Parkinson's Disease Story Exchange

What to Know | with Dr. Paulina Gonzalez-Latapi, Dr. Daniel G. Di Luca, Dr. Ece Bayram, and Dr. Johanna O'Day

There's several other hundred blogs, videos, and podcasts that hosts researchers and doctors for their own significant panel discussions. Still, there lacks a diversity in voices, experiences, and backgrounds within these panels. I wanted to challenge that. A few years back, I met with world-renowned clinicians across North America and asked them: What should patients know about most? From their diverse backgrounds, international experiences, and distinctive voices, viewers and listeners can fin...

Parkinson's Pill Bottle | with Brian Alldridge

Brian Alldridge is a renowned reality TV videographer. Brian designed a pill bottle after watching a Parkinson's patients' TikTok where he struggled to grab one of the medications in the container. Brian decided to fix that. The invention has 3 parts and an easy-to-use function for those with any movement impairment. Alldridge explains the motivation behind it, how to use it, and its impact with me. With a little CAD, a ton of searching, and a huge support from the internet, the TremorSafe bottl...

F**K PARKINSONS | with Steve Goldstein

Journalistic instinct and versed writer, New York native and Bethesda resident, Steve Goldstein retraces his story in this 2019 episode. He shares what it means to fight Parkinson's head-on until it gives up. A strategy he uses? Boxing. Listen more to find out how Steve punches his pain away and what he does to stay motivated on and off the ring. Special thanks to Steve for being one of my favorite interviews to date. Read more on Steve's article regarding Title Boxing Classes here: https://beth...

We're all mortals | with Ece Bayram, MD, PhD

Motor exams, neurological scales, cognitive testing, and observational interviews. We hear over and over how important Parkinson's research is. But what about the people behind it? She vouches to make every patient smile -- at least once. You'll hear from Dr. Ece Bayram. A gravitating force in her field with extensive expertise in movement disorders, neurodegeneration, and Parkinson's Disease, Dr. Bayram talks about the ins-and-outs of participant research and how she's reshaping the archetype o...

One more knot | with Steven Heller

Contributing writer for the New York Times, Visual Arts Director, author, designer, and expert in pop culture, Steven Heller is a force to be reckoned with. In this episode, Steven details his experience with Parkinson's Disease, unveils his own life experience, and grasps with reflections he's undergone since his diagnosis. To the fullest extent, Heller reveals his story in a truthful, insightful dialogue. Special thanks to Steven for allowing me to speak with him. To learn more about Mr. Helle...

Parkinson's Disease Story Exchange (Trailer)