In this genuine, inspiring, and relatable conversation, past professional athletes, Brian Grant and Davis Phinney talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. This content is made possible by the generous support of listeners like you. If you would ...
Jun 14, 2021•55 min•Season 3Ep. 17
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, the YOPD Women's Council discusses sex, intimacy, love, dating, and all topics related to relationships. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation...
Jun 08, 2021•52 min•Season 3Ep. 16
In Angela Duckworth’s book Grit , she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this episode, we will discuss whether human behavior is constant or circumstantial, how behavior change really happens, the mindsets that help people succeed regardless of challenges, and what Angela learned from having a father who lived with Parkinson’s. This content is made possible by the generous support of listeners like you. If you would like to m...
Jun 03, 2021•56 min•Season 3Ep. 15
Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including wellbeing and quality of life. These same systemic issues plague the Parkinson’s community and result in care inequities and disparities that disproportionately affect people of color, women, people with limited English proficiency, and more. In this conversation, Nicte I. Mejia, MD, MPH, FAAN, and Aswita Tan-McGrory, MSPH, discussed how these syste...
Jun 01, 2021•55 min•Season 3Ep. 14
The human body was built to work in partnership with the sun. Its light can transform our moods, focus, sleep, energy levels, immune systems, bone density, and mental health. As a result, spending time in the sun can be particularly beneficial to people living with Parkinson’s who experience symptoms like depression, apathy, poor sleep, pain, and fatigue. During this session, our YOPD council members discuss all the ways sun and light help them live well with Parkinson’s. This content is made po...
May 26, 2021•1 hr•Season 3Ep. 13
Living alone while living with Parkinson’s can be a blessing or a curse. Some people love their independence and love being able to direct their days all on their own. For some, not having a live-in care partner, family member, or roommate is lonely and a hardship. During this webinar, we talked to five people, Michael Fitts, Allyson Kinney , Michael Fahning , Gerrie Blavat, and Brian Reedy , who are living alone with Parkinson’s, some by choice and others not. They shared their stories and offe...
May 24, 2021•1 hr
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council talked about the added challenges women living with Parkinson’s face as it relates to contraception and pregnancy. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonati...
May 10, 2021•53 min•Season 3Ep. 12
Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later-onset Parkinson’s? In this webinar, Dr. Rodolfo Savica, MD, PhD, and YOPD Council Leader Tom Palizzi discussed dementia: what it is, how it develops, and its relationship to Parkinson's, as well as some distinct differences between YOPD and later-onset Parkinson's. This content is made possible by the generous support of listeners like you. If you...
Apr 19, 2021•57 min•Season 3Ep. 11
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson’s face as it relates to menstruation, menopause, and hormones. This content is made possible by the generous support of listeners like you. If you would like to make a dona...
Apr 13, 2021•57 min•Season 3Ep. 10
Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities. This content is made possible by the generous support of listeners like you. ...
Apr 12, 2021•1 hr•Season 3Ep. 9
In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide , author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s. During this webinar, Toni discussed what she’s learned about living with chronic pain and illness and how to live well no matter what obstacles you are facing. This content is made possible by the generous s...
Mar 18, 2021•52 min•Season 3Ep. 8
Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment via the phone in the comfort of your own living room. Telemedicine makes that possible. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Mar 09, 2021•1 hr•Season 3Ep. 7
Our YOPD Council leaders discussed: Parkinson's and its effect on their perspectives of death Strategies for managing feelings of loss How to effectively prepare for end-of-life and live well in the moment NOW How to have conversations with your loved ones about death How to re-channel your energies on things that bring you hope This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation...
Mar 09, 2021•56 min•Season 3Ep. 6
Our YOPD Women’s Council and special guest Kathleen Reardon discussed: The road to their Parkinson’s diagnosis The differences between men and women when it comes to symptoms and medications The importance of advocating for yourself and finding the right doctor Finding joy through new creative pursuits This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation...
Mar 09, 2021•1 hr 2 min•Season 3Ep. 5
In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medications; the many types, classes, and possible side effects of Parkinson's medications; and the importance of trying a variety of medication combinations until you find the best fit for you. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation...
Mar 09, 2021•1 hr 10 min•Season 3Ep. 4
In this webinar, a panel of Parkinson’s organization leaders serving people across the US discussed common issues that exist within urban communities and rural communities alike, shared assumptions and misunderstandings about rural and urban neighborhoods, what policymakers and other decision-makers miss most often when it comes to addressing the unique needs of our communities, and what leaders and Parkinson’s advocates can do TODAY to help address health disparities like these that may exist i...
Feb 16, 2021•1 hr 2 min•Season 3Ep. 3
Speech and voice impairments are common among people living with Parkinson’s. As many as 90% of people with Parkinson’s experience difficulties such as “hypophonia” (soft speech) or a more monotone, raspy, or breathy voice. Speech can become less intelligible and can make communication difficult, especially if paired with facial masking (a decrease in facial expression). It will come as no surprise then that speech and voice impairments can impact quality of life. Speech and Language Pathologist...
Feb 04, 2021•1 hr•Season 3Ep. 2
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough as it is. Add the need to exercise daily, attend a variety of medical appointments, and focus on your mental health to an already busy work schedule and it can feel like too much. Plus, if you don’t love your current career path, or you do but the demands exceed your energy and ON time, the possibility of changing careers or shifting roles at your age might feel like a pipe dream. But it’s not. IN THIS EPISODE, YOU WILL L...
Feb 02, 2021•1 hr 2 min•Season 3Ep. 1
In this final chapter, we share ways to plan for the financial impact of Parkinson's, as well as advice about long-term care planning for people with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•31 min•Season 2Ep. 33
Learn how to navigate changing relationships within the family after a Parkinson's diagnosis and as it progresses. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•23 min•Season 2Ep. 32
Care partners are essential members of the wellness team for a person with Parkinson's. Learn how to balance the many aspects of being a Parkinson's care partner, how to manage stress and avoid caregiver burnout, how to find and ask for support, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•1 hr 22 min•Season 2Ep. 31
Hear in-depth information about the Duopa pump, deep brain stimulation, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•51 min•Season 2Ep. 30
Here, we share how helping others helps yourself and how creative arts, spirituality, and hope can bring joy to your life. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•52 min•Season 2Ep. 29
Learn how to live your best life by managing common Parkinson's symptoms like depression and anxiety through mindfulness, counseling, and other wellness activities. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•52 min•Season 2Ep. 28
What to know before checking in, what to ask before discharge, tips from individuals with Duopa or Deep Brain Stimulation, and information about medical alert bracelets. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•10 min•Season 2Ep. 27
Learn how changes to your diet can help manage certain symptoms, how protein can interfere with medications, and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•32 min•Season 2Ep. 26
Learn tips to live well with Parkinson's in any stage and with any symptoms. Here, we share advice on self-care; preventative screenings; dental, bone, heart, and vision health; fatigue; sleep issues; cognitive concerns; constipation; and more. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•1 hr 6 min•Season 2Ep. 25
Listen to an overview of Parkinson's medications followed by detailed information about treatments for motor and non-motor symptoms. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•1 hr 2 min•Season 2Ep. 24
Learn why exercise is medicine and the many ways it can help you live your best life with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•1 hr 7 min•Season 2Ep. 23
Learn how physical, occupational, speech-language, and creative therapies (and more) can help you live well with Parkinson's. This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation
Nov 26, 2020•1 hr 16 min•Season 2Ep. 22
