Join our conversation with Brooke and Rafael as they recount their journey from the first signs of dementia to finding the right medical care. Their story is a testament to the power of early intervention and the importance of understanding complex symptoms, such as REM sleep disorder. Through honest dialogue, Brooke and Rafael offer a wealth of insights into navigating the challenges of Lewy body dementia, from initial tests like the Montreal cognitive assessment to treatment options such as Ar...
Oct 17, 2024•14 min
When Janet Kearns first faced the reality of Parkinson's, it wasn't just a diagnosis—it was a shadow of her mother's own struggle with the same disease. On the Parkinson's Empowerment Podcast, Janet's profound story unfolds, revealing how denial morphed into determination. Through the echoes of the past and the challenges of a global pandemic, Janet shares how exercise and the solidarity of a community became her cornerstones in the battle against Parkinson's. In a candid exchange, we discuss ch...
Feb 27, 2024•23 min
Val Muse is back, and her story is nothing short of empowering. When we last spoke with her, Val was navigating the early stages of Parkinson's disease, harnessing the power of the LSVT Big physical therapy program to manage her symptoms. Fast forward to today, and Val's journey has led her to the high-energy punches and uppercuts of Rock Steady Boxing. In this intimate conversation, she's here to share how this program has not only ramped up her physical strength but also instilled a mental res...
Jan 30, 2024•16 min
Ever wondered how a tool as simple as walking poles could transform the lives of those battling Parkinson's disease? Brace yourself for an enlightening conversation with Joy Cochran, a clinical evidence specialist for urban polling. Discover the fascinating history of urban polling and the unique features of activator poles that have become game-changers in our clinical practice. Hear heartening stories of improved posture and relief from joint pain, testaments to the power of these tools. Switc...
Dec 09, 2023•28 min
You've heard of smartwatches tracking your steps, but what about tracking Parkinson's symptoms? That's the reality with StrivePD, an incredible app developed by the team at Rune Labs. In a unique conversation, Brianna unveils how this free app, compatible with the Apple ecosystem, enables Parkinson's patients to closely monitor their symptoms, including tremors and dyskinesia. Originally created by Aura Oslapas, a PD patient herself, StrivePD was acquired by Rune Labs in 2018. Brianna shares how...
Oct 22, 2023•21 min•Season 3Ep. 4
Join us on a fascinating journey with Speech Language Pathologist, Brittany Peck, as we unravel the complexities of swallowing and what people with Parkinson's may be experiencing. Brittany's expertise illuminates how the reduction of dopamine, can lead to a slow-down in the oral musculature, causing difficulties in swallowing. Yet, as we learn, there's a beacon of hope with retraining and awareness. We discuss the clinical swallow evaluation process, potential treatments, and even share some ha...
Oct 05, 2023•21 min•Season 3Ep. 3
On today's podcast Dr. Gillum and I discuss the gut brain connection and Parkinson's, constipation and the steps you can take to ameliorate your symptoms and the connection between diabetes and Parkinson disease. Dr. Gillim received his medical degree from Stanford University School of Medicine And studied internal medicine and gastroenterology at Cornell University in NYC. Thank you taking the time to be on the podcast Dr. Gillim! Buzzsprout - Let's get your podcast launched! Start for FREE Che...
Aug 22, 2023•25 min•Season 3Ep. 2
Val had heard about boxing and Parkinson's and had been meaning to look into the program. She saw the Rock Steady Boxing Victor Magnet on a car at one of her medical appointments, and knew it was a sign. She took a picture of it and gave us a call. The trip to our clinic/gym was her first time meeting other people with Parkinson's. Listen to this episode and learn more about how Parkinson's presented initially and what she is doing about it now. Check out our website www.safeathompt.com give us ...
Jan 21, 2023•13 min•Season 3Ep. 1
Valerie Hall, a Medicare Advisor, has some great information on things to consider with open enrollment. Valerie's Medicare Corner (585)490-9491 vhall052@gmail.com There is great information in this podcast for people with and without Parkinson Disease. In network, out out of network.... what does that mean for you? Important information you should know before choosing a plan. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com ...
Oct 15, 2022•33 min•Season 2Ep. 1
See what has changed for Ivana since completing high frequency physical therapy and beginning PD exercise classes at Safe at Home Physical Therapy. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!
Sep 16, 2022•5 min•Season 1Ep. 13
Boxing exercises include training for agility, speed, reaction time, endurance, focus, hand-eye coordination, footwork and strength. Exercise to help slow progression and reduce symptoms must push the participants beyond what they perceive they are capable of performing. Our Rock Steady Classes in Victor, NY, are offered at two different levels so that participants get the most out of them, and those that need to can work up to being able to get to the level of working out with intensity. We als...
