U2FP CureCast - podcast cover

U2FP CureCast

Matthew Rodreick & Jason Stofferu2fp.org
Unite 2 Fight Paralysis exists to unite and empower the international spinal cord injury community to cure paralysis through advocacy, education, and support for research. Get Educated and Get Involved.
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Episodes

Episode 35: An Interview with Sam Schmidt, Founder of Conquer Paralysis Now

Jason and Matthew interview Conquer Paralysis Now founder, Sam Schmidt. We discuss Sam’s history as a race car driver, his injury, the genesis for the foundation and his recent project Driven, an Activity Based Fitness center in Las Vegas Nevada. Please reach out to us at curecast@u2fp.org

Mar 09, 20201 hr 13 min

CureCast Episode 34: A Conversation with Jason Stoffer and Kate Willette

In Epsiode 34 of U2FP's CureCast podcast, we introduce Jason Stoffer. We talk with Jason about who he is, where he hails from and how he came to be the new co-host on the podcast. We also talk with Kate Willette, author of Don’t Call It a Miracle: The Movement To Cure Spinal Cord Injury, about her new projects. It's an intimate and wide-ranging conversation that we think you’ll enjoy. You can email us at curecast@u2fp.org We’d love to hear from you, and you can find out more about us at u2fp.org

Feb 22, 202054 min

CureCast Episode 33: Interview with Dr. Mohamad Bydon from the Mayo Clinic

Check out Episode 33 of CureCast. We (Kate Willette, Jason Stoffer and Matthew Rodreick) talk with Dr. Mohamad Bydon from the Mayo Clinic. You may have seen the Good Morning America piece focused on 'super responder' patient one in the Phase 1 Clinical Trial using Adipose Derived Mesenchymal Stem Cells. We wanted to understand more about the study, how to go beyond the media hype and get an understanding of where Dr. Bydon sees this research going. Take a listen and drop us a note at curecast@u2...

Jan 30, 202047 min

CureCast Episode 32: Interview with Dr. Stephen Strittmater about ReNetX

Kate, Matthew and Jason Stoffer (our new podcast host) have a conversation with Dr. Stephen Strittmatter, The Vincent Coates Professor of Neurology and Professor of Neuroscience at Yale School of Medicine. His discoveries over the last two decades of research led to the founding of ReNetX, who are applying that technology to discover if neurons can regrow in the chronic injury (in humans) by eliminating inhibitory growth factors. We discuss the pre-clinical research, the mechanistic activity and...

Jan 13, 202055 min

U2FP CureCast Episode 31: Conversation with EStand trial participants Kathy Allen and Sandra Mulder

Matthew and Kate talk with Kathy Allen and Sandra Mulder, the first two participants in the EStand Trial in Minnesota. Kathy and Sandra (as well as Jered Chinook who participated in the Mayo Clinic’s Epidural Stimulation study) were invited to attend the American Spinal Injury Association Conference in April to share their personal experiences as part of a conversation facilitated by U2FP’s Executive Director, Matthew Rodreick. We thought it would be helpful to hear from them directly on the pod...

Jun 03, 201956 min

CureCast Epsiode 30: An Interview with Dr. David Darrow

We talk with David about the EStand Trial using Epidural Stimulation for spinal cord injury, the trial design, progress, next steps, and its connection the Cure Advocacy Network. The informal title of this episode is ‘The Transformation of Suffering’, which is David’s eloquent and personal description of why he’s doing what he does and what he is hoping to accomplish with the trial and treatment of SCI.

Apr 25, 20191 hr 18 min

Lyn Jakeman CureCast Episode 29

Matthew and Kate have a conversation with Dr. Lyn Jakeman, Director in the Division of Neuroscience at the National Institutes of Health. We spoke with Lyn a week ahead of NIH's SCI 2020: A Decade of Disruption. We discuss what led to the conference, why now and what they hope to accomplish from it. We also talk about why they chose the title, 'Decade of Disruption', and how that informed the planning process. As to the 'disruption' reference, we also discuss endparalysis foundation's open lette...

Feb 06, 20191 hr

CureCast Episode 28: What are we doing? An interview with Dr. David Magnuson and Dr. Karim Fouad

Matthew and Kate talk with Dr. David Magnuson (University of Louisville) and Dr. Karim Fouad (University of Alberta) about how discoveries are translated, funded, published....and what are some of the problems inherent to getting science to work for us. Links discussed: SCI 2020: https://meetings.ninds.nih.gov/Home/Index/21041 and check back for links to follow up on Kentucky's SCI research funding. Here are the links to follow up with Kentucky's battle to retain funding for SCI research: to KSC...

