Parenting Impossible – The Special Needs Survival Podcast - podcast cover

Parenting Impossible – The Special Needs Survival Podcast

Welcome to Parenting Impossible, the podcast dedicated to empowering and supporting the disability community. Hosted by Annette Hines, this podcast was born out of a mission to combat the scattered and sometimes inaccurate information that parents and caregivers of disabled adult children often face.In each episode, we delve into the pressing questions and concerns that weigh on the minds of the entire special needs community including those with autism, intellectual disabilities, physical disabilities, mental health issues and more. From navigating the complexities of special needs trusts and planning for the future to addressing the fundamental question of "How will my child be okay when I cannot do this anymore?"—we leave no stone unturned.Attorney Annette Hines is a special needs mom, author of the best-selling book Butterflies and Second Chances, national expert speaker, writer and contributor to publications, and founder of the Special Needs Law Group based In Massachusetts. She shares personal insights and her guests (parents, siblings, and experts and sometimes parents who are experts!) discuss many issues facing the special needs community including raising children with different abilities, transitioning into adulthood, sibling challenges and how to effectively navigate the complex systems in our world. We're not just here to talk; we're here to make a difference.In a society where the disabled and their caregivers are often devalued, Parenting Impossible stands as a beacon of advocacy and support dedicated to giving compassionate advice for all stages of life. Join us as we tackle the challenges, break down barriers, and strive to create a more informed and compassionate world for the disability community. Because when it comes to parenting in the face of impossibility, you're not alone—we're here with you.
Last refreshed:
Follow this podcast in the Metacast mobile app to refresh it and see new episodes.
Download Metacast podcast app
Podcasts are better in Metacast mobile app
Don't just listen to podcasts. Learn from them with transcripts, summaries, and chapters for every episode. Skim, search, and bookmark insights. Learn more

Episodes

274: Parenting in the Age of AI | Abby Brody, ​​Speaker, Author & Founder of the N=1 Movement

What if technology wasn’t something to fear, but something that could finally meet our kids where they are? In this episode of Parenting Impossible, Annette Hines sits down with Abby Brody, educator, innovator, and founder of the N=1 movement. Abby shares her powerful story of surviving back-to-back cancer diagnoses in her husband and young son, and how that experience reshaped everything from how she views education, to how she uses tech to advocate for personalized learning and healthcare. As ...

Jun 19, 202532 minEp. 274

273: A Mother’s Day Reflection: Making Space for Joy After Loss

As many of you know, this time of year is always layered for me. Mother’s Day brings both sweet memories and aching absences. In this episode of Parenting Impossible, I open up about my own motherhood journey. I’ve lived through the joy of raising two incredible daughters, and I’ve lived through the unimaginable grief of losing one of them. I wanted to share a few things I’ve learned along the way—things I wish I’d known when I was in the thick of it. To those of you parenting children with disa...

May 15, 202514 minEp. 273

272: Pooled Trusts 101: What Every Special Needs Family Should Know

When it comes to protecting a loved one with disabilities, few decisions are as overwhelming as choosing the right trustee. But in a world of nonprofit pooled trusts, legal jargon, and alarming headlines about financial misconduct, how do you separate peace of mind from potential pitfalls? In this episode of Parenting Impossible, I break down everything you need to know about Pooled Special Needs Trusts, from how they work to when they make sense. I share hard-earned wisdom as both a lawyer and ...

May 08, 202532 minEp. 272

271: More Than A Babysitter: Redefining Support for Families with Special Needs | Susan Asay, CEO & Founder of Apex Social Global Exchange Foundation

Caring for a child with disabilities isn’t just a full-time job, it’s a deeply personal, emotional, and often isolating journey. What if the support parents need wasn’t just about filling a shift, but about building a relationship? In this episode of Parenting Impossible, Annette Hines sits down with Susan Asay, founder of Apex Social Exchange Foundation, to talk about what it really means to find care you can trust. Susan shares her own story of juggling a demanding career, raising young kids, ...

May 01, 202549 minEp. 271

270: Play-Based Learning: How to Nurture Your Child's Unique Abilities with Jenny Nechvatal, Early Childhood Teacher, Author, Disability Advocate, & Support Coordinator

Workshops that equip educators to support children with disabilities and engage parents are essential in bridging knowledge gaps for better care. In this episode of Parenting Impossible, Annette Hines speaks with Jenny Nechvatal, an Early Childhood Teacher, Author, and devoted parent, who shares her journey raising three children, including twin boys diagnosed with level three autism. Their conversation explores the importance of accepting children's abilities and highlights the diverse support ...

