Exercise is important but what if you have chronic pain and fatigue? Physical Therapist and Orthopedic Clinical Specialist, Pam Bohling with Mountain States Hand and Physical Therapy in Colorado addresses this key issue and what's essential for joint friendly exercises from a physical therapist. Psoriatic Arthritis Action Month is supported by unrestricted educational grants from AbbVie, Amgen, Bristol Myers Squibb, Janssen and Novartis.
May 11, 2021•25 min•Ep. 126
"People with psoriatic disease are sleeping less and not as well" per dermatologist Dr. Tina Bhutani, Co-Director of the Psoriasis and Skin Treatment Center and Director of the Dermatology Clinical Research Unit at UCSF. Hear Dr. Bhutani discuss why, types of sleep disorders, effects and tips to help improve sleep. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Janssen, Novartis, Pfizer and UCB.
May 04, 2021•15 min•Ep. 125
Hear NPF Youth Ambassadors Sam and Jensen tell their story about being diagnosed, living and coping with psoriatic disease, and why they chose to become an inspiration to all as volunteer Youth Ambassadors! Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Janssen, Novartis, Pfizer and UCB.
Apr 22, 2021•28 min•Ep. 123
If you have psoriasis and psoriatic arthritis you don't have to feel alone or overwhelmed by your disease journey. Hear from trained mentor Pattie and her mentee Andie how NPF's One to One Program offers peer support, ideas and inspiration for those with psoriatic disease. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Janssen, Novartis, Pfizer and UCB.
Apr 20, 2021•20 min•Ep. 122
Curious about celiac disease and if it's connected to psoriasis or psoriatic arthritis? Hear Brittany Link, registered and licensed dietitian at Advice for Eating in Houston, TX discuss symptoms, diagnosis, how CD differs from gluten sensitivity, and what to do if you think you have celiac disease. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Janssen, Novartis, Pfizer and UCB.
Apr 13, 2021•16 min•Ep. 121
Hear myth buster, dermatologist and rheumatologist Dr. Joseph Merola from Brigham and Women's Hospital in Boston give the facts about common myths associated with psoriasis and psoriatic arthritis and what it means for you, our listeners! Includes discussion about treatment remission and where we now on the path to a cure. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Mar 09, 2021•33 min•Ep. 120
Dr. Elizabeth Perkins, founder of Rheumatology Care Center in Birmingham, AL, joins us to discuss different forms of arthritis, including psoriatic arthritis. Learn about the differences between each condition and the resources available to get on the path to diagnosis. This podcast episode is sponsored by Novartis Pharmaceuticals Corporation, which compensated Dr. Perkins for her time. For more information visit www.PsARealTalk.com .
Mar 02, 2021•14 min•Ep. 118
Curious about the research funded through the NPF? Hear about key research initiatives such as the PsA Diagnostic Test Grant and the Psoriasis Prevention Initiative along with the latest updates from Dr. Stacie Bell, Chief Scientific and Medical Officer, and Jackie Domire, Associate Director of Research and Medical Affairs. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Feb 23, 2021•50 min•Ep. 116
Join us as we celebrate Founder's Week with a look at the then and now of psoriasis management with Pete Miller, a member of NPF's Board of Directors and former school principal who has lived with psoriasis for 59 years. Hear Pete's incredible story, his challenges and how psoriasis treatments have changed so much over the years. Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Feb 18, 2021•28 min•Ep. 115
Curious about MyPsoriasisTeam? Join co-founder and CEO Eric Peacock and MyPsoriasisTeam members Laurinda Knight, Vanessa Scott and Paul Gallant to hear how MyPsoriasisTeam has been paramount in their journey with psoriasis and psoriatic arthritis. While you are at it join the free community here: https://bit.ly/3pklYyh . Psound Bytes is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Jan 26, 2021•43 min•Ep. 112
COVID-19 vaccines have arrived! COVID-19 Task Force Co-Chairs, dermatologist Dr. Joel Gelfand, Psoriasis and Phototherapy Treatment Center at Penn, and rheumatologist Dr. Christopher Ritchlin, Psoriasis Center, University of Rochester Medical Center return to discuss vaccine safety, effectiveness, and use with psoriatic disease treatments. This program is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Jan 14, 2021•33 min•Ep. 111
Join us as Psound Bytes celebrates two years of great podcasts by highlighting favorite episodes selected by you our listeners! Listen to see if your favorite episodes are included like the "Emotional Side of Psoriatic Disease" or "Heart and Psoriatic Disease Connection". You'll also receive a hint as to what's coming in 2021! This program is supported by unrestricted educational grants from Amgen, Bristol Myers Squibb, Pfizer and UCB.
