Raremark Voices

Raremark•podcasters.spotify.com

In this series of podcasts created by Raremark, we invite extraordinary people living with a rare condition and industry experts to talk about their experience and hopes for the future.

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Episodes

Ep 2. Living With IPF

In this series, we invite extraordinary people living with a rare condition and industry experts to talk about their experience and hopes for the future. In our second episode of Raremark Voices, we talk with British Lung Foundation Chair in Respiratory Research & NIH Research Clinician Scientist Toby Maher, and patient advocate and founder of the advocacy group PF Warriors, Bill Vick. Our guests: Toby Maher Professor Toby Maher qualified at Southampton Medical School and trained in respirat...

Nov 28, 2019•18 min•Season 1Ep. 2

Ep 1. Living With Cystic Fibrosis

In our new series: Raremark Voices, we invite extraordinary people living with rare diseases to talk about their stories, experiences, and expectations for the future. In this first episode, we welcome two members of the cystic fibrosis community, Oli and Nancy, to talk with us about what it's like living with cystic fibrosis, their experiences with current treatments, and their views and expectations for new developments in the future. Our guests: Oli Rayner Oli was born in Birmingham, UK in 19...

Nov 28, 2019•32 min•Season 1Ep. 1

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