As 2022 draws to a close, our hosts Kate, Maryanne and Vanessa reflect on the past year and all the wonderful guests who have shared their stories for Season Two of Talking Blood Cancer. Stay tuned for Season Three in the coming months. Did you enjoy listening? We're always looking to improve our podcast so we'd love your feedback. Follow this link to answer our short survey. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation services Support services...
Dec 22, 2022•13 min•Season 2Ep. 11
Living in regional NSW as a cattle farmer, Regina Batten noticed she was becoming increasingly fatigued. It was a week before her wedding however, so a blood cancer diagnosis was the last thing on her mind. After a visit to the doctor and some blood tests, it wasn't long before Regina was told the news - she had acute myeloid leukaemia . Regina was rushed to hospital in Sydney where she had chemotherapy, radiation, a relapse and a double-chord stem cell transplant. An honest and raw discussion, ...
Dec 20, 2022•58 min•Season 2Ep. 10
In this episode, Kate speaks with Ping, whose daughter Zoe was diagnosed with infant pre B-acute lymphoblastic leukaemia at just 5 weeks old. Zoe is now nearly 5 years old and is in remission and at school. Zoe's mother, Ping, shares what it was like to walk the blood cancer journey with a child so young, and how the family travelled around the world to save Zoe's life. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation services Support services...
Nov 09, 2022•1 hr 7 min•Season 2Ep. 9
Michael Bowen was 33 years old and living in Sydney when one morning, as he was driving to work, he received a phone call that would stop his fast paced life in its tracks. Michael received a diagnosis of chronic myeloid leukaemia (CML) . In this conversation, Michael talks about the bouts of depression he came up against and how he was able to overcome these hard times. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation services Support services...
Oct 27, 2022•1 hr 2 min•Season 2Ep. 8
Vicky Pellowe was just 29 years old when she was diagnosed with Stage 4 Non-Hodgkin lymphoma . Vicky and her husband had only been married six months, both working long hours as FIFO workers in Western Australia. Vicky speaks about the shock of mental recovery post treatment - how to try and remain positive while experiencing fear of relapse, side effects, potential infertility, body changes and loss of employment or finances. She also speaks about the journey into motherhood and how she was ble...
Sep 28, 2022•1 hr 4 min•Season 2Ep. 7
Picture this - it was the year 2021 and Melbourne had just come out of its 5th lockdown. Renae and her partner, Sam escaped the 5km radius and went to the beach. Renae remembers feeling a lump in her throat which she thought could have been tonsillitis. One doctor's visit changed Renae's life - she was diagnosed with anaplastic large T-cell lymphoma. Renae talks about what it was like to be diagnosed during the Covid-19 pandemic in Melbourne, and how hospital restrictions impacted her support ne...
Sep 13, 2022•1 hr 5 min•Season 2Ep. 6
Damien Thompson was diagnosed with ALL in 2010 at the age of just 23. He underwent a donor related allogeneic transplant and suffered sever GVHD. A number of years later post his bone marrow transplant, he had to undergo a double lung transplant. Damien shares pearls of wisdom about how he got through the challenging transplant. He speaks about remembering to celebrate the small wins, as those small wins turn into big gains. Damien made it his challenge to not let leukaemia win. The Leukaemia Fo...
Sep 01, 2022•45 min•Season 2Ep. 5
This episode tells the story of Robin Matthews. Robin is a dump truck diver from the APY Lands in far north South Australia, building roads for Indigenous communities. Robin was diagnosed with Stage 4 lymphoma in 2021, and talks about what it was like to face a diagnosis in a rural area of Australia, just months after losing his wife to cancer. Robin shares how his family gave him strength in his darkest days and how finding a community within the Leukaemia Foundation helped him manage his diagn...
Aug 18, 2022•45 min•Season 2Ep. 4
Nathalie Cook OAM is an Accredited Practising Dietitian (APD), Accredited Nutritionist (AN) and qualified Registered Dietitian (RD). She was awarded the Medal of the Order of Australia (OAM) in January 2022 for service to dietetics. Nathalie Cook, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN...
