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NSGC Podcast Series

National Society of Genetic Counselorsnsgcpodcastseries.libsyn.com
The NSGC Podcast Series explores leading voices and best practices in genetic counseling. This podcast is produced by the National Society of Genetic Counselors. For more information on NSGC, please visit www.nsgc.org.
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Episodes

Bone Marrow Transplant and the Role of the Genetic Counselor

NSGC Podcast Subcommittee members Mary Pat Bland and Ryan Kuehl discuss genetic counseling considerations related to bone marrow transplant (BMT) with genetic counselors Kaylee Dollerschell, MS, CGC and Rebecca Tryon, MS, MA, CGC. During this episode, our speakers provide background information and terminology about BMT, overview of some hereditary conditions that may be treated with BMT, genetic testing considerations, and some details about the experience of undergoing BMT. These wide-ranging ...

Dec 23, 202255 minSeason 5Ep. 6

Spanish Language Genetic Counseling: Research and Resources

Join Podcast Subcommittee members Jessica Dronen and Naomi Wagner in conversation with genetic counselors Amanda de Leon, Priscila Delgado Hodges, and Charité Ricker. This episode was produced in honor of Hispanic Heritage Month (September 15th-October 15th annually in the United States). First, Jessica and Amanda discuss Amanda’s article in the Journal of Genetic Counseling entitled “Spanish language concordance in genetic counseling sessions in the United States: Counselor experiences and perc...

Oct 14, 202242 minSeason 5Ep. 5

Testing First and Counseling After: Population Genomic Screening and Genetic Counseling

Join Podcast Subcommittee member Mary Pat Bland in conversation with Marci Schwartz, ScM, CGC; Kelly Tangney, MS, LCGC; and Amy Curry Sturm, MS, CGC. This episode covers Marci, Amy, and team's article on the Journal of Genetic Counseling (JoGC) entitled "Genetic Counseling for patients with positive genomic screening results: Considerations for when the genetic test comes first" and is eligible for CEUs as part of the JoGC CEU program. Speakers discuss their work with the myCode Genomic Screenin...

Aug 31, 202248 min

Advocating for the Intersex Community: How to Begin Dismantling a History of Harm

About 2% of people are diagnosed as intersex, but there is a lack of research on the experiences of intersex people, especially in the genetic counseling field. Podcast Subcommittee members Liann Jimmons and Jessica Dronen interview genetic counselors Darius Haghighat, Kayla Horowitz, and Rebecca Freeman about their research and advocacy for the intersex community. We hope this conversation will help our listeners advocate for and empower the intersex community through their work. Click here for...

Jul 05, 20221 hr 10 min

New Directions in Newborn Screening: Krabbe and Beyond

NSGC Podcast Subcommittee members Ryan Kuehl, Liann Jimmons, and Jessica Dronen discuss the implications for healthcare systems and the role of genetic counselors in an evolving newborn screening landscape with Dr. Debra Lynn Day-Salvatore, MD, PhD, FAAP, FACMG; Amy Gaviiglio, MS, CGC; and Laiken Peterson, MS, LCGC. This episode discusses the Journal of Genetic Counseling (JoGC) article " A qualitative assessment of parental experiences with false-positive newborn screening for Krabbe disease " ...

May 02, 20221 hr 8 minSeason 5Ep. 2

Heart Health Advocacy: Patient and Provider Perspectives

Welcome to season 5 of the NSGC Podcast Series! We are kicking off the 2022 season with a discussion on cardiogenetics to honor American Heart Month. Join Podcast Subcommittee members Naomi Wagner and Mary Pat Bland, cardiovascular genetic counselor Nadine Channaoui, MS, CGC, and patients Rebecca, Abby, and Theresa as they share their personal and professional stories of FLNC gene mutation and the associated increased risks for sudden cardiac arrest. Our speakers are passionate advocates for inc...

Feb 28, 202249 minSeason 5Ep. 1

Fireside Chats with Mentors and Colleagues

To end 2021 on a lighter, more positive note, the members of the 2021 Podcast Subcommittee conducted one-on-one interviews with mentors and admired colleagues in the field of genetic counseling to discuss their accomplishments and aspirations for the future of the profession. Join us as Ryan Kuehl speaks with Shannan Dixon, Naomi Wagner meets with Michelle Fox, Rawan Awwad interviews Wendy Uhlmann, and Mary Pat Bland discusses with Karen Kovak. Thank you for listening to the 2021 NSGC Podcast se...

