One Black Man’s experience in Battling Cystic Fibrosis - podcast episode cover

One Black Man’s experience in Battling Cystic Fibrosis

Jun 03, 202647 minEp. 557
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Episode description

What do you do when a life-saving medical breakthrough saves almost everyone in your chronic illness community—except you? If you’re new to the show, Cystic Fibrosis is traditionally known as a genetic disease that heavily impacts the lungs. But this week, the fellas sit down with Nicholas Kelly, a registered dietitian who playfully calls himself a "unicorn" because he’s a Black man living with a condition stereotypically labeled as a pasty white person's illness. (Oh, and Taylor passed out right before we hit record, so he’s currently sleeping off-set while Brian stands by with his historically rib-shattering CPR skills) . Nick opens up about his mother bucking the 1980s medical establishment to diagnose him at three months old , outliving a massive string of childhood expiration dates , and surviving an actual "code blue" post-surgery nightmare. He also drops a beautifully perspective-shifting bomb on the room about what it truly feels like to watch his closest friends get saved by the miracle drug Trikafta while his own rare genetic mutations leave him completely ineligible for the club. From highly inappropriate anatomy questions to a profound psychological transition from chasing the clock to building a legacy , this episode is an incredible look at what it means to live life with absolute passion.


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