Aug 03, 2022•1 hr 9 min•Season 2Ep. 3
In our first episode of Season Two, we spoke to Tim Keen who was diagnosed with acute promyelocytic leukaemia (a rare subtype of acute myeloid leukaemia) in 1999. In this episode we speak with Tim's wife and carer, Jo Keen. Jo shares her insights about her role as a carer. She talks about how her relationship with Tim strengthened throughout this tough journey and ways that they remained positive together. She discusses how making time for your family is the best investment you can make for own ...
Jul 20, 2022•55 min•Season 2Ep. 2
To kick off Season Two, we chat to Tim Keen who was 34 years old when he was diagnosed with a rare subtype of acute myeloid leukaemia (AML), acute promyelocytic leukaemia (APML). Tim shares his story through diagnosis, relapse, and treatment, where he underwent two autologous transplants and arsnic treatment. Maryanne Skarparis speaks to Tim about how integral his wife and carer, Jo, was throughout his journey, and how focusing on life after cancer helped strengthen and pull them through. The Le...
Jul 05, 2022•56 min•Season 2Ep. 1
Northern Territory local Robert Smith had been living on dialysis for 12 years when he was diagnosed with myeloma. Robert discusses the importance that the support of his wife, Jo was in his journey. He takes us through his story — from diagnosis, to what it was like to travel to Adelaide for life-saving treatment and his recovery. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation services Support services...
May 03, 2022•20 min•Season 1Ep. 14
At the age of 24 and on the eve of her wedding, Katherine Marshall was diagnosed with Hodkgin's Lymphoma. You'll hear how treatment and also survivorship truly tested her, and how processing her diagnosis was so important for her recovery. The Leukaemia Foundation offer a range of services. Click below to read more. Accommodation services Support services...
Apr 14, 2022•59 min•Season 1Ep. 13
Perth-based Lauren Menegola was diagnosed with acute myeloid leukaemia at age 21. After a number of gruelling rounds of chemotherapy, Lauren underwent an unrelated bone marrow transplant. Just as life was getting back on track for Lauren, she was told that she had relapsed - just 11 months after her bone marrow transplant. Lauren was angry and was scared for the challenge that lay ahead of her. The challenge was to search across the world for a bone marrow match, and they had to search high and ...
Mar 31, 2022•53 min•Season 1Ep. 12
It was 2014, and Tom and his girlfriend had just discovered they were expecting their first child. Just weeks later, Tom found himself experiencing some concerning symptoms. After much investigation, he was diagnosed with Hodgkin lymphoma . Tom's interview sheds light on what it was like to be diagnosed with a blood cancer as a young adult. He shares his experience of diagnosis, and autologous transplant, all while bringing a new baby into the world. The Leukaemia Foundation offer a range of ser...
Mar 08, 2022•1 hr 15 min•Season 1Ep. 11
Clinton Parmenter was living life in the fast lane — socialising with friends, spending time with his family and working hard in his job. He "barely ever came up for a breath of air". When one day, his life was turned on its head when he was diagnosed with acute myeloid leukaemia . In this interview, Clinton discusses his experience in choosing to go ahead with an allogeneic stem cell transplant . He also shares how he harnessed a positive mindset throughout his journey. The Leukaemia Foundation...
Mar 02, 2022•42 min•Season 1Ep. 10
29-year-old Sophie Patnicroft-Gray had recently moved from the UK to Adelaide, where she was working and planning to travel, when a routine blood test showed that there was something "a bit off". Then, out of left-field, Sophie was diagnosed with acute myeloid leukaemia. Sophie shares the emotional struggles she faced as a young adult diagnosed with a blood cancer. Sophie also discusses her challenges with fatigue, and how she embraced exercise to improve her health and wellbeing. The Leukaemia ...
