Curious about Take Action for Psoriatic Disease? Listen as volunteers Kendra, Frank and Elizabeth tell their story to Kristin Brooks, Associate Director of Field Development about why they participate and support NPF's efforts to educate, advocate, and connect with the psoriatic disease community. Hear tips on how they raise funds and create awareness to enhance the lives of those with psoriatic disease. It's a long-lasting love affair.
Jun 04, 2024•32 min•Ep. 226
Is your aching back due to axial involvement with PsA? Learn about the sacroiliac joint to the cervical spine from rheumatologist Dr. Atul Deodhar, Medical Director, Rheumatology Clinics at OHSU with Alan Simmons as moderator. Hear about key symptoms, treatment options which may differ from peripheral joints, research, and management challenges. This episode is provided with support from Bristol Myers Squibb, Amgen, Johnson & Johnson, and UCB.
May 22, 2024•33 min•Ep. 225
Psoriatic arthritis can affect many areas or domains which includes enthesitis, dactylitis, and more. Learn about the PsA domains and how they influence choice of treatments from rheumatologist Dr. Arthur Kavanaugh, Director of the Center for Innovative Therapy in the Division of Rheumatology, Allergy and Immunology at UCSD. This episode is provided with support from Bristol Myers Squibb, AbbVie, Amgen, Johnson & Johnson, Novartis and UCB.
May 07, 2024•28 min•Ep. 224
Just having psoriasis is a huge life transition let alone adapting to life after high school. Listen as moderator Kaleigh Welch asks Youth Ambassadors Emme, Zoe, and Mandy to share their psoriasis journey of being responsible for their own health care, balancing college life with school, relationships, and their physical and mental health to achieve their post high school dreams. This episode is provided with support from Bristol Meyers Squibb.
Apr 25, 2024•1 hr 6 min•Ep. 223
"I've had psoriasis for most of my life. At 40 years old I experienced the worst flare with all types of psoriasis and the loss of my hair." Join NPF volunteers, Ayesha Patrick, founder of Sistas with Psoriasis, and moderator LB Herbert as they discuss Ayesha's story from how she learned to cope, to ask and give help. Hear her tips to help manage psoriasis and psoriatic arthritis. This episode is provided with support from Bristol Myers Squibb.
Apr 09, 2024•33 min•Ep. 222
"Patients with psoriasis have a lot of undiagnosed and untreated cardiovascular risk factors" per renowned dermatologist Dr. Joel Gelfand, Director, Psoriasis & Phototherapy Treatment Center at Penn. Hear why with moderator Dr. Guy Eakin, NPF Chief Scientific & Medical Officer, as they discuss risks, and what interventions using a centralized care coordination model (CP3) can do. This episode is provided with support from Bristol Myers Squibb.
Mar 26, 2024•31 min•Ep. 221
Not sure what Irritable Bowel Disease or Irritable Bowel Syndrome mean or how they relate to psoriasis? Listen as gastroenterologist Dr. Lisa Malter, Professor in the Dept. of Medicine, NYU Langone Health, Grossman School of Medicine, discusses the perfect storm of what it takes to develop IBD, how diagnosis occurs, care, and use of treatments also used with psoriatic disease. This episode is provided with support from Bristol Myers Squibb.
Mar 12, 2024•24 min•Ep. 220
Interested in participating in a clinical trial? Hear the facts about how and why you should be involved, potential benefits and challenges, what occurs in phase 1, 2, 3 and 4, clinical trial updates for psoriasis and an intriguing one for high blood pressure from dermatologist Dr. Benjamin Ehst, owner and Lead Clinical Investigator at Oregon Medical Research Center in Portland, OR. This episode is provided with support from Bristol Myers Squibb.
Feb 27, 2024•30 min•Ep. 219
Hear answers to questions when someone is newly diagnosed with psoriasis like what to expect at the first appointment, types of psoriasis, triggers of disease, treatments including over-the-counter options, how to deal with negative comments, and more from Tirsa Quartullo, a doctoral prepared, board-certified Dermatology and Family Nurse practitioner at Arizona Dermatology & Cosmetic Surgery in Phoenix. Her advice: "learn as much as you can."
Feb 13, 2024•33 min•Ep. 218
Jillian who is living with plaque psoriasis, and board-certified nurse practitioner, Melodie Young, discuss disease management with topicals. This episode is sponsored by Arcutis Biotherapeutics, Inc. Please see Important Safety Information and full Prescribing Information including Patient Information for Zoryve (roflumilast) indicated for use on the skin (topical), including in areas with skin folds, to treat plaque psoriasis in people six years of age and older....
