Lewy Body Awareness Month
October is Lewy Body Awareness Month share this podcast to help raise awareness!!!! Support the show
Oct 04, 2024•20 min
Living With Lewy
My name is Larry and I live with Lewy Body Dementia. Myself and my daughter Abbie wanted a place for people living with Lewy Body, their caregivers, therapists and other medical and support professionals can share their experiences.
Episodes
Life Inside the Bubble
I am returning after a short absence with what it is like living inside the bubble of Lewy Body. Support the show
Sep 27, 2024•21 min
Power of Positive Mental Attitude
In this episode I talk about getting up not giving up. And the power of trying to keep a positive outlook. Support the show
Apr 05, 2024•23 min
Emotional Fatigue and Increased Mental Fog
In this episode I discuss a hidden enemy! Emotional fatigue and increased mental fog that happens when we need to rest and reset. Support the show
Mar 16, 2024•15 min
Lewy Body Dementia an Unchosen Path
The title says it all, this is not a path we would choose but together we venture down this path! Support the show
Feb 24, 2024•21 min
The Stages Of Grief And My Journey To Acceptance continued!
In this episode I continue to discuss my journey to accepting my diagnosis! Support the show
Feb 09, 2024•23 min
The Stages of Grieving and how I handled my diagnosis.
After several requests to share how I arrived at acceptance I am covering the stages of the grieving process, This is how I have been able to navigate to accepting my diagnosis and move to fight this disease. In this episode I start with denial and will continue next week with anger, bargaining, depression and acceptance. Support the show
Feb 01, 2024•23 min
How Is Life Living with Lewy Going?
In this episode I discuss where my journey Living with Lewy has taken me. I talk about realizing and accepting the changes that are happening! Support the show
Jan 18, 2024•21 min
Communication and Behavior! How do they relate to each other.
In this episode I talk to Debra Kostiw about communication and how it affects behavior. This is interesting as you hear both sides the caregivers and the person Living with Lewy. Support the show
Jan 05, 2024•22 min
Debra Kostiw talks about helping a loved one navigate the holidays
In this episode Debra and I offer some helpful tips on how to help a loved one with dementia to navigate the holidays. This advice applies to any large gathering of family and friends. Support the show
Dec 29, 2023•20 min
Debra Kostiw from Answers About Alzheimer's is our guest!
In this episode we have as our guest the author of a number 1 best seller "Forget Me Not" Debra Kostiw. Debra also runs the a you tube channel see link below! www.youtube.com/@answersaboutalzheimers Debra's experience covers all types of dementia and we will collaborate on a number of topics. STAY TUNED!!! Support the show
Dec 21, 2023•32 min
Driving and when it's time to STOP!
In this episode I am having to come to grips with another swing at my independence! Examining giving up driving for the safety of others and myself. Support the show
Dec 15, 2023•22 min
Social Media Groups and Advice
I look at social media groups and some of the advice given can be supportive and other advice can be downright dangerous! Support the show
Dec 08, 2023•23 min
Coping Strategies That Have Helped Me!
In this episode I share some of the coping strategies that make my living with lewy a little easier. Support the show
Nov 30, 2023•23 min
Showtime and Overstimulation
In this episode I share with you what showtime means to me and the stress of overstimulation. The holidays are upon us and large gatherings of friends and family can cause overstimulation. How I plan to cope!!! Support the show
Nov 15, 2023•20 min
Jacquelyn's story continued living with Posterior Cortical Atrophy and Lewy Body
In this episode Jacquelyn goes into how important it is to be your own advocate, rely on your own research. Life after her diagnosis, the importance of a positive attitude, and why sharing her story was a powerful experience. Support the show
Nov 09, 2023•25 min
Jacquelyn continues her story of Posterior Cortical Atrophy and Lewy Body
In this episode Jacquelyn continues her story which started on the October 3rd episode. Jacquelin tells of her experience with Posterior Cortical Atrophy combined with Lewy Body. Support the show
Nov 02, 2023•27 min
Looking at the World Looking at Us!
In this episode I talk about how it feels looking at the way the world looks at us and others with disabilities! Support the show
Oct 26, 2023•22 min
Trust Your Own Research
In this episode I discuss why its important to do your own research. There is plenty of misinformation on the web and social media protect yourself. Be a part of your own self help health care! Support the show
Oct 20, 2023•18 min
Jacquelyn shares her story of Posterior Cortical Atrophy and Lewy Body
In this episode Jacquelyn shares what Posterior Cortical Atrophy is and how it affects her Lewy Body. Support the show
Oct 03, 2023•22 min
Occupational Therapist Mandy McFadden
In this episode Occupational Therapist Mandy McFadden discusses the importance of a cohesive therapy team. Support the show
Sep 28, 2023•22 min
Autonomic Changes in Lewy Body
In this episode I discuss our autonomic system and how Lewy Body can affect its function. Support the show
Sep 15, 2023•21 min
Caregivers and the Importance of Their Support
In this episode I salute all the caregivers out there! Support the show
Sep 08, 2023•22 min
The Drastic Swings of Lewy Body
Perhaps one of the hardest things for our loved ones to understand. The swings between the highs and lows. Support the show
Sep 01, 2023•21 min
LIFE After the Diagnosis!!!
In this episode I talk about life after the diagnosis and what has helped me the most. Support the show
Aug 24, 2023•25 min
Resources to help in understanding!
In this episode I share educational resources that I hope aid you and your loved ones in understanding Lewy Body. Support the show
Aug 17, 2023•22 min•Season 1Ep. 9
Finding Purpose In The Pain
In this episode I discuss where I was able to find a new purpose in the pain of this diagnosis, How roles have changed in our home. Discovering there is life after Lewy. Support the show
Aug 10, 2023•20 min•Season 1Ep. 8
Frustration, Aggravation and Agitation
In this episode I discuss how these feelings have affected me. Some coping strategies that have been suggested. And some insights into the triggers that I have been able to identify in my life. "Living with Lewy" Support the show
Aug 04, 2023•20 min•Season 1Ep. 8
Hallucinations
Hallucinations happen in up to 80% of people with Lewy Body. Many people are unaware that there are nonvisual hallucinations such as hearing or smelling things that are not present, I discuss hallucinations and delusions and their differences . I share my experiences in this episode. Support the show
Jul 28, 2023•23 min•Season 1Ep. 7
Lewy Body Speech Problems & Speech Therapy
In this episode we speak with Allison Staples of Delmarva Speech Therapy in Berlin, Maryland. We discuss some of the issues that can affect our speech with Lewy Body and strategies to improve. Support the show
Jul 21, 2023•23 min•Season 1Ep. 7
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