In this month’s edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance. Mark tells us how he got into music, along with giving some tips for those who are thinking of taking music to that next level.
This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retinal conditions from scans, without the need for a genetic test, and other ways that AI can help us with eye disease. Dr Nikolas Pontikos is a group lead...
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources . Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searching for the cause of Charles Bonnet Syndrome Track 5: Thank you Track 6: 'Everything happens for a reason' Track 7: Therapy development updates Track 8...
A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant. We will be joined by Josh Freehan, Head of Internships at TPT. Josh has worked closely with Access to Work on their Get Set Progress Internship programme, so can provide some valua...
The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/ . Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334....
The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset. https://www.theblindpoet.net/
This podcast covers the most important professionals who work with the sight loss community, along with their abbreviations and what they do to improve people’s lives.
We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV7M8jQ
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334.
The difference we made in 2022
E-newsletter August 2023
On this episode Laura Tyler, Yanan Yu, and Steve Golden talk about their experiences with learning and playing instruments, and how people with sight loss can play and learn no matter their level of vision.
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2023 (Issue 180). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/resources . Contents in this edition are as follows: Track 2: The best days of the year (Tina Garvey) Track 3: Articles for the Blind Track 4: Your newsletter, your choice of formats Track 5: Your feedback matters Track 6: Overwhelmingly positive feedback for our Annual Conference Track 7: ADVERT: Sight and Sound T...
In this episode Laura and Mark talk about their dreams and how they see the world in sleep. Mark is living with retinitis pigmentosa so his sight has deteriorated over his life, whereas Laura lost her sight at a very young age. They also briefly cover Charles Bonnet Syndrome (CBS).
Welcome to the 46th Retina UK Annual Conference where we come together for knowledge sharing, support, and empowerment within the inherited sight loss community. Whether you are attending online or in person this year, thank you for joining us. We have a packed programme for you today. This conference aims to foster a collaborative environment, bridging the gap between cutting-edge research and the everyday lives of those living with inherited sight loss. Throughout our conference, attendees wil...
Welcome to the fourth Retina UK Professional Conference where we come together to support you in your work with the inherited sight loss community. Working in partnership we aim to equip you with the knowledge you need to make the biggest difference for your service users. We are pleased to offer CPD accreditation for today's Conference. It is available for all attendees. A full video version of the Conference is available on our YouTube channel ( https://www.youtube.com/retinauk )....
Retina UK E-newsletter June 2023
This leaflet is available in audio, PDF and Word formats. If you would like to access the leaflet in one of the other formats, please visit RetinaUK.org.uk/resource/leaflet/
Have you ever really thought about how you use your sensations after sight loss? Does your sense of humor relate to your ability to tell a joke or hear a joke? Find the answers to these questions and more in our ‘Blindingly Chatty’ podcast from Laura and Mark.
This event is free to attend and will be CPD-accredited. Attend in-person in London and network with colleagues, or online. Highlights include: Experience of diagnosis/points of impact for those living with inherited sight loss: Dr Jasleen Jolly, Anglia Ruskin University Sight loss pathway: A collaborative approach: Robert Cooper, Strategic Engagement Lead NHS, RNIB Learning from lived experience: the wider family’s perspective: People living with inherited sight loss, their parents and partners...
Book now to attend the Retina UK annual conference in London, or online, on Saturday, 24 June. The event is free to attend and highlights will include: Retina UK vision of treatments for all - Gene therapy – Augmentation, editing, and silencing: Prof Tara Moore, Ulster University. - The potential of stem cell treatments: Prof Lyle Armstrong, Newcastle University. - Practical example of gene therapy: Mr Kanmin Xue, University of Oxford, Oxford Eye Hospital. - Practical example of the role of synt...
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit RetinaUK.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821334.
This is a recording of a video held on Thursday 18 May. The full video recording can be found on our YouTube channel: https://youtu.be/3m1wWmQ8bIE https://youtu.be/3m1wWmQ8bIE We are excited to be joined by Hair Stylist Anna Cofone to explore all things hair and scalp care. Anna is a session hairstylist with 20 years experience working in the fashion and music industry. Anna worked for 6 years on Lana Del Rey Campaigns. After that she has been working for other talents like Dua Lipa, Claudia Sch...
Our volunteers are highly valued members of the Retina UK team and their roles are essential to help support and enable people affected by inherited sight loss to live fulfilling lives. Download the Volunteer Impact Report in PDF format
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
This webinar was first shown on Thursday 13 April 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/9_DeX0Q3wYE . Explore the value of volunteering with the Retina UK team, listen as they share their thoughts on volunteering and the benefits it’s brought them. From raising their self esteem and confidence, to securing employment Our speakers will tell us about the many positive impacts volunteering has had for them. You’ll have the opportunity to...
The BBC World Service has undertaken an investigation of unproven treatments for retinitis pigmentosa (RP) and has produced a documentary film, called Blind Faith, which is available on BBC iPlayer: https://www.bbc.co.uk/iplayer/episode/p0f8vnvm/blind-faith This documentary highlights a really significant and concerning issue that impacts families living with rare diseases, including inherited sight loss, and Retina UK applauds the BBC for carrying out this revealing investigation. We believe t...
This webinar was first shown on Thursday 23 March 2023. A recording including the video content is available on our YouTube channel: https://youtu.be/0rjqHsz7EU4 . Join us and the Low Vision Team from Focus Birmingham talk about how you can access your local low vision service, the benefits of a low vision assessment and see some of the equipment that can be provided to you.
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2023 (Issue 17o). You can download a copy in PDF and Word format on the Retina UK website: RetinaUK.org.uk/publications .
Kate Arkell, Research Development Manager at Retina UK hosts this edition alongside Dr Madina Kara, Director of Research and Innovation at Fight for Sight. They are joined by Prof Graeme Black and Prof Alison Hardcastle. Graeme is Professor of Genetics and Ophthalmology at Manchester Uni, and a consultant ophthalmologist at Manchester Royal Eye Hospital. He is the original lead investigator of the UKIRDC. Alison is Professor of Molecular Genetics and Deputy Director of Research within the Instit...
