The Nephrotic Syndrome Foundation Podcast

The Nephrotic Syndrome Foundation Podcast is an interview style podcast for families diagnosed with kidney disease, in particular Nephrotic Syndrome. We share our stories and tips for how we have managed our illness, and introduce you to inspirational people who have helped us in this journey. Join us as we cover everything from recovery to mental health to nutrition. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment. This podcast aims to be a part of that goal.

Last refreshed: July 17th, 2025 at 11:25 PM ⓘ

Follow this podcast in the Metacast mobile app to refresh it and see new episodes.

Follow on

Apple Podcasts

Spotify

RSS

Podcasts are better in Metacast mobile app

Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more

Episodes

Andi and Jeremy Wrap It Up! The Story of Our Empowering First Season

(3:14) “I had a lot of people who are not part of our Nephrotic Syndrome community, tell me that they listened to it, and just cried the whole time… good friends of mine, who know our story, but haven't necessarily heard it start to finish because nobody sits down to tell someone a story for 45 minutes.” (5:52) The impact of bringing up old memories… (8:23) A shared energy from Cynthia’s episode… (9:47) Blown away by stories like Mikaela, Jasmine, and Natalie… (10:33) A crazy connection made bet...

Jun 17, 2021•45 min•Season 1Ep. 9

Grace and Courage- Mikaela's Story

(2:06) Feeling alone and reaching out,… (2:55) The events leading up to diagnosis… (6:11) “When I was in the middle of it, I just felt so uncomfortable. I felt so sick. I was so tired, and I felt so grateful that I was older and able to talk when I got diagnosed because hearing it was a kid's disease… I couldn't imagine going through it when I was younger, and I couldn't vocalize to other people how I felt.” (8:24) Swelling, school, Covid, and a supportive family… (11:05) Great doctors and great...

May 28, 2021•54 min•Season 1Ep. 8

Actress and Performer Jasmine Shen on Happiness and Acceptance with Nephrotic Syndrome

(1:46) An Instagram meeting… (3:24) Was it an allergic reaction or something more? (7:54) Misdiagnosis, swelling, and biopsy… (11:06) “And I’m not going to lie. I was so scared. I remember having a panic attack at that time of my life. I was quite anxious anyway. And having the phobia of needles, oh just needles, needles, needles. I was so scared of them.” (13:11) The intensity of a biopsy… (15:42) Where transplanted kidneys go… (18:34) Treatment after the diagnosis of Minimal Change Disease… (2...

May 07, 2021•1 hr 2 min•Season 1Ep. 7

Finding Wellness Through Functional Medicine- Nicki's Journey With Nephrotic Syndrome

(2:30) How Nicki got connected to the NSF Peer Team and the power of a community… (5:11) Nicki’s nephrotic syndrome journey begins… (9:57) A Google search reveals scary possibilities… (11:32) A trip that revealed so much… (14:07) “So I was wearing these compression socks, and I was in the middle of a crowded subway with all of my master's program students, and I started feeling faint.” (17:37) Shock and then grieving sets in… (19:48) “Nephrotic syndrome was a wake-up call to healing from that pe...

Apr 22, 2021•1 hr 7 min•Season 1Ep. 6

The Power of Functional Medicine- A Conversation with Dr. Ryan Lazarus

(4:09) Schooling and path towards functional medicine… (7:31) “The whole body is interrelated. It's no longer the nephron and the immune system and the neurology and the gut. It's all one and the same.” Defining functional medicine… (9:19) Dr. Ryan’s personal journey… (12:37) Facing a major pivot in life… (14:41) From net-zero emotional health to acceptance… (18:07) “It is literally flipping it and believing it. And the way you believe it is you start looking around and looking for all the great...

Apr 08, 2021•1 hr 9 min•Season 1Ep. 5

Living Beyond Limits, Natalie Robinson's Inspirational Story of Turning an Obstacle Into an Opportunity

(2:17) How Natalie and Andi met… (6:26) Natalie shares where she is now and where she grew up… (9:45) Diagnosis and its impact on where her family settled… “My mom really saw that early on, she needed to be with her family in Los Angeles while figuring out what was wrong with her firstborn child... So that's really what I think motivated the move out west, just that bigger community.” (14:22) Boundaries, protections, and support systems… (16:47) Explaining an illness to a little girl… (19:29) Th...

Mar 24, 2021•59 min•Season 1Ep. 4

Breaking Boundaries- Cynthia Niemeyer's Battle With Nephrotic Syndrome

(4:12) 10,000 foot view of Cynthia’s story with Minimal Change Disease… (5:11) An American nomad… (7:40) A complicated medical history… (11:01) Strong parents and a strong support system… (14:11) “I don't ever remember a specific time of coming to that realization. It was woven into daily life. I never remember a time of not having Nephrotic Syndrome.” (16:14) Various treatments during elementary years… (20:34) The changes with Cellcept… (24:25) Weaning off of Cellcept and hoping the disease wou...

Mar 11, 2021•1 hr 7 min•Season 1Ep. 3

Andi and Wilson's Story- Our Family's Journey With Nephrotic Syndrome

Intro to Show Notes “A lot of these kids who deal with this, deal with so much that you don't even scratch the surface of it.”—Andi Callaway The Nephrotic Syndrome Foundation was born out of the impact of this story. Listen in on the details of Wilson’s diagnosis, the ups and downs of treatment, and the never-ending fight for stability, hope, and health. Show Notes (4:07) An introduction to Andi’s family… (5:35) Wilson starts showing symptoms that something is not right… (7:21) The first diagnos...

Feb 24, 2021•1 hr 13 min•Season 1Ep. 2

NSF Launches a Podcast!

“These are just stories we're sharing, but you know, they all could trigger a thought that maybe a parent might then be able to go follow up on and ask a provider about...”—Andi Callaway In this episode of The Nephrotic Syndrome Foundation podcast, we give you a glimpse into our vision and the “Why” behind our efforts. We’re “setting the stage” for the many future stories you’ll hear. We believe there are many warriors in the nephrotic syndrome world—from patients, to parents, siblings, and prov...

Jan 26, 2021•50 min•Season 1Ep. 1

For the best experience, listen in Metacast app for iOS or Android