Tight Lipped - podcast cover

Tight Lipped

Tight Lipped
Tight Lipped is a storytelling podcast that makes public what is often thought of as “private pain.” We ask big questions about female chronic pain. We explore how gender, race, sexual orientation and class impact women and non-binary folks' experiences of healthcare and of their own bodies. Our show focuses on conditions that are extremely common (like vestibulodynia, vaginismus and endometriosis), yet carry with them a social stigma and often impact mental health, identity and intimate relationships.
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Episodes

BONUS: Aguantando

Bonus episode: "Holding It In" in Spanish! Cualquier noche de la semana no es nada raro encontrarse a Gabriela perreando al ritmo de Bad Bunny. Ella ama bailar, pero hay una razón por la que está en la pista de baile: tiene que "soltar la pelvis". Hoy Gabriela está viviendo su mejor momento. Aunque hace poco tiempo no era todo color de rosas. Estaba atada por dolorosos síntomas urinarios que no comprendía aparte de estar estancada en una relación con un hombre que no era el compañero que ella ne...

Oct 27, 202335 min

12: Beyond the Books

Over and over again we hear stories from patients with vulvovaginal and pelvic pain who have struggled for years to find care. These patients have been told things like “just drink a glass of wine” or “you must have repressed sexual trauma.” We wanted to find out, what are medical students and residents taught about these conditions? And why don’t most OB/GYNs know the steps to help? In today’s episode, we’re getting a peek into another side of the conversation: what’s missing from medical educa...

Jun 16, 202333 min

11: Loving Through This

Jazzmine and Jordan have been together for almost a decade. They’ve built a beautiful and fulfilling life in Iowa and you could say that they’re the “perfect” couple. But, there’s one thing that most people don’t know about their relationship: they’ve never had penetrative sex. While Jazzmine used to keep this secret, now she and Jordan are ready to share how they navigate chronic vulvovaginal and pelvic pain together. Even as recently as the 1960s, American courts were declaring that a marriage...

Jun 02, 202334 min

10: The DSM

In 1991, Marjorie Wantz made headlines when she died through physician-assisted suicide. She had suffered for years with chronic vulvovaginal and pelvic pain. Marjorie hoped that an autopsy would prove what she’d insisted all along: that her pain was real. But, in the aftermath of her death, the medical community painted Marjorie’s condition as psychological, and imaginary. Why did doctors still not believe Marjorie Wantz even after she took her own life to stop the pain? In today’s episode, we’...

May 19, 202330 min

9: Holding It In

On a typical weekday night, you can find Gabriela twerking to Bad Bunny. She loves to dance, but there’s another reason she’s out on the dance floor: to release her pelvic floor. Gabriela’s living her best life these days. Yet, not that long ago, things looked pretty bleak. She felt held back by painful urinary symptoms she didn’t understand, and stuck in a relationship with a man who wasn’t the partner she needed. In today’s episode, we hear how Gabriela’s experience with chronic pelvic pain tr...

May 05, 202333 min

Season 2 Trailer

We are thrilled to be back with the second season of Tight Lipped’s podcast. Our first episode drops on Friday, May 5th!

May 01, 20233 min

8: Power in Numbers

Today, we’re bringing you a story of change. One that gives a glimpse of what’s possible when patients, researchers, and policy makers come together to fight for a healthier, more hopeful future. In 1994, Phyllis Mate led a small, dedicated group of women to found the National Vulvodynia Association, the NVA. Their mission was to be the central destination for the most up to date resources and research on vulvodynia. The problem? There wasn’t any medical information on the condition. On today’s ...

Apr 20, 202137 min

7: Why did y'all offer this to me?

After nearly a decade of ER visits and dismissal from doctors, Samantha Denae was finally diagnosed with endometriosis. But then, she needed to figure out how to treat it. Over and over again she was told to get a hysterectomy. Black patients like Samantha are much more likely to receive a hysterectomy than white patients. But, why is that? This is the second episode in our two-part series about how race and class influence endometriosis diagnosis and treatment. We learn about how centuries of s...

