Send us a text Happy new year, I wish all of my listeners a happy, peaceful and brighter new year. In today's episode I am talking with Chiara Berardelli a former GP and current musician singer songwriter. We discuss a new song Chiara has released which is inspired by her experience of Long Covid and learning to accept and live with the condition. Chiara talks about her experience with pacing and how she manages her energy levels. We also discuss Chiara's own experience as a former GP reaching o...
Jan 01, 2023•37 min•Season 1Ep. 47
Send us a text I know this episode will go out on Christmas Day, I had thought about leaving the podcast for a week or so, as I put it out on a Sunday however I thought someone may find it helpful. I talk about Christmas, reflection, the ghosts of Christmas past and looking to the future...no it is not my version of scrooge I promise. I find a year end and new one beginning does evoke reflection and this can be hard when you are trying to learn how to live with a new version of yourself. I talk ...
Dec 25, 2022•16 min•Season 1Ep. 46
Send us a text On this episode I talk about communication, the importance of having a voice and how Long Covid may impact on our communication. I discuss the various methods and restrictions of communication, how having my voice distortion has effected the person I once was, before the pandemic. I reflect on what I have learnt during my career as a carer and a nurse and methods I have used to support people with communications needs. Ultimately I feel you can't truly understand how it feels unti...
Dec 18, 2022•23 min•Season 1Ep. 45
Send us a text On this episode of the podcast I am honoured to have a guest, Dr Wes Ely MD, MPH. Dr Ely is an internist, pulmonologist and critical care physician in Nashville. Dr Ely advocates for patients with Long Covid, he is the author of a book, Every deep drawn breath; 100% of the proceeds from this book Dr Ely donates to support ICU and covid survivors and their families rebuild their lives. In this episode Dr Ely and I discuss holistic patient care, gaslighting and validating those with...
Dec 11, 2022•30 min
Send us a text If you follow me on social media you may be aware I have started a slow phased return to work. I want to share this journey with you, the highs, lows and anything in-between. I am hopeful my experience can support others in their own journey. I talk about planning the return to work, what to consider and how a very flexible plan needs formulating and agreeing. I discuss how a standard 4 week phased return is not fit for purpose and this needs acknowledging across all workforces, i...
Dec 04, 2022•30 min
Send us a text In today's episode I am honoured to have a guest; Dr Jacob Teitelbaum MD talking with me about his own journey with post viral ME, and how this was one factor which shaped his life's work. Dr Teitelbaum is the author of several books including from fatigued to fantastic, he also is the lead author of 8 studies. Dr Teitelbaum breaks down how the SHINE protocol can be used to support and treat post viral conditions. He discusses how this works and what medications, vitamins, nutriti...
Nov 27, 2022•41 min•Season 1Ep. 42
Send us a text In recent months I have been contacted by many people feeling very low and even experiencing suicidal thoughts. I felt compelled to acknowledge this and after expressing my concerns, my wonderful son suggested he could come onto the podcast to share his, journey with self harm, mental ill health and suicidal thoughts. I appreciate this is a difficult topic but one that is not spoken about enough. Both Alexander and I hope this podcast can reach anyone feeling this way and let them...
Nov 20, 2022•36 min•Season 1Ep. 41
Send us a text Today is episode 40 of the podcast, I can't quite believe that I have recorded 40 episodes, had some excellent guests join me; and most of all reached so many people across the world. Thank you for listening to the podcast, I hope you find it helpful. In today's episode I am privileged to have my first ever guest return for a catch up, Ian and I talk about how he is managing with Long Covid, what he has learnt from his journey so far; sharing a few tips along the way. We also disc...
Nov 13, 2022•37 min•Season 1Ep. 40
Send us a text In this episode I am fortunate to have Nilihan join me to talk about a pacing trial that is underway. Nilihan has a vast knowledge and experience in research and trials. Today we talk about the pacing trial, how the trial is being undertaken and how the results will be used to provide therapeutic resources for people not only with Long Covid but also ME/CFS. we discuss the current lack of research and funding and how post viral conditions are not new however have been overlooked f...
Nov 06, 2022•27 min•Season 1Ep. 39
Send us a text In this episode I talk about how the changes of the season may effect symptoms of Long Covid and other long term conditions. This can be improvement or exacerbation. This is something I have noted over time and now work to prepare my body for the seasonal change and manage my symptoms. I have found the weather effects people in different ways and some work better in warmer climates while others welcome the cooler days. I find it interesting how the same conditions have different s...
