Up to 50% of women with Endometriosis experience infertility issues. This means that many eventually choose to go through the process of assisted fertility. Over the years, the success rates of assisted fertility methods have increased, and 1 in 4 treatment cycles are said to be successful. For those less than 35 years old, the success rates increase to 1 in 3. In vitro fertilisation (IVF) is when eggs are collected from the ovaries and then combined with the sperm in a laboratory dish, and any ...
Jul 22, 2020•30 min•Season 2Ep. 13
This episode, we will be talking about how to navigate an endo diagnosis, and the process, especially for those that are resident in the UK. Dr. Shaheen Khazali is an internationally renowned expert in advanced endometriosis surgery . His practice, both on the NHS and privately, is almost exclusively dedicated to looking after women with the most severe forms of endometriosis when the disease has affected other organs such as the bowel, bladder, ureters and pelvic nerves. He also sees and treats...
Jul 08, 2020•41 min•Season 2Ep. 12
Today's conversation is with Dr. Tayyaba Ahmed. Dr. Tayyaba is a doctor of physical medicine and rehabilitation, was trained at the New York College of Osteopathic Medicine , Northwell Health Plainview Hospital, and the NYU Langone Medical Center/RUSK Institute for Rehabilitation . A board-certified Physical Medicine and Rehabilitation physician , Dr. Ahmed is also a fellow of the Academy of Physical Medicine and Rehabilitation and a member of the International Pelvic Pain Society . After spendi...
Jun 23, 2020•38 min•Season 2Ep. 11
Pain is no stranger to chronic illness sufferers, in fact, sometimes it feels like we don’t remember what it feels like to be without pain. Many of us have been told that the pain is only in our heads, which only serves to unfairly invalidate what we are going through. But what exactly is pain? Is it caused by strange endometriosis implants in our bodies? Is it caused by inflammation? Is it caused by structural abnormalities within our organs, muscles, or bones? How are pain signals transmitted ...
Jun 03, 2020•25 min•Season 2Ep. 10
Many Endometriosis sufferers have either also been diagnosed with PCOS, or suspect that they have PCOS. Some of the symptoms suffered are similar and some of the deficiencies overlap. That's why we will be talking to a PCOS Expert today. Angela Grassi, MS, RDN, LDN, has spent 20 years as an internationally known nutrition and health expert on PCOS. She suffers from the disease herself and knows how frustrating it is to live with the disease. She provides help to people with PCOS to improve their...
May 20, 2020•26 min•Season 2Ep. 9
Today, we will be discussing the psychology of sex. This is a topic that makes many uncomfortable. There is a stigma when it comes to speaking about any difficulties one is experiencing with sex. However, many endometriosis sufferers are silently experiencing painful sex as a symptom of their disease. I will be speaking today to Dr. Lauren Fogel Mersy. Dr. Lauren is a psychologist, relationship therapist, and certified sex therapist. She specialises in sexual difficulties such as low libido, pro...
Apr 29, 2020•49 min•Season 2Ep. 8
Today’s conversation is with Katie Edmonds, a Certified Nutritional Therapist certified through the Nutritional Therapy Association and a Paleo Autoimmune Protocol certified coach. She founded Heal Endo, a diet and lifestyle approach to aid the body in healing from the worst symptoms of Endometriosis. Katie wrote a 100-page evidence-based book on the dreaded endo-belly, and has also authored the 4-Week Endometriosis Meal Plan . If you've battled with endo for years or are newly diagnosed, this m...
Apr 08, 2020•41 min•Season 2Ep. 7
It is hard enough that many of us have been going through pain and ill-health for so many years. Now we are told that most of our appointments have been canceled because of the Coronavirus (Covid19) pandemic. We fear that our ill-health could make us more susceptible to the virus. And all of these fears, stress, and worries result in endometriosis pain flares, to make matters even worse. So, the question is, are we at any more risk than other people? Listen to my thoughts on the matter. Remember...
Apr 01, 2020•8 min•Season 2Ep. 6
Today’s conversation is with Jessica Drummond of Integrative Women’s Health Institute. Jessica equips thousands of clients to start their own health coaching practices and regularly lectures on topics such as integrative pelvic pain management, natural fertility options, optimal hormone health, and functional and integrative nutrition for rehabilitation, nutrition, wellness, fitness, and medical professionals. If you enjoyed this episode, I would love to know. Join me on Instagram and Facebook ....
Mar 11, 2020•37 min•Season 2Ep. 5
Today's conversation is with a warrior. A warrior in name and deed. Alex has been through a lot with her endometriosis. The common myth to take out your uterus was debunked in her case as she presented with thoracic endometriosis even after her hysterectomy. Excision surgery was what gave Alex a chance to enjoy life once again and be present for her husband and her two sons. Alex is a voice and an advocate for women with endometriosis all over the world and it was great to have her on the show. ...
Feb 26, 2020•44 min•Season 2Ep. 4
My guests today are from Mendu, a community created for women and by women. Mendü is a Woman-of-Colour founded company. A space that helps you do wellness in a way that works for you. They teach you to take out all the unappealing parts of therapy and keep only the parts that make you feel good. Their goal is to make investing in mental & emotional wellbeing as vibrant and fun as the women they engage. Mendü are hosting a wellness event teaching people how to go from surviving to thriving on...