Dec 28, 20181 hr 11 min

CureCast Episode 27: Strategies to Cath No More - An interview with Dr. Dennis Bourbeau

Matthew and Kate interview Dr. Dennis Bourbeau from the Cleveland FES Center (http://fescenter.org/about-fes-center/who-we-are/investigators/dennis-bourbeau-phd/) about his strategies and collaborations to restore bladder function using stimulation. We discuss a number of studies he's involved in as preparation for his presentation at Working 2 Walk Science and Advocacy Symposium...and hope to open up the conversation to all there re: Bowel, Bladder, Sexual Function.

Aug 21, 20181 hr 23 min

An Interview with Karim Fouad (Episode 25)

Dr. Karim Fouad is a Professor of Rehabilitation Medicine at the University of Alberta and Canada Research Chair for Spinal Cord Injury. Kate and Matthew talk with Karim about how he ended up in this field and the more recent research that he has been involved with: the discovery of pericytes and their role in inhibiting blood flow after injury and what might be done about that; the potential for inciting a controlled inflammatory response to open a window for recovery after injury; and Karim's ...

Jul 19, 20181 hr 14 min

Nick Jeffrey and Chondroitinase (Episode 22)

Check out this great discussion Kate and Matthew have with Dr. Nicholas Jeffery from Texas A & M. We talked with Dr. Jeffery about the recent clinical trial for paralyzed dogs using chondroitinase along with his future work. After you listen to our interview, go take a look at his presentation from Working 2 Walk 2015.

Jul 10, 20181 hr 5 min

A Conversation with Dr. Adam Ferguson of UCSF (Episode 21)

If we’re working from a 17th century model of publishing science, then what effect does that have on translating science to clinical relevance? Kate and I had a mind expanding conversation (for laypeople) around this idea with Dr. Adam Ferguson, Professor and Principal Investigator at the Brain and Spinal Injury Center at UCSF. You may have already seen his fascinating presentation at Working 2 Walk this past year, “Big Data Analytics: Bringing Dark Data to Light for Enhancing Discovery and Tran...

Jul 10, 20181 hr 1 min

A Conversation with Sam Maddox on SCI Research and Advocacy (Episode 15)

Kate and Matthew interview longtime SCI writer, blogger, journalist and advocate Sam Maddox. Sam was a correspondent for Time, Money and People magazine and a former journalism professor at the University of Colorado – Boulder. His latest project is a publication called, First 90 Days to assist people in getting the best information at the time of injury.

Jul 10, 20181 hr 3 min

A Conversation with Researchers at the Mayo Clinic (Episode 12)

A conversation with Doctor’s Kendall Lee, Kristin Zhao and Igor Lavrov from the Mayo Clinic in Rochester, MN. They give Kate and Matthew an update on the current Epidural Stimulation replication study, as well as their plans to further develop the strategy.

Jul 10, 201843 min

A Conversation with Perry Cross from Australia (Episode 9)

Kate and Matthew talk with Australian advocate Perry Cross. We talk about his injury, his foundation: Perry Cross Spinal Research Foundation (http://www.pcsrf.org.au/) and some of the issues around stem cell tourism.

Jul 10, 20181 hr 15 min

Lee Thibeault's Experience with Clinical Trials (Episode 8)

Kate and Matthew talk with Lee Thibeault about the process of participating in clinical trials. Lee was one of the first individuals from the SCI community to participate in the early clinical trials of Stem Cell Inc. He talks candidly about his experience, its effects and the importance of participating in clinical trials to further the science to cure paralysis.

Jul 10, 20181 hr 3 min

An Interview with Dr. Jerry Silver (Episode 19)

In this episode of CureCast, we talk with Dr. Jerry Silver from Case Western Reserve University in Ohio. It’s a great conversation about his long-standing work to promote regeneration after spinal cord injury. He’s had some exciting recent results which we talk about and which you can also see in his presentation at Working 2 Walk.check out the latest SCI CureCast with Dr. Jerry Silver from Case Western Reserve University in Ohio. It’s a great conversation about his long-standing work to promote...

Jun 11, 20181 hr 4 min

What Is The Cure (Episode 2)

In this episode, Kate and Matthew as the seemingly simple question that takes on complex meaning for many different members of the SCI Community. To the cure advocates at U2FP, what does the word mean? What can people with SCI reasonably push for in cure advocacy? Check it out and then drop us a note at curecast@u2fp.org.

Jun 09, 201850 min
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