Aug 18, 2022•16 min•Season 1Ep. 12
Ivana, a retired kindergarten /4th grade teacher, and I talk about the improvements she saw in her balance and posture and overall mobility soon after starting the LSVT BIG program. She talks about her Urban Poling Stability poles and the benefits she has had since starting to walk with them. We talk about knee replacements, one last year and another scheduled for the end of this summer, and which class to begin after she graduates from this round of physical therapy. Ivana mentions that she doe...
Jun 09, 2022•25 min•Season 1Ep. 11
After being diagnosed 6 years ago, John shares what he is doing now to reduce the symptoms and progression of Parkinson disease, getting over the anger of having Parkinson's and how joining a group exercise class has helped him. We talk about making things automatic again other classes we offer in addition to Rock Steady Boxing Victor. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!...
Apr 23, 2022•18 min•Season 1Ep. 10
Jerry brings up the effect of PD on care partners, importance of exercise and support for them as well as for people with PD. Getting back to guitar and singing - practice, practice , practice. We talk about him sticking with exercise classes even though exercise is not his favorite ,and the importance of finding an exercise /activity you enjoy because if you want to keep doing the things you enjoy and be independent exercise is not a choice when you have a PD diagnosis. Check out our website ww...
Mar 26, 2022•18 min•Season 1Ep. 9
Thank you for your service Bob! We talk about what led to his diagnosis, services he receives from the VA, Walkers, why he thinks Parkinson's Disease is not the worst to be diagnosed with, and his busy lifestyle. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!
Feb 18, 2022•22 min•Season 1Ep. 8
Diagnosed ~ 7 years ago after observations made at a board meeting, Ron talks about his current struggles and what has helped him. He brought his list and we go through it all. From anxiety to bed sheets?!!! You definitely want to listen to this podcast. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!
Jan 15, 2022•21 min•Season 1Ep. 7
Suzanne, Owner of Speech and Communication Services in Brighton, NY talks about how speech therapists can help people with Parkinson's. She is a certified Speak Out therapist. We talk about Facial expression, cognition, posture, breathing, swallowing, eating out and the balancing act of Meds as well as why you should sing everyday. Does this sound familiar?.... I am speaking loud and clear.... you have a hearing problem. hmmm .... I hear this one a lot too. She is located at 95 Allens Creek Road...
Nov 22, 2021•18 min•Season 1Ep. 6
Nancy Nealon, LMSW Community Program Manager Parkinson's Foundation NY NJ, shares so many resources provided through the Parkinson's Foundation. If you have PD, are a caregiver or know someone with PD you will want to listen to this one! Parkinson’s Foundation Helpline: 1.800.4PD.INFO (473-4636) or helpline@parkinson.org PD Health@Home – Mindfulness Mondays, Wellness Wednesdays, Fitness Fridays: PD Health @ Home | Parkinson's Foundation Mental Health for Parkinson's Care Partners | Parkinson's F...
Nov 09, 2021•23 min•Season 1Ep. 5
Dr. Mooney, (AKA DOC or is it ACE ?) talks about his initial symptoms, meds, current symptoms, how he IMPROVED his golf game, and his current travel plans. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!
Oct 28, 2021•16 min•Season 1Ep. 4
Marilyn, diagnosed more than 20 years ago talks about what led to her diagnosis of Parkinson Disease. She enjoys hiking, boxing, attends sporting events and has an amazing blame no one, expect nothing philosophy. Listen to her advice to people newly diagnosed with Parkinson's and learn how she got her fighter name, ToughAsTeel, (we like to add an extra S in there). At 84 years old she is not stopping! Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email a...
Oct 16, 2021•15 min•Season 1Ep. 3
Chuck, a runner, guitar player and teacher. tells us what led to his diagnosis of Parkinson Disease and how he found that exercise high again. The book we reference in this podcast is Ending Parkinson's Disease: A Prescription for Action by. Ray Dorsey MD, Todd Sherer, PHD et al. and can be purchased on Amazon https://www.amazon.com/Ending-Parkinsons-Disease-Prescription-Action/dp/B085F33QWV/ref=sr_1_3?crid=31BO90PQPSBZW&dchild=1&keywords=ending+parkinsons+disease+book&qid=1633990333...
Oct 11, 2021•15 min•Season 1Ep. 2
In this podcast Laura Petruchik tells us what led up to her diagnosis of PD, how she is managing, coping while continuing to live an active lifestyle. Check out our website www.safeathompt.com give us a call at (585)398-6050 or send us an email at robin@safeathomept.com Thanks for listening!
Oct 03, 2021•12 min•Season 1Ep. 1
