Living With Narcolepsy

Narcolepsy can have significant impact on health and function, which can also affect work and family. Often in managing narcolepsy the focus is on medication, but medications are often only partially effective. Learning how to live with these ongoing symptoms and reduce their impact is an important part of living well with narcolepsy.

For more information on narcolepsy, see our narcolepsy page and listen to episode 2 of Sleep Talk where we talk about narcolepsy diagnosis and treatment

Audio Timeline:

• 00:00 - 00:48 Introduction
• 00:48 -  04:14 What's in the news about sleep?
• 04:14 - 05:36 Theme introduction: Narcolepsy
• 05:36 -  32:42 Guest interview - Jacqui Tomlins: Living with narcolepsy
• 32:42 - 34:28 Clinical tip of the month - Build your own team
• 34:28 - 36:05 Pick of the month: Moira - What makes a good life?
• 36:05 - 37:47 Pick of the month: David - Waking, Dreaming, Being
• 37:47 - 38:54 What's coming up in the next month?

Next episode (May 9th 2016): Sleep in New Parents

Links mentioned in the podcast:

• Sleep Talk podcast episode 2 - Narcolepsy: Diagnosis & Treatment
• What is sleep eating?
• What is narcolepsy?
• Dating with narcolepsy - Julie Flygare in Women's Health
• Claire Crisp's site
• Narcolepsy page on SleepHub
• Sleep Talk podcast episode 2 - Narcolepsy: Diagnosis & Treatment
• Stanford Center for Narcolepsy
• Julie Flygare's site
• Wide Awake and Dreaming - Julie Flygare's book
• Narcolepsy Support Australia
• Narcolepsy Network
• What makes a good life? - TED talk
• Waking, Dreaming, Being - Evan Thompson

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