Jan 07, 2021•25 min•Ep. 109
Listen as members of the NPF Advocacy team untangle the results of November's federal and state elections. Hannah and Patrick will also discuss what impact the results will have on those living with psoriatic disease and how they will influence NPF's Advocacy efforts over the next few years. Learn more at psoriasis.org/take-action.
Dec 15, 2020•21 min•Ep. 108
Do you have a sudden flare of psoriasis with small drop like plaques over large areas? You may have Guttate Psoriasis. Listen as dermatologist and dermatopathologist Dr. Steven Feldman, Wake Forest School of Medicine in Winston-Salem, NC, addresses prevalence, triggers such as strep infection, and potential treatment options. This program is supported by unrestricted educational grants from AbbVie, Amgen and Lilly.
Dec 08, 2020•14 min•Ep. 106
If you have generalized pustular psoriasis and/or palmoplantar pustular psoriasis you know how much this form of psoriasis impacts your life. Hear dermatologist Dr. Kristina Callis Duffin from the Department of Dermatology at the University of Utah discuss potential triggers, treatments, what to avoid and future treatments for GPP and PPP. This program is supported by unrestricted educational grants from AbbVie, Amgen and Lilly.
Nov 17, 2020•24 min•Ep. 104
Hear dermatologist and rheumatologist Dr. Joseph Merola, Brigham and Women's Hospital in Boston, discuss a topic that's often hidden and tough to bring up - genital and inverse psoriasis. Listen as symptoms, confusion with other diseases, impact, and treatment options are addressed. This program is supported by an unrestricted educational grant from AbbVie, Amgen and Lilly.
Nov 10, 2020•22 min•Ep. 102
Given the pandemic and how it's changed our world, it's tough not to feel anxious, stressed, overwhelmed or even depressed. Such feelings can make psoriasis worse. If this is how you feel, listen to our 100th episode as Licensed Professional Counselor Mary Maraventano Stried from Chicago, offer tips to change the impact and how we can reinvent our view of stress. This program is supported by charitable contributions from Bristol Myers Squibb.
Nov 03, 2020•34 min•Ep. 100
Hear Charles discuss his 40-year journey with moderate-to-severe plaque psoriasis and how he advocated for himself when choosing a treatment. Meg McCoy, Senior Manager of Patient Support Services at Sun Pharma, also shares pertinent information on a treatment for moderate-to-severe plaque psoriasis and Sun Pharma's patient resources. This podcast episode is sponsored by Sun Pharma. For Important Safety Information: https://bit.ly/2We7fIS .
Oct 29, 2020•26 min•Ep. 99
Hear rheumatologist Dr. Niti Goel, Duke University School of Medicine in Durham, NC discuss factors that impact clinical trials from inclusion of diversity in recruitment and process, to benefits and risks in participating. Be informed and be involved in steps towards a cure! This World Psoriasis Day activity is supported by charitable contributions from AbbVie, CeraVe, Janssen Pharmaceutical Companies of Johnson & Johnson, Lilly and Novartis.
Oct 27, 2020•37 min•Ep. 98
Topicals are the most commonly used therapy for psoriasis. Hear why and what the therapy options are during a discussion of the sixth "Guidelines of Care for the Management of Psoriasis" from dermatologist Dr. Elizabeth Prater, Medical Director, Healthy Skin Dermatology in Oklahoma City. Includes a quick discussion of alternative medicine. This guideline activity is supported by grant funding from Bausch Health Foundation, Celgene and Novartis.
Oct 20, 2020•22 min•Ep. 96
Have you or a family member recently transitioned to Medicare or have questions about out-of-pocket costs for prescription drugs? Listen as NPF staff discuss the common challenges the psoriatic disease community commonly experience with Medicare Part D. Learn more about Part D's structure, if the donut hole has really closed, and options to address your out-of-pocket costs. Visit psoriasis.org/take-action for more information on NPF's advocacy.
