple of years ago, right after I had my second child, that I repeat to myself. It brings me peace as I navigate trying to "have it all." Hopefully, it will do the same for you.

May 04, 202112 minSeason 1Ep. 45

Ep 44 - Acceptance Not Grace

Today I share with you a revelation I had about how to really work on loving myself. Accepting me for who I am - in the moment. Instead of beating myself up for not being different, and asking for forgiveness and grace. To give credit where credit is due. The idea to think this way in more places in my life than I already was came from Amy Porterfield's Talking Body podcast and her coach Corinne Crabtree. It was a huge WOAH moment for me. Maybe it will be for you too! Amy Poterfield: Instagram ,...

Apr 27, 202110 minSeason 1Ep. 44

Ep 43 - I Need a Pump Up. Maybe You Do too!

This has been a REALLY hard season for me. I thought it might be for you too. So today I'm going to remind both of us of that life is good. Also, I am reminding you of how absolutely freaking AMAZING you are. Really, you are. Listen to this episode and I'll explain how I know. Today... today we focus on your strength, power and joy.

Apr 20, 202113 minSeason 1Ep. 43

Ep 42 - Mom Boss Series with Monika Larson

Meet the amazing Monika! She got a science degree from UC Davis and the dream job that went with it. Then as life happened it wasn't a great fit any more. As things sometimes happen, the right path found her. Now she helps others find success in a creative and passionate way as she manages Mom life and all the things! You can find Monika on Instagram here

Apr 15, 202139 minSeason 1Ep. 42

Ep 41 - Health in Your 30s - What You Need to Know

When was the last time your doctor ran a lipid panel? Do you know if you ovulate? What's the number 1 killer of women world wide? Wow, what we don't know. Am I right? There are so many things that we should be aware of and I feel like no one told me. I see my doctors more regularly than most because of my illness, and still - no one told me. So today my friend, I am going to tell you four things you need to know right now today. I'm also going to mention several things to keep in mind. Stay heal...

Apr 13, 202131 minSeason 1Ep. 41

Ep 40 - When Doctors Don't Have Answers

Full disclosure: I recorded this at 4:30am when my head was full of frustration and my heart was very heavy. But I needed you to know. You CANNOT give up. You CANNOT stop asking questions. You CANNOT stop fighting. No matter how amazing your medical team is. It's not their life, it's yours. So it's up to you... and that is a heavy burden to carry sometimes. I cried the whole day before I recorded this because of the anger and frustration. It's never easy to fight this fight, because you feel lik...

Apr 06, 202130 minSeason 1Ep. 40

Ep 39 - Stay at Home Moms are Ambitious, Hard Working and Worthy

Do you stay at home with the kids? Do you go to work? Do you work part time while the kids are in school? Do you work crazy hours and barely see your family? You do what's best for YOU and YOUR FAMILY. Period. No judgements here. The problem is "everyone" has to weigh in and often what they say about Moms is awful, no matter what we do. Today, I'm telling you a little bit about my choice. To be at home... for now.

Mar 30, 202126 minSeason 1Ep. 39

Ep 38 - Friendship in Your 30s

Are you struggling with making friends? Maybe you have AMAZING friends, but you can't remember the last time you actually saw them in person. If most of your time is spent rescheduling, postponing, and straight up cancelling - I feel you. Friendship as your responsibilities increase is hard. Who has time for a girl's night out when the toddler is going through a growth spurt, and the baby is teething. Maybe it's more between work, volunteering, and whatever other personal commitments you have - ...

Mar 23, 202113 minSeason 1Ep. 38

Ep 37 - Chronic Illness Series: ALS with Allie Schmidt

Meet Allie Schmidt. She was young, too young to have ALS. So she had to fight to be listened to and has had to continue fighting as this disease has changed her life. Mom to a now 1 year old son. She has seen how the world is too slow to make room being adaptive for those outside of the "normal." This prompted her to launch her blog focusing on resources for those living with disabilities. You can find her: Website: Disability Dame Instagram: Disability_Dame...

Mar 18, 202155 minSeason 1Ep. 37

Ep 36 - 1% is All it Takes

Ever felt like, man... I am just not making any progress. I'm just drowning. I have this list of dreams and goals, but all I see is a mess. Today I talk about how to help you find your way to progress, and remind you - you ARE making progress. It's not about perfect. It's not about doing it all. It's about making a choice, setting a goal, and taking steps forward. Even if sometimes you make five steps back next.