Feb 13, 202532 minEp. 270

269: Embracing Imperfection: Parenting Through Chaos with Cynthia Di Filippo Elomaa, Author of Nicky’s Very Messy Room

Parenting can be a whirlwind of chaos and imperfections, but sometimes, it's in those messy moments that growth and learning truly happens. In this episode of Parenting Impossible, Annette Hines speaks with children's author, Cynthia Di Filippo Elomaa. Cynthia embraces imperfection and chaos in parenting, emphasizing that seeking support and tailored assistance is essential while recognizing that each child learns at their own unique pace. Her inclusive educational book series, "Nikki's Very Mes...

Feb 06, 202534 minEp. 269

268: How Embracing Culture Transforms Inclusion with Christa Preston, Founder & Executive Director of Embrace Kulture

Embracing culture is more than just a statement; it's a way of life. In this episode of Parenting Impossible, Annette Hines sat down with Christa Preston, founder of Embrace Kulture, to share her journey of fostering inclusion for children with developmental and cognitive disabilities in Uganda and East Africa. Inspired by her brother, Nick, and local Ugandan child, Olivia, Christa grew the organization into a fully Ugandan-led movement that has reached over a million people, influenced national...

Jan 30, 202553 minEp. 268

267: Proactive Caregiving: A Practical Guide to Fiduciary Responsibilities

Being a fiduciary is like being a financial superhero with great power and great responsibility. In this episode of Parenting Impossible, I break down the critical role of fiduciary responsibilities and how to navigate them effectively. Acting as a fiduciary goes beyond managing finances; it requires transparency, organized documentation, and a deep understanding of beneficiaries' needs to make informed decisions. Fiduciaries wield the power to make decisions that significantly impact others' li...

Jan 23, 202526 minEp. 267

266: Passion vs. Purpose: Driving Change for Individuals with Disabilities

Supporting the special needs community is crucial for creating an inclusive and welcoming world for individuals with disabilities. In this episode of Parenting Impossible, I talk about the importance of intentional planning to support the special needs community and ease the anxiety that often weighs on individuals with disabilities and their caregivers. I share my experiences and how thoughtful accommodations can make all the difference as a parent. Passion is important, but real change comes f...

Jan 16, 202524 minEp. 266

265: The Ultimate Checklist for Updating Your Estate Plan

In the ever-evolving landscape of personal and financial circumstances, regularly updating your estate plan cannot be overstated. In this episode of Parenting Impossible, I talk about why it’s so important to keep your estate plan up to date. Life happens—families change, finances shift, and you might buy a new property or start a business in another state. That’s why I recommend reviewing your plan every year and doing a deeper dive every three years, or whenever a big life event happens. From ...

Jan 09, 202524 minEp. 265

264: Avoid the Scarcity Trap: How the Disability Community Can Thrive Together

Individuals with disabilities often encounter significant hurdles in accessing quality healthcare due to limited accessibility options and a scarcity of available services. In this episode of Parenting Impossible, I address the challenges individuals with disabilities face in accessing quality healthcare, including limited services and barriers like Medicaid restrictions. I advocate for policy changes to enhance resources and emphasize the importance of building community to share experiences an...

Jan 02, 202522 minEp. 264

263: Building Letters of Intent: Your Guide To Safeguarding The Future of Your Children

The process of planning for the future of disabled children is often overwhelming. In this episode of Parenting Impossible, I share how planning for the future of disabled children is a daunting yet essential task for their well-being and security. I talk about setting big goals for their future, including where they will live and work, who will support them, and the importance of creating a letter of intent to document their needs, routines, and preferences. I also highlight choosing trusted gu...

Dec 26, 202449 minEp. 263

262: Patient vs. Profit: The Shooting That Exposed a Broken Healthcare System

The healthcare system is a battleground where profits often triumph over patient needs. In this episode of Parenting Impossible, I take a closer look at our profit-driven healthcare system after the assassination of UnitedHealthcare CEO Brian Thompson. Financial goals often outweigh patient care, with rising denials for essential treatments and CEO compensation tied to profits—creating a troubling conflict of interest. As a mom who fought tirelessly for my daughter’s Medicaid support, I know fir...

Dec 19, 202417 minEp. 262

261: Ending the Year Strong: Securing a Well-Managed Financial Future

As the calendar year draws to a close, end-of-year planning becomes essential for individuals seeking to secure their personal and financial futures. In this episode of Parenting Impossible, I dive into the importance of taking control of your finances with a proactive mindset. Instead of getting stuck on setbacks, I encourage you to focus on celebrating your wins and using them as a foundation to move forward. I share practical tips on keeping your asset lists and important documents, like lett...