Oct 30, 2022•34 min•Season 1Ep. 38
Send us a text In today's episode I am extremely lucky to have another fantastic guest; Dr Binita Kane. Dr Kane is a consultant respiratory physician at Manchester University Foundation Trust. A Long Covid advocate and Long Covid kids champion and also the co founder of South Asian heritage month. It was a pleasure and a privilege to talk to Dr Kane about her personal Long Covid journey with her daughter, and how this has inspired her journey and development as a doctor as well as a mum and advo...
Oct 23, 2022•40 min•Season 1Ep. 37
Send us a text This episode of the podcast comes from the heart. I wanted to talk about how becoming unwell has taken my sense of purpose, almost my full identity however it has also encourage me to get to know and appreciate myself in so many ways. I am hoping you can resonate. I discuss how I/we are not Long Covid, we are not a long term condition, we are so much more than that. Words often have a deeper impact on how I feel which is of course a blessing and a curse, but either way they make m...
Oct 16, 2022•24 min•Season 1Ep. 36
Send us a text In this podcast episode I talk about returning to work, and how life needs to be much more than a process of work, rest, recover, repeat. In my personal experience I have found this approach impacts the mental, emotional and social health requirements of a good quality of life. I reflect on what I have learnt following my relapse in March and how I hope to approach a return to work. I also discuss the importance of understanding your feelings and owning them, understanding your va...
Oct 09, 2022•23 min•Season 1Ep. 35
Send us a text I have recently been on holiday, this is usually a time of excitement, looking forward to family time, exploring new places, eating delicious food and drink and having some downtime from general life. Now don't get me wrong many of the above have and are still the case for me, however living with long term conditions has forced me to think more, plan more and learn how to navigate challenges. This episode discusses the challenges and wins of taking a holiday. I share my personal e...
Oct 02, 2022•38 min•Season 1Ep. 34
Send us a text In todays episode I talk with returning guest Cass. I have recently been away and prior to going I had so many fears and reservations, learning to live with chronic conditions will do that to you! Cass, was really supportive and offered out her own experiences and lots of tips to support planning and taking a trip or holiday. I found so much value in these tips, Cass kindly agreed to come and share with you guys on the podcast. I hope you find it as useful as I have, and don't for...
Sep 25, 2022•34 min•Season 1Ep. 33
Send us a text On todays episode I discuss how the way you look does not often reflect how you feel. I talk about invisible illness and chronic conditions, how the fluctuating symptoms and invisible symptoms lead to assumption, often "are you better now then, because you look great". I hope this podcast can support those living with Long Covid and other long term conditions and hidden disability, however I also hope it raises awareness and understanding to those who don't understand. So, if you ...
Sep 18, 2022•18 min•Season 1Ep. 32
Send us a text On todays episode I discuss the self that was and the self that is, with my guest Dr Anna Robson. Anna is an emergency medicine trainee and is living with Long Covid. Working through the pandemic, Anna has taken care of people in ICU, so is only too familiar with the impact of acute covid. I discuss with Anna her covid and Long Covid journey as she reflects upon how different her life looks post pandemic. Thank you for listening to the podcast, take care Why not follow me on socia...
Sep 11, 2022•33 min•Season 1Ep. 31
Send us a text In todays episode I discuss the issue of guilt. Living with a long term condition has evoked this feeling in so many areas of my life and I personally find it difficult to shake off. I have used the episode to reach out and find out if I am alone in this feeling or if others experience the feelings of misplaced guilt. I give examples of how guilt has engulfed my life and how I find this a challenge, I also talk about how I am trying to manage this and share how I am working on the...
Sep 04, 2022•25 min•Season 1Ep. 30
Send us a text Fatigue is often mistaken for being tired, needing to sleep or rest. I discuss the misconception on this episode and talk around the differences between fatigue and being tired. I talk about my own experiences and the various levels of fatigue and how this brings challenges to daily life. Fatigue can be life changing, disabling it effects the physical, emotional and cognition. I aim to clarify the difference between fatigue and tiredness. Thank you for joining me. Take care Why no...
Aug 28, 2022•29 min•Season 1Ep. 29
Send us a text I have a guest on today's podcast, Cass is a fellow nurse and lives with Long Covid, they contracted covid in April 2020. They had prior experience of being disabled, with hidden conditions before that and has a lot of experience of working and living with the challenge of ableism and unconscious bias, before and since the pandemic , Cass has been advocating for colleagues and others with Long Covid and other chronic conditions and disabilities on social media. Cass and I discuss ...
