The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
Would you like to help shape Retina UK’s future? Do you want to ensure decision-makers understand the impact of inherited sight loss? If so we’d love to hear from you. By sharing your views and experiences in our 2022 Sight Loss Survey you can help ensure our current and future activities are relevant and that they respond to your needs. We will also share the findings with other statutory bodies and organisations that can make a difference for people living with inherited sight loss. Take part ...
This content was recorded during a Retina UK webinar on Thursday 31 March 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. Dr Daniel Jackson will talk about medical imaging of the retina. Detailed imaging of the eye is crucial for the assessment of many eye conditions and retinal disorders in particular. He will be discussing what images you are likely to have during a hospital appointment; how they are taken; why we take th...
This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2022 (Issue 176). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications .
This content was recorded during a Retina UK webinar on Thursday 24 February 2022. You can watch the full version, which includes slides, on our YouTube channel: https://www.youtube.com/c/RetinaUK. This webinar will be presented by Alex Pitts, National Partnerships Manager & Lead Safeguarding Officer at British Blind Sport. She will talk about: the benefits of sport and physical activity the key objectives of British Blind Sport the BBS Have a Go Days and Active at Home Programme where you c...
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
This content was recorded during a Retina UK webinar on Thursday 27 January 2022. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/Lz0frr1KydQ Professor Ffytche will provide an explanation of what Charles Bonnet Syndrome is, the science behind it, and share some potential coping strategies for people who experience visual hallucinations. Professor Ffytche joined the Department of Old Age Psychiatry at Kings College London in 2006. He is Professor of...
The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.
This content was recorded during a Retina UK webinar on Thursday 9 December 2021. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/pLDzECeFrJc Dr Rehman has been involved in running recent clinical trials for inherited sight loss treatments and will give us a general overview of the clinical trials process and practicalities, including issues to consider if you are given the opportunity to take part. There will also be an opportunity to ask question...
The latest e-Newsletter from Retina UK.
Donate now and your gift will be doubled ! The Big Give Christmas Challenge is underway. Make your donation to medical research as soon as possible and it will be DOUBLED at no additional cost to you: https://donate.thebiggive.org.uk/campaign/a056900001txvAyAAI Now is such an exciting time for sight loss research - but we can't take our foot off the pedal now, and the pioneering projects we fund are only made possible by your donations. Need help to make your donation, or would like more informa...
This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2021 (Issue 175). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications .
This content was recorded during a Retina UK webinar on Wednesday 27 October 2021. You can watch the full version, which includes slides, on our YouTube channel: https://youtu.be/1DYvRgjwd8A Michael Gilhooley is a clinical lecturer in the department of Genetics, Institute of Ophthalmology University College London and Moorfields Eye Hospital. His research interests include the development of novel therapies for inherited retinal degenerations (optogenetics) and inherited optic neuropathies. This...
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/ .
Speakers include: Professor Marcela Votruba, Professor and Hon. Consultant in Ophthalmology Dr Nicola Tavener, Genetic Counsellor Dr Paul Cornes Glenn Tookey, CEO, Sight and Sound Presentations will cover: Genetic primer- patterns of inheritance and genetic counselling- especially relevant to inherited retinal dystrophies (IRD) Summary of IRD diseases, genes & overview of current IRD gene therapy and treatment trials Clinical Outcomes Group- How are we going to find new treatments for rare d...
This online information evening was recorded on Wednesday 29 September 2021. The speakers do reference slides. They are available on the YouTube recording of this webinar if required: https://youtu.be/7KptxsuXdUU . Speakers include: Miss Julie Silvestri, Clinical Director for Ophthalmic Services at the Belfast Health & Social Care Trust Miss Eibhlin McLoone, Paediatric Ophthalmologist Dr Alex Yeong SpR Ophthalmology Dr Shane McKee, Consultant in Genetic Medicine Miss Claire Kirk, Genetic Cou...
This webinar features Elena Piotter and was recorded on Tuesday 24 August 2021. Elena does reference slides in her presentation. They are available on the YouTube recording of this webinar if required: https://youtu.be/lQ6SEK-wLZs .. Elena Piotter, a PhD student working in Robert MacLaren's group in the Nuffield Laboratory of Ophthalmology at the University of Oxford, is currently researching DNA and RNA base editing tools aiming to correct pathogenic mutations in ABCA4. Her focuses on gene ther...
This webinar features Roly Megaw and was recorded on Thursday 23 September 2021. Roly does reference slides in his presentation but the content is easy to follow without the slides. Roly Megaw is a clinician scientist. He is a Wellcome Trust funded clinical lecturer at the MRC Human Genetics Unit at the University of Edinburgh and a consultant ophthalmologist in NHS Lothian. Roly undertook his PhD with Charles ffrench-Constant at the Scottish Centre for Regenerative medicine, using induced pluri...
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/ .
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/.
Retina UK Impact Report illustrating the difference we made in 2020.
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/ .
Gold medal winning paralympian and Retina UK Ambassador Steve Bate MBE talks to Head of Fundraising, Deborah Laing in the run up to the 2020 Paralympics in Tokyo.
This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2021 (Issue 174). You can download a copy in PDF and Word format on the Retina UK website: www.RetinaUK.org.uk/publications .
This content has been taken from the Unlock Genetics website: www.RetinaUK.org.uk/genetics . High quality information on genetic testing and counselling for families affected by inherited sight loss is now available in one place thanks to the launch of an innovative new website, Unlock Genetics ( www.RetinaUK.org.uk/genetics ). The site aims to increase the level of awareness of genetic testing and genetic counselling amongst people living with inherited sight loss conditions, empowering them to...
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/ .
Retina UK Research Development Manager gives a broad update on what's happening in the research world. This talk was originally made in the latter part of 2020 to the Retina UK Local Peer Support Groups.
A PDF copy of this recording is available at: https://retinauk.org.uk/information-support/publications/ .
Bhavini and Martin share their very different experiences of genetic testing and counselling with Kate, Retina UK’s Research Development Manager.
“My genetic counselling was a very positive experience and one which I really recommend. It was undertaken in a specialist multidisciplinary genetic clinic and was combined with taking blood samples for genetic testing on the day. “The counselling was informative, thorough and sensitively carried out and covered both myself and my wider family which confirmed the “type” of RP we have. With the huge advances in genetic understanding being made in the medical sector, I believe that counselling wil...