Mar 16, 202119 minSeason 1Ep. 36

Ep 35 - Feeling that Extreme Mom Burn Out

If you've been a Mom for 5 hours or 5 years... or however long, you know what it is to feel overwhelmed as a parent. So many Moms have been talking about how hard it is recently. Today I share with you about one of my worst days as a Mom and want you to know that you ARE NOT ALONE in the hard dark overwhelming time.

Mar 09, 202118 minSeason 1Ep. 35

Ep 34 - No One Deserves Access to You

Do you ever feel like the social construct of obligation to stay connected with everyone is overwhelming? If you feel like it's too much, if it takes away from your mental, emotional or even physical health it's absolutely the right thing to do to DISCONNECT from them. We forget in today's world of technology that we do not have obligations to ANYONE as far as access to us or to our lives. In today's episode I share more about this and encourage you to take care of yourself first!...

Mar 02, 202119 minSeason 1Ep. 34

Ep 33 - Chronic Illness: Wegener's Vasculitis Series with Jane L. Edwards

Like so many other rare diseases, Wegener's Vasculitis effects everyone just a bit differently. In today's episode of my Chronic Illness series, author, mother, and friend Jane shares her journey with this difficult and potentially fatal disease. You can find Jane: Instagram: @jane.l.edwards You can find her book here: https://www.amazon.com/Chronic-illness-learning-behind-smile/dp/1075727863...

Feb 25, 202152 minSeason 1Ep. 33

Ep 32 - My Journey with Wegener's Part 2

Wegener's Vasculitis - that's what my Rheumatologist told me I had. It wasn't easy to hear, and it was more difficult to live with. In my first episode about my journey (see podcast episode 4 - My Journey with Wegener's Vasculitis Part 1) I shared onset and diagnosis. Today I share with you those next couple of years. The treatments. The side effects. The emotional turmoil. I put on 140lbs in a year. Do I break up with my boyfriend or sentence him to life with someone non-functional? How do I fe...

Feb 23, 202131 minSeason 1Ep. 32

Ep 31 - Chronic Illness: Wegener's Vasculitis Series with Nicole Boynton

Today I talk with my good friend Nicole about her journey with Wegener's. Nicole is a Mom of two girls. She navigated onset of her disease with being a Mom of very tiny (her youngest was 18mo at onset!) humans. She is also a podcaster and entrepreneur. I am once again amazed by the similarities and differences in our journeys. You can find out more about Nicole below: Instagram: @SimplyWholeMoms Podcast: Simply Whole Moms Website: http://www.simplywholemoms.com Nicole has a 4 part series on her ...

Feb 18, 20211 hr 6 minSeason 1Ep. 31

Ep 30 - Chronic Illness: You're Still You... But Not

You start by not feeling great. Then these random things happen. Before you know it, you can't function like yourself any more. You might get a diagnosis that changes everything... but you're still you. Right? Been there! Today I get really vulnerable in sharing some of my story as well as some universal chronic illness truths that will help you feel less alone.

Feb 16, 202120 minSeason 1Ep. 30

LET THEM PLAY CA

Today I share the story my sister wrote about my nephew. It is about the emotional toll the pandemic is having on our children. Our children are 10x more likely to die from suicide than from Covid-19. San Francisco has sued their school system over the lockdowns due the dramatic increase in suicide among school aged children there. Please listen. Please share. Please get these children back with their teams and in their classrooms

Feb 14, 20219 minSeason 1Ep. 32

Ep 29 - Chronic Illness: Wegener's Vasculitis Series with Nikki Bagley

Today my good friend Nikki shares how she first beats cancer and then moves on to what will be her diagnosis of Wegener's. Once again, I am amazed at how similar and yet different each of our journeys are with this disease. You can find her on Instagram: @nicolealison

Feb 11, 202146 minSeason 1Ep. 29

Ep 28 - Chronic Illness: Understanding Your Chronically Ill Loved One

It can be really hard for the people around those who are chronically ill to know how to best show up for them. It can also be really hard to know what to say. Today I remind you, you are still the person you have always been. You are the person that people have loved. It won't be easy, but you can do this... and this will help.

Feb 09, 202118 minSeason 1Ep. 28

Ep 27 - Chronic Illness: Wegener's Vasculitis Series with Art Diaz

Wegener's Vasculitis is a Rare Disease that, like so many others, effects each person differently. In the first episode of this series, I talk with my friend Art Diaz about all things chronic illness and specifically Wegener's.