Feb 14, 2022•37 min•Season 1Ep. 9
Mother and psychologist, Sandra Evans shares the story of when her eldest daughter, Tahlia was diagnosed with acute lymphoblastic leukaemia at age four. Sandra discusses how she and her husband, Randall, managed their broader family and finances. She recounts the time of diagnosis and treatment, and her experiences with doctors. Sandra also reflects on how this experience motivated her to write her book, "Eight Seasons: Our Family’s Journey With Childhood Leukaemia". Further information Order a ...
Feb 07, 2022•48 min•Season 1Ep. 8
In December 2015, Christina was living in Byron Bay and studying at medical school, when her boyfriend at the time, singer-songwriter Timothy James Bowen was diagnosed with diffuse large B-cell lymphoma . In this episode, Christina reflects on how her knowledge as a doctor influenced how she managed her role as a carer, and how her life was impacted by Timothy's diagnosis. She discusses how important family was during this time and how they all rallied together to help Timothy. Christina shares ...
Jan 19, 2022•55 min•Season 1Ep. 7
You may have heard of Timothy James Bowen – in 2020, he was a contestant on Australia's TV show, The Voice. In this episode, we ask with the singer/songwriter to take us back to the time of his diagnosis; a time when Timothy was building his music career – writing and recording music and playing shows on tour. Timothy was tired and sore, but he put that down to his busy lifestyle, his poor posture, and spending hours in the recording studio. After an innocent sneeze caused him to fall over in pa...
Jan 18, 2022•1 hr 5 min•Season 1Ep. 6
In 2016, Esther Xu’s life changed forever when she was diagnosed with Non-Hodgkin’s Lymphoma . Up to that point, Esther had led quite a smooth, high-achieving life, ticking off most of her parents’ wish list. Esther was living in Australia, but is originally from Shanghai in China. Not only did Esther have to deal with the physical effects of a blood cancer diagnosis, she also had to deal with the emotional and cultural complexities. Esther discusses the mental challenges she faced, how she navi...
Dec 10, 2021•1 hr 4 min•Season 1Ep. 5
When Roxanne's husband Brendan was diagnosed with, acute myeloid leukaemia (AML) , Roxanne had no idea that when she packed an overnight bag for Brendan that he would be in hospital for months having treatment. Our host, and one of the Leukaemia Foundation's Blood Cancer Support Coordinators Kate Arkadieff speaks with Roxanne about what it was like to live in regional Queensland and care for someone with a blood cancer, and how she supported her family through the journey and beyond. Further inf...
Nov 26, 2021•58 min•Season 1Ep. 4
Brendan Hodda had just embarked on the trip of a lifetime for his 40th birthday. He was to ride his motorbike from Rockhampton to Cape York, when he fell off his bike on the first day of the trip. It wasn't until after three surgeries on a broken arm and further tests that Brendan received the news – he had acute myeloid leukaemia (AML) . Our host, and one of the Leukaemia Foundation's Blood Cancer Support Coordinators Kate Arkadieff speaks with Brendan about his journey and what it was like to ...
Nov 12, 2021•56 min•Season 1Ep. 3
Kirsty Everett was just nine years old when she was diagnosed with childhood acute myeloid leukaemia . Then, seven years later, at just 16 years old, Kirsty relapsed again. Kirsty discusses what it was like to be diagnosed with childhood leukaemia, how she got through chemotherapy, and how she has harnessed this experience to inspire her purpose. Further information Read Kirsty Everett's book - "Honeyblood" The Leukaemia Foundation offer a range of services. Click below to read more. Accommodati...
Nov 04, 2021•1 hr 10 min•Season 1Ep. 2
Julie Allen lived with vague symptoms for quite some time – back pain, flu-like symptoms – but she explained these away with her busy life as a physiotherapist and mother of three young kids. But, after a few rounds of antibiotics, things didn't get better. Julie was diagnosed with Non-Hodgkin lymphoma . Julie discusses how she coped with a blood cancer diagnosis as a young mum, and shares some insight and expertise on the importance of exercise as a treatment for cancer. Further information The...
Oct 22, 2021•43 min•Season 1Ep. 1
