A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI.
Season 3 of Slice of PI is supported, with thanks, by Pharming
Join Andrea as she says goodbye to another season of Slice of PI! In this episode Andrea will look at some key takeaways from the season, highlights and messages from and for the PI community.
Make sure to join us this week when Andrea says goodbye to another season of Slice of PI.
This week, Andrea looks at the important role that research nurse coordinators play in clinical trials. What support can they offer? How does their work impact patients and families with PI? What role do they play in the medical field and why are they so important? Join Andrea and her guest, Jordyn Arnold as they discuss this topic and this little known area. Season 3 is supported by Pharming
Take a listen to what is coming up in the next episode of Slice of PI when host, Andrea, looks at the importance of the research nurse coordinator role when it comes to clinical trials. Guest: Jordyn Arnold Season 3 is supported by Pharming
This week on Slice of PI, Andrea looks at the challenges pregnancy and childbirth poses to the primary immunodeficiency community. Join Andrea as she tackles topics of genetic counselling and IVF, and how these are and can be supported in Canada. This week's guest is Jennifer DiRaimo, a genetic counsellor and researcher with the Platelet Disorder Support Association. Season 3 is supported by Pharming
Take a quick listen to what's coming up next on Slice of PI in episode 9: Pregancy and Childbirth, from genetic counselling to IVF Season 3 is supported by Pharming
Join Andrea and special guest MP Matt Jeneroux for a Slice of PI Movember episode on Men's Mental Health. In this episode they will discuss breaking the stigma of men's mental health and the awareness that is needed to create safe spaces for men in everyday places. Season 3 is supported by Pharming
Take a quick listen to what's coming up next as Andrea is joined for a special Movember episode by MP Matt Jeneroux to talk about Men's Mental Health. Season 3 is supported by Pharming
Join Andrea and her guest clinical immunologist, Dr Julia Upton, as they discuss a rare and underdiagnosed primary immunodeficiency, APDS. Would you know the signs, symptoms and what to look for? Season 3 is supported by Pharming
Take a look at what is coming next week in episode 8, "APDS" Season 3 is supported by Pharming
This week, Andrea looks at the ins and outs of supporting patients and their families including the planning and emotional strategies. Join her as she explores why professionals such as social workers and child life specialists are so necessary in a holistic approach to care. This week's guests include Danielle Sikora and Stephanie Wanner. Season 3 is supported by Pharming
Take a look at the next episode, "Social workers and child life specialists; the importance of a holistic approach" Season 3 is supported by Pharming
This week, Andrea talks to two experts, Dr. Thierry Lacaze and Breanne Stewart from RareKids CAN, about the importance of clinical trials for rare disease patients and families in Canada and what they are doing to change things. Season 3 is supported by Pharming
Take a listen to what is coming up in the next episode of Slice of PI, "Clinical Trials in Canada" Season 3 is supported by Pharming
Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 2 of 2 Season 3 is supported by Pharming
Trailer for episode 5 Season 3 is supported by Pharming
Can DNA be made into music? In this episode, Andrea talks to two researchers at the University of Alberta who are doing just that. Listen and find out how music composed by converting protein sequences or genes to musical notes can impact the PI community. Part 1 of 2 episodes Season 3 is supported by Pharming
Trailer for episode 4, part 1 Season 3 is supported by Pharming
Gene therapy seems to be everywhere right now. But what is gene therapy? What is happening in Canada with gene therapy? And more importantly, what is happening in other countries that can teach us to create a sustainable solution for children with ultra-rare diseases to access novel gene therapies? In this episode, Andrea talks to Dr. Claire Booth, a pioneer in gene therapy in Europe to answer some of these questions. Season 3 is supported by Pharming
Trailer episode 3 Season 3 is supported by Pharming
What are patient registries? Why are they important and why should patients and caregivers care about about them? How can they impact patient care? Is there a patient registry for primary immunodeficiency in Canada? This week, Andrea talks to Dr. Beata Derfalvi as they answer some of these questions and also look at what Canada can learn from other countries. Season 3 is supported by Pharming
Trailer for episode 2 Season 3 supported by Pharming
Andrea is back with another season of Slice of PI! In this episode, host Andrea Fernandez de Soto, looks at what is in store over for listeners this season in Slice of PI. Season 3 is supported by Pharming
Slice of PI is back for Season 3! Trailer for Episode 1, Intro to Season 3 Season 3 is supported by Pharming
In the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.
Take a listen to what is coming up in the final episode of "Slice of PI" season 2.
In the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
Take a listen to Friday's episode where Andrea will discuss the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
This week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard.
Take a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.