Feb 04, 202133 minSeason 1Ep. 27

Ep 26 - Chronic Illness: Feeling Dismissed and Unheard

As we navigate our process through our symptoms, getting a diagnosis can be exhausting and overwhelming. Currently it's "normal" to feel ignored, unheard, and dismissed. We've unfortunately all heard - "It's all in your head" and "It's normal. If it stops you from living your life - IT IS NOT NORMAL If you have been treated this way - YOU ARE NOT ALONE In today's episode I share a couple of stories and some scary statistics about this process.

Feb 02, 202122 minSeason 1Ep. 26

Ep 25 - The Science Behind Practicing Gratitude

We're hardwired to see the negative... but there is SO MUCH POWER in rewiring our brains to see the positive in the world around us. Today I talk about how it works, what it changes, and a few different ways to make practicing gratitude part of your life. Here's the link to the article I used the most: https://www.heysigmund.com/the-science-of-gratitude/

Jan 26, 202117 minSeason 1Ep. 25

Ep 24 - Who You Are Right Now Matters Too! With Becky from Relatable Much

Sometimes we spend so much energy focusing on where we want to go, who we want to be that we don't allow ourselves to value who we are right now. Today, my good friend, Becky from Relatable Much Podcast joins me as we talk about this, how it changed her perspective and why it is so important to her.

Jan 21, 202138 minSeason 1Ep. 24

Ep 23 - Let it Go... Mom Guilt That Is

In case you needed to hear this today - we ALL feel like we're failing in this parenting thing. We just do. Why? Because nothing in this world means more to us than doing our best for them. Don't worry Mama, you aren't alone. Join me in today's episode for some love and support.

Jan 19, 202124 minSeason 1Ep. 23

Ep 22 - As Moms, We ALL Feel Like We're Failing

In case you needed to hear this today - we ALL feel like we're failing in this parenting thing. We just do. Why? Because nothing in this world means more to us than doing our best for them. Don't worry Mama, you aren't alone. Join me in today's episode for some love and support.

Jan 12, 202122 minSeason 1Ep. 22

Ep 21 - Real Talk: Child Abduction and Human Trafficking

As a Mama it's so easy to go down a rabbit hole of anxiety about a ton of different things. Recently, the more prevalent discussion around Human Trafficking has increased that anxiety. Today I talk about some facts that will empower you to reduce your anxiety and keep those tiny humans safe! Resources: Instagram Accounts to Follow: @OURRescue @TimBallard89 @KateJOseen @Thorn @ChildrensRiot @ExodusCry @HumanTraffickingInst @UnitedAgainst @SafeHouseProject @ChildProofAmerica Websites: DoSomething....

Jan 05, 202129 minSeason 1Ep. 21

Ep 20 - Getting Ready for the New Year

Do you take time at the end of the year to evaluate where you are and where you want to go? Today I talk about how I deal with making changes in my life and encourage you in your process. Plus, I plug some of my favorite products! Mentioned: Simply Whole Planner from Simply Whole Moms available on Amazon Follow Kara and Nicole on Instagram @SimplyWholeMoms and listen to their podcast. Goodbye 2020, Hello 2021 Journal from Project Love available on Amazon Follow Selina and Vicki on Instagram @Lov...

Dec 29, 202018 minSeason 1Ep. 20

Ep 19 - Tiny Humans and Their Big Feelings

It's no secret that tiny humans have big feelings. They come literally BURSTING out of them at any given moment. This happens more often when anything out of the normal happens... which probably means, if you're like me, you're dealing with more meltdowns during the holidays. There are so many more sights, sounds, strange foods etc. Not to mention how off schedule we all get doing all the fun things. I want to help remind you that YOU ARE THEIR SAFE SPACE. Also, I share some tips to limit the me...

Dec 22, 202021 minSeason 1Ep. 19

Ep 18 - Body Positivity and Self Love with Jeni Ness

Do you ever struggle with loving yourself? I know I do!!! Today I chat with my dear friend Jeni about her journey to self love and body positivity. She even shares some of her favorite self care tips along with accounts she loves to follow to keep her head and heart on track. Follow Jeni on Instagram at http://www.instagram.com/JeniSue29 Books Recommended: The Happiness Project by Gretchen Rubin Warrior Goddess Training: Becoming the Woman You are Meant to Be by Heather Ash Amara Seize Your Life...

Dec 17, 202020 minSeason 1Ep. 18
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