Dec 12, 202417 minEp. 261

260: The Impact of Authentic Representation of Disabilities in Hollywood | Jay Silverman, Filmmaker, Director, & Producer

Filmmaking celebrates human connection and inclusiveness, with on-set moments of support and camaraderie often shining through on screen. Hollywood’s push to include actors with disabilities is opening doors to fresh stories and perspectives, making the industry more inclusive and inspiring. In this episode of Parenting Impossible, Annette Hines speaks with filmmaker Jay Silverman about his latest film, Camera . Inspired by his journey as a parent to a child with disabilities, the poignant story...

Dec 05, 202447 minEp. 260

259: Healing After Heartbreak: A Guide to Coping with Grief During the Holidays

Grief is an unpredictable force that reshapes life, much like crashing waves. In this episode of Parenting Impossible, I open up about my journey through grief and coping with the profound loss of my daughter, Elizabeth. There is no "right" way to grieve—it’s a deeply personal journey, and being gentle with yourself is important as you work through the pain. During the holidays, grief can feel especially heavy. Finding ways to incorporate your loved one’s presence into your celebrations can brin...

Nov 28, 202430 minEp. 259

258: A Guide to Trustee Selection & Protectors

Special needs trusts are an essential tool for families who want to ensure the long-term financial security of their loved ones with disabilities. However, I know firsthand how overwhelming and confusing navigating the world of trusts can be. In this episode of Parenting Impossible, I break down the essentials of special needs trusts in an accessible way. I share practical tips for choosing the right trustee and explain their responsibilities. Trustee’s are important—not just in managing the tru...

Nov 21, 202426 minEp. 258

257: Why Caregiving Moms Deserve Community & Care ​​| Jessica Patay, Author, Founder, & Executive Director at We Are Brave Together

Being a caregiver can be tough and sometimes lonely. For caregiving moms, having a sense of community and connection is essential. Whether it's sharing tips on managing hectic schedules or simply lending an empathetic ear, having a supportive network of fellow moms can make all the difference in navigating the challenges of motherhood. In this episode of Parenting Impossible, Annette Hines sits down with Jessica Patay, founder of We Are Brave Together. Inspired by her journey as a special needs ...

Nov 14, 202438 minEp. 257

256: How to Support Children in Times of Crisis | Celia Landman, Author, Nonviolent Communication Trainer, Mindfulness Educator & Counselor

Parents often carry a heavy weight of shame and self-blame when their children face tough times. It's natural for them to feel responsible, but it's important to remember that not everything is within a parent’s control. By staying present and connecting with themselves, parents can let go of the burden of shame and find a more positive, hopeful way forward. In this episode of Parenting Impossible, Annette Hines sits down with Celia Landman, a mindfulness educator and author of When the Whole Wo...

Nov 07, 202436 minEp. 256

255: All About Trustees: Navigating the Ins & Outs of Special Needs Trust Administration

Understanding the administration of special needs trusts can make a world of difference for people with disabilities, providing them with financial stability and peace of mind. These trusts—like third-party and first-party trusts—come with specific rules that trustees must follow to ensure the beneficiary can keep accessing essential public benefits. In this episode of Parenting Impossible, I talk about the importance of building a solid relationship between trustees and beneficiaries. Understan...

Oct 31, 202459 minEp. 255

254: Prioritizing Mental Well-being in the Modern Era | Lauren Perna, Writer, Speaker, & Advocate

For longtime listeners, it’s clear this podcast covers a wide range of topics—from family discussions about kids to conversations on adult disabilities. This conversation focuses on the challenges of balancing health and work while living with a chronic illness. Practices like meditation, journaling, and cognitive behavioral therapy (CBT) are powerful tools for managing mental health, offering ways to create a more stable and fulfilling life despite these ongoing challenges. In this episode of P...

Oct 24, 202441 minEp. 254

253: Finding Balance: The Dance of Advocacy & Parenting | Joanne De Simone, Author & Advocate

Parenting is a rewarding journey filled with love, laughter, and joy. However, it also comes with its fair share of challenges. From sleepless nights to tantrums in the grocery store, every parent faces obstacles along the way. But what happens when those challenges are compounded by raising a child with disabilities? In this episode of Parenting Impossible, Annette Hines speaks with Joanne De Simone, a special education advocate, and author of “Fall and Recovery: Raising Children with Disabilit...