Dec 30, 20211 hr 1 min

Access and Service Delivery: Changing the Conversation

Join Podcast Subcommittee member Ryan Kuehl in conversation with Emily Boothe and Brian Reys from NSGC's Access and Service Delivery Committee. Emily and Brian share personal experiences with service delivery challenges and innovations and advice for tackling these issues in your own workplace. This conversation draws on the Journal of Genetic Counseling (JoGC) article " Genetic counseling service delivery models: A study of genetic counselors’ interests, needs, and barriers to implementation" ,...

Oct 27, 202139 min

Special Episode: J.E.D.I. - Next Steps After the Exeter Report Comment Period

In this special episode, Podcast Subcommittee Chair Naomi Wagner meets with NSGC Director at Large and liaison to the J.E.D.I Committee Jodie M. Vento and J.E.D.I Committee student member Brady Bunkleman to discuss comments received in response to the Exeter Report and next steps in NSGC's J.E.D.I. journey.

Sep 20, 202131 min

Addressing Information Gaps in Sickle Cell Education

This episode addresses genetic counseling topics that relate to sickle cell disease and sickle cell trait, discusses medical racism, and reviews the importance of accessible information and education related to sickle cell disease and sickle trait. Podcast Subcommittee member Mary Pat Bland meets with Dr. Tilicia Mayo-Gamble to discuss her Journal of Genetic Counseling (JoGC) article " Sickle cell carriers’ unmet information needs: Beyond knowing trait status", and Podcast Subcommittee Chair Nao...

Aug 31, 202147 min

Genetic Testing and Social Media: Growing a Space for Genetic Counselors

Podcast Subcommittee member, Ryan Kuehl, interviews Dr. Corey Basch about her JoGC article "DNA testing information on YouTube: Inadequate advice can mislead and harm the public" and discusses genetic testing information and misinformation in online spaces with Ms. Ellen Matloff. Ryan and Podcast Subcommittee Chair, Naomi Wagner, discuss the implications for genetic counselors' presence on social media. This episode is approved for the JoGC CEU program.

Jul 07, 202150 min

Special Episode: J.E.D.I. - NSGC & The Exeter Group Report

Podcast Subcommittee Chair, Naomi Wagner, meets with our former Chair and member of NSGC's J.E.D.I. Committee Khalida Liaquat to discuss how to engage with NSGC's Exeter Group Report. Make your voice heard during the open comment period, which will close on June 9, 2021!

May 26, 202122 min

Infertility from the Inside: Journeys of Loss & Hope

In this episode our hosts Naomi, Rawan, and Mary Pat speak with Katie Hornberger, MS, CGC, Annabel Adams, and Melissa Strassberg, MS, CGC on their personal and professional experiences with infertility.

May 03, 20211 hr 10 min

Genetic Counselor Awareness Day – Voices of our Community

Happy Genetic Counselor Awareness Day! This day is dedicated to empowering genetic counselors to help raise awareness and interest about genetic counselors in our communities and institutions and to help consumers understand the important and supportive role genetic counselors can play in their healthcare. To celebrate, the NSGC podcast team created an episode that highlights many voices from our profession. For this episode, we asked genetic counselors to submit short, anonymous audio clips des...

Nov 12, 202011 min

Genetic Counselors: Let's Talk about Disability

In this episode, our hosts speak with with Melanie Moshier and Sarah Hunt on their own personal experiences with disabilities and the intersection of these experiences and the genetic counseling profession.

Oct 30, 202042 min

#IAmAGeneticCounselor - What's in a Name?

In this episode, our host speaks with Chandler Means and Beth Denne to explore the title of Genetic Counselor and how it relates to our roles. To learn more, visit www.nsgc.org/podcasts

Feb 29, 202029 min

38th Annual Conference Interviews

Our hosts hand over the microphone to our guests, who interview one another at the Annual Conference in Salt Lake City, Utah on the evolution of our profession

Dec 20, 201955 min

Cultivating Cultural Safety in Genetic Counseling

In this episode, Kate Wilson and Khalida Liaquat sit down with Nicole Bertsch, Jenny Morgan, and Patricia Birch to further explore the authors' recent articles in the Journal of Genetic Counseling and shed light on genetic counselors cultivating cultural safety with diverse patient populations. For complete information on the speakers in today's episode, and on the NSGC Podcast series, visit https://www.nsgc.org/podcasts. Don't forget to subscribe to the show!

Apr 30, 201932 min

Self Care for Genetic Counselors

In this episode, NSGC is joined by Catriona Hippman and Colleen Caleshu to talk about self-care, mindfulness, meditation and other tools Genetic Counselors can use to tackle the New Year.

Mar 01, 201937 min
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