"My Tongue is Shedding" | Refractory Myasthenia Gravis
Episode description
What do you do when your own tongue starts "shedding" like a snake and your doctor tells you to just "eat a banana"? Imagine waking up and seeing the world through 90s TV static, while your muscles literally stretch and tear like gum when you yawn. Làyla joins the boys to break down the reality of living with Refractory Myasthenia Gravis (MG), a version of the illness so stubborn it requires constant infusions just to keep her stable. From the terrifying moment she realized her jaw was atrophying, to the bizarre neurological world of Visual Snow Syndrome, Làyla shares it all with a level of humor and confidence that is honestly infectious.
You can watch this entire episode over on YouTube: https://www.youtube.com/playlist?list=PL0EVgIbBQOxtKJ4qjAlfeutzZRfCGV8nb
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