Feb 22, 202130 min

6: The Career Woman's Disease

The myth that Black women don't develop endometriosis is almost a century old and yet it still persists to this day. Where did this idea come from? How did endometriosis come to be labeled the "career woman's disease"? And, why is it harder for Black patients, and working class patients, to get diagnosed? Today's episode is the first in a two-part series exploring how race and class influence endometriosis diagnosis and treatment. We learn about the story of the doctors who established this myth...

Feb 08, 202140 min

Tight Lipped Presents: The Secret Lives of Black Women

Today we're sharing an episode from another podcast we love, The Secret Lives of Black Women - a show about everything from sex and self-care to rage and anxiety. In this episode, Dr. Debra Hardy-Cartwright shares her own story navigating the medical world as a Black OBGYN and her perspective on how race and class influence the kind of care we receive.

Oct 26, 202054 min

Tight Lipped Presents: Call Your Girlfriend

Today we're sharing an episode from another podcast we love, Call Your Girlfriend. CYG is a podcast for long-distance besties about feminism, politics, health, pop culture, and friendship. This episode features an interview with author Maya Dusenbery and explores the research behind why medical institutions frequently dismiss and underestimate chronic pain and patients' accounts of their own symptoms.

Oct 12, 202028 min

Tight Lipped Presents: NATAL

Today we're sharing an episode from another podcast we love, NATAL - a docuseries about having a baby while Black. The show highlights the voices of Black parents, birthworkers, medical professionals, researchers, and advocates. This episode takes us on a deep dive into the roots of racism in obstetrics and gynecology.

Sep 29, 202025 min

Tight Lipped Presents: Bodies

Today we're sharing an episode from another podcast we love, Bodies. The show is about medical mysteries - and the questions that emerge when trying to understand what's happening inside your own body. This episode follows Allison's journey to find out why sex suddenly became painful.

Sep 14, 202010 min

5: Embodied Knowledge

In the late 1960s, it was difficult to access basic information about women's health. Jane, frustrated by her doctors' paternalistic attitude, decided to do more research about her own body so she could advocate for herself. With a group of activists in Boston, Jane and 11 others began taking matters into their own hands and went on to write the groundbreaking book “Our Bodies, Ourselves,” which redefined the women’s health movement. In today's episode, we explore how one group of women came tog...

Aug 31, 202032 min

4: Did I Dream?

What happens when a doctor's dismissal leads you to question your own sanity? This is what patient advocates call "medical gaslighting." Lara Parker knows all about the consequences of not being believed. She lives with pain all over her body. She's passed out from the pain multiple times. She's constantly nauseous, has horrible cramps, and has chronic vaginal and vulvar pain. But, after years of dismissal from doctors, Lara starts to wonder: Am I imagining it?

May 20, 202033 min

3: A Broken Optimism

Sex hurts the first time, but then it gets better. Right? This is the message so many of us grew up with. We saw it in movies and heard it from friends. But what if sex isn’t supposed to hurt? How much pain is too much pain? When is pain “normal” and when does it require medical attention? These are questions that Maura, a teacher and dancer, has spent almost her whole life thinking about. In today's episode, we hear from Maura, and many others, about how and why they've spent years putting up w...

Jan 20, 202031 min

2: The Trust Gap

By the time Shelby was 22 years old, she'd seen not one, not two, not three, but twelve different doctors in search of a diagnosis. And this is not an uncommon experience for people with vaginismus, vulvodynia, and other vulvar pain conditions. In today’s episode, we’re taking a look inside the exam room to try to understand why so many people with vaginas that hurt have to seek out dozens of doctors before getting a diagnosis, let alone a treatment plan. Learn more about Tight Lipped at tightli...

Nov 26, 201929 min

1: Secrets

For as long as Noa can remember, penetrative sex -- actually any kind of penetration (tampons, pelvic exams, etc.) -- has been so painful it’s physically impossible. And, until very recently, she kept it secret from almost everyone she knew. Where and how do women like Noa learn to keep their pain secret? Sign up for our newsletter at http://tightlippedpod.squarespace.com.

May 05, 201926 min

Trailer

Tight Lipped is a storytelling podcast that makes public what is often thought of as “private pain.” Pilot episode coming soon!

Apr 16, 20192 min
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