Oct 13, 2020•15 min•Ep. 95
When the pandemic shut down New York, Cindy found herself working and schooling her sons at home and managing her psoriasis. Fortunately, she discovered telehealth. Hear her story, and Dr. Jennifer Soung who uses telehealth in her practice, as they provide their perspectives on virtual healthcare. This podcast is sponsored by Amgen. For important Safety Information: https://bit.ly/2CzZ6Ym and for Prescribing Information: https://bit.ly/3hclnuA ....
Oct 08, 2020•16 min•Ep. 94
Feeling stress, anxiety or depression? Hear Dr. Theodore Stern, Chief of the Avery D. Weisman, Psychiatry Consultation Services at Harvard Medical School, and Dr. Arianne Shadi Kourosh, Assistant Professor of Dermatology at Harvard Medical School discuss strategies you can use to change your perspective of such emotions to truly face psoriatic disease. This episode is supported by unrestricted educational grants from Lilly and Novartis.
Oct 06, 2020•24 min•Ep. 93
Have you ever had to try other medications before you get the one you and your doctor originally chose? This is called step therapy. Listen to this podcast to learn how NPF and others are advocating for federal step therapy legislation called the "Safe Step Act". Learn more at psoriasis.org/take-action or if you are experiencing step therapy, contact the Patient Navigation Center at [email protected] .
Sep 29, 2020•14 min•Ep. 92
Hear the facts about this controversial and rapidly evolving topic, medical use of cannabis-based products for chronic pain with dermatologist Dr. Jason Hawkes, Assistant Professor of Dermatology at the University of California, Davis. Listen to Dr. Hawkes discussion about key components, actions, effects, interactions and how it relates to chronic pain in psoriatic disease.
Sep 08, 2020•33 min•Ep. 90
Listen as pulmonologist, Dr. Albert Rizzo, Chief Medical Officer at the American Lung Association and member of Christiana Care Pulmonary Associates in Newark, DE, and Deb Brown, Chief Mission Officer with the American Lung Association, discuss the relationship between lung health, systemic inflammation and psoriasis. This episode also includes a free special offer for our listeners from the American Lung Association! Listen to learn more about this free offer!
Aug 18, 2020•24 min•Ep. 87
Take action during Psoriasis Action Month by learning why it's important to participate in the PsoProtectMe global survey. Hear from Professor Catherine Smith, Professor of Dermatology and Therapeutics and Consultant Dermatologist, and Dr. Satveer Mahil, a Consultant Dermatologist, from St. John's Institute of Dermatology, Kings College London, about how this survey can advance our understanding of COVID-19 and other factors that impact the management of psoriasis and psoriatic arthritis....
Aug 04, 2020•22 min•Ep. 85
With COVID-19 telehealth became more prevalent in use and with this pivot came challenges and benefits. Hear dermatologist Dr. George Han, System Medical Director for Dermatology at Mount Sinai Health System and Chief of Teledermatology at Icahn School of Medicine at Mount Sinai, discuss the challenges and tips for making telehealth visits with psoriatic disease a successful experience. This Psound Bytes activity is supported by charitable contributions from Amgen, Janssen Pharmaceutical Compani...
Jul 21, 2020•30 min•Ep. 83
Wonder what choices are available for oral agents? Listen to a discussion of systemic nonbiologic therapies as addressed in the fifth "Guidelines of Care for the Management of Psoriasis" with preeminent dermatologist Dr. Kenneth Gordon, Professor and Chair of Dermatology at Froedtert and Medical College of Wisconsin in Milwaukee. The future of oral agents sounds promising! This guidelines activity is supported by grant funding from Bausch Health Foundation, Celgene and Novartis.
Jul 07, 2020•22 min•Ep. 80
The world as we know is changing daily and so did the traditional NPF Capitol Hill Day. Learn about the policies we supported to improve access to care for the psoriatic disease community and how easy it is to advocate from home. To learn more and join our efforts visit advocate.psoriasis.org.
Jun 23, 2020•17 min•Ep. 79