Jan 30, 2024•28 min•Ep. 217
Knowing what to ask and when will help you make key decisions about psoriasis and psoriatic arthritis. Listen as key terminology, questions to ask about the disease, and use of medications like "what prescriptions and over the counter medications may conflict with psoriatic disease" are discussed with NPF volunteer Dr. Kim Benner, a pharmacist at Children's of Alabama Hospital and Pharmacy Professor at Samford University in Birmingham, Alabama.
Jan 23, 2024•25 min•Ep. 216
On this episode we'll talk about shared decision-making - when a patient and their healthcare practitioner work together to discuss and create a personalized approach to care with guests Karen Camp, a patient advocate who is living with psoriasis, and Dr. Jason Hawkes, a medical dermatologist in the greater Sacramento area who serves on the Medical Board and Scientific Advisory Committee of NPF. This podcast episode is sponsored by UCB.
Jan 09, 2024•12 min•Ep. 215
Hear the latest treatments, challenges, research towards understanding psoriatic disease, and how treatment planning and collaboration is key from dermatologist Dr. Lara Wine Lee, Director Pediatric Dermatology at Medical University of SC, and rheumatologist Dr. Pam Weiss, Clinical Research Director, Division of Rheumatology, Children's Hospital of Philadelphia. This Psound Bytes episode is provided with support from Janssen and Novartis.
Jan 07, 2024•39 min•Ep. 214
Listen to this compelling discussion about when psoriasis should be considered severe and what that means for treatment choices in high impact areas like the scalp, nails, palms, soles, face, and genitalia with dermatologist Dr. Andrew Blauvelt, Investigator at Oregon Medical Research Center, Chair of the NPF Medical Board, and member, International Psoriasis Council. This Psound Bytes episode is sponsored by Amgen.
Dec 19, 2023•38 min•Ep. 213
The holidays bring mixed emotions and stress. Join psychiatrist Dr. Vanessa Cutler, NYU Langone Health and Dr. Leslie Beth or LB Herbert for tips on managing holiday stress and simplifying expectations while also looking out for your physical and mental health to help avoid flares of your psoriatic disease. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, Novartis, and UCB.
Dec 05, 2023•22 min•Ep. 212
Generalized Pustular Psoriasis (GPP) is a rare, inflammatory skin disease that is different from plaque psoriasis. Join UC Davis and UCSF Asociate Professors of Dermatology, Dr. Jason Hawkes and Dr. Tina Bhutani, with Dale Reisner, a patient living with GPP, for a closer look at GPP, some of the difficulties living with the disease and the difficulties dermatologists face managing it. This Psound Bytes episode is provided with support from Boehringer Ingelheim.
Nov 30, 2023•19 min•Ep. 211
With increasing release of biosimilars, listen to this discussion about use, fear of change, dual pricing strategies and who will see cost savings with Jason Harris, NPF VP of Government Relations and Advocacy, dermatologist and past chair of the NPF Board Dr. Colby Evans, and Anna Hyde, VP of the Advocacy and Access Department at the Arthritis Foundation. This Psound Bytes episode is sponsored by Sandoz and Boehringer Ingelheim.
Nov 28, 2023•28 min•Ep. 210
Hear how dermatologist Dr. Ahmad Shatil Amin, Director of the Psoriasis Program and rheumatologist Dr. Eric Ruderman, Associate Chief, Division of Rheumatology, Co-Directors of the Multidisciplinary Psoriasis and Psoriatic Arthritis Clinic, Northwestern Medicine, Chicago, use the ultimate team approach to manage triggers and flares of psoriatic disease. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, Novartis, and UCB.
Nov 14, 2023•31 min•Ep. 209
In this episode, dermatologists Dr. April Armstrong and Dr. James Song discuss the impact of psoriasis on a patient's quality of life and how steroid-free prescription topical medications can meet the treatment needs of adults with plaque psoriasis. This Psound Bytes episode is sponsored by Dermavant Sciences.
Nov 09, 2023•20 min•Ep. 208
Are you losing your hair? Is it connected to your psoriasis? Hear certified dermatology nurse practitioner Victoria Garcia-Albea with Lahey Dermatology Hair Loss Center for Excellence in Burlington, MA as she addresses common causes of hair loss, symptoms, connection to IL-33, current and upcoming treatment options. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, Novartis and UCB.
