Lise Voje-Johanson
Nov 06, 2021•21 min•Season 2Ep. 5
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Episode description
Lise Voje-Johanson’s daughter, Karna, was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) when she was 8 years old in 2019, after her father, Trond, was diagnosed. Lise shares her experience getting and coping with Karna’s diagnosis, as well as information about the medical system in Norway. This podcast episode is dedicated to Trond, who lost his …
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