Aug 21, 2022•35 min•Season 1Ep. 28
Send us a text On this episode I explore the possibility of remission with Long Covid, and try to understand how the crash and relapse cycle works. Are better days remission? or can Long Covid go into a full blown longer phased remission? is that possible? I discuss my own experience and question if I have experienced a phase of remission last summer. I consider research for remission for people with ME/CFS, as this condition has been around a very longtime surely research on remission exists? I...
Aug 07, 2022•23 min•Season 1Ep. 27
Send us a text This episode of the podcast explores what a day on the life living with Long Covid can look like, this was more challenging to put into words than I originally thought. That was due to the fluctuating symptoms and unpredictability of the condition. I always advocate taking one day at a time, although this is hard when you reflect on the previous life you led. It is also challenging when you have to factor in work or the stress and anxiety not being able to work can provoke. I disc...
Jul 21, 2022•29 min•Season 1Ep. 26
Send us a text This episode explores the difference between Treatment and symptom management. How important are they? and is one more important than the other? I discuss how self care compliments symptom management and address negativity I received around my use of self care and symptom management. Not everything suits, or works for everyone and that is an important point in itself. Using a recent update as an example I discuss and explore treatment and symptom management. I also talk about the ...
Jul 21, 2022•27 min
Send us a text I am so excited to have my first ever guest on the podcast. Ian is a fellow long hauler and co creator of the 4th P, he is also an avid listener of the podcast. Ian contacted me after listening to one of my earlier episodes, where I talk about brain fog/injury, and how I feared it was early onset dementia. You will hear in this episode why this was a poignant moment for him. We have had many conversations since, many around pacing and of course the 4th P. Ian is kindly sharing his...
Jul 05, 2022•36 min•Season 1Ep. 24
Send us a text On this weeks podcast I am talking about POTS (Postural orthostatic tachycardia syndrome), this is something as a nurse I have not come across, however there appears to be a link with POTS and Long Covid. I discuss how I have related some of my symptoms to other medical possibilities and of course Long Covid. I discuss the symptoms of POTS and how I monitored these symptoms prior to going to my GP. With over 200 symptoms of Long Covid they can become blended and confusing. I conti...
Jul 05, 2022•27 min•Season 1Ep. 23
Send us a text What is toxic positivity? In todays episode I discuss I discuss the difference between positivity and toxic positivity. I explore how toxic positivity can impact and subdue emotions. Toxic positivity is a form of gaslighting and something we can do to ourselves without awareness. I also share some exciting news about future podcasts and I hope you will continue to join me. https://www.instagram.com/julietaylor9545 https://facebook.com/livingwithlongcovid/ https://www.facebook.com/...
Jun 22, 2022•19 min
Send us a text This episode discusses the emotional rollercoaster that is experienced when living with Long Covid. I reflect upon my emotions and how I have felt very alone at times. The multitude of emotions I feel. I also discuss and explore how external factors can have an impact on your emotions. I explore the factors of the grief cycle and how they feature in the Long Covid journey. This is a process I continue to go through, moving around the spectrum of the grief cycle. I explain what the...
Jun 22, 2022•25 min•Season 1Ep. 21
Send us a text This episode discusses what self care is, and why it is important to implement self care into your daily life. I discuss the guilt around taking time out for yourself and why we should not feel that way. Surely self care should be a part of our daily routine? but is it? why do we have guilt around taking time out for ourselves? I list 20 self care tips to get you started or expand on any self care routine you may already use. I hope you enjoy the episode. on the next episode I exp...
Jun 21, 2022•25 min•Season 1Ep. 20
Send us a text Life has changed in many ways for everyone due to the pandemic, and for sometime lockdown prevented any of us from going out. As the world has opened up, life with long covid has left me with many life restrictions and challenges. The social life I once knew is gone, making plans is a challenge or a risk, as I may need to cancel last minute. So what are the trials and tribulations of making plans, going out? have a listen to todays episode, where I share my experiences and some ti...
Jun 08, 2022•27 min•Season 1Ep. 19
Send us a text One of the challenges I have had since having Long Covid is sleep. I can either sleep for way too many hours or I have total insomnia or minimal sleep at best. This is a taskmaster and only exacerbates symptoms further; so what can you do if you sleep too much or not enough? Have a listen to the podcast for some tips and ideas on sleep hygiene and what I do to try to have a good nights sleep. Thank you for joining me. On the next podcast I will be discussing the trials and tribula...
Jun 08, 2022•20 min•Season 1Ep. 18
