Episode description

Nyobie grew up knowing there was something different about her body. As a young woman, she was plagued by unexplained symptoms doctors initially dismissed as part of puberty. But persistent pain and swelling in her arms and legs were just the beginning of her battle. After 19 years of being silenced and misled, Nyobie finally found a life-changing doctor - and diagnosis.

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****** SPOILER ALERT BELOW ******

If you’re looking for more information on Lupus, you can check out the Lupus Foundation of America by heading to Lupus.org. You can also learn more about Nyobie Gordon-Rick and the work of National Health Educator Leticia Ocaña.

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