It's hard enough being a parent (at least from everything I witness and see). So, what do you do when you suddenly become a widow, grieving the loss of your spouse while also trying to help your grieving child? Whether the loss is a caregiver, a parent, or even a sibling, a child that experiences loss is going to experience grief differently than we as adults do. Young children may not even understand what death means, or that people who have died won’t be coming back. So, how do we wrap our arm...
Dec 29, 2022•1 hr 1 min•Season 2Ep. 10
The themes around Episode 9 will have us all reflecting a bit more this holiday season. You wouldn’t know it from the title, but we talk a lot about the act of forgiveness–what it takes to forgive. Not just in forgiving others, but forgiving ourselves. The title, “Cancer isn’t a sniper shot, it’s a grenade,” is a loaded title. In my conversation with our guest, Dr. Randy D’Amico, he expresses how cancer isn’t a single shot, it isn’t a sniper that has one bullseye–it’s a grenade that scatters eve...
Nov 23, 2022•1 hr 1 min•Season 2Ep. 9
When you're mindful, you observe your thoughts and feelings from a distance, without judging them good or bad. Instead of letting life pass you by, mindfulness means living in the moment and awakening to experience. Trying to be mindful while in the midst of grief can be challenging. However, learning to lean into it while also leaning into love, loss, and moving forward are part of being mindful in grief. Finding a way to embrace grief while also finding a way to survive in a mindful way is pre...
Oct 27, 2022•1 hr 5 min•Season 2Ep. 8
I've been thinking a lot lately about my path, specifically, how I got here. All the pieces on the chess board had to move just so in order for me to arrive to exactly where I am today. The Universe has a funny and ironically dark way of pushing us in a direction; priming us for a duty, action, or journey that will require certain skills. Before Mike was diagnosed, I was doing part time radio hosting work outside of my "then" full time job as an associate publisher. Before that, I published a no...
Oct 13, 2022•53 min•Season 2Ep. 7
In episode 6 we sit down with Dr. John Ruge, a pediatric neurooncologist in Chicago, IL. His passion for finding better treatment options has led to his developing the app Medeligo Oncology. Dr. Ruge has worked with both adult and pediatric brain cancer patients and families. His philosophy these days is-- "When I walk in the hospital to meet with a new family that has just received the devastating news, I want the latest information or treatment options at my fingertips that could help their lo...
Sep 29, 2022•52 min•Season 2Ep. 6
I think it's interesting that a protein in our bodies, that we develop when we are young and shuts off as we get older, that's labeled "Survivin" can actually be used to fight Glioblastoma and potentially other rare cancers. A protein called Survivin has the word "survive" in it. Isn't that thought provoking! It's like the Universe is giving us what we need to fight this deadly cancer. Our guest today, Dr. Mike Ciesielski, is a co-inventor of the survivin vaccine (SurVaxM) technology on which th...
Aug 25, 2022•1 hr 4 min•Season 2Ep. 5
When we think of loss--of the grief we suffer from it, we don't typically see grief as a strength. Grief can either consume us or be used to shatter our fears and sadness and teach us a strength we never knew we had in us. In this episode we talk about the obstacles of moving through grief- the understanding and patience that is needed. Seeing the hope that floats up through our grief is a powerful tool, and our guest Dan Fischer talks about how he used his grief to find new hope and to honor hi...
Aug 11, 2022•1 hr 4 min•Season 2Ep. 4
Being a front-line worker at the start of the Coronavirus pandemic is hard enough. What happens when you go from front-line work to patient? Episode 3 hears the story of Ian Youngblood, a 29 year-old nurse sent to NYC as COVID-19 started to ravage our country. He quickly went from treating others to being treated, but not for COVID, for a grade 3 Anaplastic oligodendroglioma--brain cancer. Three years later, Ian talks about that day, and how he sees the world now. Season Sponsor: Gamma Tile Ther...
Jul 28, 2022•54 min•Season 2Ep. 3
We're taking a trip back to high school chemistry in this episode! The chemical compound H2S, better known as the gaseous chemical Hydrogen Sulfide--the one that puts off a "rotten eggs" smell, is found in many natural environment settings. However, did you know that Hydrogen Sulfide is produced in small amounts in our bodies? This over-looked compound has a variety of important physiological effects, especially as we age. Dr. Chris Hine has been studying these benefits and how H2S may actually ...
Jun 30, 2022•48 min•Season 2Ep. 2
Harry Lorusso was diagnosed with GBM at just 33 years old. He said of his diagnosis, "No one changes when things are easy. The type of people my wife and I are today, we wouldn't have become without GBM." A week after his diagnosis, he and his fiancé got married. A year later they had a son. And now they've started the Outlier Fund. Three years in and Harry is not only in "no evidence" phase at 36 years old, but he just ran 26 miles in the Pittsburgh Marathon! Harry talks to me about the clinica...
May 26, 2022•1 hr 8 min•Season 2Ep. 1
Full Episode Release on 5/26/2022 Watch the video version of this episode on Youtube Channel, The Game on Glio Podcast! Visit TheGameOnGlioPodcast.com for more information about Harry Lorusso and other past guests
May 24, 2022•2 min
It's hard to imagine that children can get the same cancers adults get. It's hard to imagine children get cancer at all. The unfortunate truth is, children do get brain cancer; between 200-500 children are diagnosed each year in the U.S. So, what is being done to help these beautiful little beings? A lot! Dr. Lindsey Hoffman, with Phoenix Children's Hospital, and Dr. Adam Green with Children's Hospital Colorado are both leading the charge in treatment of pediatric brain cancers. Listen now to he...