Oct 24, 2023•33 min•Ep. 207
Ever experience the frustrating itch scratch cycle? Join us as dermatologist Dr. Shawn Kwatra, Director of the Johns Hopkins Itch Center in Baltimore, MD discusses why itch occurs in psoriasis, what factors impact itch, treatment options, and the frontier exploring new therapies that impact the neuroimmune axis. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, and UCB.
Oct 03, 2023•28 min•Ep. 206
Despite the availability of many treatment options for moderate-to-severe plaque psoriasis, there is still a need for additional therapies. Hear from Ryan Moslin, Principal Scientist, BMS, who has moderate-to-severe plaque psoriasis and Tom Scharnitz, M.D., the Senior Director and US Medical Lead for Dermatology, as they provide the science and research behind an oral treatment for moderate-to-severe plaque psoriasis.
Sep 19, 2023•18 min•Ep. 205
Hear the inspiring responses to questions from you-our listeners! Hear responses to questions about treating scalp psoriasis, over-the-counter options, when treatments lose effectiveness, biosimilars, and more from board-certified Family Nurse Practitioner Sandri Johnson at Midtown Dermatology in Raleigh. This special Psound Bytes episode is provided with support from Bristol-Myers Squibb, CeraVe, Janssen, Novartis, and UB.
Sep 05, 2023•47 min•Ep. 204
Plaque psoriasis is the most common type of psoriasis. If you have plaque psoriasis, join us as we discuss what to know from symptoms, diagnosis, triggers and flares, to treatment options with dermatologist Dr. David Rosmarin, Chair of the Department of Dermatology at Indiana University School of Medicine in Indianapolis. This Psoriasis Action Month episode is provided with support from CeraVe and Novartis.
Aug 22, 2023•26 min•Ep. 203
Topical steroids are the first treatment of choice for mild psoriasis. Learn what the options are from dermatologist Dr. George Han, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell Health in New York as he discusses low to superpotent strengths, risks, side effects, tips for using, and new nonsteroidal topicals. This Psound Bytes episode is provided with support from Bristol Myers Squibb, CeraVe, Janssen, Novartis, and UCB.
Aug 15, 2023•31 min•Ep. 202
Hear Todd's journey to finding skin clearance with the help of ILUMYA® (tildrakizumab-asmn) for his moderate-to-severe plaque psoriasis. Victor Czerkasij, a nurse practitioner with over 20 years of experience treating patients with psoriatic disease, joins to offer insights on diagnosing, treating, and managing psoriasis. This episode is sponsored by Sun Pharma. Important safety information: https://bit.ly/2We7fIS .
Aug 08, 2023•19 min•Ep. 201
Listen as Matt Werbach, Associate Director of Media and Communications, discusses NPF's promising research activities and efforts to change health outcomes for all with psoriasis and psoriatic arthritis with President and CEO Leah Howard, and Chief Scientific and Medical Officer Guy Eakin. Exciting times ahead as NPF moves towards a new chapter! This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, and UCB.
Aug 01, 2023•48 min•Ep. 200
Join board-certified Family Nurse Practitioner Jayme Heim from West Michigan Dermatology Associates, Grandeville, MI, as she offers tips, her favorite products, and what medications help manage psoriasis plaques and itch on the scalp, skin, nails and everything in-between since psoriasis is about managing what's on the outside and inside. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, and UCB.
Jul 18, 2023•31 min•Ep. 199
Trying to follow an anti-inflammatory diet? Not sure what to eat? Join us as we discuss what types or combinations of foods are best to eat and when, what to look for on food labels, how much sugar and fiber intake is appropriate, and more with registered dietitian and wellness coach, Brittany Link from Advice for Eating in Houston, TX. This Psound Bytes episode is provided with support from Bristol Myers Squibb, Janssen, and UCB.
Jun 27, 2023•28 min•Ep. 198
Hear the latest about step therapy from what it is to current legislative reform progress. Listen as Jason Harris, Vice President of Government Relations and Advocacy, discusses all aspects of step therapy with Sarah Buchanan, Director of Federal Government Relations and Health Policy, and Sam Cox, State Government Relations Manager. This Psound Bytes episode is provided with support from Bristol Myers Squibb.
Jun 13, 2023•21 min•Ep. 197
