A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI.
Season 3 of Slice of PI is supported, with thanks, by Pharming
This week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.
Take a quick glimpse at Friday's episode where Andrea explores ways to give back throughout your journey and how you can transform your journey through creativity.
This week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent? Guests this week Dr. Catherine Biggs from BC Children's Hospital and parent Margaret Jurocko.
Take a listen at what is coming up next week when Andrea looks at the challenge and complexities of transition from pediatric to adult care.
This week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava.
Take a quick listen to what Andrea has in store for next week's episode!
This week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro.
Take a listen to episode 7 where Andrea looks at gene therapy.
This week Andrea discusses the importance of stem cell donation with special guests, expert Mai Duong from Swab the World and parent advocate Dawn Shirley.
Take a sneaky listen to what is coming up in next week's episode where Andrea looks at stem cell donation.
You won't want to miss this episode where Andrea talks to Canadian Blood Services and parent Megan Waghorn around the importance of that "liquid gold" in our blood that is used turned into treatment for immune deficiencies.
Take a listen at what is coming up the next episode where Andrea looks at plasma - the raw ingredient that makes up immunoglobulin (IG).
This week Andrea discusses medical trauma with guests, parent Linda Skeries and child life specialist at Stollery Hospital in Edmonton, Alberta, Stephanie Wanner.
Take a sneaky listen to what's coming up in the next episode of "Slice of PI" where Andrea looks at medical trauma.
In this episode, host and mom, Andrea, looks at the receiving the diagnois what this means and what the process of the diagnosis entails. She talks with another mother of a child with Severe Combined Immune Deficiency (SCID), Barbara Drayton, whose son was the first baby to be diagnosed through Canada's first SCID newborn screening program in Ontario.
Listen to a preview from Friday's episode where host Andrea talks about the diagnosis and all that entails.
S02:E02 In this season's 2nd episode, we look at SCID Newborn Screening, a potentially life-saving test for babies that identifies the primary immunodeficiency, Severe Combined Immune Deficiency (SCID). This week's guests are: Dr. Nicola Wright from Alberta Children's Hospital and Ian Cowie, a father of a child living with SCID.
Take a listen for what's in store next week on "Slice of PI" when Andrea talks to guests Dr. Nicola Wright and parent Ian Cowie about newborn screening for SCID.
Welcome to Season 2 of "Slice of PI"! In this introductory episode, you meet your host for the season, Andrea. Andrea is a mom of a small child who was diagnosed at birth with a primary immunodeficiency, Severe Combined Immune Deficiency (SCID). Listen as she gives an overview of what is in store for this season and tells you a little about her story.
We're back for season 2! Meet your new host Andrea in this trailer for the next season of Slice of PI which starts on December 3rd.
In the finale to Slice of PI, Bryan reflects on his journey over the course of the series, his encounters with others living with primary immunodeficiency and how this has impacted his view. He shares his thoughts for the future as well!
In this trailer of next week's series finale, Bryan, reflects on the journey that was "Slice of PI" and what takeaways he has been given through the voices of his many guests and the feedback he has received.
In the penultimate episode to series 1, Bryan is joined again by guest Tara (ep.4, Travel) to discuss the impact of the COVID-19 on the primary immunodeficiency community. Listen as two primary immunodeficiency patients explore the past year of this pandemic.
In our penultimate episode, Bryan is again joined by Tara (Travel Episode) and the two discuss how the COVID pandemic has affected them as PI patients. Take a listen to next week's episode!
This week Bryan is joined by Safira and two delve deep discussing the world of post-secondary education while living with primary immunodeficiency.
Take a listen at what is coming up in next week's episode when Bryan is joined by Safira to talk about education.
This week Bryan is joined by guest, Jan, an older patient living with PI. Jan and Bryan discuss navigating retirement and how PI affects the decisions and planning for older age. A must listen episode!
Have a sneaky listen to next week's episode, where Bryan talks to Jan. They discuss retirement and older age. Is it possible to enjoy retirement while living with PI? Will you be able to do all the things you had planned?
This week Bryan talks with Tonya, an fellow patient about navigating the world of employment while living with immunodeficiency. This is a tricky subject for many of us, and one you will not want to miss out on.
Take a quick listen to what is coming up in Episode 6! Bryan looks into the topic of employment and is joined by Tonya, a fellow PI patient. They discuss navigating employment and living with PI.