Oct 17, 202437 minEp. 253

252:Empowering Parents with Practical Tips for Raising Deaf Kids | Alaine Jacobs, Founder & Advocate

Parenting a child with hearing loss comes with its own unique challenges and families may find themselves grappling with isolation and communication barriers. In these moments, community support and shared knowledge can make a world of difference. In this episode of Parenting Impossible, Annette Hines welcomes Alaine Jacobs, a passionate advocate for the deaf community. Drawing from her personal experience as a parent, Alaine guides and supports others facing similar challenges. With a backgroun...

Oct 10, 202441 minEp. 252

251: Breath by Breath: How We Do It | Jessica Fein, Author, Podcast Host, & Speaker

The journey of caring for a child with disabilities is a tumultuous emotional ride. There are highs celebrating achievements and lows during setbacks. It's important to recognize those feelings and find healthy ways to cope along the way. In this episode of Parenting Impossible, Annette Hines chats with Jessica Fein, author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the I Don't Know How You Do It podcast. Jessica opens up about her journey parenting a child with M...

Oct 03, 202436 minEp. 251

250: The Sound of Success: Breakthroughs in Music Education & Disability Support| Annie Ray, Annandale High School Orchestra Director, Performing Arts Department Chair, & GRAMMY Winner

Music has a way of connecting people, transcending language barriers, and healing the soul. The discipline and dedication required to master an instrument can translate into valuable life skills that go beyond the music classroom. In this episode of Parenting Impossible, Annette Hines spoke with Annie Ray, the founder of the Crescendo Orchestra program, a music class tailored for students with significant disabilities, and Parent Orchestra, which invites parents to join their children in learnin...

Sep 26, 202428 minEp. 250

249: Changing the Narrative on Disabilities in Kenyan Society | Thitu Muiruri, Filmmaker, Writer, & Director

Disability is a topic often surrounded by stigma and misconceptions, particularly within Kenyan communities, where the burden can become a significant financial strain on families. In Kenya, parents of children with disabilities face not only a lack of acceptance and support but also the heavy weight of stigma, which exacerbates their struggles. In this episode of Parenting Impossible, Annette Hines and Thitu Muiruri, an accomplished filmmaker, sheds light on the pervasive stigma surrounding dis...

Sep 19, 202436 minEp. 249

248: A Guidebook for Thriving Marriages & Sustainable Disability Parenting | Dr. Todd & Kristin Evans, Authors, Speakers, & Disability Parents

Parenting is a tough job and when you have a child with special needs, the challenges can be even more complex. From advocating for your child in school to finding the right therapy options, there are so many aspects of parenting a child with special needs that require extra care and attention. Amidst these pressures, marriages can face significant strain. In this episode of Parenting Impossible, Annette Hines, Todd Evans PhD, MA, and Kristin Evans MA, MS, LMSW explore the challenges of raising ...

Sep 12, 202444 minEp. 248

247: What’s Possible: A Roadmap to Success for Young Adult with Additional Needs | Graham Caldow, Author & Co-Founder of Red Giraffe

Transition planning from school to adult life is a crucial aspect of ensuring individuals with additional needs have the support and resources they need to lead fulfilling lives. With the introduction of the new transition planning IEP form, understanding its purpose and how it benefits those in the transition process is essential. In this episode of Parenting Impossible, Annette Hines and Graham Caldow dive deep into transition planning for young people with disabilities as they prepare for adu...

Sep 05, 202440 minEp. 247

246: A Caregiver's Guide to Nurturing Resilience | Michelle Mercier, Business Growth Consultant

Being a caregiver is a demanding role that requires immense strength, patience, and compassion. Caregivers often face challenges that can be physically, emotionally, and mentally draining. However, being resilient is crucial for caregivers to navigate the ups and downs of their caregiving journey. In this episode, Annette Hines and Michelle Mercier have an in-depth conversation about what it really means to be resilient as a caregiver. Michelle, a business growth consultant, brings a unique pers...

Aug 29, 202447 minEp. 246

245: IEP vs. 504 Plan: Making the Best Choice For Your Child's Education | April Rehrig, Special Education Advocate and Parent Coach

Navigating the world of IEPs (Individualized Education Programs) and 504 Plans can be overwhelming for parents and educators alike. Both IEPs and 504 plans provide essential educational support but differ in their goals, services, eligibility, and duration. IEPs offer specialized instruction with specific objectives and progress monitoring from pre-K through high school, while 504 plans ensure access and equity and can extend through college. In this episode, Annette Hines and April Rehrig, the ...

Aug 22, 202443 minEp. 245
Hosted on Libsyn
For the best experience, listen in Metacast app for iOS or Android