MS research scientist Dr. Jeffrey Huang is this year's recipient of the Harry Weaver Neuroscience Scholar Award from the National MS Society. On this week's podcast, we're talking with Dr. Huang about his potentially groundbreaking research, and we'll even ask him how one becomes an MS research scientist. We're also talking about the lectures, presentations, and education sessions that took place last week at the Consortium of Multiple Sclerosis Centers Annual Meeting. We'll explain why we don't...
Jun 04, 2019•31 min•Season 2Ep. 92
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, talking about mental health care for people living with MS, coping with anxiety, and the real advantages of telerehabilitation. We even sat down to talk with with artist and MS Activist Lydia Emily. We have a lot to talk about! Are you ready for RealTalk MS??!
Jun 01, 2019•27 min
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about community based programs to enhance comprehensive MS care, understanding the MS care partner's perspective, improving MS treatment outcomes, and more. We have a lot to talk about! Are you ready for RealTalk MS??!
May 31, 2019•17 min
We're at the Consortium of Multiple Sclerosis Centers Annual Meeting in Seattle, Washington, and we're talking about MS Navigators, Myelocortical MS, a new paradigm in how patients and doctors should be communicating, and more. We have a lot to talk about! Are you ready for RealTalk MS??!
May 30, 2019•20 min
The International Progressive MS Alliance is an unprecedented and unparalleled global effort to understand and treat progressive MS. Last week, I was in Copenhagen, Denmark, for an important meeting of the Progressive MS Alliance Scientific Steering Committee. And in today's episode, I'll update you on the status of three potentially breakthrough progressive MS international research projects. Don't forget! World MS Day is Thursday, May 30, and we're talking with MS International Federation CEO,...
May 28, 2019•23 min•Season 2Ep. 91
The Multiple Sclerosis Association of America, or MSAA, provides programs and resources designed to improve the lives of people affected by MS. Whether it's financial assistance for an MRI exam, a new computer, mobility equipment, or even a cooling vest, the MSAA can help. My guest today is Gina Murdoch, the President and CEO of the MSAA, and we're talking about the organization's almost 50-year history, their shared management philosophy of living with MS, and we're taking a deeper dive into in...
May 20, 2019•33 min•Season 2Ep. 90
I get a lot of listener questions about exercise and MS. And a lot of those questions come from people living with progressive MS, wondering whether the conversation about physical activity and MS applies to them. My guest this week is Dr. Lara Pilutti, an expert in the role of exercise in the management and treatment of disability arising from multiple sclerosis. We're talking about how you want to be thinking about exercise and why you want to be thinking about exercise, whether you're living ...
May 14, 2019•27 min•Season 2Ep. 89
We're at the American Academy of Neurology Annual Meeting in Philadelphia, and we're talking about teleneurology, stem cells, a new algorithm, and a new research network with ambitious goals. Today, it's a real peek into the future! We have a lot to talk about! Are you ready for RealTalk MS??!
May 08, 2019•12 min
Get the latest news from the American Academy of Neurology Annual Meeting. We're looking into the future of applying precision medicine to treat MS. We're talking about an artificial intelligence application that's designed to predict the course of your MS and recommend the best treatment plan for you We'll also tell you about a "digital prescription therapeutic" designed to treat depression in people living with MS. And researchers are also looking at better understanding the recent past, as a ...
May 07, 2019•9 min
It's my first day at the American Academy of Neurology Annual Meeting, and we're talking about a great presentation on Progress in Progressive MS and some eye-opening news about the amount of money we're spending in the U.S. on prescription drugs to treat neurological conditions.
May 06, 2019•9 min
My guest this week is Yvette Brisco. Yvette is an MS activist and an MS warrior. And when Yvette talks about the fight to find a cure, she means it literally! We're also talking about the European Medicine Agency's safety review of Lemtrada. We'll tell you about the 20 million American caregivers who are performing medical or nursing tasks for which they've received no training. We'll give you a real-world example of why people living with MS (or anyone else) living in a care facility need an ad...
