Ep. 255 "GPP is Far More Than Just Psoriasis"

Having Generalized Pustular Psoriasis (GPP) can steam roll your life. Hear how dermatologist Dr. Oanh Lauring and patient advocate Jordan Hicks overcame the challenge of recognition to treating this rare form of psoriasis.

GPP is far more than just psoriasis. Recognition of this form of psoriasis with a unique cytokine presents challenges when symptoms are not so apparent and confusing. Join host Alan Simmons as he dives into the diagnosis journey, and treatment from acute to chronic flares with dermatologist Dr. Oanh Lauring, and what it means to live and stand up for yourself with GPP with Jordan Hicks.

This episode offers a heartfelt look at life with generalized pustular psoriasis (GPP) and the value of standing up for your health. Join GPP Awareness Day in August.

Timestamps:

·       (0:00)          Intro to Psound Bytes & guest welcome dermatologist                          Dr. Oanh Lauring and patient advocate Jordan Hicks.

·       (1:08)          Jordan’s diagnosis journey with generalized pustular                             psoriasis (GPP).

·       (2:37)          What is generalized pustular psoriasis and Dr. Lauring’s                         first encounter with GPP.

·       (8:00)          How GPP is different from plaque psoriasis but they can                      coexist together.

·       (9:53)          Treatment of acute GPP flares vs ongoing flare                                         management.

·       (12:29)       The impact of GPP on Jordan’s life.

·       (13:22)        How to support those who live with GPP in the clinic                             setting and their mental health.

·       (15:24)        Tips for working with other specialists in management                         of  GPP.

·       (17:30)        Feelings associated with being diagnosed with GPP.

·       (20:43)        Being a self-advocate is important to your healthcare                             journey.

·       (22:18)        If you have GPP, you are not alone. Initiation of GPP                              Awareness Day.

4 Key Takeaways:

·       Diagnosis of generalized pustular psoriasis can take time given its confusing presentation in the early stages but can shift rapidly to urgent care when in the acute phase of the disease.

·       Generalized pustular psoriasis and plaque psoriasis are distinct forms but can coexist together. 50% of patients with GPP also have plaque psoriasis.

·       The impact of living with GPP is significant and finding support from those who understand, including health care providers, is critical to treating and coping with the disease.

·       If you have GPP be a strong advocate for your health and your self-worth. Your symptoms are valid and you deserve to be heard.

Guest Bios:

Dr. Oanh Lauring is a board-certified dermatologist in private practice at Lauring Dermatology where she provides the utmost care and expertise for patients with serious skin diseases such as psoriasis that impact the skin, scalp, hair, and nails. She offers a variety of the latest medical treatments including generalized pustular psoriasis to help her patients achieve a natural and refreshed appearance.

Jordan Hicks took her health into her own hands. She moved from a small Texas town to Las Vegas in order to obtain care for her generalized pustular psoriasis or GPP. Once there she found her community and learned to speak up for herself and others. Jordan and her dog have been active advocates for GPP and Psoriasis ever since.

Resources:

Ø  Find Support through GPP Circles and others who understand what it means to live with GPP https://www.psoriasis.org/gpp-circles/

Ø  Join us to create awareness for the first GPP Awareness Day August 13, 2025. Request your tool kit.     https://www.psoriasis.org/gpp-toolkit/