Feb 13, 2020•29 min•Season 2Ep. 3
Today, we are chatting to Stacey Foat, Naturopathic Doctor who found herself at menopause at age 27, and worked on her body and mind to achieve hormonal balance and wellness. Stacey is passionate about helping women with Endometriosis add tools to their arsenal that helps them fight the disease. She shares her 7 steps to achieving hormonal balance. To find Stacey and work with her, visit her website www.balancedbabes.net . She also has supplementary products to help you on your journey to wellne...
Feb 05, 2020•40 min•Season 2Ep. 2
“Endometriosis is not a fatal disease, but despair can be” – Nancy Petersen of Nancy’s Nook. Today’s conversation is with phenomenal pioneer Endo warrior, Nancy Petersen. She is the brain behind the Facebook Group, Nancy’s Nook that has helped thousands of women with Endometriosis. She is a retired Nurse who also battled with Endometriosis for years and got a hysterectomy, which of course did not eliminate the Endo. Nancy shares her knowledge on Endo, the resistance of doctors when it comes to t...
Jan 22, 2020•51 min•Season 2Ep. 1
"Live like the disease isn't there" - Cam Williams Living with chronic illness is a huge burden, one that sometimes feels too heavy to carry. How do we keep our smile? How do we rise above sickness and remember that there is more to life than just pain and more pain? Speaking with lovely Endo Warrior / Boss / Badass Cam Williams definitely reminded me to choose joy. Cam’s joy is contagious, and you wouldn’t believe everything she has been through. She refuses to let illness define her life, and ...
Nov 06, 2019•40 min•Season 1Ep. 8
This week’s episode is all about nutrition and how we can use it as a tool to fight endometriosis. Eating right is one of the hardest things to do in life, period! Whether you have endometriosis or not. So we are catching up with lovely Kristy Dishmon, a Nutritional Therapist, who will be dishing out lots of advice on the power of nutrition, how to read food ingredient labels, how to begin to choose the right foods when you have chronic illness and more. For more information about Kristy and the...
Oct 30, 2019•44 min•Season 1Ep. 7
Endometriosis is a beast. With it comes lots of challenges, a major one being infertility. 1 in 4 pregnancies result in miscarriage, and 1 in 8 women struggle with fertility. But up to 40-50% of women with endometriosis struggle with fertility. While the statistics look grim, we must do all in our power to improve our chances even with endometriosis. Today, we are speaking with Dr Haylee and Kristin, a Nutritional Therapy Practitioner. Haylee and Kristin both founded Tiny Feet, with the aim to h...
Oct 23, 2019•57 min•Season 1Ep. 6
Statistics say 1 in 4 pregnancies result in miscarriage, and 1 in 8 women experience infertility. So even if you are not experiencing infertility, someone you know might. With Endometriosis, the ante is raised even higher. Join me today as we follow Kunbi's story. Kunbi is an Attorney and Founder of lifestyle publication Perfête! She is a recent founder of TTFC- a community for those trying to freaking conceive. Kunbi is also an Endo sister who finally got her big fat positive after multiple cyc...
Oct 16, 2019•53 min•Season 1Ep. 5
What exactly is an ILU Massage? Why is pelvic health the missing link between Endometriosis and Pelvic Pain? Today's episode is with Amy Stein DPT. Amy is a Doctor of Physical Therapy, a leading expert on the treatment of pelvic floor dysfunction, pelvic pain, women’s health and functional therapy for men, women and children. She is the founder of Beyond Basics Physical Therapy in NYC. Amy is the author of the award winning book, ‘Heal Pelvic Pain’, an easy-read self-help book and she created a ...
Oct 09, 2019•39 min•Season 1Ep. 4
Does an Ultra-sound detect Endometriosis? Why do I still have so much pain after my surgery? Does pregnancy really cure Endometriosis? What are my options? Many Endometriosis sufferers have all these questions, but feel like no one, not even the medical professionals who we trust so much, can answer them. This is why I am so excited to be speaking to Dr Iris Orbuch in today's episode. Iris is an Endo Excision specialist and the Director of the Advanced Gynecologic Laparoscopy Center in Los Angel...
Oct 02, 2019•59 min•Season 1Ep. 3
Endometriosis and pelvic pain. Painful sex. Painful urination. Painful bowel movement. These are just some of the symptoms many of us experience, both during and outside of our menstrual periods. Many say endometriosis causes pelvic floor dysfunction. But what exactly is the pelvic floor? What are the signs that I have a pelvic floor dysfunction? And how does Endometriosis affect this? How can I improve my pelvic health? Today's episode is with amazing Nicole Cozean DPT, a Physical Therapist I h...
Sep 25, 2019•51 min•Season 1Ep. 2
Welcome to Not Defined by Endo Podcast, Season 1 - Episode 1. Our first full episode this season tells my endometriosis story. How it all began, and where I am on my journey now. As many chronic illness sufferers know, there never seems to be an end to the journey. But we each have a unique, though familiar story, and we need to embrace every aspect of our journey. Healing is never linear, so we take it one day at at time. My story is by no means done, and I would love for you to join me on this...
Sep 18, 2019•15 min•Season 1Ep. 1
Not Defined by Endo Podcast, hosted by Endometriosis Warrior Teniola Ogunro, is created for and dedicated to women who have been diagnosed with endometriosis, or who suffer from symptoms that they suspect to be caused by endometriosis. Every week, Teniola shares her own experiences, interviews health professionals and Endo specialists who provide their much-needed insight and speaks to fellow endometriosis warriors who know what it feels like to live with and fight an incurable disease....
Aug 18, 2019•3 min•Ep. 2
