Patient Empowerment Program - podcast episode cover

Patient Empowerment Program

May 16, 20222 min
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Episode description

We are excited to announce n-Lorem’s brand new podcast, the "Patient Empowerment Program".

There are podcasts about genetics and rare diseases, but we didn’t find one focused on nano-rare diseases, conditions that affect 30 or less people in the world.

Listen to this trailer to hear a sneak peak at what’s coming up on the podcast.

There are going to be two types of episodes on this podcast, interviews and lessons. All episodes are hosted by biotech titian, Dr. Stan Crooke. He is the Founder, Chairman and CEO of the n-Lorem Foundation.

Here’s how you can support our podcast launch: Rate & Review the podcast on Apple, Spotify, or wherever you listen. This truly helps us climb the charts and allow others to find the show. After you do that send it to a friend who you think will enjoy our podcast.

And good news, you don’t have to wait long for the podcast, we are launching next week on May 25th, 2022 with three new episodes! So hit that subscribe button.

For more information about n-Lorem and our podcast visit nlorem.org. Any questions can be sent into podcast@nlorem.org. Stay updated with the show by following us on social media, search “n-Lorem” on all platforms.

Our videographer is Jon Magnuson of Mightyone Productions. Our producers are Kim Butler, Amy Williford, Jon Magnuson, and myself, Kira Dineen of "DNA Today".

Transcript

Kira Dineen

We are excited to announce n-lorem's brand new podcast the patient empowerment program, there are podcasts about genetics and rare diseases. But we didn't find one focused on Nano rare diseases, conditions that affect 30 or less people in the world. Here's a sneak peek at what's coming up on the podcast.

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There are several genes that we've identified that have rare or novel genetic code changes that lead to these kinds of genetically inherited problems. Her legs shot up like planks and were stiff and she was scared. And that was the real moment where I thought something's horribly wrong that we heard the diagnosis KIF1A, it was accompanied by a few research papers, they said things like early death, brain atrophy, these words that were really hard to digest.

We heard about this amazing drug for spinal muscular atrophy. That just opened a lot of eyes like, wow, there's a therapy for this now. And I asked him, why don't we just personalize these drugs for all these mutations that we have Stan and all of the other scientists that n-Lorem have just an incredible insight to the chemistry of how this works and to be able to design what are very, very specific molecules to be able to do this. There's going to be two types of episodes on this podcast,

interviews and lessons. All episodes are going to be hosted by biotech Titan, Dr. Stan Crooke. He is the founder, chairman and CEO of the n-lorem Foundation. And good news. You don't have to wait long for the podcast we're launching next week on May 25. With three new episodes, so hit that subscribe button. Here's how you can support our podcast launch rate and review the podcast on Apple Spotify or wherever you listen. This truly helps us climb the charts and allow others to find

the show. After you do that send to a friend that you think will enjoy our podcast for more information about n-Lorem and our podcast visit n l o r e m.org. Any questions can be sent into podcast@lorem.org stay updated with the show by following us on social media just search nlorem on all platforms. Our videographer is John Magnussen of Mighty One productions. Our producers are Kim Butler, Amy Williford, John Magnuson and myself Kira Dineen of DNA today

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