Apr 29, 2019•35 min•Season 2Ep. 88
Robots?? Really??? The answer is YES! World renowned robotics expert Dr. Maja Mataric joins us on the podcast, and we're talking about how socially assistive robots could be real game-changers for people living with MS and other chronic conditions, as well as their caregivers. We're also talking about the $24.4 million investment by the National MS Society that will support 64 new MS research projects. We'll tell you about the research team at Oregon Health & Science University that believes...
Apr 23, 2019•34 min•Season 2Ep. 87
We're at a point in time when there's a tremendous amount of interest as well as confusion surrounding cannabis-based treatments for MS. My guest is Aryn Sieber, the CEO and Founder of the CannaCauses Foundation and Cannaisseur Brands. Aryn is a strong advocate of using cannabis-derived treatments to help relieve symptoms of disease processes, particularly MS. And he's partnered with MS centers and neurologists to better understand how cannabis-based treatments can help people manage their MS sy...
Apr 16, 2019•40 min•Season 2Ep. 86
In less than a decade, Meat Fight has actually grown from a backyard barbecue to a non-profit organization that hosts several different fundraising events, offers some unique programs for people affected by MS, and has raised more than $1 million dollars for the National MS Society. My guest today is Alice Laussade, the creator of Meat Fight , and the very definition of a real MS Warrior. We're also talking about a new research initiative to investigate cannabis and MS. We'll tell you about the ...
Apr 08, 2019•36 min•Season 2Ep. 85
If someone is being treated for MS, their neurologist is using the Expanded Disability Status Score, or EDSS, to indicate their level of disability. What if there were a better, easier, and more accurate way to measure mobility and evaluate disability? My guest today is Dr. Valerie Block, a Postdoctoral Fellow in the Department of Neurology at University of California San Francisco. As a physical therapist, Dr. Block is focused on MS rehabilitation. And we're talking about a just-published study...
Apr 01, 2019•35 min•Season 2Ep. 84
March 28th is Progressive MS Day. While only about 15% of the people diagnosed with MS are initially given a diagnosis of Primary Progressive MS, about 65% of the people who are diagnosed with relapsing-remitting MS will eventually develop Secondary Progressive MS. And the difference between progressive MS and relapsing-remitting MS is that, usually, people diagnosed with Progressive MS don't experience any remission in their disease progression. Their MS just seems to worsen more steadily over ...
Mar 26, 2019•28 min•Season 2Ep. 83
MS is an equal opportunity neurological disease. It doesn't seem to discriminate against any particular ethnic or racial group. It affects Latinos and African-Americans, as well as Caucasians. And if you're an MS research scientist, who's hoping to create a viable treatment that's going to be safe & effective for the diverse population living with multiple sclerosis, then having that diversity represented in your clinical research seems like it would be important. Unfortunately, it doesn't a...
Mar 19, 2019•32 min•Season 2Ep. 82
It's MS Awareness Week! And the single event that is likely going to have the most impact in raising awareness of MS in the United States is the recent announcement of the MS Prevalence Study results. The results of this study corrected the decades old notion that there were only about 400,000 people living with MS in the United States. We now know that the number of people living with MS in the U.S. is closer to one million. More than twice as many as had been previously estimated. In this spec...
Mar 12, 2019•39 min•Season 2Ep. 81
My guest this week is Diane Whitcraft, a retired middle school teacher who had been taking the same MS prescription medication for more than 20 years. But once Diane retired and her health insurance changed, that same medication became unaffordable. Diane traveled to Washington D.C. last month, as Wisconsin Senator Tammy Baldwin's guest at the President's State of the Union address. She is back in our nation's capitol this week, speaking at the National MS Society's Public Policy Conference abou...
Mar 04, 2019•30 min•Season 2Ep. 80
No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience. My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need. We're also talking about the eye-popping incre...
Feb 26, 2019•24 min•Season 1Ep. 79
Over the past year, we've seen our access to affordable, quality healthcare come under unprecedented attack. We've seen a federal judge declare the Affordable Care Act to be unconstitutional. And we continue to see our access to affordable prescription medications -- the medications that have been shown to delay the progression of MS and extend the quality of life for everyone living with MS -- that access remains threatened by the constant skyrocketing cost of those medications. That's why advo...