Mar 31, 2022•1 hr 4 min•Season 1Ep. 12
Full Episode Release on 3/31/22 For more information please visit: TheGameOnGlioPodcast.com
Mar 28, 2022•2 min
Author Kristine Carlson is truly living her motto, "Don't Sweat the Small Stuff." After the death of her famous husband Dr. Richard Carlson, co-author of the series Don't Sweat the Small Stuff, Kristine plunged into finding a way to walk through grief. In doing so, she broke open her heart, allowing the grief to work it's way through and eventually releasing her to a higher purpose and a fuller life. In this video/audio episode, we get real about the struggles of being women walking through wido...
Feb 24, 2022•1 hr 11 min•Season 1Ep. 11
Full Episode Release on 2/24/2022 Watch the video version of this episode on Youtube Channel, The Game on Glio Podcast! Visit TheGameOnGlioPodcast.com for more information about Kristine Carlson and other past guests
Feb 21, 2022•2 min
It's not every day you get a chance to speak to a neurologist who has some sliver of an idea of what we as caregivers/patients walk through. Indiana Jones once said, "If You Want To Be A Good Archeologist, You Gotta Get Out Of The Library!” My guest Dr. Sanai shares a similar view! A rare and unique experience led him down the path of neuro-oncology and ultimately to heading up the Ivy Brain Tumor Center. Hear his story and what led him to the work he's doing now. Plus hear about some of Ivy's p...
Jan 27, 2022•1 hr 13 min•Season 1Ep. 10
Dr. Sanai is the Chief of Neurosurgical Oncology, and the Director of the Ivy Brain Tumor Center which offers Phase 0 trials for those in the fight against brain cancer. Find more about Dr. Sanai's work at: IvyBrainTumorCenter.org TheGameOnGlioPodcast.com The full episode will be available anywhere you find podcasts on January 27th 2022.
Jan 24, 2022•3 min
We all want to believe in magic this time of year; hope, inspiration, the possibility that something good can happen. In this episode, we get all that and more as guest Greg Link shares his GBM journey and why we should never give up! With a New Year upon us, this episode will infuse you with hope, love, and strength. Visit TheGameOnGlioPodcast.com where you can read a People Magazine article about Greg, and find more information. Music credit: --Hyson - Silent Night https://freemusicarchive.org...
Dec 30, 2021•49 min•Season 1Ep. 9
Episode 9 of The Game On Glio Podcast will feature CEO of Brandlink Communications Greg Link. Greg is a 7-year survivor of brain cancer. Listen to the full episode on 12/30/21
Dec 27, 2021•2 min
Being diagnosed with brain cancer is scary. It's overwhelming. It's diving into a future of unknowns. However, there are many in the scientific and neuroscience community that are working to help patients beat the odds, and to break that "blood brain barrier" for treatment success. One of those in our communities is GT Medical Technologies (GT Med Tech). President and CEO, Matthew Likens talks about the game changing product Gamma Tile, what it is, how it works, and why every hospital neurosurge...
Nov 25, 2021•55 min•Season 1Ep. 8
Listen to the full episode on 11/25/21 Please visit TheGameOnGlioPodcast.com for more information
Nov 22, 2021•2 min
As someone who loves the Marvel movies, hated the character Thanos--like most I assume, and rooted for the good guys to triumph, it never occurred to me the meaning behind Thanos; who he was, what he represented. It makes sense that since he’s obsessed with Death (the literal embodiment of death, not just the concept) he calls himself Thanos, since it evokes the words Thanatology, the study of death. Why do I bring this up? Because our guest on this month's episode, Dr. Erica Sirrine, a licensed...
Oct 28, 2021•1 hr 11 min•Season 1Ep. 7
Full episode released on 10/28/2021
Oct 25, 2021•2 min
We all know the difficult trials that come with being diagnosed with brain cancer. But imagine starting the journey with one parent battling the same disease and the other passing away suddenly.... After 13 years living with brain cancer, Jenny Williams is a beacon of hope for others and has a brave message she shares with all who will listen. *background music courtesy of Jameson Nathan Jones, and Pete James Johnson.*
Sep 30, 2021•50 min•Season 1Ep. 6
Find more information at our website: TheGameOnGlioPodcast.com For more information on Jenny Williams and Head For The Cure please visit: HeadForTheCure.org
Sep 27, 2021•1 min
Matt Anthony is Head For The Cure Founder and Board President. His journey with the foundation started when his brother Chris was diagnosed with GBM 19 years ago. Upon his passing, he and Matt made a promise to each other--"To keep the fight going." Matt kept that promise and then some. For more information please visit: TheGameOnGlioPodcast.com HeadForTheCure.org
Aug 26, 2021•52 min•Season 1Ep. 5
Find more information at our website: TheGameOnGlioPodcast.com For more information on Matt Anthony and Head For The Cure please visit: HeadForTheCure.org
Aug 20, 2021•1 min
Our guest this month, Katie Schwartzmeyer-Stearns, shares her amazing story and love with her late husband Jesse, who passed away from GBM at the age of 42. Remarried, she tells of the extraordinary miracle, with the support of her husband John, that keeps Jesse's memory alive today.
Jul 30, 2021•1 hr 1 min•Season 1Ep. 4
In Episode 4 of Game On Glio podcast our host Shannon Traphagen interviews caregiver Katie SchwartzMeyer Sterns.
Jul 19, 2021•1 min
An early clinical trial found that a spherical nucleic acid drug developed at Northwestern kills tumor cells in people with the fatal brain cancer glioblastoma. This is the first time a nanotherapeutic has been shown to cross the blood-brain barrier and cause cell death. Lead investigator Priya Kumthekar, MD, explains the results of the study, what's next, and why clinical trials are so vital in finding ways to combat brain cancer.
Jun 24, 2021•43 min•Season 1Ep. 3