Feb 19, 2019•23 min•Season 2Ep. 78
George Pepper was diagnosed with multiple sclerosis in 2009, at the age of 22. He initially found it difficult to connect with others his own age who were living with MS, so George set up a website where people living with MS could meet and share their experiences. That website evolved into an online community called shift.ms, and today, more than 18,000 people participate in the shift.ms community. My guests today are the founder of shift.ms, George Pepper, and Aoife Kirwan, a member of the shi...
Feb 12, 2019•32 min•Season 1Ep. 77
One of the best ways to maintain physical function, manage the effect of some MS symptoms, and even offset depression is exercise. My guest is Dr. Deborah Backus, the director of Multiple Sclerosis Research at the Shepherd Center in Atlanta. We're discussing the importance of early rehabilitation, the difference that exercise can make for people living with MS, and STEP FOR MS -- an important clinical trial that may turn out to be a game-changer for MS rehabilitation. We're also talking about wh...
Feb 05, 2019•34 min•Season 2Ep. 76
One of the fundamental questions on the minds of just about everyone living with MS is How did I get it? What causes MS? It's a question that's still awaiting a definitive answer. But as we wait for that answer, science is uncovering more and more information about MS risk factors -- the things that can make living with MS better or worse. My guest is Dr. Farren Briggs, an epidemiologist who's focused on the etiology, or the cause of multiple sclerosis, and the risk factors that actually impact ...
Jan 29, 2019•30 min•Season 2Ep. 75
We know about the importance of disease-modifying therapy (DMT) in managing MS and slowing its progression. But you may not know that there are two very different schools of thought when it comes to how and why your neurologist may recommend one DMT over another. My guest is Dr. Aaron Boster, the System Medical Chief for Neuroimmunology at OhioHealth, and we're talking about an important conversation that you should be having with your neurologist. We're also talking about the newly published cl...
Jan 22, 2019•30 min•Season 2Ep. 74
Recent research suggests that loneliness is one more invisible symptom of MS. But social outreach and interaction have never been more accessible. My guest is Mary Pettigrew, an MS Warrior and social media phenom . In 2014, Mary launched MSPals , a Twitter group that has evolved into a community of more than 5,000 followers. We're talking with Mary about the benefits of connecting online and the importance of finding your creative outlet. We're also talking about new research on the severity and...
Jan 15, 2019•38 min•Season 2Ep. 73
Some people living with MS may find that their attention span is shorter than it used to be, or that it takes them longer to process information. Learning directions can be hard, and decision-making may become more difficult. These are all examples of impaired cognition, or cognitive dysfunction . Cognitive dysfunction can impact people living with relapsing-remitting MS, and it impacts almost everyone living with progressive MS. My guest is Dr. Nancy Chiaravalloti, the Director of Neuropsycholo...
Jan 08, 2019•25 min•Season 2Ep. 72
It's our final episode of the year, and we're taking a look back at what you decided were the most important RealTalk MS podcast episodes of the past year. These are the episodes that received the highest number of listener downloads. We're also polishing our crystal ball, taking a look ahead to 2019, and talking about some of the research that we can expect to be hearing about. We'll even share some of the specific topics that we'll be discussing on the podcast in the coming year. Thanks to you...
Dec 31, 2018•15 min•Season 2Ep. 71
The holiday season seems to carry with it the message of hope, and of finding the best side of who we are. So one of the gifts that I'm going to unwrap with you is a replay of a conversation that I had earlier this year, with 2 people who epitomize hope, humanity, and love. To me, that's what the holiday is all about, and that's what Dan and Jennifer Digmann are all about. Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jen...
Dec 24, 2018•31 min•Season 2Ep. 70
The logistics involved in traveling can be cumbersome, and that's twice as true if you're living with MS. Mobility issues and other special requirements can make travel challenging. But whether you're out exploring the world or just checking into a local hotel for a pampered staycation, travel can add so much to your quality of life. My guest on the podcast is Tarita Davenock. It's been 20 years since Tarita's MS diagnosis. And today, Tarita is the CEO of Travel For All , a travel agency that em...
Dec 18, 2018•30 min•Season 2Ep. 69
